Sept 2012 chemo

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  • Toastiecat
    Toastiecat Member Posts: 132
    edited January 2013

    Hi ladies,



    Wow, so many updates! Congrats to everyone who's finished chemo!!



    Amy, I had ocular migraines during taxol, something I'd never had before. Since treatment i have had morning headaches. My onc sent me to a neurologist. You may want to mention the headaches to your onc.



    I've been feeling kind of crappy lately...had rad number 13 yesterday, and I think the famous fatigue hit last night at dinner. I felt like someone took out my batteries! Also some killer joint pain, I guessfrom herceptin. Feel like I'm 100 years old. Blerg.



    I didn't qualify for metformin, so I plan to ask my onc if she will rx it. If not, I will ask my gp...some people on the metformin thread said they had an easier time getting from their GPs, perhaps because they write so many more Rxs for it.



    Okay, so I'm not the only one with crazy sweet tooth?? I've gained about 7-9 lbs since the start of this. It's weird because I feel like I eat so little at meals...but then I guess I gorge on cookies later. I STILL have this fucking drain in from my surgery in December, and I feel like it limits my exercise. I already popped the stitch once. I usually walk about 2 miles a day commuting,so that's something, but not enough. Starting PT next week for my shoulder, which hasn't been right since surgery. Ugh! Sorry, needed to vent.

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    Hiya toastie, I just started PT for my shoulder, arm too.  I think it is really going to help. 

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Whenlife - I miss my nose hairs too!  I told DH we needed to invest in kleenex!  Tempted?  I have walked around with tissues shoved in my nose.  My DH and I have had a lot of laughs with it.  Problem is, what do you do at work?  I am facing the same issues.

    Cindi - Glad you were able to go to Epcot and spend time with your family.  What a great place to go!

    Toastiecat - I hope the drain can be removed soon!  Did they give you an estimated time for removal?  I can't believe you are walking 2 miles a day-that's great and so motivating to me.  Good luck with the PT; it should really help.

  • Cherioo
    Cherioo Member Posts: 305
    edited January 2013

    Happy Saturday, I hope all of you have a wonderful weekend. Today I actually mowed the lawn and bought some mulch and planted . It felt great to be outside and doing lawn work. It has been so long since I have done that . My body is sore a shit and my right side is sore where my boob was, but I enjoyed my day. My DH took the kids out all day so that I could do the lawn. That has always been therapy for me. Day four of Tomoxifen and feel ok . I am weening myself off zoloft due to the interaction with the Tomoxifen



    Mariposa I hope you feel better and all of you that just finished or are close to finishing have no SE .



  • bearcub
    bearcub Member Posts: 485
    edited January 2013

    Cherioo, I have a hard time imagining mowing the lawn in January. I won't see the lawn until May. It must have been beautiful out enjoying the yard, I am jealous.



    Cindi only 5 left, look how far you have come and then rads, and I will tell you rads are easy compared to what you have been through. You are almost done. Glad you had a great day with your family.



    JoJo my story is the same as yours, lost 30 lbs the yr. before my Dx and was in the best shape, frame of mind doing everything right.....and blah blindsided with the Dx..I did keep up with most of my exercising through chemo but still gained...I will admit I am a emotional eater...



    I have been slack assed as far as exercise since Christmas, just before I had been on track and lost 3 lbs and then I dropped the ball. Thanks to all of you getting back and on track and giving me some inspiration I did 13 km. (8 miles) on the stationary bike today and 50 side bends and 50 twists from the waist. My MO does not want me doing anymore than that on the bike since herceptin is hard on the heart....so I have to make this work for me. I do hope to take Emma(my dog) for a walk tomorrow.

  • florbo
    florbo Member Posts: 178
    edited January 2013

    Hi Ladies,

    I hope that all who have been feeling crappy are feeling a bit better.  My boys (7 and 10) were just looking at the posts here and saying prayers for "all the super-strong ladies fighting cancer."

    All who are exercising and were on adriamycin, did ya'll wait until after your cardiac echo before upping your exercise routine?  I've been really inspired to get back in shape with what everyone is doing.  

    Cheerio, I can't believe you did all that yardwork!  You rock!

  • bearcub
    bearcub Member Posts: 485
    edited January 2013

    Florbo I had a muga scan(for the heart) before adriamycin so I was fine to exercise while doing chemo.



    Your little guys are such sweethearts! Hi guys and thank you for the prayers.

  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    I was naughty tonight!! You know I've been off chemo for three weeks so tonight we went to some friends house for dinner and I had three big girl glasses of wine. I haven't had any alcohol for a long time. And I don't feel guilty cause I know that's it for another long while since I have surgery soon. Ahhh, to feel normal again.



    Cherrio...Mowing the lawn??? I can't stand to be outside. It is so cold here. Must have felt good though. I love to mow the lawn. I have to fight my husband to be able to do it



    Toastiecat...I can't believe you still have a drain in AND you are walking two miles a day!! Good for you.



    Guess I better go to bed! You ladies are probably already there since most of you are at least three hours ahead of me.

  • Foreverchanged72612
    Foreverchanged72612 Member Posts: 223
    edited January 2013

    Whenlife: yes!! The nosehairs thing drives me nuts!! I hate having to walk around with tissues on hand. I have a box in every room in the house.

    I, too, have gained weight during this chemo journey (12 lbs). It's been one week since my last FEC treatment and as usual it feels like I'm coming out if the fog so here's to hoping I'll get back on track with my treadmill exercises. I had a neulasta shot this round so hopefully no more hospital surprises this time.

    I love hearing everyone's stories of what they've done when finishing chemo. It's weird and it's scary in a way because it's been so much a part of me these past six months. But finishing it is such a huge milestone and I appreciate being able to share that moment with all of you amazing women!!

  • Foreverchanged72612
    Foreverchanged72612 Member Posts: 223
    edited January 2013

    The temperature creeped up around melting this morning and the snow was just right to make the PERFECT snow fort with my boys. Yes, I could have been cleaning or grocery shopping but as Patricia says: YOLO!!! 

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Morning All,

    Cheerio - OMG!  You mowed the lawn-did yard work?  I feel like a slug. Ugh.  I'm glad you enjoyed your day, but don't push yourself too hard though.  I find that when I am having a good day, I forget my body is still recovering and I push too hard.  Then, I find myself paying for it later.  I believe that is why I am so sick now.  Please be careful.

    Florbo - How sweet of your boys to keep us in their prayers.  My hat's off to all the ladies on the board that have children.  You are an inspiration to me!  You're still taking care of your families while enduring all this.  It is just my DH and me.  Yes, we are all super strong ladies. : )

    Florbo & Bearcub - I had an echocardiogram before (adriamycin) treatment began (all good).  I asked MO if I was going to have another one after I was done with that and she told me no.  Is this what you were also told?

    Hope - You go girl!  Glad you enjoyed the wine.  Wasn't it great to just relax and have a good time?

    Well, the sun finally came out and I just may go sit outside for a little while  and drink my tea (it's 73').  Some fresh air may do me some good.  Have a wonderful day ladies!!

    Hugs : )))



  • butterfly14
    butterfly14 Member Posts: 253
    edited January 2013

    Faith - I was told the same the about not getting another echocardiogram. Had one before they started the adriamycin, With the tissue expanders it was not easy for them to do.

  • Cocobean
    Cocobean Member Posts: 135
    edited January 2013

    Congrats to those who have finished chemo! Yay! I hope you are feeling ok...I know for me the last one was tough, but it does feel great to be done with the cycle and know that everyday you will be feeling better. 

    To those ladies who are getting close to the finish line, hang in there. I hope that these last treatments are easy on you and the time goes quickly. 

    I can't believe how far we have all come. I remember coming on this board with questions about my hair falling out and feeling so much support and encouragement and knowing I was not alone...geez it feel so long ago!

    I'm 2.5 weeks PFC and feeling pretty good...more tired that usual. I have been to the gym a couple times, it's been bittersweet. I love the feeling of normalcy it brings and know that I am doing something good for my body is great, but it's also hard because I am so slow and get winded so easily, I feel I am so far from where I was before all of this...I know I need to be patience and try to accept this is where my body is now and believe it will get better. Plus I have a feeling my red blood count is low, so it will be interesting to see what the dr says when I go in next week for herceptin. I have mapping for rads on Tues, Herceptin on Wed, rads practice run on Fri and start rads on Mon...sometimes this is a freaking full time job! 

    Toastie-Damn girl, a stubborn drain and you're walking 2 miles a day, impressive and I hope you get that thing out SOON! 

    Cherioo and Faith-so jealous you have a lawn to mow and it's 73! Enjoy! It's crazy cold here, just starting to get a little cabin fever and winteritis...planning on heading to Florida for our spring break and really starting to look forward to it! 

    Hope- Cheers three times! good for you! 

    Doing a Costco run today and on the list is Kleenex...no nose hair and my runny nose is outta control...ugh! We'll probably run out in a week with the way things are going. 

    Big hugs to everyone! 

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Hope, cheers as well. I have enjoyed some wine through this and love how it makes everything feel normal.



    Regarding the Adriamycin, my MO said same. No repeat echo unless I had heart prob symptoms.



    Cherioo, wish I was doing yard work. supposed to be only 19 here tomorrow.



    Nose hairs, been through the same. Finally getting a few back now. What a difference with the drainage!



    6 weeks tomorrow PFC and hair sprouting everywhere. My brows and eyelashes returning. Funny I looked in mirror and see a dark shadow on brows.



    Watching football games here and snacking. Who ever starts a diet on Sunday?

  • bearcub
    bearcub Member Posts: 485
    edited January 2013

    Faith I do continue to have my heart monitored only because I am Her2+ and am on herceptin, the drug can be hard on the heart so we are monitored every 3 months.

    I will say my heart function before and after adriamycin showed no change.

  • Cocobean
    Cocobean Member Posts: 135
    edited January 2013

    Jojo- love to hear you are sprouting hair! thanks!

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited January 2013

    Wow Jojo- 6 weeks PFC!!!  That went by fast didn't it:-)  So cool you are growing lots of hair.  I can't wait!

    Hope everyone is keeping toasty warm.  I am still in the chemo recovery stage- but feeling light years better than I did yesterday.

     



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  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Thanks Bearcub for the info on the heart scan.  I am Her2- so I guess I am all done.  I do remember the technician having a difficult time doing the scan because of the tissue expanders.  It was uncomfortable.

    Jojo-I'm four weeks PFC and just noticing the smallest hint of eyelashes returning.  Not much else going on other than my eyebrows thinning even more.  Perhaps in two more weeks, I'll start seeing some small sprout growth.

    Glad to hear your feeling better Mariposa.  I still can't shake what I've caught.  Going to lay down again...

  • fight4two
    fight4two Member Posts: 146
    edited January 2013

    I'm 3 weeks PFC and have been seeing some sprouts since a few weeks after starting Taxotere.  I can see it best if the sun hits it at the right angle when I'm looking in the mirror.  There is definitely no "shadow" and I still look completely bald from a distance.  I can't wait to have a shadow.  And there are so many areas with no growth.  No growth of eyebrows or eyelashes yet.  Sad that I will not be able to wear makeup in surgery, as I've been keeping my eyebrows drawn in so I wouldn't lose the shape. Once I take off the makeup, not sure I'll be able to replicate the original shape!  BTW, is it true that you can't wear ANYTHING in surgery?  I hope they at least lay something over you??

    Mariposa - were you able to keep the hair growth that started when you had your month off in December?

    I had an echo done on Thursday because I have a resting heart rate of 120-130 bpm now! EEK!! Hoping the results come out fine.  Maybe its pre-surgery jitters.

    Well, ladies, I have my surgery scheduled for this Monday, Jan 21st.  Anyone who believes in prayer, sending out good wishes and good vibes, etc, please keep me in your hearts and thoughts on Jan 21.  I am so nervous and am just getting over a cold (and hoping that doesn't affect the anesthesia!).  I NEED YOU GIRLS!!!!  Can't wait to come back on to these boards after the surgery to tell you all that it went smoothly and that I'm OK.

    Hugs to you all!

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Fight, just went through exactly the same. Prayers for you, you will do well. No makeup or head coverings before. My family commented on how bad I looked after. They said I looked like a true cancer patient. Hello - that is what I am! In hindsight, it was just one day and so small in the total journey. Don't worry, focus on healing.

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Fight4two - I will be saying prayers for you!  You are in our hearts!  Everything will be okay!  Only positive thoughts!  When they are taking you into the operating room, just breathe.  Talk to your surgeon for a few minutes right before.  I did and it was very calming for me.  I also told the nurses how nervous I was and they were fantastic.  We'll be looking for your update.  God bless.

    ps-Hospital gown and socks - that's all I was permitted to wear.  No makeup, no nothing.  It's okay.  Don't even give that a second thought.  Focus on your recovery.    :)))

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited January 2013

    flight for two:  I am sending you tons of positive energy, prayers, and happy healing thoughts for tomorrow!  I totally understand how scary the whole thing is (I will be facing it in a few weeks).   I have been having so much fun lately visualizing this strong version of me who made it through six rounds of chemo and keeps fighting.  I know you have one of those amazing warrior women inside you to.  Call on her to face this surgery and to help you get through it:-)  You can do it!!!Can't wait to hear from you after it is all done.

    As for my hair- It stopped growing during my last two rounds of chemo, but didn't fall out either.  So hopefully, it will start growing again soon.  I definitely have sideburns now -which is cool.  I only have half eyebrows on each side, and my eyelashes are beginning to fall out.  Sucks.  I watched a video on "tightlining" your eyeliner- so I think I will have to try that out. 

    Artwise, I have been doing a ton of photography and playing with the images in photoshop.  So much fun!  I am hoping to take some more pictures tonight that I can play with.  I figure, I will only be bald once!  I also thought how cool it could be to do a book of these type of photographs of different women going through chemo.  Anyway, I thought I would share:-) 

     



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  • JodiRocksthePink
    JodiRocksthePink Member Posts: 23
    edited January 2013

    I just watched Oprah' s Lance Armstrong interview.....I hear and agree that he is a cheater, a bully and a scam artist. I can't help but wonder what exactly was his doping cocktail? Did that help keep his cancer at bay? Could something good for cancer research come out of this? Anyone else wondering that?

  • butterfly14
    butterfly14 Member Posts: 253
    edited January 2013

    fight4two - sending prayers and positive thougts your way!!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited January 2013

    fight4two-Sending you lots of HUGS and positive calming & healing prayers, thoughts and energy!!!!  We are in your pocket and will be there with you tomorrow.  Keep taking those deep breaths to help calm yourself a little.  I'm sure you have your overnight bag packed and ready to go.  You will be fine tomorrow in the pre-op room.  As i recall, I got to wear those lovely compression socks and was hooked up to some inflating/deflating socks to help prevent blood clots.  Those were fun......  I also had a anti-nausea patch placed behind my right ear; it is the kind that one uses for seasickness.  Yes, it did work since I didn't have any post surgical nausea from the anesthesia.   My husband told me that the recovery nurses told him that I was smiling as I was being wheeled out of surgery into the recovery room.  Somehow, my hard wired brain knew I had made it to the other side.  Hope tomorrow you will also have a large smile on your face when you wake up from the surgery.  Again, many many prayers for you and yours. 

  • bearcub
    bearcub Member Posts: 485
    edited January 2013

    Jodi I also watched the interview, and kept saying the same thing, what the heck did they give this guy that beat his cancer. I hope someone will start asking that question.



    Fight4two sending healing thoughts your way.

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Fight4two.... Prayers and positive thoughts for you! Your gonna do great...focus on the good things that will.come out of this surgery. Hugs :)

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited January 2013

    fight4two I will be quietly cheering for you tomorrow!

    Mariposa, absoultely love the new art!

    I too watched Lance #1 and PVR's #2 as we were at Whistler (ski resort in BC) for the weekend and so will catch up on #2 soon. DH and son off to Canucks game #2 so house to myself tonight. I had never thought about his doping regime and cancer/treatment but it will be interesting to see if this ever comes up with the talking heads. 

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    fight4two - sending you love and strength and smooth procedure and enlightened surgeon and clean margins and no spreading.  Try to relax.  My bp in prep for surgery was 90/63.  Breathe. Smile. 

    Be friendly to your anesthesiologist ;)  I called mine the Sandman.  He's never been called that but had a belt buckle with that on it :D  He took real good care of me AND kept a good eye while I was out.

    I wish I could be there with you - to hold your hand.  We'll all be with you in spirit.

  • florbo
    florbo Member Posts: 178
    edited January 2013

    Fight4Two--sending you prayers for a smooth surgery and quick recovery.  

    FaithFoucsFinish and Bearcub--my MO wants me to do another cardiac echo before I ramp up my exercise routine.  Ramping up at this point would be climbing the stairs 4 times in the row for me.  This last Neulasta shot is lingering around longer than usual.

    Jojo- that is great to hear that you are sprouting!

    Mariposa--your art is amazing.  Hope you feel better soon!

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