Sept 2012 chemo

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  • Cherioo
    Cherioo Member Posts: 305
    edited January 2013

    Amy, that is awesome

  • Cherioo
    Cherioo Member Posts: 305
    edited January 2013

    Went to have my fitting for radiation today finally. . I was nervous but once they started I felt much better. I will find out next week when I start my 28 days

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Amy, very touching. I have had my dinner bought a few times, was so overwhelmed.



    Cherioo, almost rad time!



    Went to MO appt, wont start tamoxifen till rads finished. Metformin trial closed so wont be in that. She reminded me I have gained some weight ( surprise). I got the clearance to diet so I am ready too! Officially 12 lbs to lose,,,ugh.



    Went before MO visit for port flush. Was so like preparing for chemo. She used same port needle, 2 saline syringes, 1 heparin. After MO visit needed blood work done to check my liver enzymes, so back to get another port needle and blood draw. More saline and heparin. Quite the day.



    Doing a heating pad on breast/arm swelling and my "walk the wall"exercises.

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Happy Friday everyone!

    I stayed home for work yesterday - did not feel well.  Went in today for about 3 hours total.  I have all the symptoms of the flu.  Been in bed all day and just got up to eat some toast.  Ugh.

    I know some of us are missing our moms; me too.  The anniversary of my mom's passing was last Friday.  She's been gone 7 years.  I often wish I could get a big hug from her ... talk to her ... I miss her so much.

    Timbek - Congrats on being an aunt again!  Neices are wonderful!! : )  The other good news is that you only have 2 more to go.  Yay!

    Amy - Someone is paying it forward!  Thanks for sharing this wonderful act of kindness. What a delightful surprise!  

    Neta - I really want to ramp up on my walking.  When I get past these flu like symptoms, I plan to start up again.  Slowly - even if I'm shuffling down the street. : )  We had one box of chocolates left over from the holidays and I decided to toss them.  Don't want the temptation around.

    Cherioo - You can do this!  I'm glad the appointment went smoothly.

    Jojo - Really, we need to be reminded that we've gained weight?  I was weighed everytime I went in for blood work.  Do our doctors think we don't know the little dial keeps moving?  Glad you received clearance.  I've been cleared to walk only (beyond the wall!).

    Hugs : )))

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    {{big huggs to you all}}  I'm loopy from the chemo......weird thing though, I fell asleep when I got home(?) Is this normal for weekly infusions?  Usually the steroids have me cleaning house.

    AMY- I got a cami from Nordstrom's. Prescription from BS. Its www.Softeeusa.com but they don't show mine on their site.  Mine zips up the front.

    Aww, Faith, my mom's anniversary of her passing was yesterday (11 yrs gone). ovarian and uterine cancer. She was 61. Love to our moms.

  • Foreverchanged72612
    Foreverchanged72612 Member Posts: 223
    edited January 2013

    That's amazing, Amy!!

  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    Amy..that is so cool! Very touching!



    JoJo..I've got my Smooth move tea. Chocolate flavored!



    Timbek...you are almost done! Pretty soon this will all be behind you and you can focus on your shopping trips with your new niece.



    Faith..Feel better soon. I had two days this week that I felt I was going to throw up. Feel much better now.



    Today was my last day of work for about three weeks until after surgery. I was overwhelmed by gifts, hugs and tears. Very touching!

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    HOPE, great time to relax and get ready. 

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Thanks for the well wishes Hope.  Take these three weeks to get yourself prepared, in the home, physically and mentally.  Also, take out some time just before to get plenty of rest.  Don't over do it!  I'm heading off to bed.  Still not feeling too well.

    Hugs : )))

  • florbo
    florbo Member Posts: 178
    edited January 2013

    JoJo, thanks for the reminder about the constipation post op.  What is the Smooth tea?

    Timbek, you are so close to finishing!  Hang in there!

    Mariposa, I hope you are feeling better.

    Amy, what a wonderful, wonderful surprise.  

    Neta, English Rose, Bearcub, PatinMN--have ya'll been working out this entire time?  I am only able to walk around 30 minutes before huffing and puffing.  And this is usually my good week.

    Hopex3 and English Rose--I'm sorry to hear about your parents.  They raised great daughters.

  • PatinMN
    PatinMN Member Posts: 920
    edited January 2013

    Florbo, I was able to exercise throughout chemo, but I had weekly taxol which is a much easier chemo than most. I did not do that much - just walking on the treadmill and some weight machines for arms, mostly. Part of it was that I didnt want to sweat too much because I did cold caps and was limited in how often I could wash my hair. I need to begin to ramp up the level of effort pretty soon!

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    FLORBO, its SMooth Move tea - like Hope, I just got the chocolate flavor too - yums
    I did NOT have it post surgery, now I do and it is working PERFECTLY!!!  You drink it at night, then in the a.m., VOILA!  Though, I took mine yesterday morning and again last night.....

    FAITH, sleep well, hun, hope you feel better soon

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited January 2013

    Hi Everyone,

       I am still feeling pretty crappy- but trying to get out of bed.  I find that the more I lay there, the worse I feel.  I hate it.  Everything smells bad, tastes bad, I hate being touched, I am cranky... not fun at all.  I had a bought a "special" cookie when I went to the dispensary the other day.  I ate half of it yesterday.   It made me soooo sick.  I laid in bed feeling paralyzed for six hours.  Awful  Awful.  I am sticking to lollipops and my foot cream from now on! 

      So sad to hear about everyone's moms.  I think they would all be so proud of you to see how you are all fighting.  My mom had Hodgkins Lymphoma three years ago.  She just went in for her checkup yesterday and is still in remission.  She has given me lots of chemo pointers on this journey- and has knitted me some pretty sweet hats too.  My heart goes out to everyone who misses their mother.  I remember telling my mom that my having cancer could be worse... my daughter could have cancer.  She started crying, and said, "But that is what is happening to me.  My daughter has cancer."  

     I didn't have my daughter until I was 39 - my son when I was 42.  I have always been so worried about being an older mom.  I remember this crazy woman at my office (another therapist of course) told me that it would be nice when my daughter got older because she could help everyone else when their mother's die because she would have already been through it.  For some reason, lately, that has been stuck in my head.  Irritating.  And not very helpful.

    Amy:  That is so awesome about the gift!!! I have to say that I don't think it was so random though.  You must be someone pretty incredible to make people want to give to you in that way.  I keep thinking about how I want to pay forward all of the nice things that people have done for me when I am all healed up.  I can't wait.

    Timbek2:  Congratulations on the new neice coming in June!  I love buying cute clothes for little girls!!!  Check out crazy8.com   They have no shipping this weekend. 

    Jojo:  Did you ask your oncologist if he might give you the metformin anyway?  I have been wondering about that.  My MO hasn't said I don't qualify as of yet.. but who knows.  I want the drug!  Plus it would help with weight loss and my crazy sugar cravings.  All good.

    Hopex:  Is surgery next week?  It sounds like your workplace was wonderful to you:-)  I am glad!  You deserve it.  Did the doctors say that 3 weeks was enough time for BMX?  I am just wondering for myself.  I was hoping to go back to work in early March, but now surgery has't been scheduled until February 20th... so who knows.  Although, I really don't want to go back to work.  I just need to financially.  Yuck.

    Okay ladies.  I am feeling crampy so I better go to bed. 

     



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  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    {{sweet gentle huggs mariposa}} I wish we could all feel better, in the least, just to get through all of this.

  • bearcub
    bearcub Member Posts: 485
    edited January 2013

    Congrats to everyone finishing chemo, we sure have come a long way since Sept.



    I find every time I think about my last rad day, on thursday(4) left, I get this emotional feeling overcome me and I just want to have a good cry. I hope I can hold it together but I have a feeling I will cry driving home in the car. It has been 8 months since I went for my original mammogram on May 25th...I can hardly believe the worst is over, and that I actually did it.....I still have to do herceptin till Nov. but that just feels like nothing compared.



    Neta yes I am ready to get this 14 lbs. off. I will post how things are going and my workout.



    Sorry about the loss of so many moms, my mom died in 1998 from lung cancer, at 65, she was a heavy smoker. My dad died in 2007 from lung cancer and he was a non-smoker. I hate cancer....

    I have seen so many very sick people at the cancer clinic, it just breaks my heart.

    I hope everyone has a lovely weekend
  • EnglishRose75
    EnglishRose75 Member Posts: 147
    edited January 2013

    Hi everyone.  Happy Saturday!

    Excellent idea for us all to post progress on exercise and weight loss.  I didn't work out through chemo but was pretty active most of the time.  I walk alot and I find it to be a good way to clear my head (or escape from the children for an hour or so!).  I am lucky in that I didn't gain any weight during chemo, and in fact lost a pound or two.  I think that this is because I used to drink wine quite regularly with dinner and I don't do that any more so my calorie consumption has probably gone way down.  I was on a big weight loss kick before diagnosis and had lost about 12 pounds, so I'm going to get back on that.  Need to lose another 12 or so.  I'm doing the London Moonwalk marathon (walking) in May to help raise money for breast cancer research, so need to get in good shape for that.

    Bearcub, I hear you on the emotion around coming to the end of treatment.  My last session will be on the 30th, and I've been thinking about how I will feel walking out of the hospital that last time.  I'm going to ask my good friend to go with me that day and go to lunch with her afterwards.  And probably some shopping too--I've had my eye on a very extravagant and highly over priced bag which I might just treat myself to as a reward!  I've also arranged to have a few sessions with a counselor who is a cancer survivor specialist, just to give me a few tips and techniques to cope with the aftermath.

    Hope you feel better, Mariposa.

    Amy, how great that someone did that for you. 

    Snow here today--sledding with the kids!

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Good morning ladies! Been feeling pretty good the last few days I'm jusy ao thankful chemo is done... Def feels so strange.though like I am forgetting to do something.



    Wednesday is my baby boys 8 th birthday so today we are taking him to craigs cruisers with a friends they have gocarts, lazertag, pizza and video games plus more! Should be lots of fun.. I still cant believe hes 8 :/



    We live in a very small town 1 stop light and a pop of 1700 people this.community has overwhelmed me with support! It has been amazing..... They already gave me a benefit and raised a great amount of money. So the surprise in my bank account yesterday was def unexpected since they have already done so much. But at the same time it could not of come at a better time, since I am going shopping for a recliner next week for surgery...



    Did anyone else have more headaches than usual after chemo? Maybe its the build up of taxol but in the last week Ive gotten two migrains.



    Hopex.... I too had a couple days where I felt nauseous... Not sure if its chemo related or what but not liking it..

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Oh one more thing.... Yea we should encourage each other on the exercise for sure! Lord knows I've gained.more than I care to say. I am still working on the treadmill not as much as I would like but we gotta start somewhere. This morning Im going to force myself to get mile in.

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Happy Weekend!

    Mariposa - I am going back to see my MO in 6 weeks and will ask then.  With her saying yesterday she didn't want to do anything till rads was complete, it didn't seem like the right time.

    I need all the support you guys can give (exercise, foods, etc) for this weight loss.  The irony of my story is I had just spent a year and a half "cleaning up" my body before my diagnosis.  Lost 38 lbs, exercised routinely (weights/walking), changed my diet to a low carb/high protein/no processed foods, eliminated alcohol except for a glass of wine weekly, added vitamins/herbals - was looking and feeling the best ever.  Then on 7/27/12 - got the "you have cancer" kick in the butt.  So I am in a "damned if you do, damned if you don't" mood.

    However, I must say my MO looking at me and saying "Well you have gained some weight" has me motivated (for now).

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Jojo... I was on the same path as you I was down to my ideal weight and felt great. Oh well we did it once we can do it again!

    I got my mile in this morning and Im on my way to a bangen body again!

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Thanks Amy, that's what I needed to hear!

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Good morning all,

    I'm feeling pretty crappy myself.  Just finished making some tea ...

    Mariposa-I hope you are feeling better soon!  Rest, rest, rest.  I slept a lot yesterday and I hope it made a difference.  It's overcast and gloomy out; I may go back to bed again shortly.

    I am so happy your mom has been by your side through all this.  As I mentioned, I think about my mom all the time.  Wishing she was here.  But like your mom, I think she would be devastated to learn of my diagnosis and it would break my heart.  She and I were so very close.  My mom passed from small intestine cancer.  I am thankful that my dad is still with us; but my relationship with him is different from my mom.  Stupid cancer. 

    Bearcub, EnglishRose-Yes your last treatment brings on a weird feeling - also a good feeling.  My schedule is all off.  But, the worse will be over.  You can walk out of there with your head held high.  What strong women we are.  We did it.  We are warriors!

    English-Love the idea of lunch and shopping for a reward!  I went to lunch with a friend of mine - it was so nice.  DH and I saw a Cirque de Soliel show last weekend - it was great.  I was also thinking about getting the women in my family together for a luncheon.  This would include my sisters, sister-in-laws, neice, aunt and cousin.  No more than eight.  I want to thank them for all their support and celebrate my success.  I just need to be sure that I am up for it.  Mayber in a few weeks ....

    Amy-I agree with Mariposa, you must be incredible and the act of kindness was not as random as you think.  It sounds like you are part of a great community.

    When shopping for the recliner, pay attention to the arms of the chair.  Wide arms will allow you to better prop pillows on them.  I slept in a recliner for several months (it was soooo uncomfortable to try & sleep in the bed with the TE's).  Over the holidays, I transitioned back into the bed because we had family stay with us.  I was stronger and was able to figure something out.  I am sure after the replacement surgery, I will be spending lots of nights with my recliner again.

    I'm totally onboard with the exercise/weight loss support.  Has anyone asked their doctor's about Weight Watchers or something similar? 

    Hugs : )))

  • butterfly14
    butterfly14 Member Posts: 253
    edited January 2013

    JoJo & amy, I am with you on the weight gain, I was at my ideal weight and in great shape when I got my diagnosis. Now I need to drop my 15 steroid weight and feel totally unmotivated to do it.

    Seattlemama - I was very tired with the adriamycin, could sleep for long extended periods.

    Melrose - Thanks again for the Rimmel lash serum suggestion, I seem to be getting some of my lower lashes back, and I am holding onto my brows and top lashes. I bought it last Sunday and it seems to be working great!

    Need to get motivated today, I hope everyone has a great Saturday!!

  • Neta69
    Neta69 Member Posts: 203
    edited January 2013

    Hi all, hope you are having a good weekend.

    English and others finishing treatment soon, It's great to finish of course but the end of treatment also brings new challenges. At least it did for me. With the focus on getting through and managing chemo and radiation and the frequent check ups and appointments ending I felt quite lost. Everyone around me was all "Woohoo, you are done! Back to normal" while I felt anything but normal. It was (and still is) as if the end of the physical challenges of treatment brought my attention to the emotional mess that this ordeal has left me with. I think the idea to see a therapist is excellent! I also find that I need to reconnect with my body and try and rebuild some trust in it. Hence the excersize attempts. Working out also helps me with anxiety and makes me sleep better. I also like the idea of diet and exercize plus acupuncture and massage as a kind of preventative "treatment". I guess it helps me feel like I'm at least in control of something at a time when I really feel like I have very little control.

    I haven't worked out for years but I tried to walk every day during chemo. Some days it was only for 5-10 minutes but even a tiny effort is better than none, right?

    I was sore yesterday from the gym class so all I did was walk my dog 2k (it was -20). Today I will do at least 30 minutes on the eliptical trainer.

    Hugs and lots of love to you all. Don't know how I could do this without you!

  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    I like the sharing exercise idea too. I haven't done anything while on chemo. Working was enough. Too tired. I'm just amazed at how most of you continued with the exercise. I didn't gain any weight but was 30 pounds over to begin with. I have to get through surgery this week and then I'm ready to pound the pavement. But it's been so bitter cold here. Ahh...see there I go with the excuses.



    Neta..I get what you mean. People have been saying to me your done with chemo and now you will be having surgery and then it's all behind you. You will be back to normal. But is it really?? I've got the dreaded TN BC which comes with major fear of it metasisizing. People don't understand that nor do I tell them.



    Mariposa...Bummer, your feeling so crappy! My BS and PS said I could go back to work in two weeks but I'm choosing three weeks. I may even just take half days when I go back.

    I'm not going back with drains in, that's for sure. Take care of yourself...take a Advil and Tylenol together. It really works well.



    English and Bearcub...my last chemo was bittersweet. Many emotions ran through me, good and bad. I was proud of myself for getting through chemo as well as I did and being able to work through it. I showed my cancer that its not going to get me as I am strong and Im going to get you!! But at the same, now that it has ended, I felt wait a minute, maybe I need a little more. Are you sure I'm done? Cause that's it for me besides surgery. Being TN, I just get Chemo.

    English..yes, you deserve that bag too.



    Faith..Sorry your still feeling bad.



    Amy..Happy. Birthday to your boy. I would love to go back to those days again when my kids were little. So much fun!



    Ok...I may go on a walk later today. I will let you know my outcome. But it has to be at least 35 degrees out before I go!

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited January 2013

    As soon as I am feeling better- I totally would love to join in on the exercise fun!  When I thought chemo was done, I bought the "shred" diet book on Amazon.  It actually is pretty nice.   The diet seems to be based on watching your glucose and not spiking at any time during the day... so you eat every couple of hours.  Lots of smoothies (which are good for us) and soups.  Anyway, I am going to try it again in a couple of weeks.  I also bought an exercise bike- so I need to start using it! 

    Like many of you, I was at my ideal weight prior to diagnosis too:-(  I have gained 12 pounds.  I am short (5'3) - so 12 pounds ends up looking like a lot.  My little sister was here for my final chemo.  It was nice seeing her, but she has an eating disorder- so it was pretty provocative for me.   She is super thin and kind of scary.  I tried to talk to her about it, but she is pretty shut down around it.  I told her that in some ways I was more concerned about her than me- at least people are working on my health issues, but no one is managing hers.  Oh well.  I love her and just want her to be healthy.

    It is kind of silly, but as a therapist I hate seeing therapists.  I don't know why.  I guess I start to judge them or something.  I have a hard time letting go and just being honest.   I am actually more honest with you all! 

    Okay- I am going to try the advil and tylenol together (thanks Hope!)  Still feeling pretty yucky. 

     



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  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Hope - from what I know about TN you get a very good response from chemo! Us ER+ gals usually never get a complete response to chemo, thus bring on the hormone therapy.



    You name the score, I got every indicator high for mets (grade 3, tumor invaded my lymph and blood system, nottingham at 9, pet scan tumor suv at 12, blah blah blah). I understand the fear, but together with the other women here we will live and thrive! Enjoy life each day!

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited January 2013

    Jojo, I just read the info I was given by my MO Monday on the Metformin trials and she must not have known the trials are closed. Just when I was about to say yes it closes! Will have to ask her about that for sure. Oh well if it is closed I guess I don't have to worry about taking more pills for 5 years!

    mariposa, crazy woman for sure in your office; I had to read what you said a couple of times. Yikes! I think you know I too had my kids late; last son at 43. Just enjoy being a mom every minute you can. So now I guess I qualify as an older mom but even my youngest, now 20 does not see me as "old" or "older." He is one of my greatest fans in fact of what I have done and what I am now doing facing this bullshit BC. Can't wait for you to get past the Taxol S/E. Hope the Advil and Tylenol do something!

  • whenlifegivesyoulemons
    whenlifegivesyoulemons Member Posts: 184
    edited January 2013

    I never thought I would miss my nose hairs.  I mean REALLY miss my nose hairs.  But I do.  They were a really underappreciated part of the pre-chemo me.  It's cold, and my nose is running ALL THE TIME.  And by running I mean like a faucet that turns on and off of its own accord.  The time between knowing my nose is running and the enormous snot drip falling off my nose is sometimes only a second.  I sat in a meeting not too long ago and watched in horror as giant drip fell from my nose right onto the conference room table in front of everyone.  Gross.

    I can wear a wig on my head, and I can fix my asymetrical brows (sorta), but I'm stumped about how to replace my nose hair short of shoving Kleenex into each nostril.  And trust me I'd be tempted if I didn't think it would be too much for my poor husband - bald headed, looking like death and with Kleenex hanging from each nostril.  

    ARGH.

  • Cindi74
    Cindi74 Member Posts: 363
    edited January 2013

    Mariposa, What  happened to Disney?  Took Grandson (19, college freshman), DH and stepson to Epcot Tuesday.  rented a scooter for me.  No energy.  Walk 50 feet and I am pooped.  Actually, Wed, the day I get Taxol in the morning, Thursday, and Friday morning I feel great--almost my old self.  Probably walked nearly a mile last Thursday.  Then starting about 3 on Friday, joint aches and fatigue.  Today, Sat., finally got up but feel achy and yuk.  Five more Taxol to go, and then a month off before rads.  Am sick of feeling yuk. 

    Anyway, weather was great last Tuesday although it's been nippy and grey the last two days.  Crowds now bad.  Be good to yourself.

    To all.  what a year!  Thank all of you for helping me get through this. 

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