Winter RADS 2012 Club...Please come join the fun!

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  • JenniferW
    JenniferW Member Posts: 29
    edited January 2013

    Sonson, I am with you!  I feel like it's the movie Groundhog Day where I just keep having the same day over and over again.  I'm so glad today's Friday. 

    I finished 15/30 yesterday so I'm halfway done.  Having some skin breakdown underneath so I was given a soak to do along with the silvadene and the cream with lidocaine for the super sore nipple. 

    Oh, I do have a question for everyone: Have any of you tried acupunture during your treamtents?  I have thoracic outlet syndrome in my shoulders from being a medical transcriptionist for 15 years.  It hurts like hell to put my arm above my head on any given day and now that I have to do it daily for six weeks, I'm in tremendous pain.  I'm going to try acupuncture to see if that will relieve some of the soreness.  Anyone try this?  If so, what were your impressions? 

  • cvmarilyn
    cvmarilyn Member Posts: 179
    edited January 2013

    Hi - Down to 3 more! Can't believe it! And these are the boosts - targeted where the tumor was. Thank God! My nipple felt like someone had taken sandpaper to it and the under arm area - someone else wrote about that too - smarts like Hell sometimes - but all in all it's doable. I haven't been too tired during the day. I was so worried because I burn really easily in the sun and my skin has held up really well. So for those of you who are worried about that it wasn't an issue.  Can't wait to be done on Wednesday....yahoooooooo

    Happy Friday!

    M

  • sonson
    sonson Member Posts: 162
    edited January 2013

    Yay cvmarilyn for only having three days left to go!

    allurbaddays- At least now your skin can heal!

    JenniferW- Hope the soaking and silvadene works for you.  I've never had acupuncture, but I am doing physical therapy because I have had shoulder problems.  May not be the same as your having, but it has helped me so far.

    So I was wondering if anyone else has had any sharp sudden pains in your radiated area?  They usually come and go very quickly and feels like a sharp needle.  Just wondering if anyone else has felt this or if it's just me.  And another question...has anyone ended up crying at the reality of it being over?  It's been a rough seven months and as I sit here and realize that the end is almost here I'm thinking I may cry while I'm on the table that last time.  I'm going to be mortified if I do!  Even though I know the feelings are normal I'm still going to be embarassed.  Maybe it's just my mood today...I've been a bit moody today for some reason.  Hope everyone has a wonderful weekend.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2013

    I'm done.  (Skip. skip, skip.)  I'm finished.  (Ring the big brass bell.)  I'm happy.  (Add tambourine for riotous cacophony of joy.)

                                                                      

  • allurbaddayswillend
    allurbaddayswillend Member Posts: 355
    edited January 2013

    Laughing Yay Elimar! Do the happy dance!

    sonson, I have cried at least a couple of times today out of relief. Just short little bouts. I cried when the tech came to get me yesterday for my last treatment. I straightened up enough for a bit, cried a bit on the table, straightened up. For all the things I'm sure those techs see, considering some of the patients I've seen in the witing room, I was not embarrassed. I'm just a human after all. tears of joy repeated ad nauseum for the rest of the day.

    old school twisted cartoon happy: http://nicktoons.nick.com/videos/clip/happy-happy-joy-joy.html

  • emerald0320
    emerald0320 Member Posts: 38
    edited January 2013

    I started radiation a week ago today and its a piece of cake compared to chemo! Well so far so good but can anyone tell me what to expect? As I'm reading through this treads I see that most of you finished your chemo without a lot of problems,did anyone have to quit chemo before? I did 5 out of 8 treatments, couldn't finish taxol cause of neuropathy did anyone have that problem?

  • emerald0320
    emerald0320 Member Posts: 38
    edited January 2013

    I started radiation a week ago today and its a piece of cake compared to chemo! Well so far so good but can anyone tell me what to expect? As I'm reading through this treads I see that most of you finished your chemo without a lot of problems,did anyone have to quit chemo before? I did 5 out of 8 treatments, couldn't finish taxol cause of neuropathy did anyone have that problem?

  • emerald0320
    emerald0320 Member Posts: 38
    edited January 2013

    I started radiation a week ago today and its a piece of cake compared to chemo! Well so far so good but can anyone tell me what to expect? As I'm reading through this treads I see that most of you finished your chemo without a lot of problems,did anyone have to quit chemo before? I did 5 out of 8 treatments, couldn't finish taxol cause of neuropathy did anyone have that problem?

  • sonson
    sonson Member Posts: 162
    edited January 2013

    Way to go Elimar!  Love the happy dance pic!  Are you done with the chemo as well?  I sure hope so.  That had to be tough doing both at the same time.

    Emerald- I had a bit of neuropathy with the taxotere (which I think is the same as taxol) but it wasn't bad enough to keep me from completeing my treatments of chemo.  And so far radiation has been easier than chemo.  You will get some burning especially under your arm pit so grease that up well.  And you may experience some fatigue, but it's not the same kind of fatigue that you had with chemo.  It's more a sleepiness type of fatigue.  It will be over before you know it.

    Thanks, allurbaddays, now I don't feel like such a hormonal mess knowing that others have cried.  Because I probably will.  I cried the other day when I ran for the first time.  I just hope that once I return to the gym I don't end up crying there.  I want to go ahead and get all of that out of my system before I'm in a room full of people and I end up a blubbering mess again.  It seems that every time I do something now, that became harder to do while on chemo, makes me start crying.  I'm just so happy that I can do these things again...that my life is slowly starting to resemble what it used to be before cancer ever entered in my life. 

    Now for my six days of radiation to be over and my skin to be healed.  Those are the last legs of my journey...  And they can't come soon enough!

  • Loneskier
    Loneskier Member Posts: 44
    edited January 2013

    I start the first of seven boosts on Monday.  I thought it was going to be only on the surgery site but I found out on my way out today that it would be 3 treatments vs 2 treatments that I have been getting since 12/7.  I was so hoping that I would be able to start healing.  I was so tired today.  Took the day off today and just did nothing all day except a drive for treatment.  I am so glad it is the weekend. 

  • cowpower
    cowpower Member Posts: 293
    edited January 2013

    YAY for Elimar! Glad you are done, hope not too " overdone" So many " graduates " this week and more coming up soon. My party wardrobe needs constant attention. Hope youvall get tiaras like allurbad.



    Sonson, I know what you mean about getting emotional. I get choked up doing the " normal" things now, even down to being able to take .my son to get his wisdom teeth out, and to a college interview this week. I am a total sap:)



    Emerald0320- I had to bail on taxotere after 2 infusions due to "dermatologic toxicity." Which basically meant all the skin burned off my hands/ wrists, and I had fever and heart racing. I was luckily able to tolerate the taxol in weekly doses after that and finished up with six of those. So far all heart issues are resolved.

  • Shachar
    Shachar Member Posts: 229
    edited January 2013

    Woot woot Elimar!!!! Everybody is crossing the finish line! A big congrats!!!

    Sonson, I have had the stabbing pain but mine felt more like a knife, haha. I also had it after my mastectomy, little zaps and zings. It was the nerves regenerating and I maintained full sensation, which was a blessing until rads, lol! My radonc said it is normal and agreed that is was most likely irritated nerves/regenerating nerves. I have also had muscle twitches of my upper pec on that side.

    Loneskier, I thought boosts were just one area with one zap? I guess we are all different. Hope it goes fast for you.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2013

    sonson,  Yes.  My chemo pouch was removed immediately after my final rad treatment today.  I have done rads alone and now I have done rads w/chemo (not B/C this time) and the chemo element did add some extra awfulness to the whole ordeal, just the metallic taste, loss of appetite and stomach churning on top of everything else.  My skin held up about the same this time around.  I do see a light tan rectangle, and have one peely area, but it's not painful.

    cowpower,  The three boosts I got did try to turn me "extra crispy" but since it was only three, I made it out just a little more fried than "original recipe."  Tip to al the Newbies...if your RO looks like this (below,) be afraid, be very afraid.

                                                                

  • cvmarilyn
    cvmarilyn Member Posts: 179
    edited January 2013

    Sonson and everyone else who posted about being emotional... I have been... yesterday I hurt and I felt like crying - but didn't... last night I realized that I needed that kind of attention - you know... I wanted them to look at me and say "poor baby"... and when I got a little of that I felt better. I am not a whiner - but just wanted that recognition of - "you've been through Hell... and look at you - you are something!" Because I guess, that is how I feel. Yea Me!!!! And YEA ALL OF YOU!!!!!

  • Loving
    Loving Member Posts: 37
    edited January 2013

    Elimar - the happy dance is great!!! Biggest smile of the day! My husband is going to try to go with me on Wednesday so we can end the same way we started!



    I didn't even think that I might cry but reading these posts tonight, I'm teary eyed!



    I have had some zaps and zingers too and the physical therapist said that it is the nerves just reconnecting and that it might take a year for them to heal. I have found the pt exercises have minimized these pains.



    I start tamoxifen next week. Is anyone taking this yet or starting soon? I'm really hoping that it isn't a big deal. Trying to stay positive but inside I'm petrified.



    I decided last night that I need some sunshine but my husband can't take off work. My daughters don't have school three days in February so we are going to have a girls weekend in Florida with my parents!!! It will be nice to hear the ocean and relax. Should I be concerned with being in the sun after radiation or taking tamoxifen? We are going 3 weeks after completion of rads.



    Enjoy the weekend!

  • cypher
    cypher Member Posts: 508
    edited January 2013

    Sachar, so what is this magic aloe stuff?

    I haven’t spoken to anyone hardly – they get you in and out of there really quickly.  Which ironically makes it a little worse in some sense.  Say you spend 40 minutes in the car to get there.  If you’re in and out, it ends up being like 90 minutes driving over a 110 minute time period.  Of course I am free to wait around afterwards if I prefer.

    CVMarilyn, we’re back in sync somehow!  You must have been scheduled for more radiation than I was.  31 all in for me, I thought you started ahead of me?  I know what you mean about feeling like you need more TLC.  I got a lot through chemo but I still need it!  I think people are tired of me being a cancer patient.  I can relate!  I am SO tired of being a cancer patient!!!

    Sonson, I have had sharp pains like that.  I think I will cry with joy when it’s over.  Rads has put me in a really bad mood a lot.

    Elimar, how did you get that to post?  I totally want to post that on fb on doneday, aka Wednesday.

    Loving, I am starting tamox soon after rads as well. 

  • ridergirl
    ridergirl Member Posts: 443
    edited January 2013

    Loving I was on tamoxifen...off it now cause it didn't work for me..but I didn't have any serious side effects from it...few hot flashes but they were mild and went away pretty quickly...try not to be too scared it seems to be not nearly as bad for most women as they tell us it can be.

    (((hugs)))

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited January 2013

    cypher,  Right click on that picture.  Then on view image info.  That should give you the http info. to import to FB, but I don't FB so I am not sure.

    Loving,  You need to think of your rads as your lifetime supply, and from now on you probably should protect that area from sun exposure by wearing sunscreen.  Do the whole rads rectangle, including what might be covered by a bathing suit or shirt because the sun does filter through all but the tightest weave of cloth.  I like to get sun in the summer (for the natural Vit. D) but my face and rads area always get extra protection.  Florida sounds REAL GOOD about now!

  • cider8
    cider8 Member Posts: 832
    edited January 2013

    Congrats Elimar!



    Loving, protect the radiated areas from the sun. Here's what my doc says: You will be sensitive to sunburn on the treated area. After treatments are complete and skin is healed you may expose skin to sun but wear spf 30 or greater for one year.

    Have fun in the sun!



    I am so excited to be almost finished. 3 more days! I noticed the hair follicals on my breast are browned up. Looks like freckles. My supraclav is hurting now. Still several shades darker/ more red than my breast, but no peeling. The boosts are so weird. I guess because it's taking so long with the long set up and films for the first boost, and then more films today for a small tweak. I get two zaps along the scar at my infra mammary fold. The first zap seems 'normal.' The second zap has this crazy filter that is like a projecting 3d cube vs the slide filter I had for one of my regular zaps. I have about 6 stickers for my boost and a whole lot of 'painting.' They don't want me to put any moisturizer on the stickers so that they don't go anywhere. I can still slather the rest.



    I am not feeling weepy. At least today. Maybe because I finished chemo well over a year and it's almost 2 years since I was first diagnosed. I feel like I will just run out of there on Wed, laughing and tossing my lovely cape behind me. I'll run so fast the door will not hit me on the way out!!



    I made a stupid mistake. I changed my 10:30am appt Mon so I could be done before 10. The only slot available was 8:15. I changed it because according to the school library volunteer schedule, I work Monday. And I knew my younger daughter was off school. I though I marked all the days off on my Big Calendar and thought it was weird my older daughter had school. So, this evening I figure out she is off, and the library schedule was a mistake! So both girls off school and I need to drag my butt out early for the appt! I know, I know. I don't have it as difficult as those working or having the long drive. It's more about my error and feeling like an airhead. Apparently I can't claim chemo brain anymore for being absentminded. My MO says it's tamoxifen. I'm usually so detailed. I hate missing the details and now I miss them all the time! The gift that keeps on giving.



    I love all the love here!

  • cypher
    cypher Member Posts: 508
    edited January 2013

    cider8, i was just noticing that i don't feel overwhelmingly tired or weepy, and I didn't yesterday either.  I felt a little weepy yesterday but today, I'm fine.  Then it dawned on me -- on wed. I moved to the boosts.  Maybe it's less radiation or a different kind or whatever, but I think that's the reason.  I was def. weepy on wed. but it would not be surprsiing if there were a bit of a recovery time for the moodiness.  Well let's hope I'm right, because I just have 3 more boosts to go then I'm doooooNNNNNEEEE!!!!!

  • fgm
    fgm Member Posts: 831
    edited January 2013

    Elimar-great video. Congrats on finishing.

    Ridgegirl-How do you know that the tamoxifen didn't work?

    Loving-I'd love to join you in Florida.  Tomorrow we're going to be in the single digits here at night.

    Sonson-I get those sharp pains.  My RO said it's normal. (None of this is "normal" Yell)

    Monday I start my 7 boosts.  I hope.  After taking 6 days off, my skin looks better but the outside corner of my breast still hurts.  It stretches and feels like it's going to tear off. OUCH!!!

  • ridergirl
    ridergirl Member Posts: 443
    edited January 2013

    Good morning Rads sisters. Hope everyone is getting some relaxation this weekend with your 'days off'.

    Fgm - my tumour was actually stretching the skin on my breast causing it to become red and shiny as it was thinning. These were changes the MO and I could visibly see and were getting worse even while I was on the Tamox...that is how they determined that it wasn't doing its job.

  • fgm
    fgm Member Posts: 831
    edited January 2013

    Thank you Ridergirl.  Wishing you a shrinking tumor. Yes,

    enjoy the  weekend.

  • Loneskier
    Loneskier Member Posts: 44
    edited January 2013

    FGM-I also start 7 days of boost on Monday.  I will be getting 3 treatments instead of the 2 I have been getting.  I am trying to take it easy this weekend because I know it is going to be a tough week.  I am so tired now and my underarm is really bugging me.  I can't wait for Friday.

  • fgm
    fgm Member Posts: 831
    edited January 2013

    Loneskier-I think I'm getting 2 treatments instead of the 3 I've been getting.  I know what you mean.  I keep stretching my arm because I'm afraid the skin under my arm will become stiff.  I haven't had any fatigue.  Or, I have and really haven't noticed it since this is so much better than chemo.  With chemo, I would just lie on the couch and could hardly do anything for a week or 2 after my infusion. I'm glad that's in the past.  Pretty soon this will be in the past for us too.  Enjoy the rest of your weekend.

  • Shachar
    Shachar Member Posts: 229
    edited January 2013

    Elimar, that is my doctor!!!! NOW you tell me! That explains sooooo much, lol.

    Cypher, the magic aloe is Herbal Aloe Force. In addition to live aloe (only one cold processed) it also has cats claw, essaic herbs, chamomile, astragulus, hawthorne berry, pau de arco, green tea, and ionoc silver. They said they have seen amazing results with it. It is very protective and healing. I wear it by day, never comes off, applying one layer over the other, rinse well at night to clean off, air dry a couple hours, then put it back in. My daughter told me my red had turned to tan, not knowing I was using this and back in treatment. It does make my new skin under the peeled area look a lil silver grey, like the silvadine did, probably because of the silver in it. So wish I used this from the beginning but, truthfully, I needed to burn so it went like it was supposed to.

  • cowpower
    cowpower Member Posts: 293
    edited January 2013

    Elimar, That's my RO too!  Sachar, I never see you at the office- we must be on a different schedule. 

    Sonson, just to let you know, I did have an emotional moment today  when my two best friends, who have really carried me through this year, came and picked me up at 7:00 am for a surprise birthday trip to NYC garment district to look at all the fabrics.  We had been to about 10 stores when I realized I hadn't thought about anything cancer related in hours. I was really stricken with the realization that I can get my life back now, no matter if parts of me are changed forever. I know it might not be forever, but it feels wonderful to be alive again. Seven hours later I was cursing the exhaustion, but that is a different story:)

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited January 2013

    Sonson - I know I'll break down and cry Tuesday when I'm done cuz I'm already ready to break down, being so close to done.

  • susancats
    susancats Member Posts: 51
    edited January 2013

    Hello Rads warriors



    I wrote here about 5 days ago, and this thread now has 700+ posts.



    I wonder a couple of things-

    (These may have been addressed earlier, but I don't have the patience to go back through 600 posts).



    I had 10 treatments so far. Not feeling tired, red, sore or burned.

    When does that hit??



    Should I keep using the Aquaphor on the weekends too, even when no rads?



    I've been on Tamoxifen now two weeks. Just the last few days I broke down & started crying- my husband was "yelling"'at me (raised his voice in annoyance) and the other time when I was so frustrated about something. Is this normal hormonal changes? Am I gonna become a weepy mess?? And is it forever??



    And the other thing - maybe TMI coming here- so if you're grossed out, I apologize.



    I had a very heavy period this month. (Prior to BC I've been on the pill for years, so virtually no period). I feel very "moist" there, and I read this is a side effect from tamoxifen. Does that cause yeast infections?? Hormones + moisture?? I don't even want to think about that. Yuk.



    So if anyone out there can be of help, I appreciate it. 10 down/23 to go!!



    Susancats ;)

  • Loafer
    Loafer Member Posts: 121
    edited January 2013

    Hi ladies -



    Thought I'd jump onto this board. I will be starting Rads soon and guess I'm part of the December group. Looks like many of you will be done shortly. So any advice would be greatly appreciated for a newbie.



    I was just tattooed on Friday and my start date is contingent on whether or not I get into the accelerated rads trial. I meet the criteria; however, it's a computer random drawing and I have a 50% shot of getting in. It will reduce rads from 6 1/2 weeks to 3 weeks.



    Has anyone participated in this trial? It's very popular in Canada and Europe. Any advice?



    Thanks!

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