Sept 2012 chemo

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  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    JoJo and Timbek...love the new wigs! And Timbek you will not look sickly out there on that court. You are beautiful!



    Mermaid...Maybe you need a new bed. That is what happened to my husband and me. Our backs were so stiff when we got up in the morning. We just got a new bed and we are so much better. I should say he is cause I sleep all over the house!



    Damiana..That's great news for you too! What a relief!



    Amy...Last chemo!! Whoo hoo!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited January 2013

    Waitingforthenextstep- I haven't had a CBC in 6 weeks but will get one next Tuesday when I have my next Herceptin infusion.  The last time I checked, my reds were still low but slowly making that climb upward.  I try to eat healthy and get all of the nutrients I need from food rather than supplements, vitamins, etc.  My oncologist prefers that I eat the right foods rather than just take a pill.  It really isn't difficult to eat everything one needs.  I've done some online research (ie livestrong.com website) to figure out what foods help boost one's red blood counts.  If you are concerned about your reds.... try to eat more red meat and other meats high in iron, dark green leafy veggies (ie spinach, broccolini, brussel sprouts), beans, peas and iron enriched breads, pasta, grains and cereals.  You may have to spend time at the grocery store reading the labels of things but you will find there is a lot of foods that contain iron.   Make sure you eat citrus fruits (oranges), melons, strawberries, tomatoes to help with the iron absorption.  I had to tweak my diet just a little while I was still on chemo because my reds started falling.  My onco told me to just adjust what I ate so I wouldn't require any transfusions.  She would not let me take an iron supplement even though I asked.  I think she is right about the eating.  I think after a while, I'd get tired of taking vitamins and supplements so eating the right foods for me is the easiest way.

    I will let you know how my CBC is next week after the next blood test.

  • Foreverchanged72612
    Foreverchanged72612 Member Posts: 223
    edited January 2013

    Thanks, Bearcub and Mariane. I will ask my MO at next visit about it.

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    Na na na na, hey hey, good bye chemo - Amy, Mariposa- YAY :)

    Final countdown Marianelizabeth and Timbek, you can do it!!

    Fantastic news Damiana!!

    Melrose : thanks so much for the nutritional write up - - every little bit helps...EXCELLENT!

    Hope, like day and night, being off the chemo in preparation for surgery

    Neta, I'm heading to physical therapy tomorrow am EARLY - not enough range of motion in arm, I'm going to get new exercises and stretches and massage (yikes!)

    Thank you all for the love.  {{{HUGGS}} Faith-Focus-Finish, Melrose, JoJo, Neta, Butterfly, Hopex, Mariposa, English Rose, Cocobean.

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited January 2013

    Hi all!

      Final chemo happened without a hitch:-)  Feeling a little yuck at the moment, but happy to be done with this part of the journey.  Surgery will be set for 3-4 weeks from now.   But I am not going to worry about it for another week or so.  My little sister will be leaving tomorrow- which makes me sad, but so glad she could be here!  No bell, and when I lamented this fact- the nurse grabbed three other nurses and sang me a song  "Chemo is done and you're never coming back here, hey now, hey now, chemo's done."  (sang to the tune of my boyfriend's back).  It had some other verses, but I can't remember them:-)

    Damiana:  So glad that you got good news from the ultrasound!!!!  Big sigh of relief!

    Amy:  Thanks for the info about the gummy bears!!!  I will google and see what it says about the round ones as opposed to the tear drops.  I hate the idea of something leaking fluids - but really hate the idea of getting cancer again!!!  Yikes!  And Congrats on the final chemo!!!!  Yipppeee!

    Jojo:  loved the website for the bracelets:-)  Maybe I will pick one out this week.  What do you all say on yours?  So much to think about!  I am guessing mine should say something about left arm no blood pressure, no needles, and something about my port? I am clueless.



     



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  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Up at 4:30 am, I hear sleep is overrated anyway!



    Aic, ty I got it online and had my stylist cut it cause it was too long and I wanted bangs to help camouflage the brows.



    Timbek - beautiful!



    Marian - lol yes sometimes DH's need to be quiet!



    Mariposa - yes no BP, Needles for sure. I already have a port bracelet and wont add since I hope that's out sometime in 2013. I also have a few meds I am allergic to so will add to mine.



    Happy hump day to all.

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited January 2013

    That's right ladies..., na na na na goodbye..... To all my ladies congratzzzz....... It's been a crazy ride now it's time to get off and continue to next step ..... Now you will be singing..... Weeeeeee are familyyyyyyyyyy i got my new bobbies .........



    I am happy everyone is feeling great and getting ready for a healthy life and loose those extra pounds that we never even thought about gaining.......



    I still have 6/12 taxol so ladies keep in posting.... Amy love your list next week I'll start getting ready

    I am mentally prepare for surgery I'm a tough cookie just remove it!!!!!



    I been working for the past 2 days from 5 am to 3 pm.... Long shift and boy was I soooooo tired I use to do 16 hr shifts .... Waooo talk about changes in our body .... I'll start tuning again I wonder how that will work out.....



    Ladies wish me luck with that stupid ticket I got ..... Will see if the judge will cut me some slack





    Have a nice day!!!!

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Up and at it! Im gonna knock out this last chemo like nobodys business.lol

    Have a great day ladies! (((((((hugs)))))))

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited January 2013

    Goooooo Amy!!!!!

  • Timbek2
    Timbek2 Member Posts: 204
    edited January 2013

    Goooo Amy! Thanks for all the kind words. I do love my wig. I blended well and had a good night. It was fun to feel normal. ;). Love the end of chemo song. Fun! I think I'll bawl my last treatment. Will be great to close this chapter. Have a great day!

  • kelleyb
    kelleyb Member Posts: 94
    edited January 2013

    Congrats on last chemo - what an awesome milestone!

    I saw the surgeon yesterday. She knows IBC (inflammatory breast cancer) and the proper treatment protocol. I let out a big sigh of relief as they don't always, even at the big teaching hospitals. She said mine is "classic IBC" which she believes has responded beautifully to the chemo because my ultrasound looks great, so surgery is scheduled for 2/13. Good to have a plan and know my next steps.

    Bless her, she came right out and said that I look very worn out and tired.  Finally - someone who doesn't say "you look great".  She strongly recommended doing the MRM on the left side with the node dissection and leaving the right for later as she is concerned with all the chemo I've had that recovery is going to be slow.

    Onward and upward! Getting my last Taxol tomorrow then will enjoy a month off from treatment - yippee!

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Thanks everyone! I am def in a great mood today...



    Kellyb.... That must give you some relief to have a surgeon that says I Can Fix You plus to not sugar coat stuff. I truly love my BS and that is an awesome thing to have. I will be getting a dbl ssm in Feb havent got my date yet but looks like it will be close to yours.. We might end up being surgery buddies!

  • butterfly14
    butterfly14 Member Posts: 253
    edited January 2013

    Mariposa, Amy and Kelleyb, Congratulations on the last chemo!! Now you can start to feel somewhat normal again.

    Faith - Thanks for letting me know you have the same lower back pain. The cancer paranoia had me worried, probably will do that for the rest of my life.

    I hope everyone has a great Wednesday!!

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Kelleyb - congrats and enjoy that month off! Let your body heal and rest for surgery.



    Does anyone know why post chemo our healing time after surgery is so much slower?

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Jojo not sure if Im right but its got to be linked to our bodies getting its ass kicked for the last few months. They are giving me about 3 to 4 weeks off but in reality that is 2 to 3 weeks since it take a week from our last chemo to feel somewhat normal.

  • allurbaddayswillend
    allurbaddayswillend Member Posts: 355
    edited January 2013

    "not sure if Im right but its got to be linked to our bodies getting its ass kicked for the last few months" lol... you think? Smile  I'm almost 2 months pfc and still have side effects so all the cells whose asses were kicked have not been replaced, or something! So I imagine surgical healing would also be slowed down just because our bodies are still repairing all kinds of things...

    I'm looking at a couple of bracelets on amazon bcause I specifically wanted to find a copper one:

    http://www.amazon.com/gp/product/B002YPUK3G/ref=ox_sc_act_title_1?ie=UTF8&psc=1&smid=A20QS3SOVBXAC5

    http://www.amazon.com/Medical-Alert-~Rainforest-Replacement-Bracelet/dp/B00454MAMI/ref=pd_sim_sbs_hpc_8

    ...but I hadn't even thought about the "No needles, no BP on right arm" info. Thanks!

    Congrats for ladies finishing up chemo! Hooray!


  • EnglishRose75
    EnglishRose75 Member Posts: 147
    edited January 2013

    Damiana--that's awesome news!

    Mariposa and Amy--Congratulations!

    Jojo and Timbek--your wigs are amazing.  So glamorous!

    LOL on the facial hair.  Yes, me too, a close up in the magnified make-up mirror a few days ago showed the unhappy return of the beard and moustache.  Still no eyebrows.  Cruel, cruel body!

    Rad number 10 today...only ten more to go but on the downhill slope from here.

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    English and other rad gals, how are you feeling?

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited January 2013

    CONGRATS TO MARIPOSA, AMY & KELLYB!!!  Welcome to the PFC Club!!!

    Jojo- The healing time post chemo is slower because your blood counts have yet to recover from the chemo.  It takes more than a few months for one's body to recover from the chemo without having post chemo surgery.  The red blood cells take at least 3 months to cycle.  Just have to take care of yourself by getting enough rest, plenty of fluids, a little exercise and eat plenty of protein and veggies and fruits.  It just takes time to heal and feel good again.  Hugs!!!

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Allurbadday... Lmao!

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    1/2 way done, EnglishRose=YAY - Amy, kiss that chemo ba-bye :)

  • Cherioo
    Cherioo Member Posts: 305
    edited January 2013

    Hey guys wanted to check and see if any of you have started Tomoxifen yet? I just started this am .



    Amy , Kelly and Marioposa doesn't it feel great to be finished ? So glad for you all

  • Cherioo
    Cherioo Member Posts: 305
    edited January 2013

    Jojo, I think the healing is slower because of the blood counts . Just think of all the crap that was given to us. This is your time to rest and heal.

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Cherioo, you will have to update us on your tamoxifen experiences. I am anticipating getting my prescription on Friday when I meet with my MO.



    I am thinking there are a few here who have started already?

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Feels fantastic to be joining the PFC club! So glad I can turn the page.... On the next page it read ~Surgery scheduled Feb 13 9:15am~ so I have 27 days to nest, relax, and heal.

    Thanks for all your support ladies I cant say it enough!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited January 2013

    Jojo and Cherioo- I've been taking Tamoxifen since early September.  I can't say that I have any side effects other than the "not so hot" hot flashes.  I have not experienced any weight gain from taking the Tamox as some do.  My onco and her research coordinator both told me that the reason for weight gain PFC is not from the Tamox but from splurging too often after the completion of chemo.  There are so many foods that one doesn't eat while on chemo and then once chemo is finished, the food fest sometimes begins.  For those who will be taking or are taking Tamox, please make sure you go to the BCO.org main website to read up on the Tamoxifen and pay close attention to drugs that you should not take with Tamoxifen.  There are certain drugs when taken while on Tamoxifen will block the effectiveness of the Tamoxifen.  Here is the link: http://www.breastcancer.org/treatment/hormonal/serms/tamoxifen.  Also, you should not take Benedryl while on Tamoxifen.  I've had the hives off and on since I've been PFC and have switched to Zyrtec as my go-to antihistamine.  As for the hives, I haven't figured out the cause of them.  I switched body soap and laundry detergent but yet they come and go.  It could be the filler from the generic brand of Tamoxifen I take (but i don't think it's that ), menopause (thank you chemo and Tamoxifen), hormones just out of sync, stress, allergies which are affected by hormones now out of whack due to the chemo and Tamoxifen, from the hot flashes themselves and it could be a post chemo side effect.  I've done a little research and found out it could be any of these things causing my post chemo hives.  I also use Cortizone 10 cream to help with the itchiness.

    I know that some of you may be afraid to take the Tamoxifen and will hesistate to take it.  Please try to get past your fears.  Some take 1/2 a pill in the morning and the rest in the evening; others take it once a day in the morning or in the evening.  I know several triple negative gals who would do anything to be able to take Tamoxifen and to have one more weapon available to them to prevent further cancer.  So I take mine on schedule and regularly to continue to save my life and in honor of those who wish they could.

  • Neta69
    Neta69 Member Posts: 203
    edited January 2013

    I'm on Tamoxifen since just before Christmas. I have hot flashes (but I had those since chemo), I have trouble sleeping (common se), and I seem to be gaining weight :(. This all sucks but at the same time I find it comforting that I have this little pill to take to keep the cancer away. The after treatment phase is a strange place to be mentally sometimes...

  • Cherioo
    Cherioo Member Posts: 305
    edited January 2013

    Thanks guys for the info on the Tomoxifen . I already have the hot flashes dice chemo so I can deal with that. I will read more about it . I was given 20 mg and take it in the am . Will let you know how it goes

  • PatinMN
    PatinMN Member Posts: 920
    edited January 2013

    To all who have just finished chemo - way to go!  Such a great feeling to be finished with that part of treatment.  I'm 7-1/2 weeks PFC and still feel a lack of energy, and I'm yawning all the time.  It would help if my cat didn't wake me up at 4:30 a.m.  I noticed a week or so ago that my eyelashes are thinning, and seem to be missing in places.  Was hoping to avoid that!  My eyebrows are still there.

    I've had 7 rads, 26 more to go.  I usually have questions about something or other, and the techs suggested that I meet with the dosimitrist (sp?), which is the person who actually sets up the plan.  It was very interesting and if you have the opportunity you should go for it.  She showed me my CT scans, and how they set everything up to avoid radiation to the heart and lungs as much as possible while getting to all the breast tissue.  There is a separate plan for the boosts.  It's all computerized and very high tech and I sure couldn't pass a test on it, but it reassured me that they really know what they're doing and have lots of checks and balances.  The plan created by the dosimitrist is reviewed by the RO, and after she approves, it goes to the physics department for more review and approval.  Who knew they even had a physics department?  The dosimitrist told me she really loves her job - she was so enthusiastic and happy to have a patient take an interest.

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Amy - Congrats on last treatment!  Isn't it great?  Moving on!!  : )))

    KelleyB - So glad you have a plan.  You must be so relieved.  The comments get annoying, don't they?  I am glad she was candid with you.  'You look great - 'You don't look sick' - (I love this one...) - 'No one would ever know you, you know.'  Nice, huh?  Etiher don't say anything at all or if you have to say something, just say, 'You look tired, I hope you get some rest' or something like that.

    Jojo - My MO said I needed to be careful and listen to my body (especially) these next few months.  Prepare as much as I could for my next surgery.  She reminded me reconstruction is not a small task and adding that into the mix of my recovery from chemo, it would take me longer to heal.  She reminded me that this was not an augmentation ... and my body has been through so much.  Yippee.  She told me this and my next surgery will take place sometime over the next couple of months!  Several of you are having surgery within the next few weeks.  Try to get plenty of rest beforehand.

    I am not a candidate for Tamoxifen.  At times, this after treatment phase IS a strange place to be mentally...have ups and downs.  I am glad some of you have that little extra to rely on.

    Hugs  :)))


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