Life with a foob?!

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Life with a foob?!
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  • MrsH
    MrsH Member Posts: 96
    edited January 2013

    Since no one knows for sure if I need radiation until after surgery, I am considering uniMx without reconstruction. Then, depending on the lymph status, I can consider my reconstruction with a clear mind. How is life without a boob? I'm not sure how I'm going to handle it because our bathroom is a big mirrored wall above the vanity and when you shower your body is right there staring back at you. Plus, I have little kids who are going to wonder where my boob went! I also live in Florida where wearing a bra makes you sweat in the summer. And, to top it off, I am in the middle of yoga teacher training (mo. 5 of a 10 mo. course) and I'll be a little lopsided and/or my foob my drop out of my top - am I right?! Chime in ladies, thank you :-)

  • krcll
    krcll Member Posts: 343
    edited January 2013

    I recommend getting the surgery done then taking your time to consider your recon options. I'm a uni-boober that has no problem with my foob. You WILL need to wear a bra, because the pocket in the bra is what holds the foob in place. You may need a few different types according to your activities. One really stretchy but secure for yoga, one with skinny straps for when they show, one that is lower cut for lower-cut shirts. I must own 20 bras at this point. I didn't wear a bra until I was 40, so it is ironic that I now have so many...

    I think I look nice naked and so does my husband. The uniboob look is the healthy, cancer-less "me". The only thing I don't like is how I look without a foob in clothes. Somehow it looks like the remaining breast shouldn't be there. I often take off my bra (and foob) when I come home, but if someone knocks on the door, my husband knows he has to answer while I run to put it back on.

    Do whatever you need to do to get yourself healthy and free from cancer. All the rest you can and will deal with. IMHO it is easier than you think to accept one breast.

  • alexandria58
    alexandria58 Member Posts: 1,588
    edited January 2013

    Come to the thread  I look for Other Flat Women, A Rant.  There's lots of us who opted for no recon and go without foobs.  While many of us had BMX - I'm one - we also have uniboobers among us. 

  • cowpower
    cowpower Member Posts: 293
    edited January 2013

    Mrshenderson, I feel pretty much like krcll. I had a modifedradcal.left mx a year ago, followed by chemo, a scar revision surgery, and rads. I dont mind the way I look without recon- it isnt at all as shocking or ugly as you may be imagining- kind of a new curviness, if that is even a word. As krcll said, I do need my foob to look ok in clothes. I went to a professional fitter and am very pleased with the way it looks and feels, and it is quite comfortable. It even has a gel pack along where it rests on the skin which helps regulate the temperature- it really did feel a bit cool last summer. I am still open to discussing recon with my surgeon, but in all honesty, I feel like I want to walk away and stop being a patient for now. Mykids are older, teenage boys, so they do notice, and have decided to see the humor in the situation. They will text me a " boob alert" from school if bringing home friends, etc..... Good luck in making your decision- make sure to consider YOUR opinion the most.

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2013

    Hi there, I am a recent "uniboober" my surgery was just 4 weeks ago and I have already decided not to reconstruct. I have no problem with the way I look naked, and neither does my husband. I don't view it as a disfigurement at all. My Mother had a Mx, and although I wasn't a child when she had it done, my Daughter was. She had no problem with it at all, lots of questions, but she was very accepting of it. Kids are amazing and are very accepting of things if presented in a positive way.

    I read a beautiful comment written by another member when she described her Mother's Mx scar "like the curve of her smile" I think that is just lovely. 

    I am in australia and we are experiencing a really hot summer, so I have been experimenting with clothes and foobs till I can be properly fitted in a few weeks for a real prosthesis. I have had great success with a cheap Ahh Bra from a department store that has pockets in it with small forms inside that you can remove. I have a foob that the Breast Nurse gave me which can have the stuffing removed to adjust to the size of the remaining breast. I am/was a D cup so not really small. It fits right in to this bra which looks a lot like a sports bra. I was going to suggest you try a sports bra, I cant say that you won't have a foob fall out while you are "downward dogging" but a few stiches to hold the foob in the bra could stop that from happening.

    I have also had great succes with a sarong with the ends twisted ant tied around my neck. I pinned a swimsuit form inside that and you can't tell. I also made a short sarong out of a wide scarf that I can wear over jeans or capris.

    Take your time with your decision, we all have different reasons for our decision to reconstruct or not. Don't be swayed by other people. 

    Take care and good luck with whatever you decide! 

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited January 2013

    There are some great sports bras and sport tank tops with removable foam inserts that slide into inside pockets that allow one to put the foob in with no problem and the foob won't slip out!!!  I've found these sports bras at Marshalls and TJMaxx for less than $14 each.  You might want to check out these kind of sports bras and tank tops.

  • Nel138281
    Nel138281 Member Posts: 2,124
    edited January 2013

    Ditto with what others have said. One hting at a time, deal with the cancer first.  Your decision when you are thru treatment may be different than now, and your thought process will be less clouded.  I had my MX just about a year ago, no reconstruction and not planning on it.  Ijust don't want to have unnecessay surgery.  Living with a foob can be a nuisance, just fine and very funny.  My kids are 19 and 14.  They haven't seen me without clothes since the surgery, they just don't want to.  If you are OK with how you look, your kids will be fine.  Everyone's adjustment to how they look is different, be patient with yourself.

    Be well

    Nel

  • MrsH
    MrsH Member Posts: 96
    edited January 2013

    Thanks everyone for your stories. So much to consider. Reading about your experiences is very helpful. I'm not sure I wouldn't feel out of balance with a foob, especially if sometimes it was on and sometimes it was off. Thank you again :-)

  • Wren44
    Wren44 Member Posts: 8,585
    edited January 2013

    The only drawback to the foob is always having to wear a bra. Of course, as a D-DD, I've always had to wear a bra. You can add a pocket to any bra you own. I made a nylon net foob and sewed it into my swim suit. It's not going anywhere.

  • crystalphm
    crystalphm Member Posts: 1,138
    edited January 2013

    I think doing yoga with one breast...or in my case, none, is fine. It is way more comfortable to not wear a foob...especially while healing. I think women wear their "empty breast side" as a badge of strength and courage...and as a yoga teacher/student, there are several issues to address (such as LE) after a mastectomy, and you could teach so much. Maybe even do a survivors yoga eventually!

    I worried about my huge bathroom mirror, actually i asked my husband to remove it, but he never got around to it. I lost a few pounds just eating more healthy and I actually am ok with seeing myself now.

    Your kids will love their Mom...it simply doesn't matter what you look like, you are Mom...you are the face of love to them.

  • MrsH
    MrsH Member Posts: 96
    edited January 2013

    Thank you Crystal :-)

  • Stormynyte
    Stormynyte Member Posts: 650
    edited January 2013

    Uniboobers! I giggle every time I see that word. I've actually found that I don't like to wear my foob. It feels weird and I'm just so much more comfortable without it. For the first few months, I wore it always. Now it just sits in the drawer with my bras that I also don't wear anymore. Most people don't notice at all that I only have one boob and no bra, or if they do, I don't notice them noticing. I'm all about what makes me comfortable from now on. Everyone else can deal with it.

    Oh, the kids. My youngest is 11. He's much more worried about my hair than my boob. The only thing that bothered him was that he thought it hurt me, other than that he didn't care one way or the other.

  • flannelette
    flannelette Member Posts: 984
    edited January 2013

    I agree with stormynyte - I 've always hated bras anyway and only wore them when I was quite obviously in public. Hey, I'm a uniboober! love that. couldn't care less. I have a foob which i just tuck into a stretchy bra that I had before the mx, and after about 3 yrs i finally went to the real bra store & got a "prosthesis". I like my foob better. Much of the time I just camoflage as best I can - drapes on the bias, knots in jersey in the middle of a tee - layers - whatever I can get away with most comfortably. Soon as i walk in the door off comes the foob & the bra. I went swimming in the Caribbean last winter in my very nice one-peice bating suit and really, I didn't much care what anybody thought, had no foob, didn't care - like they're going to rush up and point at you? but would put a light shirt on when strolling the beach. At home, if someone comes to the door, it's just too bad. it's my house. but I don't wear, say, skin-tight tee-shirts either! just sort of camouflage stuff. I never considered reconstruction for i minute. all the rest was more than enough.

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2013

    I just love reading posts from like minded ladies.

    I am a Uniboober too, love that description! Just one month out, but already finding creative ways to get out of wearing a foob. I find it a bit uncomfortable and we are in the middle af a very hot summer here in Australia.  

    I have been wearing a sarong with the ties twisted up arond my neck with one of the soft inserts that came in an Ahh Bra strategically pinned inside it. It barely touches my skin, but evens me out when there may be someone coming to the house. The rest of the time, I don't bother.

    I am very interested in trying the new attaching prosthesis when I am properly healed, and I do love really nice lingerie, but I would never wear it on a daily basis. I just like to know I have it if I choose to wear it.

    Reconstruction was never on my agenda either, but I have had such a mixed reaction from some people who can't believe I would remain this way by choice! I just  don't get it. I would never judge someone for having a reconstruction, so why is it so hard for some to understand my choice not to?

  • brandall
    brandall Member Posts: 687
    edited January 2013

    I haven't decided what I'm going to do yet.  I had my surgery in August and I'm currently sporting the uniboob look.  The Foob isn't so bad.  The one thing I don't like is that when I wear clothes you can see that one side is depressed on the top of my chest wall above the neckline of my shirt.  I don't particularly care for that.  Sometimes I think about surgery and then others I think I've already been through enough.  I have a bathroom like yours, where you can see yourself in the mirror when you shower.  It was shocking the first couple of times, but it doesn't bother me at all now.  My kids are 6 and 3 and they don't care at all.  They got used to things really quickly.  Sometimes they will ask my about my missing boob, but they aren't upset at all, just curious.  The three year old will bring me my foob and tell me that I forgot my boobie when I'm getting dressed in the morning.  So I really wouldn't worry about the kids, they adapt :)

  • MrsH
    MrsH Member Posts: 96
    edited January 2013

    Thank you for all your foob stories. In going through the process of trying to figure it out, I've opted for a temp implant - that will spare my skin - and then I will do DIEP at a later date. No one knows if I'll need RADS and everyone agrees to wait on the DIEP. As someone who does a lot of yoga and is in the middle of teacher training, this will allow me to feel comfortable in that environment without anyone noticing I'm missing a boob, which would be pretty obvious in yoga clothes. I also live in Florida where it can be quite hot and you're usually wearing as little clothing as possible, lots of strappy stuff. Thank you again, you all actually make "life with a foob" sound kinda fun :-)

  • Momine
    Momine Member Posts: 7,859
    edited January 2013

    Brandall, that is pretty funny that your 3yo brings the foob. Kids seem to take it in stride. An old friend of mine visited with her 11yo daughter not long after my mastectomy. I hadn't seen my friend in a long time and we ended up talking about it in front of the kid. I felt a bit bad, until the kid piped up that it sounded easier just to put something in your bra than to get recon.

  • Camillia
    Camillia Member Posts: 185
    edited January 2013

    I too have one boob, young kids and take yoga classes :-)

    I didn't want the extra surgeries. What will happen when I am 70 and need my implant changed? (you do have to change them every so many years as far as I understand) How long before I can start being active again if I get recontructive surgery? Those, and the fear that I end up in constant pain after surgery, are my reasons for being uniboob Wink I like that I have one left.... it makes me feel a little more feminine. The sight of my scar on the other side is really not that bad and facing the mirror has really been easier than I expected it to be. My husbands still finds me very attractive.

    My kids are young- 2 of them are 6 and my oldest is 10. They have seen my scar. It does not bother them at all. Like someone else said, it was much harder for them to see me without hair.

    I too have found great yoga clothes/bras at MArshalls. They are the only bras I wear (the sports bras). I modify them slighly (A little seem in the middle to keep the prosthesis on the right side). I am a B cup and have never been bothered by my prosthesis. I have learned to shop for tops that have a higher neck line. You can find very pretty things. I look for tops that show my shapes rather than looking to show some clevage Tongue Out

    With all that said, I have recently started looking for a bathing suit and have had some thoughts and have reconsidered reconstruction. I always go back to my first choice of staying uniboob. I am not saying no forever but am hoping to find some good bathing suit options that will make me feel pretty and confident enought that I wont feel like having surgery.

    I think all in all, it's a personal choice and what you can live with.

  • Lily55
    Lily55 Member Posts: 3,534
    edited January 2013

    I am uni boob but to me that makes it sound nice rather like the way pink prettifies breast cancer which I find an ugly disease and experience.  I HATE being lop sided and as someone with a back problem the weight difference of over 2lbs from one side to the other does affect me too so I would do recon in a heartbeat, but its not available to me....

  • carlads
    carlads Member Posts: 241
    edited January 2013

    I am new to this thread, I to chose no recon at the time of my BMX. At the time of my decision I just wanted to deal with the Cancer. Of course people ask me all the time when are you doing your Reconstruction? Or think how nice it will be with perky new boobs..  I just listen and don't say a word.  My husband if 100 percent in favor of no reconstruction.  My adult daughters were so happy when I told them no recon.  I was a 34 DD, I am actually happy not carrying them around, I had always thought about a Breast reduction, but this wasn't the way I wanted to have one.

    Can someone tell me what a foob is?  I have the post Mastectomy Cami and it has the little pillow like forms..  I use those in my sports bra..  I am assuming that's what they are. 

    Carla

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited January 2013

    Hi Carla,

    People use the word foob (fake boob) to describe a false breast, i.e. a breast form of any kind. Over on the Reconstruction forum, they use it to describe their implants or flaps. I used to dislike the word but I've gotten used to it. I prefer it to prosthesis, which makes it sound as if I'm disabled because I didn't have reconstruction. But I tend to use the phrase breast form.

    Recently on this forum, there's been a lot of emphasis on going flat after choosing not to have reconstruction. It's a great option for those who are comfortable with it and who like the look. I had a bilateral mastectomy and, while I often go flat at home, I always wear small breast forms (either silicone or non-silicone) when I go out. There really are a lot of breast form options out there. You can find some of the ones I and other women find most comfortable if you check out my non-profit website, BreastFree.org.

    Regarding the puffy forms that come with the post-surgery cami, those are great immediately after surgery, when most women can't tolerate anything against their chest, but I found them to be shapeless and lumpy-looking, whereas unweighted foam forms have a more natural shape.

    I refused to give up wearing the fitted tees I always liked before my surgery. I've found that while silicone is soft and gives a very natural shape, foam and other non-silicone forms can look very natural, too. Maybe not as huggable, but anyone who's hugging me tightly enough to feel my breast forms already knows all about the fact that I'm breast-free.

  • carlads
    carlads Member Posts: 241
    edited January 2013

    Erica,

    Thank you, I go flat most of the time and I agree the puffy forms are not real comfy.  I just haven't taken the time to check out the silicone or the foam yet.  I will check out your web-site..

    Carla 

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2013

    I am off to my appointment with the fitter today!

    I have been waiting for the six week mark to be able to have a fitting for a prosthesis, and some nice bras. I love nice lingerie, and have seen lots that I like on the web. I am also really unterested in seeing the new advances in prosthesis.

    My Mother had a radical Mx in '94. She didn't opt for reconstruction either, probably why I have no problem with it. She always looked so elegant when she was dressed to go out, but when she was relaxing at home, like me, she didn't bother with a foob.

    I won't be considering reconstruction. I have no problem with the way I look or feel, but in saying that, I really don't know how I would have reacted to being told that it wouldn't be an option for me. I don't like being told the door is closed, so I do understand your feelings Lily.

    I have spent a lot of time searching through Breastfree.org. It was a wonderful site for me to research before my surgery. I was very impressed with the photos, and the information given by the women on there.

    I have just arrived home after my fitting. I couldn't be happier with the options I had and the lovely friendly lady who spent ages finding the right form and bras for me.

    I didn't end up going with the attaching prosthesis that I was interested in because you can't wear it attached for at least six months after surgery, and then you can only wear it for short intervals to get used to it. I decided to go for a natural look, lighter weight for my first one. I will get into the attaching one later.

    There were a lot of bra options, so I was really happy when I found there were several that were just like my favourite ones before the surgery. They are just cut a little higher, and of course they have the pockets. There was also a really nice cami with a built in bra and pockets which fitted beautifully and really looks natural.

    When I left the shop, I had to meet my husband at the car park. I couldn't believe how real the foob felt as I walked. It moved in unison with the real one. My husband noticed it as I approached the car and said "Wow!That Works!"LOL

    Couldn't be happier. I now have the option of looking totally natural with two boobs whenever I feel like it.

    All in all a great day!

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited January 2013

    Hi Ariom,

    I'm so glad your fitting appointment went well. I remember the first time I came home with silicone breast forms and my husband couldn't believe how natural they looked (and felt!).

    Don't know if you've checked out swimsuits yet, but you're lucky to have a terrific new mastectomy swimsuit manufacturer in Australia--Jamu. Here's the link to their website: http://www.jamumastectomybras.com/index.php. As you may know, there are also many regular swimsuits these days that have inserts for enhancers, so can be used with a breast form.

    But that's for another day. Meanwhile, enjoy your new breast form!

    Barbara

  • lostinmo
    lostinmo Member Posts: 922
    edited January 2013

    Another uniboober here. Just adding that I like my foob and wear it everyday until I am home for the day and take it offf. Most of that is because I just want to be bra free. 

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2013

    Hi Erica, Thanks for responding!

    I have already had a look at Jamu, they have some lovely designs. I have actually just ordered a suit and kaftan that matches from the Roberto Cavelli for Target range. It is the style I like and it has pockets so will take a form. I really love Cavelli's fabric designs, it can always go back if it doesn't work out.

    I ordered the clear silicone swim form yesterday because they didn't have my size in stock. I already have a lot of swimwear that I want to try the form in. I am sure there are some that will take a stitched in pocket.

    I am sure I'll have a lot ready for next summer!

  • quietpools
    quietpools Member Posts: 2
    edited January 2013

    I am an eight year survivor who chose no reconstruction after bilateral surgery.  My former breasts were large and heavy and I now use foam inserts ($35 each) and with swim suit use a fiber fill form.  My dr did need sewing lessons so I do consider it a deformity and refused to let my husband see.  Lumps,  bumps and flaps.... ug.  But,  I don't regret not having the reconstructions. 

    I do have a funny story about the foam inserts.  Once at my GP he had a "student" taking vitals.  She placed the Steth over the foam insert and the look on her face was precious.  She couldn't hear a heartbeat.  :-)  So,  occasionally you can have fun. 

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2013

    Hi quietpools, just wondering, do you have a brand name for the fiber fill form that you use for swimming?

    I want to get back in to water aeorobics, and I thought that would be a good idea because the silicone one I have ordered is quite heavy.

  • hello1
    hello1 Member Posts: 1
    edited February 2013

    Ariom - i'm new to the chat room! i just wanted to say that i brought a gorgeous bikini and swimsuit from a company called Caleya http://www.caleya.co.uk/ they are really friendly ladies who run it and they made me feel confident again. its so important that after a mastectomy (and i've had both sides done) that we get to do everything we did before. i'm sure you agree! water aerobics is such fun - reading your chat has made me want to go back to doing it again. 

  • Twicearoundtheblock
    Twicearoundtheblock Member Posts: 2
    edited February 2013

    Hello,



    I am new to this state of uniboob- as of Jan 16, 2013. What is a foob?



    Thanks

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