Calling All with Tumors 6 cm +

Wow, Arlene, that is a lot to go through, but now you can have peace that there is no BC lurking! How wonderful!

Ciabatta that is not unusual with ILC- my excisional biopsy of a 2 cm mass uncovered an 8.9cm tumour which needed a further mastectomy which found another 1.6 cm tumour. ILC does not image well leading to its common calling as a sneaky cancer ! The multifocal LCIS in the other breast was not seen on MRI but found in pathology post mx.

Bump

Hi Shells, thanks for asking. I had ct scans and bone scan a few weeks before chemo. I was supposed to be in the Herceptin trial to see if its as beneficial to her 2 neu- as it is to her 2 neu +.

The scans were good except for a wicked bright area of the shoulder that showed more activity than my knee & spine where there is degenerative joint disease. So, I had an MRI which was supposed to take 25-30 minutes. My spine was killing me from that hard table, so when they pulled me out to do contrast dye and 30 more minutes of MRI, I begged off. Therefore, the radiologist would not commit to no mets. My BS, onc, researcher, and I all believe it is arthritis as I've had bursitis in that shoulder over the years, but without the radiologists word I can't be involved in the trial. I'm ok with that.



I had minimal SEs with AC. I'm so thankful for that.



I have my Fighting Boots on. I will beat this.



Blessings

Paula

interesting thread.

lol...not a thread that i ever wanted to be part of but im it, .....10cm 17/24 nodes trip neg...jackpot!

doing ok, initial chemo was a bit tough on the mouth and taste buds, mastectomy much easier than anticipated, rads finished, new chemo's xeloda for 2 months and today started navelbine as had mets to chest nodes found through blood clot ct scan and held off on navelbine until rads finished.

my cancer grew before my eyes, could feel it, started 2  cm.

was getting disheartened with my onc at that time as would not listen to me, cancer became chemo resistant last 2 treatments, straight after mastectomy switched onc's and now have a great dr - patient relationship and  must say for me it was so important to have someone that i felt was batting for me., not against me.

so for now its all ok and getting on with it.

x

hi shells yes mine was growing so quickly when i was laying on my side within a week the pressure of the cancer  was almost rubbing against my other non cancerous breast.

me too was so relieved to get the pip off..

i actually went into my breast surgeon and demanded (in a nice way, he was really good, it was the onc that i had no faith in) that they do it that day, luckily he agreed and within 24 hours it was off.  woke up scared to look but once i did was pleasantly surprised because i had pretty large pec muscles as had done lots of weight training, looking down it looked like a tiny very tight little boob.  no pain at all, only the drips were a hassle. next day i was home.

im hoping if all goes well next year to have reconstruction.

great hearing you are doing ok and getting on with life as yr signature shows and bet your looking forward to getting a new boobie too.

take care

x

EmmaL.. Welcome here.. sorry you have to be here, but glad you found us.. My tumour was 7x6x1.5 cm and I had three nodes "involved" as I had Chemo first we will never know if I had cancer in the nodes or if it was pre cancer cell changes.. My pat says seven benign nodes taken, but another part says three nodes with involvement.. whatever that means.. I am 1 year 8 months from diagnosis, and one year 14 months PFC  Done my recon, even though I will have another attempt at fatgrafting in about 5 months.. I had fatgrafting done in november, but it failed.. Got a new nipple though and it looks good.. now waiting for areola tattoo once that is healed it is fatgrafting time.. My PS said the implant is like a cake, the fatgrafting is like the icing and the nipple is the decoration.. My cake and decorations look good.. Think my Icing was too "warm" 

J-Bug glad to hear that the new year is bringing you ssome new good things. congrats on the job....must be a relief to not be contract all the time and always looking for the next one.  Great that your education is paying off!

My tumour was 9.5 cms in total  they told me 2 sential nodes, had isolated tumour cells.....hmmmm what is that? 0 lymph nodes removed

who has had the most nodes removed?

me 24 - 17 bad.

x

I had seven nodes remove Three showed "involvement"  Had chemo first so no cancer cells found

10 nodes on the left, 4 sentinel nodes on the right. No nodes invaded. LE on the left.

BTW my total tumor size was 6.5 cm (IDC 5.5cm  + DCIS 1cm)

please ladies, I am too a 'big girl'. I so wish I had found this thread when I was dx (stll less than a year). I was utterly distraught and thought I was going to die in 6 months,

I too don't talk about the size, I feel a lot of guilt for not dealing with things earlier than I did.

I still find it really hard to talk about this, Anyway I am here all treatment done and planning on a Diep in August (if no recurrance)  

I am pleased to feel less alone now. Thanks!

me too wintertocks misdiagnosed, not as long lago but for 4 months, started at 2cm, after mastectomy it was a huge 10cm.

xx

Ladies,

Thanks so much for your replies. It really does help knowing I am not alone with this whopping tumour.

However, I did know there was something wrong, but took a time to get round to it because of other ongoing problems (some health, some other stuff). Now I just feel incredibly guilty that I seemed to ignore it. Mainly, because of my sons 18 and 15yrs.

But, I had been at the breast clinic for years prior to this with lumps/bumps fibroadenomas and even a biopsy 6 years or so ago in the breast that was mx'd last year.

I am worrying that I/we have a worse prognosis because of the large lump. My BS has told me she doesn't expect it to recurr.

I realise I am still fairly new to this have only finished RADS in Nov.

Cheryl - How nice to hear you are doing well.

Hiya Liv from Perth  

Iago - the dense tissue does seem to be a problem, this was my issue too  - If only they would MRI those of us with dense breasts.