Sept 2012 chemo

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  • Waitingforthenextstep
    Waitingforthenextstep Member Posts: 251
    edited January 2013

    Melrose

                I know that you are finished with chemo (Thank God), and so happy for you.  I want to ask you about hair.  How long did it take for your hair to start growing in?  When did you get to a point where you could go out with your own hair and not a wig?  Did you cut it while it was growing.  After chemo started I still had a tiny portion of my long hair which did not fall out.  I just cut that to about chin length.  I now have 6 more taxols to go, but it looks like my hair is starting to grow a tiny, little bit.  I am trying to think of the summer (hot where I live), plus I hate wearing the wig. I lost so much, I just can't fathom how long it will take to come back. Thanks.

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    patricia, YAY, you're half way done!!! :)
    melrose - glad you are finished......I've got to head over to join CHEMO Jan. 2013...dang it >:( 

  • Cherioo
    Cherioo Member Posts: 305
    edited January 2013

    So glad you guys are talking about lashes and eyes . Mine fell out during AC . Thank god for eye pencil . I am praying they start growing I miss my long lashes

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited January 2013

    SeattleMama- OMG.... so sorry that you are heading to the Jan 2013 chemo thread..... I just want to remind you that we leave no one behind here!!!!  So please keep coming back here.... I'll stay here as long as you need support!!!!

    Waitingforthenextstep- I am now 5 months PFC and can tell you that I find it hard to believe that I ever did chemo.  As for the hair, I had a wig but never wore it.  (The poor thing has been sitting in the bag that it came in and now has abandonment issues.)  When I went out, I wore either baseball caps, hats, bandanas or a knitted slouchy hat.  I always took whatever head covering I had off when I drove because it was so hot.  I usually didn't wear any head covering when I was home.  Sometime in early October, I started not wearing any head coverings when I went out.  I would venture out of the house everso often just so I could get used to not wearing anything.  In mid October, I attended a formal charity gala event without a head covering.  That was like my coming out and after that I quit wearing head coverings for the sole purpose of hiding my head.  My hair had started coming back and was probably 1/2 inch long by that point.  On average, normal hair is supposed to grow 1/2 inch a month.  Sections of head hair grow faster than some parts--- like the front and the back part of the crown of my head have grown back slower but it's okay.  For the most part, my hair has grown back evenly and haven't had a trim because it just looks like a short short pixie hair cut.  My last pre-chemo hair ( it was a mighty hair) fell out last week.  So now it just new hair.

    I know you and I have different chemo regimens.  The gals I know who had Taxol did have hair growth during the last of their Taxols.  For some, the hair came back totally white and slowly the color has returned.  Some have different hair textures than they had before --- once had straight but now have chemo curls aka poodle curls.  Mine has come back straight and with a little more gray but who knows what the hair will do. 

    You have to remember that the last time you had hair this short is when you were just a baby and was at a time you had no idea what hair was or preconceived notions about hair and your appearance.  At that time, you just didn't care or even know to care.  It is a wonderous thing that the human body is so resilient and can start doing things it normally did before the chemo. 

    Now that I have hair, my husband and daughter have both confessed to me and said " You were bald.... you had no hair after chemo."  I politely correct them and tell them " I never lost all of my hair..... yes I had a very very thin veil of hair but never lost all of it.  Hair on my head is still head on my head even if it was just sparse."  For those who see us, I did look like I didn't have hair but I could always rub my head (very comforting) and feel the little hair I had plus the new emerging duck fuzz.

    So who ever reads this, please always remember that you are beautiful no matter what stage of treatment you are in!!!!  The inside of each of you has never changed or waivered; just the outside.  No matter what, it's all good.....

  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    Melrose..I watched the video. Very good.



    JoJo. Thanks for the Sephora tip. I'm going there next weekend and then

    Watching the video that Melrose sent.



    Faith..I think my eyes look weird too. I can't explain it. But being almost hairless, brows and lashes, I look funny. Can't wait to be able to wear mascara again but for now it's th black eyeliner. Sigh!

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Thanks again Melrose!



    I tried to use mascara earlier today. Kept moving it over top and lower lashes to "catch" some to coat. Found 3. ugh.

  • cgesq
    cgesq Member Posts: 319
    edited January 2013

    Jojo,

    Love your new avatar!

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    Aww, Melrose, thanx hun. You made me smile :)
    I'll find out tomorrow what the new concoction is along with results from ct scan.  Good thoughts and prayers please.
    btw, my daughter always wants to run her hand over my "peachy fuzz".  I told her from the beginning, I don't care about the hair, just want to get rid of the cancer.  She offered to feel bad on my behalf, for the waste basket full of hair.  From the mouths of babes.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited January 2013

    SeattleMama- Sending you lots of HUGS and positive calming and healing prayers, thoughts and energy!!!  We will continue to hang together for as long as it takes.  Keep us posted!!! <3<3  :-)

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    SeattleMama - Sending lots of hugs and prayers your way.  : )))

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    :) I feel the love, Thank you Melrose and Faith-Focus-Finish <<<love that!!!
    I'll let you know what I find out (Please God, no spread)

  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    Seattlemamma...thoughts are with you!!!



    Hugs,

    Erin

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Seattlemama, thinking of you!

    Question - through all of everyone's research (I know if your like me it has been extensive) has anyone heard of additional chemo after neoadjuvant when you still have remaining cancer?  That is my worst nightmare going into my next MO appointment this Friday.  I am hoping with ER+ cancer it will still be go straight to rads/tamoxifen, but wondering if anyone knew anything else?

    Here's to a wonderful week for all!  Cheers.

  • butterfly14
    butterfly14 Member Posts: 253
    edited January 2013

    Seattlemama - You're in my thoughts and prayers.

    Jojo, hopefully you will not need additional chemo.

  • kelleyb
    kelleyb Member Posts: 94
    edited January 2013

    Hi jojo,

    My MO says I will do more chemo post-surgery, pre-rads.  Originally we were going to do it all neo, but we ended up adding more weekly Taxol upfront and then agreeing to an eval for timing of surgery, aiming to do "mop up" AC after surgery at the direction of my IBC specialist in Philly.  He was worried about getting all the inflammation out of the skin before surgery.

    I am nervous as heck waiting this long (since August) to find out what is actually in my breast and nodes.  Original biopsy showed IDC in left breast and axillary node.  I think it does something, psychologically, when it's stretched out by months, though I am grateful the chemo seems to be working. 

    I also realize they won't know until they take the breast off and check the nodes how bad it is / was.  So if it didn't actually do a great job, then I guess I am already scheduled for more.  If that doesn't work, then I don't know what they would do and am afraid to ask.

    The mammogram and MRI showed a mass in every quadrant, so mastectomy is not an option. 

    Hoping you don't have to do more chemo!




  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Jojo & Melrose - Stopped by Sephora-thanks for the tip.  Also watched the video.  I'll watch it again this weekend and practice.

     Hugs : )))

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Jojo-I hope your treatment is done.  Sending positive vibes your way!

    : )))

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    All - on the subject of fingernails ...

    Some of you mentioned that the tips of your nails started to turn white, kind of like a french manicure.  Can you tell me what you experienced next?  Mine are starting to turn white now.

    Thanks!

  • damiana9
    damiana9 Member Posts: 389
    edited January 2013

    I sadly am in the 'what happened to my eyebrows' group with you guys!  I have them both but one of them has a big spot missing right in the middle!  I finally broke down and started using a pencil to fill them in a bit.

    I had my radiology consult today- I will have 5.5 weeks of rads.  While I was there (same building as my MO) I popped in there to talk to someone because I noticed a lump on my cancer side.  It is not where my foob is but below it- kind of lower than my armpit but in that fatty area.  They said it could be a swollen lymph node from being sick or whatever, but they actually seemed very concerned.  I go tomorrow to get an ultrasound to see what's going on.  

    Here is a funny (or not so funny) thing that happened yesterday- last night I went to the bathroom, and I couldn't get up!  My legs/hips just wouldn't work!  I called for help but nobody came.  Finally after a few minutes I was able to get up.  Then later, I took a bath to relax and warm up a bit.  I could NOT get out of the tub at all.  My husband came in to help me- he gave me his arm to help hoist myself up and it didn't work.  He actually had to bend down and wrap his arms around my whole body and lift me up and out of the tub!  Ugh!  I will really be happy when I don't feel like an invalid anymore!

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Damiana-I hope all goes well with the ultrasound.  Please do keep us posted.  Also, my legs do give out on me every once in a while and it scares/frustrates me.  There are many times I can't get up out of bed and my DH has to give me a push to get going.  Ugh is right!

  • whenlifegivesyoulemons
    whenlifegivesyoulemons Member Posts: 184
    edited January 2013

    Daminia - Sending postive energy for the ultrasound tomorrow.

    Faithfocus - Seems that the white tip is slowly seeping down into the middle of my nail, absorbing the disgusting orange/brown color that appeared in the mid section.  I'm keeping my nails super short because it seems like the more white, the less the nail's adhering to the nail bed.  Don't want to catch them on anything.  Hands have become fairly useless as a result, but my MO says it's just a time game - gotta wait for the nails to grow.  

  • bearcub
    bearcub Member Posts: 485
    edited January 2013

    Damiana positive vibes being sent your way for tomorrow....

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Damiana, our faith is with you! My legs betray me too now. I stepped down one step this weekend and the whole leg went. Luckily was holding on with arm.

  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    thanks for all the love, chickies.....ct scan was clean.:)  I think my onc was surprised :P
    Starting weekly taxol and adriamycin for 2-3 mths.  Then back to herceptin, and adding navelbine and xeloda.

    returning the love, good vibes, prayers to all

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited January 2013

    Great update, SeattleMama! You can do this!

    Hugs : )))

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited January 2013

    SeattleMama- That is wonderful news !!!!!!  Now it's back in the BGC ( aka Big Girl Chair) and back to business!!!  We will be here to support you for as long as it takes!!!!  Now get some rest!!!!!  Wink

  • Neta69
    Neta69 Member Posts: 203
    edited January 2013

    Great news SeattleMama! So happy to hear the scan was clean!

    Damiana, Sending positive thoughts and prayers your way for tomorrows ultrasound.

    Jojo, so hope your MO meeting goes well and as you hope. Fingers crossed.

    I went to a physiotherapist today as I have noticed my shoulder and underarm becoming tighter since rads. She showed me a bunch of good stretches and stretched/manipulated the scar area. She said with scar tissue, if you treat it early you get best results and that it was good that I'd come in. On her recommendation I also tried acupuncture (actually dry needling. It's similar but more "science based") today for the muscle pain in my legs. Very weird sensation. Like small electric shocks in some places. I must admit, I'm a bit sceptical but my legs actually feel pretty good tonight! Anyone else trying or thinking of this sort of complementary treatment?

    Hugs to everyone.

  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    Daminia...Sending prayers your way!! My legs give out every now and then with no warning! Very disturbing!



    Seattlemamma..Whoo hoo! Congrats on clean scans.



    JoJo...good luck with your MO...hope you don't have to do chemo again! I would think radiation would get the last little bits.



    Neta...I've never done acupuncture before. I've been thinking of trying it hoping it may help my neuropathy.



    Faith..I have the white stuff on my big toes. What is that from? I hope it goes away or I will never be able to have a French pedicure again cause it will show. Sigh! Who cares though, right! Not important now.



    I had a reflexology massage today thinking it may help my neuropathy. I should have had a regular massage instead. She did rub my back but I couldn't relax cause I kept thinking she was getting the oil on my new wig. Lol.



    Hugs to you all and positive vibes for clean scans and rapid healing and working legs!!





  • SeattleMama
    SeattleMama Member Posts: 147
    edited January 2013

    Damiana - sending love and luck for the ultrasound
    XoXoXo all

  • EnglishRose75
    EnglishRose75 Member Posts: 147
    edited January 2013

    damaina, hope the ultrasound goes well.  Could it be some type of scar tissue or something from the surgery?  I had a few small lumps under my arm following surgery which turned out to be nothing.

    seattlemama, great news on your scans.

    Zap number 9 today.  At the halfway point tomorrow.

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