January 2013 chemo group
Comments
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This is in the main area for newcomers. Just keep bumping it up and it won't get lost.
Sheryl
Posted on: Aug 26, 2011 11:56 AM, edited Sep 7, 2012 04:33 PM by Moderators
Moderators wrote:
This is a culmination of submissions of abbreviations seen throughout the boards, with links to further information on the main Breastcancer.org site. Thanks to all the members who have contributed; please PM the Mods with any additions and we'll add them to the list. Hope this helps and happy posting!
Abbreviations below are for informational purposes only as taken from posts or submitted by your fellow sisters. Your medical team is the final authority on any and all information contained in your personal medical records.
AC - doxorubicin (brand name: Adriamycin) and cyclophosphamide (brand name: Cytoxan), a common chemotherapy combination. There are more common chemotherapy combinations listed on the main Breastcancer.org site.
AI - aromatase inhibitors
ADH - atypical ductal hyperplasia
AKA - also known as
ALH - atypical lobular hyperplasia
AND - axillary node dissection
AWS - Axillary Web Syndrome
B9 - benign
BC - breast cancer
Bi-Lat - bilateral (eg. bilateral mastectomy is the removal of both breasts)
BIRADS - Breast Imaging Reporting and Data System score
BM or BMX - bilateral mastectomy
BS - breast specialist/surgeon
BTW - by the way
Bump - written to bubble a thread up in the forum
BWT - but what the ____!
CC - capsular contraction
CHF - congestive heart failure
CMF - cyclophosphamide (brand name: Cytoxan), methotrexate (brand names: Amethopterin, Mexate, Folex), fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil), a common chemotherapy combination. There are more common chemotherapy combinations listed on the main Breastcancer.org site.
CT scan - computerized tornography scan
DCIS - ductal carcinoma in situ
DD - dose dense, or dear daughter
DH - dear husband
DIEP - deep inferior epigastric perforator flap breast reconstruction
DIL - daughter-in-law
DP - dear partner
DS - dear son
Dx - diagnosis
DW - dear wife
ER+/- - estrogen receptor positive (+) or negative (-)
FEC - fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil), epirubicin (brand name: Ellence), cyclophosphamide (brand name: Cytoxan), a common chemotherapy combination. There are more common chemotherapy combinations listed on the main Breastcancer.org site.
FIL - father-in-law
FNA - fine needle aspiration
FWIW - for what it's worth
GCM - Glucosamine Chondroitin with MSM (for joint pain relief)
HER2 +/ - - human epidermal growth factor receptor 2 positive (+) or negative (-). Read more on HER2 status.
HT - hormonal therapy
HRT - hormone replacement therapy
Hx - history IBC - inflammatory breast cancer
IDC - invasive ductal carcinomaIDK - I don't know
ILC - invasive lobular carcinomaIMF - infra-mammary fold (the crease/fold under the breast)
IMHO - in my humble opinion IMO - in my opinion
KWIM - know what I mean
LAVH - laparoscropic assisted vaginal hysterectomy
LCIS - lobular carcinoma in situ
LD flap - latissimus dorsi flap breast reconstruction
LE - lymphedema
Lump - lumpectomy
Lt - leftLVI - lymphatic/vascular invasion
Mast - mastectomyMed Onc - medical oncologist
Mets - metastasis
MIL - mother-in-lawMLD - manual lymph drainage
MO - medical oncologist
Mojo - sex, or lack of; libido
MPBC - metaplastic breast cancer
MRA - Magnetic Resonance Angiogram
MRI - Magnetic Resonance Imaging
MRSA - Methicillin-resistant Staphylococcus aureus infection
MX - mastectomy
NAC - nipple-areolar complex, a term used in nipple-sparing surgery
NB - Navelbine (chemical name: vinorelbine)
NED - no evidence of disease
NP - nurse practitioner
NSM - nipple-sparing mastectomy
ODAAT - one day at a time
Omph - oophorectomy or ovary removalONC - oncologist
Ooph - oophorectomy or ovary removal
Path - pathology
PBM - prophylactic bilateral mastectomyPCC - Penguin cold caps
PCP - primary care physician
PE - pleural effusion or pulmonary embolism
PET scan - Positron Emission Tomography scan
PET-CT scan - a combination of PET and CT scansPFC - perfluorinated compounds
PFC- post final chemo
PICC - peripherally inserted central catheter, sometimes called an arm port
PILC - pleomorphic invasive lobular carcinoma
PM - private message
PPI - proton pump inhibitor
PR +/- - progesterone receptor positive (+) or negative (-)
PS - plastic surgeonQOL - quality of life
RADS - radiation therapy or radiotherapy
Rad onc - radiation oncologist
RO - radiation oncologist
RS - recurrent score
ROFLOL - rolling on floor laughing out loud
Rt - right
SE - side effects
SNB - sentinel node biopsySOB - short of breath
SOH - sense of humor
SX - surgery or symptoms
SP - status post
TAH-BSO - Total Abdominal Hysterectomy - Bilateral Salingo Oopherectomy
TCH - taxotere (chemical name: docetaxel), carboplatin (brand name: Paraplatin), herceptin (chemical name: trastuzumab)
TE - temporary expanders or tissue expandersTIA - thanks in advance
TM - tumor markers
TN - triple negative (eg. negative status for ER, PR, and HER2) TMI - too much information
TRAM flap - transverse rectus abdominis myocutaneous flap
TX - treatment
WBR - whole brain radiotherapy
WNL - within normal limits
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Wow, I just read the Hercepting material carefully for the first time, and watched the Genentech video. I don't know if I should be more scared that the Her2 tumor sounds so aggressive, or more grateful that Herceptin was invented. I think I'll go with the second - it works better for me!
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ablydec, I like the positive attitude, the positive tumors such as ER/PR + and Her/2+ respond to the specific drugs that have been invented. Us triple negatives don't have any hormones to block, so what I hang on to is that TN is aggressive and responds well to chemo and if I can make it about 5 years out then my odds of recurrence is actually lower than some other types of breast cancer.
I whine and cry and then after that is over I look for the positive. For example I found my tumor by accident (or destiny), it is small 1.1 cm, the nodes are negative, and the margins are clear. I also have found a new sense of love and caring from friends and family. I had pulled away from so many people and they have reached out to me with open arms and hearts.
Hang tough, Sheryl
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gd2shuz, ciao bella. I wish you didn't have to be here, but this group is full of amazing, caring women. You've come to the right place. As for chemo, there are many issues that come into play when making the decision about whether or not to use it. In your case, I'm guessing a lot of it is going to come down to the type of invasive carcinoma you have and how big it is. It sounds like even though your cancer is in your breast, it may not actually be breast cancer. (I know that sounds weird, but there you go.) If you have adenoid cystic carcinoma in the breast, I think it has different treatment protocols than breast cancer, including when and how chemo is used. All of this just means that what your BS and MO tell you may be different from what most of us on these boards have heard. No matter what type of carcinoma it is, though, you're still in the right place; we're here to support you.
Nicole and kiwikid, I've heard that I should expect exactly what you're experiencing, and that the most robust hair is the first to go. I guess that explains your experience and the fact that other ladies are seeing the last of annoying facial hair, which is also pretty coarse and sturdy. I'm hoping that means the really fine hairs, like nose hairs, are the last to go or don't go at all. And I definitely don't think we can worry about TMI here. Chances are, anything any one of us is experiencing is going to be shared, and there's not much point in trying to be private about stuff we're all facing.
Lisa (grtflmama), ciao bella. My friend Kristi did just weekly Taxol w/Herceptin last spring and early summer, and her side effects were really mild. I mean REALLY! She really just had fatigue, which did get worse as the weeks progressed, but it went from 2 hours of fatigue the first week to one day of fatigue by the end. Otherwise, she felt pretty normal. Of course, we're all different, but I think her experience is a good sign. Also, I'll be switching to Taxol after my AC, and my MO thinks I won't have any problems with working fulltime once that starts. Another good sign. So, fingers crossed for you!
(((karen))) (those are big, bold hugs to you!) I hope the shave wasn't as traumatic as you expected, and that you're getting lots of love and support, either way.
Shoshana (ablydec), I definitely vote for being grateful for Herceptin. There are also a bunch of other new HER2-specific treatments in development now, too. Fifteen years ago, the agressiveness of HER2+ cancer was its whole story, but now it's becoming the one with the loads of treatment options. Such good news for us HER2+ girls!
Sheryl, look at you looking at the bright side.
And so you should! You're right: Finding the tumor, finding it early, and no node involvement is all good news. And the love? Well, that's beyond good news. (((hugs)))
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Checking in....nine days after first AC. Yesterday, was the most wonderful day! The fatigue and chemo-brain were at bay, I went out to dinner with DH, had a beer and was extremely grateful for the day. Today fatigue is a little more apparent, and my mind cannot seem to focus on anything for more than five minutes, but it still is an amazing day.
I feel so lucky right now, but I know it will end. Four days until the next AC, and I almost wish I could have it sooner and just get it over with. Crazy...I know. Having chemo is like being a groundhog. Each day, you look for a shadow and then curl back up to wait for spring when your life can begin again.
Hope everyone can have (at least)I two good days like I have had. I hope you have one tomorrow, in fact.
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Zorina, that's a great analogy!
So happy to hear you're feeling good!
Sandra, I'm glad the links were of help/interest.
Have a good day everyone! And a good week to come!
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Hello Ladies....
I am new to this site and wanted to jum in here
I saw some discussion of heartrate. I actually just finnishes my 5th of 6 chemo treatments (Carbo/Tax/Hercep). I recently have been noticing that when I climb the stairs of get out of the shower, normal things are excerting me quite a bit and I get a little out of breath and my heart rate has been increasing at times. My cardiologist put me on a telemetry monitor to keep an eye on this and twice now my heart rate has gotten into the 170's.. scary stuff! It concerned my Doctor enough that he now has put me on Metoprolol to make sure this dosnt continue. I havent gotten the final report of the monitor yet as I have to wear it for 2 weeks, Im almost done with it just a few more days. Im anxious to see what has been going on with me heart. Im not sure if this would effect my 6th treatment or not? Has anyone had to hold off on a treatment due to side effects? Ive been able to muttle through all of my treatments without any nausea or extreme problems. Mostly just the watery eyes, nulasta joint pain for a few days, depression (thank you Lexapro and Xanax) & dont forget the hairloss & fingernail pain & discoloration. Im looking forward to being done with chemo soon and starting radiation after that. Im happy to have found a blog to talk to other's dealing with some of the same issues.
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Zorina, it's great to hear you sounding so good. I hope you feel like this every time!
dlhkmd: Wow, 170 bpm? That IS scary! And how frustrating it must be to have to deal with this when you're so closed to finishing chemo! I hope it's nothing serious. Unfortunately, while this thread is full of really wonderful, supportive women, you may find that we don't have much information for you about this, as most of us are just starting chemo. I think we also only have one or two women who are taking TCH. If you want to talk to women who have completed the same treatment and might know what you're experiencing, you might want to try posting to this thread: http://community.breastcancer.org/forum/69/topic/578284?page=501#idx_15001. That's the thread for people who are taking or have taken your chemo cocktail. If you don't find any answers here, I'm sure they can help. But we're always good for a virtual hug or a bad joke, even if we don't have all the answers.
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Hello all -
Regarding being categorized HER negative -
found my path report . They did both tests -
HER/NUE - by IHC 2+ ( less than 10 % 3+ )
FISH for HER/NEU at Phenopath labs - Not amplified ( HER2:CEP17 ratio 1.4 ).
How does this compare to those of u that are HER positive ?
Lee - that UC Davis article is really sending me ona quest for more info !!!! -
Sandra, the first day I saw my oncologist he said that he wanted to retest the Her2 status using the FISH test. He said "if you aren't strong enough we can try to get you into a clinical trial."
When he found out the results (strongly positive) he called me himself to let me know that I would be getting Herceptin. He also started me on it without chemotherapy. The next day he called and wanted to know how I had done on the Herceptin. Obviously, he's a big believer in Herceptin and the first day I saw him he brought a woman into my examining room and said she was a "gift" to me (five year survivor who had also been on Herceptin).
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Sandra, this thread here at BCO.org may be of interest to you:
It includes a link for the trial for giving Herceptin to Low Her 2 patients.
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Ok day 4 after 1st chemo on 1/10, woke up with temp 100.8, I have antibiotics on file at pharmacy (my MO prepared for it all), just gotta wait till the office opens to report in. I am still mentally fuzzy and can't remember if the fever is from the chemo, the neulasta, or just because. Guess it really doesn't matter. I was already aching everywhere from the neulasta now the fever has amplified it. Guess the chemo is working so it is good that I have the SEs. That's my story and I'm sticking too it. LOL
Hanging tough, Sheryl
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Way to go Sheryl!!!! I like that story!! Those huelasta shots have some weird SEs. It was bearable, but I really thought the Claritan would have helped more. I need to buy a new thermometer. The one that came with the neulasta material shows me with a temperature of 96. The next time it registered at 97. Never went above that. Hope you feel better Sheryl. Sounds like a stay in bed type of day. Enjoy it, we don't get too many of those.
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I keep forgetting to ask you all a question about food. My MO's nurse told me to not eat raw veggies and to steam them first, peel fruit before eating, no berries unless organic and WASHED a lot. No burned food on the grill -- did you get these instructions? Are there any precautions/rules you are following?
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Oh, another question. I'm still having problem with drinking enough liquids. I've eaten so many ice pops, jello, tea, etc (I don't like water) - Do other liquids count (i.e. juice, milk)?
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Lauren,
I got the same instructions when I was neutropenic. No raw fruit or veggies, no gardening, no fresh flowers. The instructions were pretty extreme but I was hospitalized and in isolation.
When our counts drop we are more susceptible to infections. I stay away from small children when my counts go down. This is really hard because I have adorable grandchildren but they are walking Petri dishes sometimes.
Did they tell you what your labs were?
Barb -
Lauren15- My MO said any liquid... soup, jello, ginger ale (flat), juice, etc. I have been drinking 3 litres of water a day. I started this a few days before my first TX. I was peeing like every 2 hours in the beginning. Now it's back to normal. I guess the drugs they give us really do dehydrate us. There is a great soup that you can make to have the week before treatments... its in the Cancer Fighting Cookbook. I will find the name and page number. My friends wife is cooking for us (to give me and my DH a big break) once a week and says the book recommends this soup.
SherylB-Thank god for your MO having antibiotics on file for you. My MO told me to call the minute a fever reached 100. Hang in there!
Zorina-Glad you had a great day!
I am 10 days post TX and I am so looking forward to my granny chin hairs to fall out. It's like my eyebrows had a few hairs jump ship and relocate on my chin a few years back. I really do find then annoying. So, brightside of temporary alopecia... NO GRANNY HAIRS!! (soon)
Ouestion- Waxing or laser hair removal on your pits... Can I get my pits waxed if I had the lymph nodes removed? Will that pose a risk for lymphedema?? I had 3 laser hair removal about 6 months before DX and I needed a few more. I obviously stopped when it was time for surgery. Is that out of the question too??
Hope everyone is doing well.
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Sheryl stay on top of that fever and don't forget to liquify! The first MO I had said he would give me an antiobotic to keep at home for such occasion. New MO doesn't do that and will only call it in when/if needed. I like the idea of being more prepared.
Lauren, I didn't receive any "instructions" per se. But, I did have a good laugh when reading through my cancer nutrition book the oncology office gave me. One chapter was talking about calories calories calories and how to increase your intake and fat, etc. etc. Everything basically we are told NOT to do as women when we struggle with gaining weight. Also talked about getting all nutrition from raw fruits and veggies, but then the very next section said basically to be cautious of green leafy veggies and stay away. I haven't really watched anything or changed my diet thus far, but I do wash, wash, wash. I mixed up vinegar and water to wash everything with. Also learned from an oncology nurse to soak your potatoes. She adds just a drop of bleach to the water, which I can't bring myself to do yet. But what I did adopt is washing the potatoes with an sos pad. It is amazing how much junk you see get removed by doing this. I suppose a plain brillo pad may work just as well.
Skigirl, obviously that is another one you might want to check with your MO (the waxing/laser). I did check and basically all of that is "not encouraged" during chemo. The waxing can break the skin and cause an infection. I was told to use Nair or the like. Razors are also discouraged. But, I was told after chemo is all over you can go back to doing laser. Yay!!
Well, I am day 11 and found many more hairs coming out in the shower than normal. Not that it was a lot, but it was noticable enough. Then when I was styling it I pulled out another little chunk. That was a little more obvious to me because that should not happen. And I am totally unprepared. Never did make it out of the house this weekend because of the bitter cold. Oy Vey!!
Is anyone noticing a difference in their skin? Mine is so dry and scaly. Which is expected for this cold, dry weather, but it is more so than typical. Otherwise my SE's have been very minimal. Also, has anyone been gutsy enough to venture to the salon for nail/skin care?
Here is a tip if you would like to have some help around the house. There is a service called Cleaning For a Reason. They offer free house cleaning for women undergoing cancer treatment - for free. I am getting my first cleaning today, and have also had my carpets cleaned. I don't know what areas they service, but believe as long as there is a maid service that will voluteer in your area it is worth looking up.
Happy Monday and hope you are all doing well today!
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Zorina- yay for your good day AND feeling like a REAL drink! Hope these next 4 days are good to you- your positivity warrants it!
SherylB - you ARE hanging tough (I have the New Kids song in my head now!) you have a such a great outlook saying that means the chemo is working. I'll have to remember that later this week.
Skigirl-I'd check (obviously) but I don't see why either would pose a problem. I was supposed to start laser treatments on my bikini line this week, but this chemo thing has changed some plans I had. :-/ And YES I am looking forward to no granny hairs either!
I plucked a few yesterday and thought-well, won't have to do this for awhile!
Lauren-As for liquids, I'm a religious juicer and figured what nutrients I can't eat, I'll drink. And when I can't take water anymore, I have herbal tea, coconut water and juices. I start tx weds so I'm stuck in anticipation on how I'll feel. Hoping for the best and that Claritin helps me out.
Any other tips I'm receptive though my brain is nearly on overload trying to prepare and be ready for anything. This whole thing is challenging to my control freak tendencies-But probably for the better.
Nikki -
Oh, one more question... Skimommi... are you planning on skiing this year or are you already? I am planning on going next week just for a few hours and PLAN on taking it easy. I usually ski like I'm in every olympic event (except Super G) so this will be a challenge to keep my ass under control. My son loves the terrain parks, so I will be equipt with my camera. My MO says its ok but take it easy. Thoughts?
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Yikes! I'm doing my studying up on diet, especially since this is a "low" white blood count week and learned that we should not eat yogurt with live cultures. But isn't it important for us to eat yogurt? I only like greek yogurt and apparently Chobani has live cultures. Now what??
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Skigirl if you feel up to it I would definetly hit those slopes! I haven't skied yet this season, but this weekend would have been a good one for it. Finally felt up to it, but the temps are the coldest they've been. Lucky for me this year everyone I ski with is on the "medical" green runs. LOL Seems everyone has one issue or another, so we are all in the same boat and having to take it easy. Then I won't be pushed or tempted much to take it far. Take advantage while you can, because who knows if we will have this energy next go 'round. Sounds like you are having nice weather. How is the skiing?
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NikkiLiz, or anyone else that juice's, any recommendations on shopping for a juicer? Thinking about purchasing my first, but since it is my first I don't want to drop $300+ until I know it will be worth the investment (not from a quality standpoint, but more so from the fact of whether I will use it enough or not).
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Skimommi~I still eat my yogurt, specifically because chemo kills all the good stuff, and those live cultures in yogurt (acidophilus) are good bacteria. I feel like it helps to protect our mouths, our digestive tract, and our vajayjay. My onc liked the idea too.
We can read that everything from breast milk to apples, coffee, eggs, and air are bad for us. But, we know our bodies better than anyone else.
Many of us were told to avoid salads, but my onc said, if I make it myself or eat in an upscale restaurant it's ok. She said, fast food places keep it in those bowls in the fridge, and the moisture that builds in them is where the bacteria gets in.
Happy, but safe skiing girls
Paula -
Hi! Just checking in. They sent me home from the hospital yesterday but I still have the chest tube. They're afraid of a small leak so they want the tube in until at least Wednesday. They don't think it'll affect my chemo start date of 1/21. But of all the drs that have been copied on the happs, my oncologist isn't one of them, so I'll call her today to tell her and see what she says.
I am truly grateful for my family. My husbands sister took my son the entire weekend (also thankful for my well behaved children) and my mother in law and father in law took my daughter. My oldest brother "babysat" me at the hospital and then took me home so that my husband didn't have to come back.
It's hard with the children. I'm suddenly terrified of my childrens' germs and afraid they will hit my tube. I don't want them to know I'm afraid though. Oy!!
Yes, a collapsed lung is actually one of the risks but it's like a 1% chance. The surgeon told me about the risk before we went in. Every procedure has risks. What made my situation worse was in the confusion she maybe went in and out of my vein with the catheter and I lost a lot of blood.
My intention wasn't to scare anyone who hasn't gone yet. By my estimation, I was one of the last ones without the port. It is a very routine procedure.
Hope you're all feeling as well as possible and thank you for sharing so it doesn't feel so alone. -
Skimommi- I have aBreville Juice Fountain (which several of my friends recommended)that I bought at Bed Bath and Beyond. I think it was about $150 which I had thought was pricey at the time, but it has made up for that 3fold and probably even more so coming up. Its easy to clean and use and gets every ounce of liquid out of everything-even Kale which is difficult to do. Even when I'm not hungry I can always juice!
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Skiing had been good (not that I've been able). We had our january thaw this weekend so I'm going to wait till sunday. It's supposed to get cold again starting today. It was 68 yesterday and my desktop weather says it's 34 right now with a high today of 40. We are used to this kinda thing up here.
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I added an avatar of me from a few years ago in better times-long hair and my original boobs. It makes me happy to see it. It seems so long ago.
Mandy-Glad you're home! Sound like you have a great support group and outlook which is half the battle. My port went in without a hitch. Hopefully because this happened your upcoming happy hours wont be anything! And do what you can with germs. Just stress washing hands to your kids and take care of yourself.
Nikki
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Skimommi, good grief . . . I've eaten a veritable boatload of Fage 0% fat Greek yogurt with orange juice mixed this last week for the protein value (23 grams per cup).
And I've been taking a probiotic as well.
I think my WBC was 1.9 this past Wednesday (I didn't write down the number and I should have).
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Dittos on the Breville Juicer - got mine on amazon for 129 ! Love it - you can just drop a whole apple into it and voila - fresh apple juice !
Mandy so glad u are back home . I am confident things will get easier from here - we are all thinking good thoughts and prayers for u ! Ok off to the office today with my new wig on !
Treatment # 2 on Thursday and I am prepared this time !!!
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