Hypoechoic lesion after diagnosed with ADH

Options
LabMouse
LabMouse Member Posts: 5
edited June 2014 in High Risk for Breast Cancer

Hi everybody,

I am lurking in this forum ever since I got diagnosed with ADH 9 month ago. It feels like a great place to come for information, support and advise.



Anyway after having an U/S today that came back with a hypoechoic leasion in the same breast I just wanted to come here for advise.

I haven't seen the doctor yet, just got this comment from the U/S tech.



Any thought? I am in my 40-ies and my Mom is a survivor of ovarian and breast cancer. No other significant family history and my mom tested negative for BRAC1 and 2.



Thanks,

Tina

· Share on FacebookShare on Twitter

Comments

  • momoschki
    momoschki Member Posts: 682
    edited January 2013

    I am assuming the lesion will be biopsied? As hard as it is (believe me, I know!), I think you have to try not to get ahead of yourself until you see what you are dealing with. If it comes back as more ADH, I would want to know what my BC risk is, especially with your family history. I think then you would be in a better position to make treatment decisions.

    · Share on FacebookShare on Twitter
  • LabMouse
    LabMouse Member Posts: 5
    edited January 2013

    Thanks for your input, momoschki.

    I am not sure about the next step since I haven't talked to the doctor yet. And I agree there is no way to tell at this point. I guess I just came to see if anyone has similar experiences.



    Thanks,

    Tina

    · Share on FacebookShare on Twitter
  • ballet12
    ballet12 Member Posts: 981
    edited January 2013

    Did you get a BIRADS rating on the ultrasound?  That will state whether or not you need to get a biopsy or to just watch it for a few months (BIRADS 4 or 5 requires biopsy and BIRADS 3 is usually given when watching is recommended).  I think that hypoechoic is very nonspecific.  Could be something or nothing. Sounds like you do have a significant family history even if your mom is brca negative (in that she had both ovarian and breast ca).  They just haven't identified all the genes that cause bc yet.  Have you considered being followed by a "hi risk" surveillance program (if you aren't already?).   Good luck.

    You asked if anyone had a similar experience.  On my breast which had ADH diagnosed 17 years ago, I had several subsequent biopsies prior to the DCIS diagnosis. It's common for that to happen, as they find lots of things that they are not sure about (calcifications, nodules, etc.) 

    · Share on FacebookShare on Twitter
  • LabMouse
    LabMouse Member Posts: 5
    edited January 2013

    Hi everybody and thanks all for your feedback. I saw the surgeon today andhe feels comfortable to but me on a 6 monthly follow up.

    The U/S report states that there is a complicated cyst as well as a small nodule (different breast) both classified as probably/favor begnin.

    From looking at it he feels there is no need to biopsy right now.

    The guy seems to be pretty reasonable and I feel okay with this. However I will send the report to my doc at home who did the initial surgery (I am currently living abroad) to see if i can get his input.

    The thing that just makes me wonder is that all my previous U/S (one just taken 1month ago during a health check up required by my employer) came back as clear just with cysts. This one was the first I had done at this particular clinic.



    Again your feedback is greatly appreciated.



    Thanks,

    Tina

    · Share on FacebookShare on Twitter
  • Lolalee
    Lolalee Member Posts: 225
    edited January 2013

    Hi LabMouse if it were me I would ask for biopsy on nodules. The only way to know for sure is for the tissue to be examined under microscope.  I have learnt the hard way that you need to be your own advocate as mammos and US are not always easy to read.  At the very least I would ask for your scans to be read by another radiologist. 

    Best wishes Lola.

    · Share on FacebookShare on Twitter
  • LabMouse
    LabMouse Member Posts: 5
    edited January 2013

    Dear Lola,

    I absolutely agree however I think that there is a fine line between the wait and see and the biopsy approach. At this point this particular U/S showed 3 suspicious leasions-two nodules and one complicated cyst with the MD advising the wait and see approach.

    Believe me if I am saying that I am rather a person that wants to know and "have it out" I also don't want to fall in the extrem of cutting/biopsying everything if not indicated.

    I think my next step will be to seek a second opinion to see how he interpretes the U/S. I will keep you posted.



    And again thanks for all your insight and advise.



    Tina

    · Share on FacebookShare on Twitter

Categories