January 2013 surgery
Comments
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Best wishes and prayers tomorrow for you, runner1987. It won't be long now and it will all be behind you!
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As for pain management, they have me on Celebrex (2x/day) and 1/2 Percocet every 3-4 hours and Tylenol 500mg in between. This combo seems to be working well. I was trying to stay away from the Percocet but NOW IS NOT THE TIME! Take those meds! My stomach is doing well with this mix. My husband is a doctor and keeps telling me I'm less than a week out and I'm doing well. Everyday is better. Also get as much rest as possible. So far my major outings have consisted of doctor appointment and short walks. The walks do take a lot out of me and I think of myself as pretty fit. Finally, I also recommend getting those frozen gel packs to place on your chest. They are helpful. Best of luck!
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Netsfan... Awesome analogy on the nodes Love it!
Destiny71, Trailertrash, and Cookiemonster.... I will be thinking of all of you today and sending you positive healing vibes!
runner1987... how are you today? Hoping you can make it thru the day with little anxiety and stress these ladies that have went before us are so amazing to share their stories and ease our fears. I will be praying for you tonight that all turns out perfectly and you have a fast recovery.
smethot... I will be having a complete ALND my BS said no way she is keeping any of my nodes on the right side. I am a bit nervous about lymphodema but I just plan to be proactive see a therapist and google some exercises to keep it away. I begged for her to remove only a few but she said heck no I had two positive during my biopsy back in August and my cancer was aggressive with a tumor of 7.9 cm OUCH! Keep the faith it will be okay and it is managable...
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Thanks for the site recommendation! I'll check it out. I'll look and see if we have one of those stores too! I'm an over-prepper...and since I had such a bad experience as a teenager I'm scared I'll have a repeat!
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NatsFan - LOVED your analogy of the warrior node! I won't get my node results back till Friday afternoon or Monday (fingers crossed, they took 4 out) Right now, I am enjoying having the cancer OUT of me and feel better than I have since being diagnosed. I feel incredibly happy and like...cancer schmancer...I've got this! Pulling on the Goddess warrior pants has been very helpful and post surgery feels awesome. I'm not even anxious about waiting for final path results because right now it is a clear day, I'm well and healing. That's what is real. And I'm going to see my daughter play basketball this evening. Now how much better can a day get?
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Yeah You Destina! I'm looking to you, Mary and all the other ladies for inspiration today. Maybe tomorrow, i can inspire someone else. Its all we can do...right? Fighting a war is hard...and you're one up on me...Private Enemy #1 is DEAD! I can't WAIT for that feeling. My theory is that once lumpie and the nodes are toast, I DO NOT HAVE bc!!! I may have rogue cellular insurgents who must be targeted and eliminated but that's what my miltary stike team of chemo and rads are for...FIND AND DESTROY!!! This is not insumountable...its TOTALLY and 100% doable...fightable...manageable and beatable! Thanks to all for your continued kind words and support...it really does help. I'm gonna go smoosh me some play doh sized lumpies now. I may even craft up a few nodes to squish for good measure...
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Doing great this morning considering I'm only about 24 hours post lumpectomy.Never have needed any pain meds yet.My post op instructions said I could remove bandages in 24 hrs but Dr said 48 hrs.Only problem I had was not being able to lay on my side to sleep.It's hard to sleep on my back all night.
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Thank you so much to those of you who have reported on your surgeries and recoveries! You really inspire me and help me to know that I can do this! 1 more week for me!
MMSS- That story is so funny!
jebdra- Great view!
Hopex3- I am feeling so much better! Thanks!
Natsfan- What a beautiful image about the lymph node!
Sending out good thoughts and prayers to the people up today- destiny71, trailertrash, and Cookie Monster. Also sending out good thoughts and prayers to runner1987 who is up tomorrow.
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Smethot, you are on your way...8 days to go! I think what others have said about feeling empowered once you're actually moving ahead is true. Of course, I still have to wait for path results to see what's next, but I feel I am on the course to moving through this and that feels great. You are, too, you're just at the part that feels like you're not yet since you're waiting for surgery. About a week before my surgery when I couldn't stand it anymore, I re-did a room in my house that I'd been meaning to for a long time. It had become a junk room and besides not being able to stand it, I was feeling very called to create a sacred space for myself. Functional, too, as in an office space but also for my own personal retreat and meditation. So, we got the room cleared out completely, I painted it with beautiful earthy colors and have started hanging art work and put my recliner in there. I remember the day I painted, I felt very low, worried and teary but I kept working at it. And then when the walls were covered in fresh, new, warm colors the tide began to turn. I'm in that room right now writing to you, dear sister. So, if you can find something gentle and loving for yourself to do while you're in this stage, it will be part of your healing and it may prove to be a helpful distraction while you move forward day by day towards your surgery (liberation) day. Much love to you!
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Mary - thanks for your reassurance. I did feel guilty, and then I felt angry that I was being made to feel guilty. The hospital has a feedback form in the room, so I'll mention it then. I don't want to get her into trouble. I think they are using volunteers who may be a bit developmentally delayed or something, but I really don't think it's a good role for them.
I absolutely love your warrior princess analogy. You and Smethol should both write books, or poetry or something. Your imagery is brilliant, both of you. Very different, but so evocative.
Smethol - I really feel for you. I was a wreck going into surgery because I didn't know my node status. I was convinced the damn thing had spread and and waking up after surgery to find it hadn't was the just about the best day of my life. I'm sorry you won't experience that, but hopefully your node is like Mary's warrior princess and has given her all for your body. Hugs and hope.
I'm now about 36 hours post surgery and feeling pretty good. It's 3am here and, as I can't sleep, I'm doing the arm exercises the physio has given me and I'm walking round the corridors and up and down stairs and posting. As I said somewhere else, I think having just a BMX with no reconstruction makes for a much easier surgery and recovery.
Love and hugs to everyone facing surgery today.
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Hi Ladies! I am having double masectomy/DIEP next week....would younrecommend a medical lift recliner over a hospital bed to rent for the home recovery? Any recommended companies in Pennsylvania? Thanks!
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Warrior Princess panties!!! Onwards and upwards!
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Got my surgery date for January 18. MRI came back good, (I guess) no surprises waiting in other places, lymph nodes looked good (I want to believe that's good but am afraid it could still come back bad) I felt pretty upbeat last night - now I'm starting to worry again - the what if's. Surgeon said the report has a lot of positives in it. Tumor still under a cm, so that was good to know - since I've been dealing with this since mid November. Having a lumpectomy with snode disection - scared - even though I was scheduled for this the day after Christmas the first time - a failed attempt at another hospital - this seems more real this time - Like my whole life is going to change -
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Firstly, Destiny Trailer, and Cookie, thinking of you all, and wishing you all the very best for your day!
Smethot, you are such a fighter, with a great sense of humour, I too had a great laugh at your Play Doh model. I am sorry that you have this uncertainty. It's so unfair, I have nothing but admiration for your feisty nature, and I am positive that will get you through this.
Brandie, all the best to you too. You've had to do it tough on your own before with a Husband deployed. I am sure this surgery will be quite different. Wishing yo u an easy, swift recovery this time around.
Tami, great to hear you are doing so well too. I can't believe it is 6 days since your operation. The time flies after the event, but boy does it drag in the lead up. Won't be long till you can have a lovely long hot shower. Take care and keep healing well!
Lmimp, so gtlad to hear you've had your surgery and you are doing well after not being so good when you couldn't keep the water down . Also, glad to hear of another that had no problem with the tracer for the SNB. That was my biggest fear, and it turned out the same for me, and the bonus of a negative result to o! I had numbness from the centre of my chest all the way around to my bck too. It has been three weeks now and although I have a lot of feeling back there are still some numb spots and a bit of burning sensation that the Surgeon said was the nerves trying to reconnect. It feels a lot like your mouth feels after a dental injection starts to wear off. You take care, it will get so much better soon!
Robinlee so glad to hear you are on the mend too. I hope your Son is OK. Hard to be away when they aren't well, but you need to take care not to catch anything now.
Four drains, that's a juggling act for you. I had enough trouble with one! I wore my bag stiched by the lady volunteers all the time that I had that awful appendage. I was so glad to see the end of it. Take care!
Hopex3, and Rm Lullu, I see you still have a wait. I hope it isn't too bad for you. It would have to be heartening for you to see how well everyone is doing. It takes the edge off knowing you'll be on this side of the Surgery soon. You girls take care!
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Hi everyone, thank you for thinking of me! I'm not dealing with too much anxiety today! I am just so happy that by this time tomorrow, this cancerous tumor will be out of my body forever. And I'll be on my way to some pretty nice fake boobs.
I had my sentinel node injection a couple of hours ago. I was nervous but it didn't hurt a bit. The surgeon was there to answer some of my questions and he was incredibly kind and reassuring. I feel like I couldn't be in better hands. I get to sleep at home tonight and then will be at the hospital bright and early in the AM! Will update after surgery to let you know how it went!
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Welcome Suzilla! Breast cancer has made friends of us all here on this site, I cannot believe it happened to me once, much less twice. I am having surgery on January 15 and yesterday I had a lot of blood drawn for pre op testing, and like others have said on here, the pre op tests make things seem very real. I got weepy near the end of the workday today. I'm not sad to say goodbye to my breasts, and I'm not scared yet of what the pathology and nodes will show. I don't know what to call what I am feeling except I am relieved to finally be moving forward to get rid of this sneaky cancer that keeps trying to get a foothold in my breasts. Maybe the tears mean I am ready to do anything it takes to win this battle over breast cancer that is attacking me and so many women of all ages all over the world.
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Runner1987, I am also scheduled to have the sentinel node radiology the day before my 7:30 am surgery, for me the sentinel is Jan 14 and surgery Jan 15. You inspire me with your super attitude. Best of luck tomorrow and please keep us updated on your progress! Warmly, Karen
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Runner, glad to hear you're doing well today. And you're right, by this time tomorrow, everything will look and feel different...in a beautiful way! Hope you have a restful night and look forward to hearing your update.
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joellelee- I added you to the list but without a specific date. If you would like to be listed on your specific date, please let me know so I can update your info!
kkuziel- I updated your info!
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Kkuziel, your life will change but in such a positive way. I know it was tough to have to make two attempts to get your surgery done, but you persisted. I am having Jan 15 surgery and I feel like the roller coaster has gone clunky klunck to the top of the first rise, and this is the moment when the waiting is about to end and my medical team, and my loved ones, and I are about to take action to win this battle against breast cancer on a very personal level. I sought a diagnosis for a year and a half and now, finally, I have gotten a team together who is removing the cancer at my bidding. Oh yes, life is going to change, for me and for you, because we have become, as another lady said so well here, warriors!
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Hi runner, so glad to hear that you had no pain from the SN tracer, it was my biggest fear, even more than the sugery. I had no problem with it either.
The hours will just fly by now till tomorrow, and you will be on the other side of this journey with us, and helping the new ones that keep coming to join us.
Wirdgirl, wise words, and a great description of the Roller Coaster! Not too long to wait now. I know it is hard.
Kkuziel, a definite change for the better, a positive! The waiting is the worst.
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Karen, really glad I could help you! I actually find that the anxiety fades as I get closer to the surgery. It reminds me of a book I loved as a kid, where the characters would run into obstacles and say: Can't go over it, can't go under it, can't go around it...gotta go through it! This is a very important step that we need to take to stay healthy. Although the surgery is scary it is also life-saving. Whenever I feel scared, I remember how lucky I am to live in a time when I have this option and how much it will allow me to do in my future.
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Hello, I can't get to this board for one day and I can't believe all the good stuff I missed from princess warrier panties to play-doh lumps (excellent imagery).
Good to see everyone is mending.
runner1987 - I see you are up for tomorrow. I will be thinking of you and sending healing thoughts.
To those of you who are recovering - more healing thoughts are being sent your way.
I got results back today and the margins were clear, no lymph node involvement. I was on the city bus when I got the message. Couldn't wait to get off the bus to take a deep breath. So I am putting today in the good day column!
Kkuziel - so glad to see you have a date. -
Thank you all for the encouragement. I'd never thought about the injection for the sentinel node hurting. Glad it doesn't seem too. I'm having a wire put in before surgery (which is kind of freaking me out) so I never asked too much about the sentinel node injection. I guess I just hope they numb everything up or put me out for anything they can't numb up. My first surgery ever so I'm very naive about things. Kind of wish I could have started out with something less traumatic - like a hernia or something. But as someone said to me today, it's not a matter of "if" you get something, it's all about how you deal with it "when" you get get something. If wish I was dealing with it better. I still seem to be near the edge.
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Hi everyone,
Well, I will be having a BMX on January 29th. I am ready for the battle...
Laurie
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No surgery date yet as MRI results came back with another "suspicious" spot in the same breast. Ultrasound and possible biopsy tomorrow. At this point I feel like I should forgo the ultrasound/biopsy and just have a MX. I'm frustrated that its been over a month since dx and still no date. I want it out and I'm afraid the longer the wait, the more likely it has spread.
How do people have things done so quickly?! I want to make the right decision but the waiting is getting to be too much. Sorry for the ranting! -
Brandie - the food prep store I go to is called Dream Dinners, you prep the meals and then freeze them at home, then they're relatively easy to prepare at home.
kkuziel - some people have pain with wire placement and/or dye or radioactive tracer injection. For me it wasn't too bad, it was tougher mentally for me with the wire placement (I joked that I had a franken boob as I had a total of 3 wires placed. My dye injection was done after I was put under, but they just used dye, no radioactive tracers.
My surgery today went fine, but they had to put me completely under with the tube. Coming out felt like before and I have the telltale sore throat to show for it. I'm ensconsed on the couch, I let DH take DS to his soccer scrimmage, I was thinking I'd go but not with the general anesthesia recovery.
Best wishes to those healing and those coming up... Really best to all, coming, going and supporters.
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Runner1987 what a great analogy to our situation and it is so much easier to go through it together. Love and prayers for you tomorrow and we will be thinking of you and sending healing thoughts. Thanks for listing your blog. I want to check it out.
I am someone who has a basic belief that the words breast and needle should never appear in the same sentence together so chicken that I am I got a prescription for numbing cream for the SNB injection. I am encouraged that so many people seem to have found it to be a non event but I thought I would die when I got the lidocaine injection for my breast biopsy and that kind of spooked me. The hospital called today and ordered me off of all vitamins and supplements until after surgery and I feel a bit naked in the midst of a major flu epidemic. At least I got my flu shot a while back. Guess I'll just try to avoid crowds for the last week and wash my hands a lot. Love to everyone, Susan
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Runner...good luck to you tomorrow. Sending good thoughts, hugs and prayers your way!
Knitlady. So glad you had good results! Happy dance for you!!
Joelelee, Recliner for sure!
I've been doing ok with the anxiety, I guess. The wait is very hard. Just ready to be done with it all. I'm very nervous about the surgeons finding positive nodes but I'm trying not to think about it. Plus I'm still working and that takes my mind off of it. I'm finding its been hard to work cause I'm so tired but I keep plugging away cause I AM A WARRIOR PRINCESS and that is what we do. -
Hello ladies.
I'm 37 and the mom of 2 amazing boys 4 & 7. I was dx w/ DCIS on 11/7 and had a lumpectomy on 11/30. I recovered well from the lumpectomy. It was pathology report I got the next week that I was not prepared for at all. It showed no clear margins, an excessive amount of DCIS and invasive cancer. I knew this was a possible outcome but was shocked. I was sent for a MRI which showed another area of concern. Had an ultrasound and another biopsy - luckily the other area of concern turned out to fibroadenoma. Given my age and the amount of disease my surgeon recommends a mx w/ recon. I've met with one ps already and meet with one more tomorrow. My bs already has me scheduled for surgery on 1/31 - which I thought was odd since I haven't yet decided on which ps I was going with. She assured me it was fine. As much as I wish we weren't all here under these circumstances - I'm glad to have found this board. Just reading some of the previous posts has been very helpful and reassuring.
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