Calling all ladies in their 20's

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  • amandabiv
    amandabiv Member Posts: 67
    edited December 2012

    kathyhong: Im not sure what Im allergic to I dont seem to break out until after I have come home and its the next day. Reconstruction is nothing like the mx, I was a little sore like I had been lifting weights but other then that I was fine and doing great now! I really dont think it would interfere with your schooling even if its just a few days before the semester starts! Why cant you see your doc about your rib for 2 wks?? I hope its nothing serious and you feel better soon my thoughts and prayers are with you!

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited December 2012

    Amanda-
    It doesn't hurt much now,but I can definitly feel like it is popped. My doctor doesn't have any openings available to see me till then.
    I know its completely different. No drains and I can go home the same day. I just don't want to go to class while my incisions aren't healed and I have to do lab practicals or anything. Not sure how I feel about that either. I'm just nervous about this whole exchange. I still can't imagine what my boobs would look like after. I'm gotten so used to seeing the tissue expanders. Still not used to them being so hard.My friend barely hugged me and she said I squashed her boobs haha!

    On another note, how are you healing and feeling? :)

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2013

    Hey girls

    It s been long I didnt pay you a visit on this thread Cool I am ok, back to life after a whole trip in the dark. I turned 25 and am happy that am still alive Innocent . yes I lost my breast but I got rid of  my bad luck with it. In my mind, I am already reconstructed I never feel tht loss. Hey wat kind of ps I should have?? any suggestion? everyday I change my mind flap, DIEP, Dorsal, expanders...... I want to have awesome new barbie Breasts Tongue OutMoney Mouth WELCOME FOR THE NEWCOMERS. We lose the battle but we win the war I keep saying this to myself evryday. As soon as I am done with my reconstruction, I will get back to flying as a cabin crew. It s my passion even Cancer cannot come btw me n my desire. Wish u all happy new year full of health, love and prosperity. 

    One bad news: My twin sister found a lump in her chest , the radiologist says it s nt dangerous but i AM RELLY paranoic . Am getting allergetic frm the word LUMP CANCER SURGERY

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited January 2013

    Rosaa-

    Welcome back!? I just turned 22. I have the tissue expanders in after my mastectomy. I'm going for my implant reconstruction exchange soon. :)



    Wow but at least you'll be there to give her advice? And it's not cancerous for hers so that's good. Bad that she found out but "better sooner than later" though :) hope all goes well!! Wish her good luck!

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited January 2013

    Just found out my reconstruction is next week on the 16th..suddenly I'm more anxious and nervous this time and I never even felt this way with the mastectomy.

  • littleone2012
    littleone2012 Member Posts: 1
    edited January 2013

    Hi ladies!



    I was diagnosed when I was 25. I found the lump when I was 24 and deployed to Afghanistan. Because of my age and size of the lump, they told me it was just a cyst. About three months later, I went for my annual and my gyno told me it was just a cyst again even though the lump had grown. Unfortunately it took my lymph nodes swelling up to make the docs realize that something was wrong. I finally had a biopsy and they told me that I had stage IIIc breast cancer. My tumor was almost six cm which sucks because I'm so small chested anyway. I went through six rounds of chemo and herceptin treatments in between. Thankfully, the chemo worked it's wonders and got rid of the tumor. Now I only have one lymph node that is still cancerous. They are removing it next week when i have my double mastectomy. The great thing about it is that the Marine Corps is going to pay to give me brand new boobs :)

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited January 2013

    Littleone2012-

    Good luck!! :)



    I'm on my way for my reconstruction :) Ah I'm really nervous and wanted to say wish me luck everyone! For some reason I'm not scared just anxious. I haven't slept and I'm getting hungry but luckily I think I'm the first person to have surgery or at least one of the first few today. I'll write again soon! Bye ladies!!

  • Brittburrell03
    Brittburrell03 Member Posts: 1
    edited January 2013

    Hi I was just diagnosed with breast cancer at the age of 27. I'm scared and a little lost. I know I will be losing both my breast. Now I've been told it has spread to the lymph nodes. And it just all seems to be happening so fast. I started a blog for the same reason this one Started. That young people like me need guidance. All my info is for women over 50. Everyone so far has just looked at me with that "holy crap how sad face"

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited January 2013

    Hi Britt. I was DX at 27 with extensive lymph involvement. I got my 6 no post treatment scans yesterday. All clean. You will get there. Its scary and emotional. You are allowed to be a wreaj and have bad days. But you will get through it. Big hugs.

  • Rosaa
    Rosaa Member Posts: 54
    edited January 2013

    hey

    big hugs to you dear kathythong , Hope your reconstruction will go well :) Mine will be end of March I opt for Diep flap . Fingers crosses .

    Brit: Welcome sister, wish u recover soon just think that u will lose a battle ( breast) to win the war. just be strong stay positive . Shit Happens but also fade away :) 

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited January 2013

    Rosa-

    thanks, I'm doing great right now :)

    Can you actually explain the DIEP flap? I just had the regular expander - implant exchange.

    Good luck!! :)

  • Kmo20
    Kmo20 Member Posts: 7
    edited January 2013

    Hello!

    Oh my gosh what a breath of fresh air. I am 28! i was just diagnosed 3 weeks ago and have been ona hellish rollercoaster ride since. Like a few of you that I have readposts- my PCP as well as my breast specialist also thought my lump was a fibroadenoma.... so when the lumpectomy results came back and had cancer cells it was a suprise to us all. I have had two surgeries and a slew of tests and blood word done. I feel like a pin cushion. I am currently recovering from my latest surgery and I am lucky- all my tests are negetive for now. 

    I have been able to deal with this except the baby part. I am DEVESTATED. my husband and I were trying to concieve when this all happened and I had been ready to have kids for a while now so this is just.. i am having a very hard time accepting it. 

    My husband and I have been meeting with a fertility doctor to freeze my eggs. Then I will have radiation and get on that blasted tamoxifen. I hate it!!!!!! i dont want to wait 2-5 years. i am so so sad. i have been desperate to talk to someone my own age about this. so I am so thankful to find this.

  • Rynie83
    Rynie83 Member Posts: 4
    edited January 2013

    Hi girls. I'm 29 years old and i've recently been diagnosed nearly 5 weeks ago. In that time so much has happened and i'm forever a changed woman!

    On my 29th birthday i had my surgery! (cruel right!) I had a lumpetomy to remove the 2cm carcinoma in my right breast. Also at the same time i had 3 lymph nodes removed for testing. Which one was found to be microscopically cancerous and the other 2 where all clear. So the fact that it was tiny & only in the first one kind of incourages me. I was told my tumor was slow growing and slow spreading. I had a bone scan & ct scan which where all clear, thank god.

    My husband and i have been married for nearly 4 years and we actually have been trying to have a baby for the past year without any luck. (we've both been tested and no issues down there) So we don't have any kids yet, so because of the chance of going into menopause during chemo we have done one round of IVF. Which ended up being very sucessful, we've now got 21 frozen embiros waiting for us! So now that i've finished a round of IVF i'm just about to start my chemo. I'm ready to start it and honestly cant wait because i know it'll make me better in the long run. As much as i don't want to loose my long hair i know i have to do it for my health.

    Is anyone out there in a similar situation as me? I've never been so terrified in my life of this thing that could have or could still kill me. I know i've got to be positive but i cant stop thinking about the bad things, which i wont say but you know exactly what im talking about.

    I wish with all my wishes & hopes that cancer didn't exsist. That all cancers are cured and nice people like us didnt have to go through such a horrible thing. It's just not fair.

  • ebonylove
    ebonylove Member Posts: 6
    edited January 2013

    I’m not looking for sympathy, empathy, a pity party, a shoulder to cry on, or gifts. I’m looking to step into your heart and express what I’ve been through. I’m here to Empower, Educate, and Inspire YOU. Its wasn’t easy, its wasn’t cute, its wasn’t fancy, its wasn’t fabulous, its wasn’t HEALTHY. There were dark days, there were sad days, there were many days I couldn’t get out the bed. There were days I thought I wouldn’t make it, days I thought I couldn’t take it. Days I looked at my son and felt bad I couldn’t be the mom I once was. Days I worried about if I would see the next day, would I see him grow? Days I worried if I would ever pursue my career. What about the day I woke up with no hair? The day I lost my eyelashes, eyebrows. The day I went to surgery and feared I wouldn’t wake. 16 rounds of chemo, 32 doses of radiation, 5 months of physical therapy. The nausea, the puking. The day I didn’t feel attractive. The days I went through pre-menopause. The day I realized I would never do a cartwheel again. Days I walked around with drain bulb bags connected to my body. The stiches, the incisions. Days I cried. More and more days of crying. PAIN! So all this awareness I’m doing, it ain’t for nothing. Believe me, It's for SOMETHING. SOMEBODY. IT'S FOR YOU! It’s because you are beautiful. It’s because you are simply you. We need You. Your family needs you. I need you...I need you to be proactive. Please, be conscious of your body. Don’t ignore it. Had I ignored mine, I promise you, my social media pages would have been full of RIP messages. My intent to be an advocate for breast cancer awareness is because...because I don’t want to see you or your friends and loved ones go through what I've been through. This is for you. It was already a test for me

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited January 2013

    So I'm actually surprised the TE-implant exchange went well. I don't know what my final implant size will be so I'm freaking out but my pain has been minimum. I was only on pain meds for like 3 days...

    I never and still never thought I would have done this at such an early age. I had a lumpectomy at 20, a doubly mastectomy at 21 and I'm 22 and just had reconstruction.

  • kk11
    kk11 Member Posts: 210
    edited March 2013

    Hi ladies. It's been about 8 months since I last posted. After I went back to work full time, things got very busy quickly, but I've recently been reminded to step back and to get more rest. Next month it will be 2 years since my diagnosis. In August, 3 years since my molar pregnancy miscarriage. Both of which required chemo. I felt like my energy was coming back last summer as I had started running and training for a 10k. I still have my moments (17 months post last chemo) where I feel exhausted for days on end and I get achy joints (comes and goes). I'm currently on Tamoxifen (been on it for 17 months).

    I belong to a local young women's group where I live and we recently lost someone who had been diagnosed early 2012 (she was a wonderful person and did everything right, but just had extremely bad luck to have it come back in her liver just a few months after she finished chemo and double mastectomy). It has really shaken me up. I was depressed for weeks and I keep being paranoid about every ache and pain and the fatigue I've experienced. It goes to show that you can be doing just fine and still have your moments.

    For those of you ladies who have a hard time with pregnant women/friends, I still struggle with this, but it has improved. I was 28 when diagnosed and 30 now. We froze embryos, but our fertility specialist would like to see us try naturally for #1 (if we take a break from Tamoxifen) and save the 9 embryos for #2 (if possible). We will take it one at a time. I would love 2 children, but will feel blessed if we end up with just one after everything I've been through. Hearing that we would need to wait another 5 years after I'd already been delayed nearly a year due to the molar pregnancy was devastating. But time does fly if you try not to focus on it. We have been strongly considering taking a break from Tamoxifen at 2 years to try to have a baby, because I don't think we'll have much of a chance to have 2 children otherwise. After my friend passed away, I started to rethink things, but have since decided to wait until the 2 year mark to make any decisions (that will be in mid-October).

    It's been difficult emotionally since my friend passed away and I realized I hadn't been coming online to check in and wanted to see how all of the ladies on here are doing as well as to give encouragement to the newbies. There is a lot we can't control, but there are things we can do right as well. My personal opinion is that I don't want to have any regrets that I didn't do more to take care of myself and prevent recurrence. If we want to take a break at 2 years, this means that I need to exercise (which can be tough when things ache), eat well (no or little added sugars, high vegetable/fruit diet, low dairy/animal products), reduce environmental toxins where possible, get plenty of rest, reduce stress, and take the Tamoxifen until we're ready to take the break. We've been eliminating products from our home over time as well to reduce the toxins around us. There is a website: www.ewg.org that grades common household products and we started tossing the ones with a D or F grade (regardless of how much was left). We are trying to stay with grades A & B. The same website also has a section for skindeep and it ranks products such as soaps, lotions, hair products, etc from 0-10 with 10 being the most toxic. This gives me the feeling that I have some control over reducing my chances of recurrence. Not sure what the rest of you ladies are doing, but please share if you have any lifestyle changes that you think may benefit us all.

    Sorry for the long post and for not addressing each of you individually. I did go back and read all of the posts since I last visited and was sad to see some of you as young as 22/23. I thought it was bad enough at 28. But turning 30 felt like a victory to me, which I'm sure you all understand. I have always been a birthday person and others used to say, "just wait till you get older". Well, I'll never be sad to turn 40, 50, 60, 70+! I now have the ammo to respond and say, I'll be happy to turn 60 because it means I'm still here 32 years after diagnosis! Good night ladies and I'll check back soon.

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited March 2013

    Hey KK!  Glad to hear from you.  Its hard to have someone in your life pass, whether from cancer or not.  My dad just passed away unexpectedly a few weeks ago, and its really thrown me for a loop.  I hope over time, it gets easier. 

    It definately seems like you are having some hard times emotionally rihgt now "big Hugs".  I hope that soon things start to pick up.  Maybe when spring hits and its sunny and warm.  Just keep taking it one day at a time.  I am only 6 mo out of treatment, I just got my scans in January, but all my docs are optimistic.  some of my MDA docs are even throwing the "C" word in there.  There is a really good chance that everything will continue to work out well for you! I wish I could do more to offer you encouragement.  Big Hugs!

  • kk11
    kk11 Member Posts: 210
    edited March 2013

    Hi MMM. I'm so happy you're doing well physically post treatment, but very sorry to hear about your dad. I can't imagine how you must feel, but I'm sure it's a difficult time for you as well. I think everything hits harder after what we've experienced, but these are also the reminders to be grateful to be here because others are not so lucky.

    As for energy, it takes time to get the energy levels back and even still, you can have your low energy moments that hit harder than they would have pre-cancer. I have had a tough time emotionally, but had my 4 month onc check-up today and feel better about a lot of the concerns I had.

    My onc left to move out of state, so I had to switch and today was my first appointment with my new onc (I had met her once before for genetic testing as that's her specialty). While my previous onc did not want me to take a break to have a baby, my new onc said that she was okay with it. There's always a risk associated with stopping Tamoxifen early, but felt like it was a small one for me as long as I'm symptom free. So, I'll see how I feel at 2 years, which is just another 7 months away. There's also new research about Tamoxifen that suggests 10 years is better than 5. But it was really refreshing that she understand that waiting 10 years would be asking for too much and she said it was too premature to have that discussion anyways. Personally, I'll deal with Tamoxifen for the 10 years, especially if I can have the two children (or even just one) that we always wanted. One step at a time I guess.

  • Amanda84
    Amanda84 Member Posts: 3
    edited April 2013

    Hi everyone,

    So I found a couple lumps in Novemeber and finally had them looked at two weeks ago. My OB-GYN felt them and sent me for a mammogram/ultrasound. They referred me to a breast surgeon and I am having three lumps removed from my left breast this afternoon. I'm 28 and am getting married in June. I am obviously scared, but I this forum has helped me so much already.

    Thank you,

    Amanda

  • TreadSoftly
    TreadSoftly Member Posts: 192
    edited April 2013

    Hi ladies!

    I haven't posted here in ages, have been busy with work, life, marriage, running & generally getting on with living my life!

    I was diagnosed in 2009 & am almost 4 years out now. I'm doing great! I don't come on here as much as I previously did as I tend to read the sad stories about recurrences etc & they can get me down. Its important to get back to living my life in the present & stop worrying about what may happen!!



    I'm taking a tamoxifen holiday to see about trying to conceive naturally. Was on it for 3 years. Would love to start a family. All my friends are either pregnant or have children & I definitely have the maternal urge!!



    I hope each of you are doing well. For those undergoing treatment, please know it gets much easier & BC treatment will soon be a distant memory

    Xx

  • swearp
    swearp Member Posts: 22
    edited April 2013

    It is sad to see ladies in their 20s having this. I am also 28 and last month DX with comedo type high grade DCIS with largest area of 4CM. I had lumpectomy last week and waiting for final pathology report. Hopefully the report is good with no further treatment. I am ER/PR -VE. 

    I wish all of you here a full and speedy recovery. 

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited April 2013

    Seems like everyone still going through a lot..

    @SWERP-
    I hope your path results come back good!

  • kk11
    kk11 Member Posts: 210
    edited April 2013

    Hi ladies. 2 years ago today I was diagnosed and I wanted to come on here and tell you all how grateful I am that I found you and that we were able to support each other through our journies.

    To those just starting your journies now, you have found the right place for support and information.

    Amanda84 - Did you get your results? Hoping that the lumps you had removed are negative for cancer.

    Treadsoftly - Yay for 4 years! I'm also on Tamoxifen and will take a break at the 2 year mark later this year to try to have our first baby. I hope it happens quickly for both of us. That kind of sounds funny because nothing about our family planning has been "quick". I was trying for a baby in 2010, had a molar pregnancy that took 6 months to treat, and then dealt the breast cancer card 2 months later. But hopefully in early 2014, we will have both made progress towards having that baby!

    Swearp - Did you get your pathology results? Will you need further treatment?

    kathyhong - Looks like were diagnosed around the same time. Hope you're doing well!

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited April 2013

    @kk11-
    I'm doing well, and you? :)

  • TreadSoftly
    TreadSoftly Member Posts: 192
    edited April 2013

    kk11: yes, hopefully we will both be on these boards with happy baby news in the coming months!!  Im only 2 months into trying so early days yet.  Our one advantage is that we definitely have age on our side! When are you the two years on tamoxifen?  My oncologist was happy for me to take a break from it after the 2 years, which was reassuring.  For work reasons etc, I did 3 years before stopping.  Will definitely be completing the full course after this break though, whether thats for 5 or 10 years, I still have to chat to my onc about that.

  • Tucker519
    Tucker519 Member Posts: 4
    edited May 2013

    Hello all,

    I am 29, and was diagnosed on December10, 2012. My cancer was triple negative, and I tested negative for gene. I had a sentinel node biopsy, they found micro mets in 1/3 nodes. I did four rounds of adriamyacin/cytoxan and 4 rounds of taxol every other week. Finished chemo on April 4. After going back and forth for a long time, I decided to have a bmx and TEs. I had that on April 22. I am a little over a week post-op and am feeling pretty good. Just have a lot of tightness. I get my drains out tomorrow (yay!). My path report showed clear margins, and I hope to have clear scans soon and officially be cancer free.  I wanted to share my story with my fellow 20 somethings. I am married with a 10 year old step-daughter, 3 year old son, and 10 month old daughter. I had my daughter last June, my dad passed away 2 weeks later, and 6 months later I was diagnosed with breast cancer. So it has been a very strange year. I feel a lot of guilt for possibly passing this to my daughter, but I am blessed to have her. Taking care of my kids and knowing I have to be here for them and helped me get through this whole experience. I also had and aquaintance who was recent young breast cancer survivor. She helped me so much, and is now a dear friend. I used these boards for advice, or just to read other's stories. Anyway, I am here for any questions, advice. I turn 30 in July, and hope to leave my 20's cancer free.

    Erika

  • Rosaa
    Rosaa Member Posts: 54
    edited May 2013

    Hey Everyone. It s been long I didn't post here but been following ur news am very happy that most of u are getting back to life through work family and desire To be mums it s been nw one year almost free of chemotherapy am calling myself previvor even if my doctor considers me as a walking dead I had a lesion in sternoma that he thinks it s cancer n he gave me zometa fr months n am ok then nw I had a lesion in my head and he thinks it s brain tumor fr him everything is cancer even if the MRI always prove the opposite am nt stressed abt the way he tries to influence me am more strong and I learned to live life as if I will die Tmw am nt afraid of dying young it s a journey to the eternity but I have some dreams to be fullfilled before and my will of iron will obsolutely make them come true I want to fly all over the world go to Africa to face the hunger and help the starving children there ...... I want to change this world somehow to the better and I will :) Pssst I started my TE and am excited to have two new sexy breasts free frm cancer . Miss u all kisses MAy God bless all of us

  • Rosaa
    Rosaa Member Posts: 54
    edited May 2013

    CAN anyone tell me how appropriate is a TE reconstruction With a cabin crew position ????

  • luckykitkat09
    luckykitkat09 Member Posts: 190
    edited May 2013

    rosaa-
    Ummm I think you would be okay..since what you are wear at work covers everything right?
    So, you should be okay...I would take notice on how tight your shirt and jacket is though...
    When I had TEs in, my TEs were pretty big (and hard..no pun intended!!) compared to my implants right now. SO if I wore something too tight then it made it look ginormous :/ but I think you'll be fine.

    Good luck ^^

  • nutmeg_89
    nutmeg_89 Member Posts: 22
    edited July 2013

    Hi everyone,

    I found my first lump when I was 15 or 16 and lost of ultrasounds and needle biopsies but all came back as benign. Since i was so young the said not to worry about it and to come back next year or if i felt like it was bigger or more painful. By the time I was 18 I was tired of being poke and prodded and since everything kept coming back as benign I didn't go back until I was 21. That is when the new doctor I was going to told me I fibrous tissue in my breast and a few cyst but it was nothing to worry about. At 23 I went back to the doctor because I couldn't take the pain anymore and after another ultra sound that doctor also told me that it was just fibrous tissue. Luckily my boyfriend was extremely supportive and admit that I get it taken out, which may have saved my life. One month after I turn 24, which just happened to be the day after Christmas, I had a lumpectomy in my left breast. Two weeks post op, expecting the same old news of begin cysts or fibrous tissue, I went in for my check up alone. When my doctor came in and asked if I brought anyone with me which she had never done before I knew something was different, that's when I was told that I had breast cancer. For some reason I didn't feel sad or overwhelmed almost like I already knew somehow. I think it was a lot harder to tell my family especially my mom and boyfriend and see them cry then to hear it myself. After what seemed like endless tests and MRIs my doctor told me I had more left in my left breast and what could be more in my lower right breast. She told me that in her opinion my only choice was a double mastectomy that I had on March 22. I'm currently in my final stages with my tissue expanders and can't wait to exchange these rocks for some nice softer implants. At this point I have decided not to do chemo and to try to get back to a normal life as soon as possible. I'm so glad to hear from people my age :)

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