January 2013 surgery

Options
18911131445

Comments

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2013

    Awwww Mir, so glad to hear you are doing so well!

    You take care Hon and let us know how you are when you get home.

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2013

    Hi Amy, love that photo avatar!

    So glad to hear you have more info on your surgery, but sorry there is no date yet.

    Will  look forward to hearing your news as it comes in. Take care!

    Peanutsgal, so pleased at your steady recovery, shame you can't get out for your walk, but it will come soon.

    Isn't it amazing how we all agree that the waiting was far worse than the actual surgery. The mind is a powerful thing isn't it!

  • smethot
    smethot Member Posts: 161
    edited January 2013

    Just had a thought that made me feeel WAY better about surgery next Friday (and it can't come soon enough).  Can i say i had my nasty, little bc REMOVED Jan 18th with surgery?  And now i DO NOT have bc- IT IS GONE.  NOW I'm just making sure the little bugger and all his buddies are ERADICATED through chemical/radiological WARFARE!!!  Its a WAR.  I KILLED primary target #1 (so long lumpie!!!)  I killed the high council (sorry nodes- i know you were just doing your jobs).  And now i'm after EVERY LAST ONE of the foot soldiers.  Sorched earth policy, no evil cell left standing.  I LIKE IT.  (Or I'm going mad- I'm Canadian...we're peacekeepers!!!)  But i LOVE the thought of being bc free- and taking the time to destroy any of the bad guys who linger.  Think this is a mindset i can embrace...

    On another note, i made a play doh lump to show my best friend how big my lumpie is...actual shape and dimensions.  She was astounded i found it one my own (yeah self exam!).  Then i placed the lump on the desk and SQUISHED THAT F***** FLAT!!!  It felt great!  Death to lumpie!  Symbolic but truly?  A LOT of fun!  (Stange things i do to make myself feel happier!  Laughing)

  • JRMH
    JRMH Member Posts: 59
    edited January 2013

    smethot- I love your thoughts! Thanks for sharing! :)

    Amy- I updated your info. :)

  • jebdra
    jebdra Member Posts: 76
    edited January 2013

    Good morning all

    Firstly and most importantly - I've got really good news to share - no signs of cancer in the lymph nodes - so I'm absolutely over the moon.

    The SN scan yesterday morning (24 hours ago now) was not nearly as bad as I'd been dreading - very little pain and only took about 1.5 hours.  The solution showed up in the nodes on both sides for the first scan.  I guess I'm one of the lucky ones.

    Then I went to check into the hospital and the fun started.  First, they had my date of birth wrong.  They'd put my admission date and my birth year!  So all the paperwork had to be redone.  You know how everybody always asked your name and date of birth and won't proceed until everything matches - so I was a bit paranoid that everything had been changed correctly.  Then I was told I was last on the list and wouldn't be done until about 6pm (it was now 11am - so I had a 7 hour wait). Then the girl who took us up to the room was very cheery and a little simple.  She asked how long I was staying and then said "well that will be a nice 2 days holiday for you" and I just snapped.  I said - I'm not here for a holiday, I've got BC and I'm having a BMX - and then she got all upset and started crying and I felt really guilty for being nasty when she was just trying to be cheerful.  Then when we got to the room, there was no bed!  So all in all it wasn't the best of hospital check-ins.

    But things soon got much better.  There was a cancellation, and I ended up being taken down about 3pm.  Saw the anaethestist, who was a lovely lady with a great sense of humor.  Went sleep and woke up in recovery with the nurse saying "it's all over and the nodes are clear."  So nice of them to wake me that way.  So - no ALND - hurrah.

    I had a sort of OK night - you know how they do obs every hour, and now I'm waiting for breakfast.  They finally gave me my laptop so I can share the good news.

    I know I'm not necessarily in the clear, and there may still be problems, but I'd just about convinced myself it would have spread and finding it hasn't is just the best morning of the rest of life.

    To all waiting for surgery - I second everyone else's opinion - the actual surgery is a walk in the park compared to the waiting. 

    Love and hugs to everyone - I love the whole world today :)

  • josie123
    josie123 Member Posts: 1,817
    edited January 2013

    Home from the surgery and all went well.Anesthesia was great they listened to me and my concerns and decided to give me some Demerol for the pain.No scarey side effects.But don't be allergic to lidocaine they couldn't give me lidocaine for the wire in my Breast or the Nuclear medicine.when they inject the 3 syringes of radioactive isotopes or whatever it is into breast to locate lymph node.That hurt like the worst.Decided to send me home with Vicoden.This made me itch a tiny tiny bit but not anymore.Felt bad for the nurse in recovery. When I came I out of it I kind of grabbed her by the arm real hard. I apologized to her later,she said it was fine.She said she,s been punched slapped bitten.Dangerous job apparently to recover people from anesthesia.Not sure how many lymph nodes were removed.Guess I will call office in morning.Thanks for all the prayers and support.S glad I found this group.!!!

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2013

    Jebdra,

    Doing the Hppy dance for you!

    What amazing, sensational news! I couldn't be happier for you.

    So glad it ended up going so well after that iffy start at the Hospital. It's all onward and upward from here.

    Relax, and get well!

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2013

    Josie, that is a relief, you are on the other side of the surgery now. Yay! I am so glad that you didn't have any trouble with the meds, and they listened to you.

    Sorry to hear you had a rough time with the tracer. I hope it didn't last too long.

    I wouldn't be one of those nurses for anything. I have heard some horror stories about people having to be restrained when they come out of anaesthetic.

    Take care and get well now!

    I totally agree about finding this group, I don't know what I would have done without their support.

  • Ariom
    Ariom Member Posts: 6,197
    edited January 2013

    Love that description Smethot! Especially the Play Doh lump destruction!

  • Destina
    Destina Member Posts: 89
    edited January 2013

    Hey January sisters and loving guides who've walked before us ~



    I'm just home from surgery and agree with everyone that the pre-anxiety is MUCH worse than the surgery itself. I'm still on my nerve block so can't speak to any real pain, but they did say I started moving when my surgeon went for the sentinel nodes so they added a general. I felt a little woozy coming out but no issues and now that I've had a half sandwich and plenty of fluids, I'm feeling more myself.

    An interesting aside. I felt very calm going into surgery and for all the pre-op stuff (sentinel node imaging, needle loc), but when I came out of anesthesia I really felt like crying. Didn't feel worried, just very emotional. They said they see that pretty often. Hmmm.

    My surgeon took out 4 nodes, but I won't have results for at least 48 hours. Really interesting that you got the all clear right away, Jebdra. So happy for you!



    Anyway, really happy to be home in my recliner with my jammies on and such a cute purple floral tube wrap(!). Wasn't expecting that, but feels more comfy than a bra for now. Another bonus is that I don't have any drains and my surgeon told me I could shower tomorrow. All in all, just felt like a nap with nice dreams. :-)



    Oh, one more thing... All the checking of name, birthdate, what and where my procedure was...comforting so they didn't make mistakes. But during the needle localization, the radiologist asked me which breast I was having the procedure on, to which I replied, the one you have in this vice! She cracked up and said she appreciated my sense of humor. Thankful for that.



    Love and well wishes to our Jan 10 sisters: destiny, trailer and cookie. It really will be over before you know it and we're all en route to regaining our wholeness!

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Ariom... I will def keep you all posted! I picked my plastic surgeon today he is the cheif of plastics for all of St.Marys hospital and has been doing it for several years plus he keeps up on all the latest techniques. I feel I am in great hands.

    Its looking like it will be close to the first week of February which isnt far off..



    Smethot... Oh my I almost spit out my water when u said u squashed it fing flat! I love it....



    Josie123.... So happy to give support and Im happy you found this group too! Wishing you a speedy recovery my friend : )



    Jebdra... Oh my I would of been second guessing my surgery date with it being set off on such a bump ride.... Im superstitious... But glad to hear you are done and in the recovery phase!



    Destina... Are you planning to sleep in the recliner? My dh said he would buy me one... Ive read quite alot of woman prefer to for about a week after surgery. Happy you are home and all went well. Nothing like the calming comforts of home.

  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2013

    Amy get the recliner! I have lived in mine since chemo.



    Had a low fever all day, but i know it is my body working hard to repair itself.

  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2013

    Jojo.... I will! Thanks :) sorry today is a rough one for you

    ((((soft hugs))) cause your sore :)



    Everyone... Need ideas for things to pack for surgery please!

  • MMSS
    MMSS Member Posts: 103
    edited January 2013

    Special good wishes, love and prayers for our heroines for the 10th Destiny, Trailer and Cookie. Onward to victory.

    Jojo, you might want to increase your fluid intake a bit it you have a fever. Dehydration is a major cause for fever.

    Jebdra, I have to tell you a funny story. Your experience with the girl who took you up to your room reminded me of it. Many many years ago when I was 14 my first job was working in a hospital doing a similar job. It was before the days of instant messaging or even pneumatic tube systems for transporting messages between departments so it was done by hand. The problem was that the very innocent people who started the program named it the call service and the boys who worked there were referred to as "call boys". Then they started hiring girls and it got dicey. One of our duties was to escort patients to their rooms from the admitting office and you should have seen the looks on the faces of the male patients when the stupid admitting clerk would announce "the call girl will take you up to your room now"! We got quite a few dirty looks from the wives also. Never let it be said that we were not a full service institution. What made it even funnier was that it was a church run hospital which probably accounted for the level of innocence that made such a mix up possible.

    It is so good to hear that so many of our courageous band of sisters are doing so well. It gives the rest of us hope.

  • jebdra
    jebdra Member Posts: 76
    edited January 2013

    Arion - thank you so much for the Hppy Dance - it must be a special sort of happy :)

    Destina - I'm so glad you're home and feeling OK.  Hugs and best hopes for the path results.  My surgeon took the sentinel nodes, and they get sent down to path to do a frozen section.  If they're positive, he would have done an ALND.  Since he didn't do a clearance, they must have been clear.  I have to wait for the full pathology, and the bone scans etc, and it may yet go bad - but for today I'm very very happy.  I was terrified of ANLD and lymphedema.

    Smethot - I'm like Amy and nearly choked on my water when I read your post.  It's brilliant.  I'm going to start calling mine lumpie as well if you don't mind (no copyright?).  I might get some play-dough as well.

    Josie - glad you're out and home.  That's really strange about the lidocain though.  My doctor who did the nuclear SN scan said they couldn't use any local anaesthetic because it slowed or changed the lymph drainage, so he told jokes instead - then spiked me when I was laughing.  When I asked if it was in, he replied "that's what my wife asked me last night"  and when he did the other breast and I said "I hardly felt that" he said "yes - my wife said that too".  I laughed so hard I could hardly hold still for the imaging.

    Thought I'd make you all jealous - here's a pic of the view from my hospital bed Smile

    View from hospital room - Bethesda

  • Speedy4
    Speedy4 Member Posts: 136
    edited January 2013

    So nice to hear how well everyone has done with surgery and best wishes for those scheduled tomorrow!

  • RMlulu
    RMlulu Member Posts: 1,989
    edited January 2013

    So good to read Jan sisters post-surgery reports. You're great encouragement for the soul! I walked to my support group today...on my way home smiled up at the hospital knowing in less than 14 days I would have C out and battle charge full on!

    ((HUGS))

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited January 2013

    So good to hear so much good news! Too many for my swiss cheese brain to remember. I'm ready for tomorrow, I think. 10:30 surgery, 9:30 arrival. DH and I will take DS to school in the morning and then be able to spend time together before we have to be at the surgery center.

    And why, oh why did I have to get the migraine tonight when I can't take my usual med for it? Luckily mine are pretty low level. They're also hormone related and I so expect my period to arrive tomorrow just in time for surgery - YAY?

  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    Destiny, trailer trash and Cookie Monster.....sending prayers and hugs your way for a great outcome and speedy recovery.



    JoJo...Sorry your running a fever. Hope it goes away. Prayers for you too!



    Smethot..You go Girl. Lumpie and friends are history!!



    JRMH. You must feel so much better with that tooth gone. Of all things to happen!



    Jebdra. Beautiful view. I will have buildings and rain!



    Amy...I second that about the recliner. Get one. I live in ours and plan to sleep in it when I get home. My DH is having a hip replaced when I'm all done and he will also use it. They really do come in handy!



    Prayers to all of you recovering!

  • robinlee76
    robinlee76 Member Posts: 27
    edited January 2013

    Hey ladies! My surgery went well. Bs actually ended up taking out 2 nodes so we will see. I am still in the hospital. My son got a fever last night so they did not want to send me home. I luckily did good with the anesthesia. I have 4 drains so manuvering them in bed without pulling has been fun. One of my nurses actually stiches a drain bag for each one of us here. Very nice group of women I have here wish they could go home with me ;-)

  • jebdra
    jebdra Member Posts: 76
    edited January 2013

    MMSS - thanks for the laugh - that's priceless.  You're right though, a church institution is often naive like that.  Although I suspect the admitting clerk knew exactly what he was doing.

    To all the sisters of the 10th - I'm sorry I've been selfish thinking only of myself.  Good luck to Destiny, Trailer and Cookie.  By this time tomorrow you'll be wondering what all the fuss was about. 

    Hugs and positive thoughts to all.

  • Lmimp64
    Lmimp64 Member Posts: 219
    edited January 2013

    Hi. My surgery was yesterday. Here is the honest report about it. :) I was a wreck going in the hospital, but everyone was very kind. The radioactive node injections didn't hurt a bit. Lymph nodes negative based on biopsy. Yea. Hopefully final path report will agree and stage me at 2a. Did well in recovery and began drinking lots of water about 4pm. However my body didn't absorb the water and it all came back up about 8:30. What a mess. Happily three nurses were here to help me. About 11pm I started swelling and bruising. (I had immediate recon with implants). I'm in pain but it's manageable with the meds. The doctor just came in and said a lot of the discomfort is on the inside, even though I see swelling and bruising. Getting out and in of the bed is the hardest part, even though it's a hospital bed. My breast area is totally numb all the way round to underarms. I know some people gain some sensation back. I'm doing ok and it wasn't as bad as the wait. I'm glad my surgery sisters did well, and I am thinking of everyone today. Best to all.

  • Tamiami
    Tamiami Member Posts: 396
    edited January 2013

    Good morning everyone~

    I'm so glad to hear that 1/3 the way through January and we are all doing well...even those waiting for their surgery day seem to be a little less anxious! 

    6 days post op and I'm doing really well.  My BS surgeon doesn't want me to shower until the drains are out (my PS said I could, just keeping my back to the water), so I decided not to shower.  I'm doing "sponge baths" and took a trip to the salon I work at on Tuesday to get my hair washed and blown out...I'm going again tomorrow!  That was a great treat!

    The recliner has been a Godsend.  I can't imagine laying flat in bed yet.  I'm only taking 600mg Motrin 4 times a day since yesterday and doing really well.  I did add a Flexeril at night to help me sleep and reduce the tight muscle feeling.  I see the BS this afternoon and hopefully get the full pathology results!  Then I see the PS tomorrow.

    Good luck, health and healing to all of those off to surgery today!

  • smethot
    smethot Member Posts: 161
    edited January 2013

    Glad everyone is doing well...and that you understand about lumpie warfare.  I'm down to 8 days and the little bastard is history.  I'm feeling a bit low today- while i'm very excited to get lumpie and the nodes out, i know i have at least 2 positive axillary nodes (from fine needle biopsy- but they are small 5mm and do not hurt at all- can't feel 'em either...) so for me, its a matter of how far its spread and what my ultimate staging will be- from a damned 1 cm lump.  That's making me feel pretty uncertain and not as positive as i want to be.  I keep telling myself i am young (40), healthy, fit, strong and able to throw anything and everything at beating this.  I need to get the nasties out and chemo/rad the hell out of any CELLS (not lumps or nodes but CELLS) that are left...and that i can beat the hell out of this.  But waiting and uncertainty suck.  But then i think maybe this is the nice bit BEFORE i get staged and know the worst.  Aaaaaauuuugggghhhhhh!  Just get me to the hospital and get this s*** out of me!  We'll deal with the rest from there...right?  Anyone with positive nodes that can chime in here???  thanks...

  • BrandieMcAdams
    BrandieMcAdams Member Posts: 44
    edited January 2013

    Smethot: I'm sorry you are feeling so low today. The waiting to get rid of things, knowing stages or even what something is is so difficult and mind boggling. I almost spit my coffee on my toddler reading about lumpie and the playdough battle. What a fantastic image. I may borrow the idea to explain to my kiddos what is going on and what will happen. Something tangible should help. Thank you for that idea! So far I haven't told them anything because I don't know anything other than there is a lump.

    I hope your fever goes down JoJo.

    Jeb-Yay for all clear

     destiny71 trailertrash  CookieMonster Good luck this morning!!

    Remember reading someone had lots of swelling--hope that goes down as well!

    Prayers for a speedy recovery. Anyone have suggestions on frozen meals that can be thrown in the crock pot?? I have a few recipes from when I gave birth (I'm a military spouse so my husband and I recovered pretty much on our own each time) and plan on throwing them in the freezer. My first Lumpectomy was when I was 18(fibroadenoma B9...recovery was due to the surgeon not realizing how large it had become and it literally rupturing through my skin as he started the incision)and the recovery was a nightmare so I am amazed at all you ladies who are doing so incredibly well after BMX or MX!! You guys are amazing.

    I'm banking on the fact that I've had 3 kids and managed on my own days afterwards with my third (husband deployed)...this recovery shouldn't be anything!!

    Again, you ladies are AMAZING!

  • NatsFan
    NatsFan Member Posts: 3,745
    edited January 2013

    Smethot - I also knew going into surgery that I had a positive node from a FNB.  The node was easily palpable and was HUGE - just about as big as my primary tumor (almost 3cm). At that time the standard of care was to do a full Level I/II axilliary node dissection (ALND) when there was a known positive node (not sure what it is now).  I had a total of 15 nodes removed, and wouldn't you know - that one node was the only positive one.  That beautiful node did exactly what she was supposed to do - she took the hit, absorbed the cancer, and stopped the cancer from going to the rest of my system.  (Yes, I imagined her as a beautiful fierce warrior who gave herself up to protect the rest of the body.) Yes, it's preferable that the cancer stays localized and doesn't reach the nodes at all.  But if it doesn't, the good thing is that your nodes acted to "catch" the cancer when it tried to escape - they did their job.  I'm holding positive thoughts for you that those nodes are as far as the "escape attempt" got, and the chemo, rads, or whatever other treatment you have will be your insurance to zap any tricky cells that are left.  By the way, you sound EXACTLY like my husband.  After I was dx, all he kept saying was, "I want the d*mn thing out!!!"  One thing to think about (sorry to add to your list of worries) if you are going to have nodes out, especially if you have an ALND, you are at an increased risk for lymphedema.  You may want to ask your surgeon about a pre-op visit with a certified lymphedema therapist who can do pre-surgical measurements on you and give you guidance.  Here's the official position paper from the National Lymphedema Network on suggested pre-surgical protocols for those having node surgery:  http://www.lymphnet.org/pdfDocs/nlnBCLE.pdf  

    Jebdra - do NOT feel guilty about saying something to the girl who escorted you to the room.  NO ONE who has ever had to spend time in the hospital ever regards their time there as a "vacation" and it was totally inappropriate for her to say that. I agree, she was just trying to be kind, but her training should have been better.  You may want to mention it to your doctor or even contact the hospital about it - not to get her into trouble, but for the hospital itself to know that they need to cover things like that in their training.  You don't want someone else who may be in even a more vulernable position to get hit with a comment like that.

    I'm loving seeing all the new-found confidence from those who have already had their surgeries.  And I love that you're already reaching back to give comfort and courage to those who are still waiting for surgery - you all are getting to the point where you don't need the "oldbies" like me anymore. Wink Bravo to all of you!   

  • smethot
    smethot Member Posts: 161
    edited January 2013

    Thank you, Mary.  It just hard to stay positive sometimes...i'll put on my big-girl panties and get on with it now.  :)  I'm REALLY trying to look at the good things here.  My lump is small...1 cm.  I found it before it got massive.  I'm hoping my little nodes did their job and contained the nastiness, too.  I'm feeling good because the nodes were only found by ultrasound, they are well within normal size, they don't hurt and heck, i can't even feel them.  Microinvasion of only a few nodes...that'd be ok.  My difficulty here is that NOTHING has gone well with this whole crap-process so far.  I've not beaten a sigle odd and i feel i've gotten the short end of every stick.  That said (pity-party much???), something has to go my way soon, right?  :)  I'll deal with whatever i have to deal with but catching a break on this one would be lovely.  :)  Any words on how long it takes to bounce back from a lumpectomy and axillary node dissection? 

  • Hopex3
    Hopex3 Member Posts: 397
    edited January 2013

    Robin...glad you are doing well. That is so nice of the nurse to make drain bags for people. I wonder if my hospital will do anything like that.



    Lmim...thanks for your surgery story. It's so good to hear what I may expect. Not looking forward to those TE's though.



    Tami..glad your liking the recliner. They really are helpful. I never wanted to own one as they are so bulky and remind me of older people but here I am sitting in it now and loving it.



    Brandie...sorry, no help on the cooking. I'm a terrible cook. I wish I could hire someone to come in and cook four nights a week. My DH does most of the cooking so I'm lucky there. What about making soups and freezing them. We used to have this store here where you go and make like 20 meals at once, then you take them home and freeze them. I've never used them but that's a thought.



    Prayers all around and take care of yourselves especially those recovering.



  • Lmimp64
    Lmimp64 Member Posts: 219
    edited January 2013

    Amy,

    Recliner wise - we rented a surgical recliner. It takes you all the way to a standing position from sitting and back again. It will really help when I go home. Highly recommend it.



    Jebdra - the view is gorgeous.



    Glad everyone is doing well



  • Lmimp64
    Lmimp64 Member Posts: 219
    edited January 2013

    Brandie,

    I'm a huge fan of slow cookers. I own 4!! Stepnanie O'Dea's site is one I have used. She fed her family for a year using only crockpots.

    Here is her blog and she has books on amazon.



    http://crockpot365.blogspot.com/?m=1

Categories