Stage 2 Cancer Just told I have Lung Nodules!

Options
karenneedshope
karenneedshope Member Posts: 44

I am a new breast cancer patient...just had a bilateral mastectomy in November, undergoing breast reconstruction, and just had my first chemo treatment last Friday. I am stage 2 with 4 of 17 nodes involved and removed. My bone scan came back clean, the muga scan was normal too. Just met with my oncologist who went over the CAT scan results which were that stomach and pelvis are clean but I have 10 small nodules on my lungs. All are smaller than 4 mm. She asked if I ever had pneumonia which I haven't. I have had bronchitis over the years (I am 54). She said these could either be nothing but could be the breast cancer has metastisized to my lungs. She said we will do nothing now - just wait and continue on with my chemo. They are too small to biopsy to determine if they are cancer. After chemo is done then I'll have another scan to see if they shrank ( a sign that they are cancer) or stayed the same (more likely scar tissue or something I;ve always had). I'm in shock...I can't believe this is happening. Had anyone else had this happen? What do they do for this? Is this normal to do nothing? Is it possible that this is the result of a lung condition since the nodules are in both lungs? I need help here ladies...I'm so upset!

«1

Comments

  • ohio4me
    ohio4me Member Posts: 491
    edited January 2013
  • Lee7
    Lee7 Member Posts: 657
    edited January 2013

    I'm sure someone will post for you that knows more about this than I do but I wanted to tell you ...don't think you aren't doing anything because you are..You have started chemo and that is probably the treatment you would do whether the nodules are from bc or not.  Your onc asked about pneumonia, and you have had bronchitis so it sounds like the nodules could just be scar tissue.

  • CubletKelley
    CubletKelley Member Posts: 3
    edited January 2013

    I am 27 years old with stage 2. I was told I have a nodule in my lung smaller than 4mm and unable to biopsy. They called it a granuloma. Said it was pretty common. Did they talk to you about granulomas?

  • maryah930
    maryah930 Member Posts: 322
    edited January 2013

    My daughter had lung nodules in both lungs, which turned out to be granulomas, when she she was 17.  She has asthma and had frequent bronchitis.  Because she kept getting a collapsed lung, they removed a portion of her right lung and she's been fine since.

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Thank you for the help everyone. I'm just freaking out - I haven't stopped shaking since yesterday. I wish there was a better way to handle this - the waiting to find out is insane. I also wish my onc had been more reassuring - she seemed almost shocked and a bit panicky when she read the cat scan results to me. That certainly didn't help!!

    She did not talk about granulomas...what are they? Are they scar tissue in the lungs? If i have several of these nodules in both lungs does that mean theres a greater chance of them being granulomas rather than cancer? She said they are very small and seemed positive about that at east.

    I wish I could calm down about this - just so scared...

  • pupmom
    pupmom Member Posts: 5,068
    edited January 2013

    Karen, I also had several small ones show up on my first CT. That was a year ago. Follow-up CTs show they have stayed the same so the dx is now granulomas. My MO said most people in the Midwest, where we are, have these. I also have had pneumonia and bronchitis, so that might have contributed to their development. Don't really know what they are, except they are totally benign and nothing to worry about.

    We all live with the fear, but it gets better with time. Best wishes!

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Hi yorkiemom- Thank you for your words of support. I'm so scared about this and hearing your story has helped give me hope. Did you have any symptoms of cough before your initial ct scan? Maybe I'm just being hypersensitive now but every time I cough I think it's cancer! I never had pneumonia but every time I had a cold it would settle into my chest and I would get bronchitis or an upper respiratory infection. The nodules they found are in both lungs so I hoping that's more consistent with scarring than cancer - but who knows! The lymph nodes around my lungs are clear and normal and my bone scan came back normal - both good things I think.

  • pupmom
    pupmom Member Posts: 5,068
    edited January 2013

    Karen, I have seasonal allergies, which causes cough and congestion. This has been going on for decades. I usually just cough a little to a lot at night when mucous gets into my throat. With your history my guess is that it's not cancer. But all these things have to be checked out and monitored. I've got my annual bone scan and CT scan coming up in March, and the anxiety is starting to build. I'm pretty sure everything will be ok, but as you say, one never knows. We just have to take things one day at a time. 

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Yorkiemom- thanks again. One day at a time is new to me but I will certainly try to make that my new mantra! That and maybe an anti-depressant to get through this! :))

  • maltomlin
    maltomlin Member Posts: 343
    edited January 2013

    Hi Karen

    Whilst my scan didn't show anything on my lungs it did on my liver. Like you they decided to wait and see if they improved etc. I had to wait 3 months to discover that they were cysts.

    I know what you are going through and nothing makes it any easier. Just be reassured that my scare was 5 years ago.

    It's easy to say 'stay positive' but the chances are that these nodules are nothing sinister. The equipment is so sophisticated these days that it picks up all sorts of nodules that we never knew about before.

    Take care

  • pupmom
    pupmom Member Posts: 5,068
    edited January 2013

    Karen, I had to bite the bullet and get an antidepressant too! It definitely helped.

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2013

    Karen, I'm so sorry you're going through what you are, but for what it's worth, I have seen so many women here told they have a spot or spots on their lungs, and it turns out to be something totally B9.  The fact that you have them in both lungs -- and with no other apparent symptoms, such as a nagging cough, for example -- makes me really think this is NOT mets.

    I have one question though.  You didn't give us your ER, PR, Her2 stats.  Do you happen to know what those are?  Deanna

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Hi dlb823 - I am ER and PR positive and HER2 negative. Ive been told that this kind of cancer responds well to chemo and to hormone therapy. Is that true?

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Hi maltomlin - So happy to hear that your situation had a positive outcome. It's scary tho - and the wait is ridiculous! I really hate this cancer!

  • pj12
    pj12 Member Posts: 25,402
    edited January 2013

    When I was being "worked up" prior to lumpectomy a spot showed up,in one lung. Over the next three years I had four CT exams and two PET scans. Ended up with a pulmonologist even. I was scared to death every time doctor appts came around. Each exam was inconclusive and follow ups were required. Then suddenly a year ago the pulmonologist said not to worry about it anymore and I was thrilled to scratch that worry of my list.



    Sometimes our doctors work from an abundance of caution. They don't mean to alarm us, even though it sure does. I hope things turn out well for you!

  • SelenaWolf
    SelenaWolf Member Posts: 1,724
    edited January 2013

    ER/PR+, HER2- breast cancer is considered one of the most treatable breast cancers, especially when caught early.  That doesn't mean that it doesn't have the potential to be mean if it so choses, it just means that - at this point - you have a lot of treatment options that you may not have with a later-stage, more aggressive cancer.

    Also, keep in mind that your hormone/HER2 status is only part of the picture: the type of cancer (ductal or lobular); the grade (low- or high); the presence/absence of lymphovascular invasion; and node status will all be taken into consideration when staging you and deciding upon your treatment protocol.  But, for the most part, ER/PR+, HER2- breast cancer is, normally, very responsive to chemo and hormone therapy.

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2013

    Yes, your stats are very favorable and add no special concern to your situation.

    Are you familiar with Suzanne Somers' story?  She was erroneously told at some point after her successful treatment for bc that she had "full-body cancer" (her rather odd choice of words) based on a CatScan.  As it turned out, she had Valley Fever, which also causes lung nodules.  So even the best of doctors can jump to incorrect conclusions when someone already has or had bc.      Deanna

  • CubletKelley
    CubletKelley Member Posts: 3
    edited January 2013

    Back To the granuloma situation.....my oncologist told me the exact same thing that yorkiemom said..these granulomas are not cancer and they are like little scars from past bronchial colds. My doc has very little concern about them. I also know that the pet scan takes its images in 4mm segments so sometimes a spot will show up or not show up if its 4mm or smaller. Try to take everything in strides :-)

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Thanks Deanna and CubletKelley! My sister called me today to discuss this and she remembers me having walking pneumonia in addition to the frequent bronchitis. Funny how I couldn't remember that - in a chemo haze I guess. I'm feeling better today and am working on putting this behind me for the present. Thank you TONS for your support!! Love to all of you!!

  • cp418
    cp418 Member Posts: 7,079
    edited January 2013

    Ditto the responses for granulomas from previous bronchitis events.  They actually did a lung biopsy on me and it was confirmed granuloma.  At the time no one listened to my prior medical hx of seasonal allergies, severe chest colds and most certainly bronchitis - several times in the past. In fear and frustration I consulted with a pulmonary specialist on my own, who confirmed these nodules are common in certain parts of the country and prior respiratory infections.  

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Thank you cp418! I think the upsetting part of this is the reaction of my oncologist who wasnt very comforting about this. She said "it doesn't do any good to worry about this" - in a rather cold way. And never offered any alternative other than possible cancer.  I guess I need to toughen up - or keep my eye on her and change if I don't like how she's handling my treatment!

  • pupmom
    pupmom Member Posts: 5,068
    edited January 2013

    Karen, is your onc young? If so maybe she hasn't had enough experience to know these lung nodules are common and usually benign. 

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Yes yorkiemom, she is actually! Good point!!

  • Youngwithbc
    Youngwithbc Member Posts: 167
    edited January 2013

    Hi,

    I posted a similar thread to this awhile ago. I as well had a bunch of small nodules show up in my pre chemo scans and freaked out. My onc said they see it all the time and I was his second patient even that morning with those results. Said they are usually nothing but unfortunately they're a pain because it can take several scans til you really know what they are. So you have to wait awhile. Definitely stinks but try to stay hopeful! I'm in the same boat.

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Hi Youngwithbc - thank you for sharing your experience with lung nodules. I wish I had your onc - he seems to have a great perspective and knows how to manage the information, unlike mine. Good luck to you on your cancer journey! I'll look for your posts to see how you're doing! Best wishes!

  • ziffy321
    ziffy321 Member Posts: 41
    edited January 2013

    Karen, I'm going through what you're going through!  My CT scan revealed small nodules on my lungs.  I had another scan and will discuss the findings with my onc in a couple of days.  I am so glad to hear that most occurrences of this type are benign.  I will probably start chemo next week.

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Hi ziffy321- Good luck in your meeting with your oncologist. Did you have a second CAT scan on your lungs or a different scan? It's through this thread that I have found some relief from my worries about the lung nodules. My plastic surgeon was especially reasurring and said that these are most often benign and many of us have them. Thinking of you and best wishes on your chemo. Let me know how you're doing! Karen

  • bdavis
    bdavis Member Posts: 6,201
    edited January 2013

    Karen... Many MOs won't even give scans to stage I and II patients because of the false positive outcomes. And any "positive" scan needs followup. So no scans here, but based on what you all are saying, I am sure my lungs would light up. I have had a lot of broncial issues and continue to suffer from allergies, with a persistant cough...

  • Maggs09
    Maggs09 Member Posts: 193
    edited January 2013

    Karen, I also have a few tiny lung nodules discovered in a diagnostic CT scan in May, 2012. Being stage III BC and early stage colon (another primary) at the same time - I was terrified. I had my chemo, currently getting close to finishing radiations.

    End of December I had another CT scan that reported no major changes. My GI surgeon believes that those are B9, although he wants to watch them, another CT scan in 6 months. He also says that at least 1 for each 500 chest X-rays/scan shows some sort of lung nodules. Apparently the ones that are malignant tend to grow rapidly. They usually double in size in only 4 months. This is why they repeat those CT scans to look for any changes. Mine didn't shrink or go away after chemo, but they didn't grow either. It seems like there is a new small cluster of tiny subpleural nodules - but likely infectious/inflammatory in nature, no concerning. It's possible because I was just coming up with the flu/cold at the time of my scan.

    But I know exactly how you feel! I've been there and I still am! Waiting and uncertainty can be very hard.

    Big hug! I'm sure there is nothing to worry about!

    Maggs

  • karenneedshope
    karenneedshope Member Posts: 44
    edited January 2013

    Hi Maggs - Thank you for sharing your story with me. I'm so sorry that you're going through this but it's so great to have the support that we can find here!! I'm hoping that my lung nodules will be nothing more that scarring from bronchitis and other lung stuff...but if they're not then I will fight to get rid of them!! Take care - Karen

Categories