MIDDLE-AGED WOMEN 40-60ish
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I always try to find an "Oh God!" moment in my day. It could be a sunset, a funny line in a book, a craft that worked out or something like that. If I don't find one, I'll go looking! There's a lot of Oh God moments out there!!!
I, too, don't hide my emotions...qu'elle surpris!! I get angry fast, but then it's over. I don't hold crap in anymore, better out than in! Like gas....
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I was 2 months pfc yesterday. I had my hair trimmed as it was like wire on the ends. The new hair is much softer and it looks fuller now that the ends are gone. I am not used to short hair, but at least it is growing. It's about an inch long now.
I will be done rads soon. I have 7 left. I am having what feels like panic attacks as the end of treatments grows closer. I was trying to think about why and I think it is because while in some sort of treatment I feel like I am doing something to fight and when it is over I feel like at time bomb just waiting to go off again. Has anyone else felt like this and any suggestions to get past this?
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Dianarose- it's so common there's even a thread for it...
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Dianarose ~ I have the same feeling. I just finished my 3rd round of chemo with one more to go and discussed it with my MO and the chemo nurse. I even asked if we should do a couple of more rounds of chemo.
I won't be doing rads, so after my last round of chemo, it will just be Tamoxifen, but I still fear that won't be enough.
Cindyl ~ thanks for the link.
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Thanks Cindy.
I got comfortable after my first round and had past the 5 yr mark. Then diagnosed again over 7 yrs later. I don't know if I will ever be able to get to that spot again.
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Welcome, maryah930! If your ER+/PR+ was a high percentage, then five years of Tamox. can do plenty. Even ladies that are Stage IV sometimes are on Tamox. as their sole maintenance drug for a time and the cancer is controlled well by it. For you, and us lower stage ladies, it is kind of an insurance policy. We don't really know if it IS doing something, but the drug has a pretty good track record for keeping the recurrences away. If you feel you should, and want, to do more, then have a look into the many complimentary & alternative things out there. You can probably find a lifestyle change or two that may lower your risk, some of basic ones being to drop some pounds if you have extra, get in 30 min. of exercise daily if possible, re-evaluate your drinking and smoking habits (if you have those,) etc. The spectrum is really wide open on how much is enough.
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Posting as I read.
Diana... I soooo remember getting to the end of rads and panicking. I wanted to keep going, or start another chemo -anything! And then it passed, once I really got to the last one and thought "okay, this is when I rest and let all that stuff percolate and work" In my case I had tamoxifen after that, but I enjoyed the break. You've done it hon, enjoy the break -
Ok..just read Diana's next post, forgot it was your second go round hon. It sucks, for sure, but you still have control. Please do NOT let this change your hopes and dreams. None of us have a clue what tomorrow will bring. I used to have a saying as my tag line along the lines of 'worry doesn't empty tomorrow of its problems, it robs today of its joys' Hugs
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Marlegal, your tag line is so true.
Hugs, Cheryl
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JoC - good luck today! Don't worry if you hear some strange noises and odd movements in your pockets. It's just us girls hanging out with you to provide you some encouragement and support.
((hugs))
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JoC I will be in your pocket today.. (((hugs)))
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Marlegal, your new tag line actually makes me cry. I remember when I first read it and it really hit home for some reason. Really put compassion into the equation.
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I am still a few pages back, but wanted to pop in with a hug for you, Eli~.
I have found error on my med records as well. Like having it written that the US on my left breast being unremarkable. Maybe so, because I had a mammo, and it was on my right side. Also I liked the comment from my RO who stated that my port location was noted and healing...never had a port, and I examined my frontal view to see if there was anything there even resembling a port scar. Hmmm, maybe I just hadn't done a thorough job washing up that morning...strawberry jelly spill maybe? The trick is to read your records, remember the errors and make sure when you see a new dr. with your records, you make know the errors so they aren't taking that bad info into consideration.
Eph, loved the video. I agree, ELi~ you will kick cancer's butt, and look stylish doing it!
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JoC's pocket is going to get nice and sticky this morning because (now that I can eat most regular foods again) I was craving some cinnamon rolls. Haven't actually gotten one yet IRL so this is the next best thing. Mmmmmm! They even look warm.
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Only one more page to catch up on...
I saw a segment on a news program about the cold caps. The patient in that segment bought her own, and there were several of them, and she did have to wear them during infusion. They had to be changed every so oftern so the head could remain at a certain temp. Looked painful and costly. The patient had so far kept her hair, but what if it didn't work, I would be sorry I spent the $ as insurance will not cover it. I really hope they work for you, Amrdbit. Please keep us up to date on how you uses them.
Sherry, congrats on the clear scans.
I never had a port and had all of my AC-T tx through veins. I would never recommend that to anyone. It was never offered to me, and I didn't even know about BCO and hadn't been exposed to information about them. I wish I had. Luckily they gave me a Benedryl cocktail each time which helped me to sleep through a good portion of it.
In your pocket today, Jo.
Staynsane, I agree with you, having a baby takes most of your modesty away. After a double episiotomy, I had half the hospital staff stop by and want to see "it". Strange since until that time, I had never exposed myself to a male other than my husband. Then came BC, It is almost like you disassociate from your breasts/body. It seems as if every dr. appointment requires you to remove your blouse, and since there are so many people in your medical world, they no longer become a sexual part of you. It does get better over the years. I realized that at an onc appt. last year when the NP brought in a male student to examine me, I was a bit taken back, and not relaxed about it anymore.
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And...caught up! It's hard to just jump back in where the thread is at. I usually put my foot in my mouth when I do because I don't know all the details in someone's situation. So, I try to make sure I catch up.
I'm with you all who are going through tests and tx.
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Who are all those normal looking people at the top of the page? I don't think I made that shot!
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Eph3 12-
Eli can correct me if I'm wrong, but the women in the above shot all just had a successful BM after consuming several cinnamon rolls provided by Eli. Eli, I LOVE a good cinnamon roll, but prefer chopped, toasted pecans on top. Of course, I understand why nuts were left off of yours...so happy to read that things are getting better!
Thinking of you, Jo C...
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from the best baker in Copenhagen:
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I am going to the State level on Wednesday for the blueberry pie contest. I will make an extra one for Jo's pocket. Between that and the cinnamon rolls we better bring some wipes because you know we will make a mess.
I treated myself to some silk pj's today. They feel so much better on my burnt skin. Wish I could wear them to work.
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Eph, We would have spotted your suntan if you were in that photo.
stayn, Correct! I had to stick to the basic roll today and not push it with the pecans (that I also love) on top. They will be on the next ones.
Momine, I would dearly love if I lived in a city where I could get some fine European pastries, but no, I live in the land where (the overblown, IMO) Krispy Kreme doughnut is king. I'd kill for a European poppy loaf!
Dianarose, Are you going for a prize, the prestige, or both?
Poor JoC, She might still be hooked up to her 6-hour infusion.
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I can't stand Krispy Kreme doughnuts. I don't get the attraction. THEY ARE WET!! Bleeeeech!
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Eph3_12 ~ That is because we in the NW know good pastry from little shops. I despise KK and DD. None float my boat.
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i agree Mary, but we have people here that do fund-raisers with Krispy Kreme donuts (or doughnut). They'll pre-sale, & then some parent will do a SIX HOUR run to Reno & 6 hours back. That's how I had my 1st (& only KK). A friend's child was doing the fund-raiser, they went to Reno, got back in time for me to pick up on my way to church. I was all stoked cause I'd always heard they were wonderful; took a bite, threw it away & took the remaining 11 in the box into the hospitality room at the church.
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Krispy Kreme couldn't make it in this market. I think they were around for four or five years, then poof. I didn't like them. Why ice a donut twice? I'd rather taste the pastry part of it. I did love taking the kids there to watch the machines though.
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Eph - while my son was working at Microsoft over the summer, he had a friend that drove down to Portland a few times to bring these donuts to work:
http://voodoodoughnut.com/doughnuts.html
Man, they look good! So funny, I always thought of KK donuts as wet, too. I would dry them off with a paper towel if I had to eat one.
Momine - yum, Copenhagen bakery? Oooh, how nice. I would be afraid to have that close-by. In no time, it would probably be a regular stop for me. Yep, same with Elimar - nothing around here but KK and DD.
Elimar - did you get back on the chemo today? Glad to hear you are healing up! Yeah, I meant to call about the bone scan results again today, but since I have my regular MO appointment coming up soon I may just wait until then.
About positive thinking - I am an eternally "the glass is half-full" kind of girl. My brothers and I talked about that over Christmas and I said I'm like that song by Chumbawamba - "I get knocked down, but I get up again. They're never going to keep me down." I love my attitude, partially because it annoys certain negative people who can't believe that I dare to be so happy, haha.
JoC - hope chemo went well for you and I hope you are feeling okay - stay on top of the nausea meds. I took them by the clock, not as needed.
Meece - I didn't know about ports either before I started. No one said a word - I would have done it if I had known.
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I picked up a wicked cough while flying home on the 31st. It's keeping me awake tonight & kept me from attending pocket parties cause I didn't anyone to catch.
I'm still writing about my cruise adventures & will then paste here when done, but since I'm up right now, thought I'd let you know that when we got back to FL on the 30th & we weren't flying out until the 31st, DD & I did an Everglades airboat tour which was very beautiful & interesting. I got to meet one of my chemo angels-she & her husband came to meet me, while on a mini-vacation a few hours away. It was so cool. If you arent familiar with the chemo angel program, here's the link. http://www.chemoangels.net
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Donuts --- those voodoos look wonderful -- I am slightly partial to Tim Hortons being from Canada. They are so MUCH better then KK.
Eph -- what a wonderful time for you to meet one of your chemo angels --
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Heartnsoul, I would also jump at it in a heartbeat.
Eph, I had never heard of Chemo Angels either, What a nice way to not feel alone! ACS hooked me up with a "mentor" who had coffee with me once. She only talked about herself, never asked about my situation, and I never saw her again. It was like a bad first date!
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Elimar- I don't even know what the prize is. I just want the state ribbon to add to my collection of ribbons. It is held at the annual agricultural trade show so it should be fun. It's a 2 hour drive, but it will do me good to get out of town for a bit.
Have you started your treatments again? I have 5 more rads and then I am done with that. I got my foot caught on a piece of furniture and I think I broke my baby toe and maybe some other bones in my foot. It is not pretty. If it is not better on Friday they will take some xrays. I went to work and just walked on my heel of that foot. It took the focus off anything else that was hurting today.
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