Starting Chemo October 2012

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  • halfcan
    halfcan Member Posts: 253
    edited January 2013

    Day 7 of Taxotere and it is the first really bad day so far. I feel lucky to have felt decent so far. Yesterday I even got out for a walk along a nice trail. Made me feel even better after. This morning I awoke to Nuepogen bone pain after only 4 injections. Wanted to take some Ibuprofin but temp says 99*1 so will check in an hour. Crossing my fingers that things don't turn out like last time! So for now it is me and my hot pad. How is everyone else faring? I'm hoping the beginning of 2013 will be kind to all of us!!! Xox

  • Noranelly
    Noranelly Member Posts: 30
    edited January 2013

    Hi everyone I hope u had a good Christmas break and a happy new year! Mine was mixed Christmas Day was funweeks now but tiring and then I had temperature of 38.5 so was in hospital for a bit, but better now. My treatment was going ok, however had a period for 3/4 now and need blood transfusion anyone else had this? Also I had one bad reaction to steroids like a 'mental trip' and now been told that. Might not be able to have taxotere as need 16grams of steroids and I could have a psychotic episode the choice had been left to me and my family as whether to take the risk ? Carry on with lesser treatment of fec and have no taxotere (not best treatment when node positive) or risk psychotic episode!! Not sure what to do, anyone any experience or ideas? Love noranelly

  • Abby20
    Abby20 Member Posts: 102
    edited January 2013

    Dear wonderful ladies, hope you are managing your SE well. I am on day 8 post #5, and nothing like this one, really knocked me down with sever nausea, vomiting and diarhea. I went yesterday to the clinic to take fluids via IV and gradually started to feel better.

    Happy for those who are having their last chemo soon :)



  • halfcan
    halfcan Member Posts: 253
    edited January 2013

    Noranelly - I'm getting Taxotere and I get 8mg Dex ( steroid) twice a day for 3 days. I don't understand why you would need 16? Or did you mean over a day? I've also seen where the dose is lowered because of issues but I've never heard of your problem. I know the steroids acted differently with me sometimes and its possible that next time will be a breeze. This #5 for me hasn't been as bad as usual .... so far anyway. Today is day 8 and just hitting the lows. You will make the decision that's right for you.

    Abby - are you reacting to Herceptin? Hope you feel better soon!

  • LouBar
    LouBar Member Posts: 84
    edited January 2013

    halfcan - glad to hear this round is better for you and your temperature didn't elevate requiring any action.  I found with FEC, each round was easier and I adjusted what I did to minimize SEs (i.e. didn't eat pre-treatment) so hopefully the same for me with the T?!  It is odd though given the cumulative effect that it gets better with no adjustment to meds - do you think we just generally manage SE better? I know for this next round I have stocked up on biotene, aleve, ribena and blueberry popsicles :)  noranelly - I like halfcan get the 8mg Dex twice a day for 3 days - not sure if you can seek another opinion from a MO regarding your options? abbby20 - hope you feel better soon, I had the diarhea for two days this round and in the evening of the second day I had 1/2 an immodium pill - seemed to work and will be doing that sooner this round if necessary.  

    My eyes are still watery and the salty tears are really messing up the skin under my eyes.  I have appt. with eye Dr. tomorrow just to make sure nothing to worry about.  My hubby says it looks like I am recovering from having two black eyes....pretty - goes well with my bald head and those scant eyebrows and eyelashes that are just barely hanging on :)  At least I can say, finally today, day 16, I'm feeling better - off for a long walk.  

  • halfcan
    halfcan Member Posts: 253
    edited January 2013

    My eyes water a lot and the lashes and brows are few. I find the tears just sit there so I'm constantly wiping my eyes. I don't have irritation though. I use prescribed magic mouthwash and it helps better on my white tongue than biotene. Chemo nurse told me there is an antifungal in the mouthwash so it's better. Worst things right now are my tongue and zero energy. Can't seem to stay off the couch for more than a few minutes. I sucked on popsicles during Taxotere last time and it was so better than ice! Glad you are feeling better LouBar!

  • RainMaze1962
    RainMaze1962 Member Posts: 23
    edited January 2013

    FINAL CHEMO TOMORROW, please join me in the Happy Dance tomorrow at 12:30 PST!! Breast Cancer twice in a lifetime is ENOUGH!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    Congrats Rainmaze!  You deserve to do the happy dance!  I had #5 of 6 on Wednesday, and I am counting down the days until I can join you in that last chemo happy dance.

  • Toots
    Toots Member Posts: 104
    edited January 2013

    Congratulations Rainmaze!!!! Go girl once is enough in any girls lifetime never mind TWICE hearts, prayers and dancing feet will all join you xxxx

    ......feeling so sorry for myself - it is so good to hear something good........

    ..........2 more for me before I finish and just hope they get better, temperature has been a little elevated ever since late day 2 feels like someone has unkindly taken a cheesegrater to my ears nose and throat sleeping only if drug induced and when I do spend time throwing blood out of every orifice after where it has just built up.............not eating, diarrhoea has been constant now 4 days, eating/drinking virtually impossible and worried about how much more comes out if I put anything else in......not good at all...........please can only get better..............going to contact my dr/nurse...............

    Hopes that everyone is feeling better minimal SEs and some silver linings on the way round xxxx

  • 301724
    301724 Member Posts: 478
    edited January 2013

    Congrats, Rainmaze! A great feeling to be PFC!

    Toots - my heart goes out to you. Praying for you to feel better soon. Hugs!

  • LouBar
    LouBar Member Posts: 84
    edited January 2013

    Congrats Rainmaze - how great for you - enjoy the moment. 

    Sorry Toots to hear you are having a tough time.  I have been putting a bit of vaseline up my nose with a q-tip before going to bed which seemed to help with the dryness and bleeding nose.  Hugz to you. 

  • halfcan
    halfcan Member Posts: 253
    edited January 2013

    Congrats rainmaze! I have one more too on the 16th!!! So looking forward to being done with chemo and its SE's.

    Toots - OMG girl, it sounds like you are getting some crappy SE's! Is this your first Taxotere? My first one sucked too but so far this time is easier. It sounds like you need to contact the nurse hotline to me. That's a long time to have trots and you could get dehydrated. My thoughts are with you honey!

    LouBar - how are you feeling?

  • Toots
    Toots Member Posts: 104
    edited January 2013

    Thank you all so much for the hugs so appreciated and the hint with the vaseline to stop the bleeding everything just so raw - first of taxotere - wishing it was the last - so good to hear it may get better and not so bad next time............

    Son picked up a prescription from dr for some 'gelclair' to help the mouth ........and 'immodium' to try and block up the other end..........drinking water constantly but only through a straw to stop me dehydrating..........

    Feeling a little better.......temp still elevated, glass and straw in hand.........

    .....thinking of all of you, take care xxxxxxxxxxxxx

  • halfcan
    halfcan Member Posts: 253
    edited January 2013

    Toots - I got to where I could hardly stand cold water so I incorporated hot Apple cider and hot cranberry cider. Soothing on my sore mouth too. I get a script for magic mouthwash which has an antifungal in it to help with the white tongue. Hugs.

  • LouBar
    LouBar Member Posts: 84
    edited January 2013

    Halfcan - I'm doing well - eye Dr. wasn't worried just said to use moisturizing eye drops and to use a warm compress as glands seemed swollen under eyes.  So enjoying my first "good" weekend in 3 weeks and back in for #5 on Wednesday. So, so glad to hear that #2 is better for you, I guess after your next one you are done? I'll have 5 weeks of radiation next. 

  • halfcan
    halfcan Member Posts: 253
    edited January 2013

    Yes LouBar, one more chemo to go on the 16 th. Then 16 rounds of rads. I don't know how they decide how long we have them? Glad to hear you are feeling better! Enjoy the weekend and the days leading up to Wed. Hopefully the next one will be easier for you. Xox

  • fight4two
    fight4two Member Posts: 146
    edited January 2013

    Just wanted to pipe in that I'm on my third Taxotere, and each one has gotten easier for me, as well.  The first one was beyond horrible, and the following two have been manageable.  Hoping the trend holds for my fourth (and last!) Taxotere on the 10th.  Also, hoping that my counts are up, so that it can actually be my last tx.

  • schoolmom
    schoolmom Member Posts: 458
    edited January 2013

    Right there with you Fight....have my last and fourth on Monday the 7th. 

  • Caitgrace
    Caitgrace Member Posts: 48
    edited January 2013

    Hello beautiful ladies and happy new year!



    Made it through my family vacation to Santa Fe on my feet! All the bots down with a bad cold/flu --but somehow I escaped. It slowed them down enough so I could keep up! Walked ALOT. And though was exhausted at the end of the day, think the walking kept me feeling good. So it was day 7-14... And really except for loosing my ability to taste sweets, and getting a lot of gas (?) didn't have SEs the whole time. Maybe the universe just decided we needed a family vacation?! First and only for 8 years! Aside from weekend trips to the grandparents.



    I am saddened to see you all struggling with the taxotere, unsure whether I was just extremely lucky or if it was dosage or maybe that I hadn't been knocked down by other chemo treatment/major surgery.



    Congrats to rainmaize and others finishing up, it's weird to still anticipate/steel yourself for the next treatment --and then realize/remind yourself there isn't one. I'm gonna pack up all my "chemo" stuff this weekend.



    Hang in there Toots and all struggling with SEs; it's all to survive and won't last forever. I know you all are so strong. Try to find a moment in all the rotten for smiles, love and gratitude. Pet a puppy. Kiss a baby. Watch a raunchy comedian on tv. Watch the snow fall and marvel at the wonder that snowflakes are each perfect and special--just like the women here.



    Guess I need to start exploring the anti hormone therapy group and see what this next stage has in store for me. But I'll be around... Xo

  • 301724
    301724 Member Posts: 478
    edited January 2013

    So glad to hear it, Caitgrace! I was also lucky with the taxotere and had minimal SEs. That said, I'm glad to be moving on to the next step. For me that will be Aromasin starting the end of the month.

    I also cleaned out my chemo supplies in the past couple of weeks. I have a friend who is starting chemo later this month and rads after that. I gave her the Biotene I bought and never needed and the extra jar of Aquaphor I had. I was also able to pass my cold caps and associated stuff (coolers, etc) on to her. While I'm sorry others have to go down this road, being able to help a bit ......well, helps a bit.

  • Toots
    Toots Member Posts: 104
    edited January 2013

    Feeling so happy that so many are finishing their chemo amd moving on............it is such great news for all........and the rest of us will get there soon............

    Day 10 - much better today even managed some breakfast, everything starting to heal feels so good to almost be back to normal........not quite feeling like I could run a marathon, too exhausted - but at least looking forward to having my grandkids to visit today...........chicken and chips prepared and chocolate cake made for them......................they will love it!

    Thanks for all the advice/well wishes when I was at my worst it was just so appreciated...........

    Love to all and stay well xxxx

  • 301724
    301724 Member Posts: 478
    edited January 2013

    So glad you're feeling better, Toots!

  • Marlene18
    Marlene18 Member Posts: 91
    edited January 2013

    I had my fourth and last AC on December 17th so technically would have started on taxol tomorrow but I'm starting on a different kind of "chemopause" as I wait for Miss Witchy to appear. At 38 weeks, the ultrasound had her estimated weight at 6 lbs 12 ounces on Friday - yay! I am envying you ladies moving on but I'm going to try to just relish this little break and appreciate that some of my strength will be rebuilt (but not sleep apparently!) when I start on taxol & herceptin in February.

    Thanks to everyone continuing to share your progress - it really helps to know what others are experiencing. I was very lucky in not having too hard of a time with AC so I just hope this trend continues for me in 2013... 

  • 301724
    301724 Member Posts: 478
    edited January 2013

    So exciting that your due date is almost here!

  • alcb70
    alcb70 Member Posts: 166
    edited January 2013

    I am SO happy to see everyone starting to finish up their chemo!  I have my last one on Wed. (but I continue Herceptin til Sept).  I am bringing a cake with a big fat #6 on it!  It's funny to dread something yet want it to arrive quickly! Seems a little warped. (50 shades of chemo...haha!) I see my BS on Thurs to get the details and hopefully a date for my surgery.  Wishing that portion was already over, but glad I got chemo 1st. Incredibly nervous for my pathology after surgery.....then I'll really know how invasive it was. Sealed 

    I continue to wonder when you're oficially considered a "survivor"......is it after all your treatments, at 5 yrs.....or do you get to wear that badge while you're surviving treatment?  The chemo, the surgeries, the testing, and most of all, the emotional roller coaster you ride! I've been through some sh*t in my life......mom and daughters trying to commit suicide--yes...all 3! (mental illness runs in my family), losing my dad, my husband's affair (he's made this up to me every single day for the last 12 yrs though), 2 major back surgeries.....but this REALLY sucks! I try not to pat myself on the back too often, but I think we all deserve to!  Women are tough! Facing death, staring it down and walking away is something to be proud of.  Congratulations to all of you for going through this with such dignity and strength! And thank you for sharing yourselves so candidly here for the benefit of others!

    Sorry...it's the middle of the night and I'm a little goofy. Undecided  Love to all & here's hoping for no side effects this week.    ~Andrea

  • Toots
    Toots Member Posts: 104
    edited January 2013

    Marlene - so exciting with due date nearly here, that is so wonderful a real little miracle, mum and baby will be fine I am sure x

    Andrea - we all get goofy in the middle of the night - I certainly did at 4am this morning when I got up for the day.............think a cake with 6 on it is a wonderful idea - my 5th next week then big and last one three weeks later......I would love to know answer to your question - when are we classed as survivors???? My mum has now been through 3 lots of cancer, chemo, surgeries, rads, etc...........she has been clear since June 2012 but still won't say she is a survivor yet just in case............have a friend that calls herself a survivor but know that she was cleared 20 years ago so at which point............? Good luck with the surgery honey x

    Love and hugs to all xxxx

    Toots

  • 301724
    301724 Member Posts: 478
    edited January 2013

    My two cents worth - you're a survivor any day you're on this earth! Claim it and be proud of it!

  • LouBar
    LouBar Member Posts: 84
    edited January 2013

    Marlene 18 - Enjoy your break from your chemo and please keep us posted when your little one arrives.  Until then take care of yourself and stock up on your sleep :)

    alcb-70 sorry to hear of the some difficult matters life has brought you.  If you re-read your post with the eyes of an outsider, you will see that you must be an incredibly strong, resourceful and compassionate woman, take pride in that and when I read 301724's response to what is a "survivor" it immediately brought tears to my eyes, so that must be the answer.  

    I am trying really hard these days to count my blessings and that despite everything my prognosis is positive and not terminal and even though it is tough it could be much worse. So many people are experiencing much more difficult health issues and are in considerable more pain daily.  I don't want to diminish what we are going through but trying to look at what good things have come out of this journey.  Not sure about all of you but I would expect you have people in your lives who have surprised you with their support and are now close friends and certainly I feel that I have changed in myself in a good way.  Hoping I can maintain this positivity next week after the taxotere as I find when the SEs kick in I tend to be much more emotional and down....

    On another note, sorry for rambling this morning but: do you look for other people when you are out and about going through chemo? I can't find anyone.  Wondering if more women are wearing wigs (I just wear hats) or just not going out? I'm not out in public often as typically not feeling great, but at least one weekend out of three I will be (dinner, shopping, etc.) and I never see anyone (men or women) makes you wonder if this is why cancer is so feared as we don't see enough people publically going through treatment? I am not working right now but make a point of visiting the office monthly to say hi to folks and let them know I'll be fine - they are always surprised that I look "good" (really I don't look good, but I don't look sick) I feel like I'm providing a public service in a way of what happens when you have a diagnosis of cancer.  Any thoughts? 

    #5 of 6 for me on Wednesday - I'm challenging myself to be positive and better manage the SEs (stocked up on all my chemo supplies based on good advice post #4).  Love to all you ladies this week.


  • Toots
    Toots Member Posts: 104
    edited January 2013

    301724 - response to what is a "survivor" immediately brought tears to my eyes to my eyes too so that must be the answer - thank you so much x

    Loubar - I probably only get 'out and about' and only invite friends here for 1 week in 3 - the week before my chemo when I am feeling good.  I must admit wear a wig out in public have tried so many different styles and colours latest is a mass of long blond curls - but only in public...........I know so many people that have been there personally but most of them a long time ago.  Went out this morning with what used to be my aquaearobics club before all this they all have coffee in local hotel after the class and all tell me how well I am looking - you just think they forget to add 'in the circumstances' it hangs in the air, but also put on a bit of a show myself 'mouth sore but I feel fine' sort of thing.......and they only ever see me at my best...........know one lady that used to join us regularly has only been back once in 6 months but she had herself locked in the house and didn't appear anywhere not just with the ladies......would drive me crazy I spend that week doinng and seeing as many people as I can........... but I suppose we all deal with things so differently............if we were all the same it would be really boring! Don't know if my meanderings have helped or made things even more muddied........... sorry x

    Hugs and silver linings wished for all xxx

  • fight4two
    fight4two Member Posts: 146
    edited January 2013

    MARLENE!!! I'm so excited for you!!! Is this your first?  My little one turns four months today and has been my light through this.  I can't wait for your little one to arrive, as little babies really do make EVERYTHING ALL BETTER!  Congrats on the coming big day!

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