Insurance coverage for prophylactic mastectomy

Options

I'm fairly new here so this may already have been covered.



I have triple negative BC, which has a three times higher rate of recurrence in the other breast in the first 3 years after the first occurrence.



I am part way through chemo and the side effects have been so bad that I can't see myself going through it again. Also, I am 61 and will have Medicare and not my current insurance that allows me to choose docs.



I am due to have a mastectomy after I finish chemo and I want a prophylactic mastectomy on the other breast at the same time. I do not have the BRAC gene.



Has anyone gotten a prophylactic mastectomy without BRAC gene and received insurance coverage? If so, how was this justified to the insurance company? Has anyone been denied in the same situation?



Any feedback will be greatly appreciated.



Peggy
Chemo: ACT Dec 3 2012
IDC TNBC Stage 2, 0/4 nodes

Comments

  • tiffnewc
    tiffnewc Member Posts: 14
    edited December 2012

    I do not have the gene.  Nor have I have been dx.  I have a strong family hx and have had several lumpectomies and biopsies.  They recently started finding atypical cells.  My insurance covered a complete bilateral mastectomy with all reconstruction with no issues at all!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2012

    I was a lumpectomy candidate initially, had BRAC testing and was negative, but have had cysts and issues for the last 20 years.  I elected a bi-lat mastectomy because I did not feel I could cope with the worry going forward if I left the breast, and I don't image well - mammography missed my 2cm mass on the right and the DCIS that was there as well, and the positive nodes were not seen on MRI.  My insurance covered the surgery, no questions asked.  The prophylactic surgery on the left side revealed ADH/ALH in that breast, which was never seen on any imaging either, so I am very glad that I chose to do it.

  • Starak
    Starak Member Posts: 536
    edited December 2012

    PeggySull, I had a bilateral, one cancer, one proph.  Under WHRCA (think those are the right initials) federal law, if insurance covers mastectomy, under the law they MUST cover all phases of reconstruction including surgery on the other side to achieve symmetry.  I do not have the gene.  Under the same law the insurance covered the removal of the dog ears in the middle of my chest which were caused by the BMX and prevented wearing prosthetics.  In both surgeries the end result for me was to be flat which is what I wanted - to be done with the least amount of time on the table, risk and recovery.  You could opt for full recon if you wished.  These things must be appropriately coded and you need to absolutely do not take No for an answer.  It is not uncommon for insurance to deny and hope you will go away - Don't!!

    Sometimes the bigger fight is with the breast surgeon. Some will not argue with you and some will.  Whatever decision you come to in that quiet place in your heart, stand your ground.  After all it is you who will live with the decision and therefore it should be you who makes it.

    Barbara

  • ibcmets
    ibcmets Member Posts: 4,286
    edited December 2012

    Peggy,

    I had no problem getting proplylatic on one side. I was stage IV from the get go and don't know if that made a difference.

    Terri

  • carpe_diem
    carpe_diem Member Posts: 1,256
    edited December 2012

    I recently had a umx, but both my surgeons asked if I'd considered bmx, so I assume there's usually no problem covering it.  You can generally call your health insurance or there may be a rep where your husband works who can snswer questions. 

  • NatsFan
    NatsFan Member Posts: 3,745
    edited January 2013

    Peggy - I had a bmx with only one involved breast and the other a prophy mx. I do not have the BRCA gene.  I had no problems with the insurance at all - the bmx and all recon surgeries (DIEP) were covered.  As others have said, the way it's coded is important, but there are many many women here on BCO who had bmx with one prophy, and few if any report issues getting insurance to cover the prophy mx on the uninvolved side.

    Do you have reason to think that it won't be covered?  Or are you just thinking ahead?  I'd definitely talk to your surgeon's office about it - I bet they can put your mind at ease.  And if you really want a bmx and your surgeon refuses, then it's time for a second opinion.    

  • PeggySull
    PeggySull Member Posts: 686
    edited January 2013

    Thanks to all who took the time to respond. I feel more optimistic about insurance coverage for the prophylactic mastectomy.



    I think I get paranoid because health insurance companies are trying to cut corners.



    I will fight (and I'm pretty sure my BS will too) the insurance company will too.



    Again, thanks!



    Peggy

  • pamalot
    pamalot Member Posts: 20
    edited July 2013

    I have dcis in my left breast and would like to have a BMX with implants. The surgeon told me if I want a double I need authorization from the oncologist. My surgery for a single mastectomy is scheduled for next week.

    I have not even met with him yet and am afraid I am running out of time.
  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited July 2013

    Hi pamalot - My BS's nurse requested my preventive surgery from my insurance co. It only took a few days. If I were you I would not rush into surgery until you've had a chance to figure out exactly what you want. You might repost this on the surgery or DCIS forum. I know many of the ladies have a lot of experience regarding insurance coverage (I'm assuming you're in the US.)

  • pamalot
    pamalot Member Posts: 20
    edited July 2013

    If I refuse surgery for a single mastectomy because I am waiting to see the the onocologist for his permission for a double will I be waiting until long? I was diagnosed with level 6 dcis on 6/13/13. Should I start all over with the surgery date? Do other women need permission from the oncologist to have a prophylactic mastectomy on the other breast? I have Family Choice insurance through Caloptima.



  • Rosesark53
    Rosesark53 Member Posts: 53
    edited August 2013

    Hi pamalot. I'm going into the prophalac, insurance try also. I have posted the question also. My ins is bcbs of alabama. I had right uni mx 4 yrs ago, but just wasnt sure if I should remove other breast even though my bs said he felt I should. Anyway, my ps did say its about the way its coded. My ins has lots of fine print that you have to call for, but I am going to let my bs and ps go for it. I know they cant refuse to recon the mx and any work to the other for asymmetry. They may try to pull the gene test thing on me, and I cant afford it, so we'll see. All we can do is say...here goes! Btw I do not really care for my onc, he's a head petter, so I hope he's not going to be a wrench in it all

  • iowagirl1
    iowagirl1 Member Posts: 130
    edited November 2013

    I have bcbs and I emailed them to see if they would cover it and they replied yes to that and reconstruction.  I do not have the gene but I have a strong family history and  had invasive ductal BC.  I am 5 years out now. I have very dense lumpy breasts that are hard to read and am sick of biopsies each year or two.

  • sarahjane7374
    sarahjane7374 Member Posts: 669
    edited March 2014

    My PBMX was initially denied by BCBS - MA.  My BS did a peer-to-peer and got it approved. On the paperwork I received from the insurance company notifying me that they had overturned their original decision, it stated that my doctor had provided office notes and pathology reports in support of the case, and that the surgery was approved due to rapidly growing, bilateral breast masses.

    Of course I got the denial notice on a Friday and had to stress out over it all weekend. 

Categories