Starting chemo November 2012

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited January 2013

    I'm praying for all you girls who are having to make such difficult decisions...You've already been through enough and I am wishing the best for all of you.. Hugs and kisses, Love TriciaKiss 

  • txjunebug
    txjunebug Member Posts: 212
    edited January 2013

    Where's our dear Michelle??  I hope you're doing okay!!!!

  • maryah930
    maryah930 Member Posts: 322
    edited January 2013

    I PM'd her.  She said she is fine and will be posting soon.

  • maryah930
    maryah930 Member Posts: 322
    edited January 2013

    adagio ~ You inject your own Neulasta?  I have to go back to the chemo center the day after for them to inject it. She gave me the option of Neupogen x7 to inject at home, but I'd rather go back and have only one shot.  I take the Clariten 2 days prior and 3-4 days after. I found it worked better than just taking it the day before or start the day of.

  • Megan2
    Megan2 Member Posts: 70
    edited January 2013

    Congrats to those who are now in the home stretch after their final treatment... may the SEs be mild and the healing time swift.

    For those saying they have muscle aches and pains - anyone else having leg weakness while walking? I can barely climb a short flight of stairs, not because of being winded but because my legs are so weak. And even walking down the hallway at work leaves me feeling wobbly. They don't ache until I move - and then moving, rolling over in bed etc causes a wave of aches. Very weird, but actually not so bad as it doesn't bother me otherwise. Some of you sound like you are bothered by it all the time, which is hard. 

    Sickofpink - I heard Taxotere could make your eyes water all the time (heard it referred to as taxotear!) but didn't know it could block the ducts. The edges of my eyes are constantly itchy, so maybe all my scratching is keeping those ducts open:) I hope the thing the eye doctor did does the trick for you and you don't need stints...

    For the surgery first vs radiation first, I am sure that whichever way those of you facing this decide, it will be the best decisions for you both. The doctors wouldn't let you do it if it wasn't:) 

  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited January 2013

    Hi Girls, I've been sick for the last few days - first runny nose, teary eyes, then bloody nose, at first I thought it was all just side effects - then coughed all night long - no fever, not the flu - Ear infection, sinus infection,  and headed for my lungs...Now I'm on antibiotic, nebulizer and cough med w/codene - have to get better quick , last chemo is on Tues....OK hope everyone else is feeling healthy and no side effects...Update: slept all night with the meds, except for a short coughing spell.. 

  • Loafer
    Loafer Member Posts: 121
    edited January 2013

    Hi ladies -



    Thanks for the reminder to take Claritin today before my neulesta shot tomorrow. Between this and Vicodin I hope to get through. Concerned about constipation now between chemo and Vicodin. My body does not like any of it!



    With regards to muscle aches and pains, I do only feel when walking or lifting arms. It's brutal to climb steps. The longer I sit or remain inactive, the worse it is. I have this into the next treatment, so it doesn't subside in week 2 or 3, like other SEs. I read its a SE of Taxotere that doesn't get much press. Always something.



    I also woke up this morning with pain in middle finger joint. Is this the beginning of neuropathy? I was hoping to avert this SE now that chemo is over.



    Hugs!!!

  • keetmom
    keetmom Member Posts: 432
    edited January 2013

    Back For chemo #3 tomorrow...I've been struggling with hives some this weekend...benedryl takes care of them...wondering it if is new lotion or some how related to chemo...or stress of everything catching up...

    Slowly my house is falling apart...DH is trying and did a really good job up until now...I know the next month will be rough and wonder how the house will not end up condemed by the end of it! (kidding but you know what I mean..) Im so tired..and the benedryl all weekend isn't helping any... guess I have to look at after tomorrow there will just be 1 treatment left!

    I wont be doing radiation...because of a genetic disorder that doesnt play nice with radiation...and the RO said that I am not really a canadate for it with how the pathology read...so in 3 weeks from now I can start recovery....hoping end of April I can do my exchange for my permanent implants...we are hoping to go to the beach over spring break! We all really need a vacation!

  • Megan2
    Megan2 Member Posts: 70
    edited January 2013

    5luvbugs, you sound sick as dog. I hope those antibiotics do the trick and you feel better soon.

    Keetsmom - good luck with the hives and number #3 tomorrow...

    Loafer - Interesting that being inactive makes the muscles work. I have been incredibly inactive because of it, so maybe I need to alter my strategy and force myself to be a bit more active, despite the achey muscles.

    Very few posts right now - we must all be very VERY tired....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    Tricia, I hope you've kicked that bug out the door by now. BC is hard enough without having to be sick with a virus on top of everything else.



    Please let us know how you're doing as soon as you feel up to posting.



    Michelle, we need to hear from you Girl! We're thinking about you.



    Blessings

    Paula

  • powermom
    powermom Member Posts: 195
    edited January 2013

    Luvbugs, just sent a prayer up for you. Feel better soon!



    Michelle, let us hear from you.



    Paula, feeling an upswing yet? I'm hoping to feel more normal this week and maybe get some taste buds back.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    Powermom, Martha, right? I do feel much better today. We had pizza last night, and it tasted awesome. I think I might be able to bulldoze some of the clutter and dirt out of my house today. Lord knows it needs it. I haven't had any real energy or motivation since first chemo.



    We started chemo on the same day, but mine is every third week. I don't think I could stand the dose dense of every two weeks. My onc has all her patients get it this way. She said,, for one thing, we have an extra week to rebound and also it lessens the chances of getting leukemia from AC down the road.



    I hope you get your tastebuds back today.



    Blessings

    Paula

  • politicomama
    politicomama Member Posts: 187
    edited January 2013

    Paula... glad to hear you are feeling better. You are on Friday's right.  I am staying with Thursday's for Taxol.  Nervous and releaved to get started all in one.  One of these days we will run into each other :)  I'm the bald one that refuse to wear my wig unless nessecary Embarassed

    Luv, Feel Better soon!

    How is everyone else.

    I finally feel like I am running on 80 to 85% instead of 50%.  That last dose of AC kicked my butt. 

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited January 2013

    Politico -

    I started taxol on Thursday. Not sure about u but the infusion took 4 hours... It was a long day. Felt ok. Hands and feet a bit sore, and a little achy. But could be worse. Good luck to u. Let us know how it goes. :)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    Wendy, yes, it's Fridays for me. I'm hoping to get taxol on Fridays also, but since I don't get 4th AC until Feb. 8, I'm not sure when I'll start taxol. I imagine 3 weeks after last AC, so my WBC has time to bounce back.



    Do you get your Neulasta in Lancaster? I don't get that, since I'm not getting dose dense.



    Has anyone heard from Tricia (5LuvBugs)? Or Michelle? I hope they're doing better. I miss them when they don't post.



    Blessings

    Paula

  • maryah930
    maryah930 Member Posts: 322
    edited January 2013

    Hi all: I PM'd Michelle and heard back from her on the 5th.  She said she was fine and would post soon.

  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited January 2013

    Hi Girls, I'm here but I'm not a happy camper!!! Had appt with ONC before my bloodwork this morning, he said I might have pneumonia!!! Sent me for chest xrays and there had to be 30 people in there (all sick)) there goes all my germaphobic precautions - anyway, my final chemo for tomorrow has to be rescheduled until at least next week...Don't know yet, if I have pnemonia or not but  I'm sick of being sick and tired of being tired....Oh well, at least the sun is shining here in NJ and that's good enough reason to smile :o)

    Can't stay awake long enough to go back and respond but I have read your posts...Thinking good wishes for everyone... Have a happy day Smile

  • BZO63
    BZO63 Member Posts: 5
    edited January 2013

    hello,

    I finished the same chemotherapy December 28th. One of my friends who has gone trough this ordeal told me to use Meta NX( a strong folic acid and b complex) to prevent neuropathy with TAxol. I started 1 week before taxol twice a day and used all during the course. I did not get neuropathy

  • maryah930
    maryah930 Member Posts: 322
    edited January 2013

    Hugs to you 5LuvBugs.  And I hear you.  This round of chemo has knocked me out, but here's hoping you do not have pneumonia.

  • politicomama
    politicomama Member Posts: 187
    edited January 2013

    Paula, I do get my Nuelasta in Lancaster, and quite frankly I am thankful!  I would hate to drive to Col just for a quick needle poke.  That gas adds up!  I met with RO up there too, and loved Julia White, but I made an appointment for a rads consult here in town today too.  Not sure what I will decide about that. 

    Dakota, thanks for sharing.  I am hoping we breeze through these next 12 weeks!  

    Luv! Hang in there!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    Wendy, I don't blame you for trying to change ROs. Since rads are daily, I wouldn't want to have to drive to the Stephanie everyday for weeks. I'm dreading driving there everyday from Reynoldsburg.



    BZO63, thanks for that info. I'm going to write it down and ask my onc about it. Of course, in the end I will research it anyway and go with what I feel is best for me.



    Blessings

    Paula

  • txjunebug
    txjunebug Member Posts: 212
    edited January 2013

    Hugs to you 5Luvbugs!  Praying for a good report.

    I'm taking vitamin B6 at the recommendation of my onc for my neuropathy.  Still got it after round 3 and it's worse than before so I can't say that it's helping me all that much.

  • keetmom
    keetmom Member Posts: 432
    edited January 2013

    Survived #3...1 more...I can do this! Think we will probably take my overies when I have my exchange, due to my genetic disorder I shouldn't take tamoxofin...going to talk to the Onc next week more on it...met with the NP today...she said keep doing what I am for the hives...who knows what it is happening...it is better tonight after 20mg of dex and iv benedryl.....

  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited January 2013

    Glad you made #3 Keetmom - that benedryl should also help keep the bone pains away also...Feel better...Wink

  • maryah930
    maryah930 Member Posts: 322
    edited January 2013

    5luvBugs ~ Have you heard about your results (pneumonia)?

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited January 2013

    Keetmom-

    Congrats on #3!!

  • MichelleV
    MichelleV Member Posts: 9
    edited January 2013

    I'm new to the site.  I was diangosed with triple negative on September 28th.  I had a lumptectomy and sentinal node biopsy on 10/19 (1/10 lymph nodes) and started chemo on 11/07/12.  I had 4 rounds 2 weeks apart of A/C.  Just had my first taxol on January 2.  I have 11 more weekly of taxol.  I'm glad A/C is over.  Nausea was the worst part and by my fourth round, I was pretty exhausted!  The biggest complaint after my first taxol is bone pain everywhere but no nausea so I am happy about that!  I am looking forward to talking to you ladies.  Stay positive!

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited January 2013

    Welcome Michelle -

    I had my first taxol jan 3,I am evey other week tho. I hear u on the pain. Mine is pretty random, and a little all over strange feeling.

  • michellej1980
    michellej1980 Member Posts: 342
    edited January 2013

    Hello ladies! It's so lovely to see people asking about me. You are wonderful people.




    I've been fine. Felt shitty over Xmas after chemo on 21st but am doing ok now, just tired. I've been so busy looking for a new car as mine died just before Xmas and it was doing my head in searching for something and taking up all my energy. But I'm sorted now and glad I can drive to the hospital this week instead of getting buses and trains.



    Was looking forward to meeting my friend tomorrow who I've not seen since before the holidays but she texted to say she has a bad cough and chest. I suppose I shouldn't really see her but I'm so disappointed. We were going to our favourite pub for our favourite food. No point going next week as it will all taste disgusting for me. :-(


    It still feels like such a long way to go till the end of chemo. I've got # 4 of 6 this Friday. I've still got plenty of hair but am worried that it's not gonna hold on through another 3 treatments. I also can't imagine how crap I'm going to feel by #6. Ah well, got to take it all day by day. Hope you are all hanging in there.



    Michelle

  • michellej1980
    michellej1980 Member Posts: 342
    edited January 2013

    Another Michelle! Welcome! :-)

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