Starting chemo November 2012

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  • txjunebug
    txjunebug Member Posts: 212
    edited January 2013

    thanks for the idea Milkway. I'm going to try putting some fresh strawberries in some water and see how that taste.

  • milkyway2
    milkyway2 Member Posts: 259
    edited January 2013

    Txjunebug you can buy flavour water from wall mart i bought from shoppers drug i m n canada or u can check any drug stores

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    Milkyway~I just started drinking the Walmart flavored waters a couple weeks before 1st chemo. My favorites are Mandarine Orange & Raspberry/Blackberry, but right now, they just don't have much taste. By Saturday they'll be flavorful & refreshing.

    I have iced tea, vegetable juice, diet coke, flavored waters, and Gatorade, but nothing tastes as it should.

    I had Taco Bell's Mango Strawberry Fruitista 3 times this week. Tasty & refreshingly fruity, but its too cold to go out, and I'm happy here in my robe & blanky, so I think I'll just try some decaf iced tea.



    Blessings

    Paula

  • hwhranch
    hwhranch Member Posts: 149
    edited January 2013

    Those of you having problems with taste....that's just how it is.  Don't feel alone at all. My husband was buying me everything under the sun to try to find something for me to eat. It changed from week to week...sometimes it was mashed potatoes, some times it was a chicken pot pie, most of the time it was nothing.  That Red Devil crap just trashes your taste buds.  What ever it is you can eat, just eat that and don't worry about what it is.  Experience talking here.

  • Eleni
    Eleni Member Posts: 130
    edited January 2013

    Lovebugs, ports shouldn't be a problem. I sleep on my belly, move, do whatever I want, I actually forget I have it- knock on wood. Have you discussed it with your doctor? Is it still where it is supposed to be?

  • milkyway2
    milkyway2 Member Posts: 259
    edited January 2013

    I keep favour water for my worst initial 10 days after chemo i drink regular water. Cant eat spicy food due to sores. Right now for the last 5 days my head is full of pimples very itchy when i scratch them it bleeds

    Chemo is full of surprises

  • txjunebug
    txjunebug Member Posts: 212
    edited January 2013

    Anybody having sinus issues with chemo. mine seem to be full of pressure and very dry.

  • maryah930
    maryah930 Member Posts: 322
    edited January 2013

    Txjunebug ~ Too bad we couldn't split this SE.  Mine is like a faucet since round 2!  I've been through more tissues in the past month...

  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited January 2013

    I can't stop blowing my runny nose either - and then it's dry an bleeds when I blow- can't wait to see what surprises the next round brings..

    HwH, exactly what is the Red Devil cocktail?  I saw a girl next to me and hers was labeled Red Devil... Mine didn't have a name that I could see (Mine is  1 hour Cytoxan, then 1 hourTaxotere) -

    the problem with our taste buds - it hasn't caused me to stop eating, I keep trying to find something good...Mouth is sore, using the baking soda,salt water solution, even in the middle of the night...

    Now where is our leader Michelle - haven't heard from her in days...she was really down in the last post...Where are you Michelle?

  • maryah930
    maryah930 Member Posts: 322
    edited January 2013

    I think the Red Devil is Adriamycin (A in the ACT).

  • Loafer
    Loafer Member Posts: 121
    edited January 2013

    Getting final chemo tomorrow. Going in with serious leg and arm muscle pain this time anyone else have this symptom to the end?



    Megan and Luvbugs - will be moving on to rads in early feb with you!



    I never got a port so I don't have to worry about the removal. Onc said I could handle four treatments without one. I had an infection at site of lumpectomy and was good with this decision. I still feel pain and fluid buildup at lumpectomy and lymph nodes.



    Hope you gals have minimal side effects with next treatment. Several of us are going tomorrow. Virtual hugs and hand holding!

  • politicomama
    politicomama Member Posts: 187
    edited January 2013

    Luv, the red devil is doxirubicin, it's brand name is Adrimyacin.  It goes in red, and comes out red.  I just finished my fourth and final dose of it last week.  Thank the good Lord!  My side effects were not terrible, but the fatigue was killer.  I am eight days out and just starting to feel normal again.  

    I start weekly Taxol next week.  I won't lie and say I am extremely jealous of those of you finishing up.  I won't finish chemo until the end of March, and then I will do five weeks of radiation in May.  Sometime in there I'd like some foobs.  Being bald and boobless is starting to get to me.  

    I've had a rough couple of days with depression.  Cried over everything yesterday.  I think having to go back to work today helped some.  

    Anyone else having aches and pains? I'm not used to this!

  • powermom
    powermom Member Posts: 195
    edited January 2013

    politoci - Feel better!  I will be doing chemo into March, too.  On TCH every three weeks, then Herceptin for a year.  Not so many aches and pains, but extremely blah.  A little nauseous, too.  We will hang in there together.

  • powermom
    powermom Member Posts: 195
    edited January 2013

    I just found something that tastes good - to me at least.  Cream of potato soup.   I grated some sharp cheddar into it, but it was good without cheese, too.  Yum!

  • txjunebug
    txjunebug Member Posts: 212
    edited January 2013

    politicomom - I'm on chemo TC until the first part of March, too.  Aches and pains have been much worse with round 3.  Worried about round 4.

  • maryah930
    maryah930 Member Posts: 322
    edited January 2013

    Round 3 for me tomorrow.  Steroid wired.  Headachy.  Faucet for a nose.  Cleaned, baked a gingerbread upside cake (even though I won't eat it), did a load of laundry, finalized three reports, working on the fourth. I can see it's going to be a relaxing and peaceful night. Frown

  • Sickofpink
    Sickofpink Member Posts: 190
    edited January 2013

    Turns out the Taxotere can cause tear ducts to close and scar over. My onc took one look after blood tests today and sent me to an eye doctor, who inserted steel probes to dialate the tear ducts and threatened stints if it got worse! They said it's more usual for those who have T every 2 weeks, and mine is every three...

    Anyone experience this? I'm hoping they get better now and heal along with my taste buds....and my brain fog (I'm with you, Paula!)

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited January 2013
    Loafer-

    Congrats on getting ur last chemo!!!

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited January 2013

    Politico-

    I started biweekly taxol yesterday. Not so bad yesterday onc said if any side effects it would be a couple days and then my scale pain. He said take tylenolol as needed for the pain. Will keep U posted.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited January 2013

    Sick-

    Was that painful. I always imagine eye things painful. Hope u feel better.

  • maryah930
    maryah930 Member Posts: 322
    edited January 2013

    Round #3 this afternoon; 75% done with this part of the journey...

  • hwhranch
    hwhranch Member Posts: 149
    edited January 2013

    polotici...don't worry.  I was having 4 of the red devil coctail every two weeks and not every 3.  Just when I would get back up it seems I would get knocked down again.  It made me so sick during the infusion that I would have to be knocked out and given phenegren...which gave me bad leg shakes.  Needless to say I had a couple of big melt downs, lol.  Once my nurse navigator called to check on me and I totally came unhinged on her.  Crying and really having a huge pitty party, I felt much better when it was over.  The point being no matter how bad it is, the result is what you want.  We shrank a 5cm tumor to just 3 tiny little dots.  I did 4 treatments of taxol every two weeks after that.  Just put your head down, cry when you need to but keep on walking!!!

  • Eleni
    Eleni Member Posts: 130
    edited January 2013

    Sickofpink, you scare me. My next chemo will be Taxotere. I hope the treatment works.

  • Loafer
    Loafer Member Posts: 121
    edited January 2013

    Finished final chemo treatment and cold cap treatment today! I did not get a port, and while I endured the IVs for four treatments, my veins held up well, and I don't have to have port removed. It was a good decision for me since i had an infection after lumpectomy.



    Onc is doing a follow up test due to the muscle pain I have experienced during #3. Also prescribed Percocet for pain during this round.



    While I'm still holding onto hair, I have bald patches on top and sides. Onc recommended hair extensions if it bothered me. He loves and endorses the cold caps.



    Onc said all symptoms will be gone in three months.



    Hugs and prayers to all you brave gals! May your symptoms be minimum throughout this journey!!



    Ginny

  • Tlym
    Tlym Member Posts: 115
    edited January 2013

    Had last TC tx yesterday. I was really fatigued from round 3, so I wasn't looking forward to #4. I took 2 Aleve and my steroids prior to tx, and they gave me IV drip zofran. As soon as the first cold cap went on, my nausea started. I ended up throwing up three times during treatment and took the ativan offered to me. I didn't really feel better, but at least it knocked me out. Woke up this morning feeling okay. Have been able to eat and drink some and will continue to take zofran for a few days to stay ahead of the nausea. Neupogen shots start this afternoon and hoping for minimal SE's this week. So thrilled chemo is all over!!!

    I have been really struggling with the radiation/mastectomy decision for the past few weeks. Being BRCA+, I want to give myself and my family my best chance at surviving...so I've come to the difficult decision to go ahead with bmx, most likely in March. Any other ladies moving on to surgery after chemo?

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited January 2013

    Tylm, I have been struggling with that decision too. Since I also had 6/8 nodes and other issues I have really struggled with whether to do rads before or after surgery. As usual there is no clear answer but the RO when I saw him in December, said that studies showed you could go either way but you have to decide yourself what you are comfortable with. i.e. if I fear the cancer recurring during the gap between chemo and surgery to rads after then maybe I will choose to do rads first. I found it all very difficult. I saw the PS Thursday and after a good discussion and examination and what can be offered to me, I made my decision to go with mx, axillary dissecton (this was already planned) done by my BS and then the PS will carry on with immediate reconstruction with T/E. He will do a fair fill right then so that after I am healed and go on to rads (ASAP after healing) there should still be some elasticity. So I felt good about the decision but I guess naturally a few days down the road I am having little niggling doubts. Crazy how BC can make us so fearful. But my MO will put me on Armidex right after chemo so there is a protection there. My breast surgeon also seems to think this plan is OK.

    My MO called yesterday and she wants to PS to do the surgery as soon as he can after chemo - like 3 weeks. She feels that my blood counts are good and clearly does not want any long gap.

    I guess it is time to look for a thread for surgery since my old September srugery thread is pretty much ended.

  • txjunebug
    txjunebug Member Posts: 212
    edited January 2013

    Tylm - I'm having my ovaries and tubes removed sometime after chemo due to being BRCA 1 positive.  Still debating about the bmx.  I leaning towards it.  I'm having 6 rounds of TC and only half way there.  Certainly don't want to go thru this again.

  • Loafer
    Loafer Member Posts: 121
    edited January 2013

    Sorry to hear of your final TC tx, Tlym. I had the same treatment and experienced no nausea at all. My biggest complaint has been the constant leg and arm muscle pain throughout. Onc is going to test liver enzymes which I'm praying are fine. Nulesta shot on Monday which will kick my ass with bone pain for 48 hours. Are SEs different between nulesta and neupogen shots?



    I tested negative for BRCA gene, but was preparing myself for the very difficult decisions you are all faced with. Good luck with your decisions Tlym, marianliza, and txjunebug!!!

  • adagio
    adagio Member Posts: 982
    edited January 2013

    Loafer - I started off on Neupogen and got a lot of bone pain - now I take Neulasta (only one so far) and had no bone pain whatsoever. I am about to inject the next one as soon as I finish this and hopefully I will not have the pain - I gather it is different each time. Also, Neulasta brought my white count up substantially more than the Neupogen.

  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited January 2013

    Loafer - don't forget to take Claritan before the Neulasta and for a day or 2 after - makes a big difference with bone pain....So glad your finished Chemo - celebrate!!!

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