Vitamins, supplements, foods to avoid/eat-What Do You Do?

I am a couple of months post active treatment (surgeries, chemo, rads) and am on Tamoxifen.  So my quesiton is now what?  I am not sure abotu a radical change in my life (vegan, etc.) I just want to slowly incorporate a few changes that will help me and prevent recurrence.  I've added b complex and d vitamins, iron, and glucosimine & chondroitin for the joint weakness that re-emerged thanks to months of treatment exhaustion.  I am also on tamoxifen and a metformin trial pill ( could be placebo) and have been told to take a low dose aspirin with the tamoxifen.  

What supplements are you taking? 

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Comments

  • fredntan
    fredntan Member Posts: 1,821
    edited December 2012

    I think the iron is a no no.



    I take

    Vitmin d, fish oil omega 3, chaga and reichi mushrooms, antioxident, green tea extract, dim, calcium





    Try and find good holistic oncologist to help with supplements. Hve you read Life over Cancer or that docs book that had brain cancer? I cant remember books name

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Many SSRI's interfere with tamoxifen's effectiveness, but effexor is okay. I've researched grapefruit extensively and had this confirmed by my pharmacist--grapefruit in any form is a no-no, although other citrus is okay, just not the oil. Something about an enzyme in grapefruit that interferes with tamox.

    Lots and lots of fresh raw fruits and veggies.

    Processed soy products are also not good with us tamoxifen takers.

    Low-fat and maintain your weight in a normal range or lose weight if you need to.  Avoid sugar, although some in moderation is okay.

    When I think of others, I'll share.  

    Claire

  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2012

    I am on an AI, not Tamoxifen, but have also tried to eat foods in their whole form - an apple, not apple juice, etc. - and eliminate as much processed food as possible.  I try to use grass-fed, hormone-free, organic sources when I can, and limit sugar, alcohol, fat, and dairy.  I also have gone gluten-free for the most part, because I had read it helped with joint pain and digestion.  I take raw calcium, vitamin D, vitamin B12, B complex, krill oil (fish oil), Claritin (for AI induced joint pain), multi-vitamin, CoQ10, Biotin, potassium, a probiotic and fiber.  I avoid soy and grapefruit (I take a statin and can't eat grapefruit).  I take a baby aspirin (81mg) three times a week - tried daily but had some esophageal pain - had a surgery many years ago on my gastro-esophageal junction so cut it back to 3-times weekly.

    The book fredntan mentioned is the Anti-Cancer Diet by Dr. David Servan-Schreiber.

  • jessica749
    jessica749 Member Posts: 429
    edited December 2012

    I agree with you SpecialK. I follow alot of ServanSchreiber's thinking re foods and other lifestyle factors.  I also am influenced towards whole food/unprocessed / vegan-ish diet by a specific book by Michael Pollan (who's written so many) called: In Defense of Food. I found that this book in particular helped and continues to help me make sense of every new headline in the news about every new complentary health/food/ study. You know how one day they say "this" is good, then the next, "that" is good and "this" is not? It's very good for giving you a schema, or a prism shall we say, through which one can hopefully better evaluate, and thus make sense, of things we hear, see, read in the mass media.  The eating advice - unprocessed "real" food - is common sense.

    Today, vs a year ago:

    while I sometimes eat garbage (proverbially speaking) I must say I now rarely eat chicken or meat, every day nearly I eat raw cruciferous vegegtables such as broccoli or cauliflower (dipped in humous on yogurt - organic low fat - dip --a girl's gotta live after all!)  I eat low carb toast (Ezekial brand) in the AM with my green tea (which my empty stomach cannot hold without something to absorb it like dry toast). I tend to avoid bread after that. I also consume mainly black beans for my protein. Every day at lunch nearly I have a veggie burrito from TJs. Organic apple too. Should my diet have more protein? YES. Should it have more VARIETY? YES. But baby steps. I'm glad for the inc in raw vegetables, black beans (in safe cans from Eden), and green tea.

    I TRY to get to the gym 3x a week, but half the time do NOT. Working on it. Hard with f/t job and kid and no other parent here but me.

    I take Vitamin D supplements because my Vit D levels were "low" on the scale used by MSKCC.  I also take a daily adult aspirin, but that has more to do wtih other family cancer susceptibility (i.e. colon, etc.) and not so much because of the bc. But there it is.  I'm also on synthroid, and periodically check about the interactions of all these things and worry about it. But so far, no one seems to know or think there's anything wrong with what I'm taking. I space out my consumption of the supplements (including Tamoxifen), but....

    I DO know that it might be a bad idea to take benadryl while on tamoxifen, but haven't seen anything about aspirin or synthroid.  Meanwhile here's the bc.org link to drugs that may interefere with the enzyme that helps women metabolize tamoxifen:

    http://www.breastcancer.org/treatment/hormonal/serms/tamoxifen

  • momof3boys
    momof3boys Member Posts: 896
    edited December 2012

    This is what my mo recommended in addition to a balanced diet and exercise: Vitamin D (prescription), B12, Curcumin (turmeric), Evening Primrose Oil, 81 mg aspirin, probiotics

  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2012

    momof3boys - I was just looking at Tumeric (Curcumin) yesterday in the health food store where I get my calcium!  I am a little surprised by the Evening Primrose Oil recommendation by your MO - does your doc not feel it might be estrogenic?  I put a link to some info from Livestrong:

    http://www.livestrong.com/article/548301-does-evening-primrose-oil-cause-high-estrogen-levels/

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    I love Michael Pollan's writings!  His advice about eating is pretty simple : eat food (he means whole foods), not too much, mostly plants.  Although I'd add "eat CLEAN food".

    Cliare

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2012

    SpecialK,I  thought Tumeric was good for us!

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2012

    I've just started using Tumeric. My son was telling me he had started using it, and it was fighting an infection he has been fighting for months. He claims it's as good as the meds he had been on.

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited December 2012

    Hi, HVV - I'm not on Tamoxifen, I'm on Anastrozole.

    I asked my MO what I should be eating in the way of an "Anti-Cancer" diet, and she told me there was no such thing, per se.

    She told me to eat a variety of fresh, whole foods; stay away from anything processed or containing chemicals; to get my nutritional needs met through real food instead of supplements; to stay hydrated; and to get in exercise every day.

    The goal, she said, was to eat in the best possible manner for my whole body and my overall future health, not to just concentrate on something that may or may not have "anti-cancer" properties.

    I remain gluten-free after discovering that it reduced my fibromyalgia pain to almost nothing, and is most likely helping eliminate joint pain from the Anastrozole.

    I do take the following supplements: Calcium, Vitamin D, Magnesium, a liquid, sublingual form of B complex, fish oil, Biotin, and a daily 81 mg aspirin.

    What I don't take are antioxidants, especially Vitamins A and E. According to my MO, there is some evidence that while they may help the growth of healthy cells, they may also encourage the growth of cancer cells. 

  • momof3boys
    momof3boys Member Posts: 896
    edited January 2013

    Special K-- she recommended it for hot flashes, and I think it must work. I will forward her your article. Thank you!

  • mary625
    mary625 Member Posts: 1,056
    edited January 2013

    Here's what I do, mainly on advice of a naturopath, modified a bit by myself because there's only so many pills I can swallow each day! I've listed these in order of what I think their importance is.

    Vitamin D (so concerned about this that I am also going to start using the DMinder app to get sun exposure each day in addition to the supplement)

    Probiotic

    Melatonin

    Fish oil

    Flax seed

    B vitamins (sometimes the complex, other times B6 and or Biotin)

    Mushroom capsules

    Turmeric capsules



    She has also recommended, and I need to get better at taking: magnesium (have read that it is very important together with Vitamin D), Amlaplex, astralagus, CoQ10, green tea capsules. These will be my new year resolutions.



    For diet, I have become gluten free after testing revealed I had inherited both genes for gluten intolerance from both parents. I already have auto-immune thyroiditis, so I don't want to have other auto-immune issues. I am doing and probably will do a higher protein diet for awhile. The naturopath recommended 25 gm protein at breakfast, then 15-20 gm protein at other meals, with all meals having protein, even snacks. This was more for blood sugar control, I think.



    I am on Femara and Metformin.



    I am trying to exercise 150 min. per week.



    I think that covers it. I am feeling GREAT and having no issues with Femara mostly.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited January 2013

    momof3boys - You are welcome!  Anything that negates the flashes makes me nervous in terms of exposure to estrogen.  Maybe if you are taking Tamoxifen or an AI she feels the exposure is not enough to be a problem?

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2013

    I do most of the supplements already mentioned, but one I don't see mentioned that I think is important is Iodoral.  It seems that many bc survivors have some degree of thyroid dysfunction -- usually on the hypothyroid (low) side, and after much research and having a complete hormones assessment done, I learned that what traditional medicine considers "normal" thyroid function, may actually be too low for optimal health.   So I take both NaturThroid (a natural thyroid stimulating hormone) and Iodoral (natural iodine supplement) -- both RX'd by my naturopathic doctor -- and I consider them a really important part of my new, anti-cancer regimen.      Deanna

  • Momine
    Momine Member Posts: 7,859
    edited January 2013

    I take probiotics. Started during chemo to avoid thrush and digestive issues. Continued because of letrozole digestive issues and because there is some evidence suggesting that healthy gut flora is also helpful in warding off cancer.

    Then I take a baby aspirin every other day, a small D and calcium supplement daily, sometimes vitamin C and lately also a small amount of magnesium. 

    I eat a low-carb, high fibre diet and go easy on dairy and meat.

  • kira1234
    kira1234 Member Posts: 3,091
    edited January 2013

    Deanna,  Is loderal an iodine suppliment? I know I've been non meds for my thyroid for years, aand have wondered if an iodine suppliment would be a good thing.

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2013

    Yes, Kira -- Iodoral is Lugol's iodine in a tablet form.  Here's a website with more information:

    http://breastcancerchoices.org/iodineindex.html

    I also had thyroid issues for years -- a nodule in my early 30's that required surgery, and being on & off varying doses of Synthroid over the years.  I believe there's a direct association for some of us between thyroid function and our bc.     Deanna

  • kira1234
    kira1234 Member Posts: 3,091
    edited January 2013

    Deanna, are you still on Synthroid? I've been on it for about 10 years now. I would so love to jump start my own thyroid.

  • dlb823
    dlb823 Member Posts: 9,430
    edited January 2013

    Kira, I hadn't been on Synthroid for quite a few years, but I now know my thyroid function had been sub par for awhile.   You know I'm all about finding natural alternatives when possible, so you might want to ask your doctor (or naturopath, if you have one) about NaturThroid as an alternative to the Synthroid.  And adding some Iodoral might bring down your need for as much thyroid support.  Have you had a recent thyroid test?  My readings have improved significantly with Iodoral and NaturThroid.     Deanna  

  • kira1234
    kira1234 Member Posts: 3,091
    edited January 2013

    I have the test run yearly, so I'm due again in February. I only have the simple test run though which I understand isn't as accurate. I'm always low side normal on that test. I will ask him about NaturThroid, but doubt he knows anything about it. The health store I go to does a variety of blood work monthly will check into that.

  • Raili
    Raili Member Posts: 435
    edited January 2013

    fredntan, why is iron "a no no"?  If you have iron-deficiency anemia, what are you supposed to do?

  • kira1234
    kira1234 Member Posts: 3,091
    edited January 2013

    Raili, I never heard iron was a no no, but I do know it can build up in the body and that is bad. My husband is always anemic, and has been on iron suppliments for years, but it is closely monitored by his Dr.

  • Jelson
    Jelson Member Posts: 1,535
    edited January 2013

    dlb823-

    I had a thyroid nodule which necessitated? the removal of one thyroid lobe when I was 39 - my thyroid function wasn't an issue at the time, there was a visible nodule. After the surgery, I was put on synthroid to "take over the function of my remaining thyroid and to cause it to atrophy since it was at enhanced risk of nodules".  fast forward 23 years and I am on the same dosage with regular tests. In the intervening years I have tended to avoid iodine, figuring I don't want to feed my thyroid, I want it to......die! has it died? can I should I be doing anything different? if it hasn't formed a nodule yet, will it ever? should I be nurturing it with lugols oil instead of killing it?  any thoughts on this?

    Julie E

  • pip57
    pip57 Member Posts: 12,401
    edited January 2013

    Here is my list.  It has been altered and amended over the years.

    green tea extract, grape seed extract, turmeric, CoQ10, vit D, vit C, magnesium, selenium, holy basil (tulsi), omega 3, glucosamine with msm and a multi vitamin.  

    I take most of them 2ce a day.  I also eat a healthy diet....usually.

    Re red wine...I only drink it occassionally because of the sugar.  I consider sugar to be the enemy.

  • liv-
    liv- Member Posts: 521
    edited January 2013

    -deanna - thanks for the link iodine, very interesting, im now going to add it to my list of supplements.

    x

  • liv-
    liv- Member Posts: 521
    edited January 2013

    vitamins i take are__

    b complex

    cats claw

    iron

    potasi

    curcumin

    iron

    vit b6

    vit b12

    vit c

    vit e

    magnesium

    vit d

    bi carb soda - maple syrup

    take a liver tablet for the  week that i dont have chemo.

    bicarb soda and maple syrup - i dont endorse because if it was that miraculous every onc would be telling us to take it. regardless ive decided to put into my daily regime more for the mental aspect and fingers crossed it might do something for the cancer.

    spoke to onc and he said it cant do me any harm.

    and now thinking will take iodine.

    your thoughts on bicarb soda & maple syrup appreciated, i know a lot of people without cancer are taking the bicarb by itself.

    and please tell me what you believe i should include.

    xx

  • sbaaronson
    sbaaronson Member Posts: 230
    edited January 2013

    Hi all,

    I am on Tamoxifen, 2 years in. I find the side effects (of all kinds) come and go. Some of what I take is to to help SE management.



    The following is my list:

    IP6, D3, DIM, Cruciferous Extract /resveratrol, high potency zinc, super omega 3 w/sesame lignans and olive fruit extract, calcium d glucarate, ubiquinol, green tea extract, 5-lox inhibitor (life extension product), super bio cur cumin, super k (life extension again, they say K is important when you are doing higher dose d3) and melatonin.

    In addition to the above, when I come back from the gym every morning, I do a protein smoothie with a cup of organic berries, a big handful of trader joes- power to the greens, 2 tbs of ground flax seed, 1 tbs cinnamon and 2 scoops of a powder called protein and greens- 22 grams of protein.

    In terms of eating, I do eat soy, I don't believe it was the tofu that landed me here or for that matter, has the power to sway the situation in one way or the other. I don't eat any animal protein except fish and try for the most part to eat well. I do have the occasional piece of dark chocolate or organic potato chip. Why not ?!

    My quandary is this, the supplement routine is quite a commitment. Like 30 pills a day. Is this really for the duration?

    Wishing you all the best in the new year. My latest thing is to ask myself, what will make me happiest in the year ahead...



    Stacey

  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited January 2013

    Thanks to the person who posted the link to the list of no-no drugs to take that may interfere with my tami.  I have been on the "bottle" for 1 year 1 month, have moderate se's including hot flashes which I just read area  good sign, means tami is working.  I also take an 81mg aspirin 4x a week, vit d, fish oil, b-12 stress, and sometimes vitamin e.  I try really hard to eat better than I did before, I juice veggies and eat fruit. I have a wonderful aunt who makes  a mean cookie tray at christmas and well, I couldn't offend her by NOT taking the tray she made for me....   Had ovaries out 2 weeks ago so hoping that helps.  Here's to a healty and happy 2013!!

  • tenaj
    tenaj Member Posts: 1,052
    edited January 2013

    Thanks for starting this thread. I am blown away about what I just learned with soy being in my supplements!!! After reading I checked & my D3 & biotin has soy listed as first ingredient. I ran out of my biotin tablets 1 week ago & CVS didn't have the same dosage ones I previously bought so I bought the stronger mg ones that came in a capsule...biotin has helped a lot with my hair & nail issues so I figured why not get the stronger ones.....I guess not. I also take a women's multi, calcium & krill oil. I was taking vit E until I was switched to tamoxifen from femara. I asked my MO about Benadryl & he said it was OK, but after my research I'm not taking it. BTW I also changed MO, I had a consult with her & have my 1st exam in a few weeks. Thanks so much for the info. You ladies are wonderful. HAPPY HEALTHY NEW YEAR!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2013

    Thanks to all who have responded.

    I missed the link tothe supplements that interfere with tamoxifen however.  Would someone re-post?

    HVV

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