December 2012 chemo group
Comments
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Friend Gwen - faking it seems to be what I need to do as well .... Just need to get past today I think - I hope !!
Vollleymom - deifitely call your onco - there are so many remedies for nausea - you do not need to be in that state !
Kiwi kid - envy u for being brave on your short haircut- I am just not feeling up to it yet - maybe let this week !get it done today while u still feel good from the steroids ! -
jenjenl - how many down days with the AC before you felt better?
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I had TAC in a day so I don't know how much of mine was contributed to which drug. I was in not good shape due to dehydration and then I caught a cold. If I didn't get the cold I would have been feeling better day 5/6 but it wasn't until day 9 that was was laughing and smiling again. I could not take care of my kids that weekend - friends took them during the day.
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Jenjenl thanks for the feedback. Sorry you had it so rough. I hope the second round is better for you. I know when I did just the TC, the first one was the worst.
I think the adriamycin is the heavy hitter. Today has been up and down for me. I did get my walk in this afternoon.
Hopeful tomorrow will be better for everyone. We need to send out 2012 feeling good! -
I feel down today. Had my first treatment last Thurs and haven't had too many side effects except achy legs and cloudy feeling over me. Which is better for taxotere/ cytaxan Advil or Tylenol ? Also will I feel at least somewhat normal before next treatment on the 17th or worse this week and next?Is my immunity down more this week or next or both so as not to be around people?
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Peb - I did TC 4 years ago on a 3 week cycle. After day 4 I would feel better each day and pretty normal by the third week. In fact before my second round I ran walk a half marathon. Hang in there - hope it goes by quickly.
My hair did fall out on day 14. This time I just want it to hurry up and go so I can get on with the wig transition. -
I have the flu, now. Running a fever, achy muscles and joints. I am supposed to get my second infusion on Wednesday. I think I will call and find out whether or not they will do it then or put it off a day or two.
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Hi, I take Claritin daily, just to be on the safe side but I still get bone pain and achiness pretty bad for two days, around the 6th and seventh day after the Neulasta shot. Doc prescribed oxcodone for those days.
Peggy
I'm getting chemo as I write and the woman next to me has absolutely no SE from the Neulasta.
I too don't like wearing my expensive wig so much. I am not good at tying scarves but I found a site called Beau Beau. If you like what you see, be sure to measure as they instruct. I was in between small and medium large. They suggested to go the larger size and I wish I had. The first one I ordered was too small and had to return.
Now i have several.
They are pricey but cute and comfortable. I figure I will be wearing them for quite some time, even after chemo. -
Today is the day I'm hoping to come out of the fog.
The fatigue is manageable with naps but I would like my "chemo brain" (which seemed to set in with a vengence on Day 3) to get better. It feels like an abrupt change in my ability to hold onto and balance multiple thoughts. Making decisions is harder and frankly, for much of the weekend I just wasn't up to it. Simple things (like how to coordinate my daughter's return from a trip with her friend) suddenly seem incredibly complex and hard. Negotiating everyday family dynamics feels way beyond what I can do. It's a little disturbing and I'm hoping it gets better soon.The up side to chemo brain is that you can really just sit and enjoy simple things. Like this morning's sunrise. I often glance out the window at a sunrise, but I rarely spend a long time just watching the sky change colors. This morning I took the time, because it felt nice and I was perfectly satisfied to just sit and watch. While watching, a deep appreciation grew in me for how many blessings this breast cancer has brought. It was more of a visceral feeling of hope and joy and peace and abundance and love than a particular thought. It was one of those moments I would not have had without the changes brought to my thinking process by chemo. So that's a chemo blessing moment, and I definitely count them!Once we get going today, I am heading out to Great Clips to get the great head shave. I am not honestly looking forward to this, but I do think it will be less traumatic than watching my hair fall out in clumps 8 - 9 days from now. I could wait until next weekend but it appeals to me to cross into 2013 with the "GI Jane" look. I will need a lot of strength and determination to get through the next 7 rounds of chemo so I'm adopting the look now and hoping that the attitude follows naturally.I'm also looking forward to having lunch with my husband today. We have both been so focused on making sure that the girls needs are met that we have hardly spent 10 minutes together since chemo day. This is the age old trap of parenting. Tim has been an incredible rock of support and I'm glad to have some time to just relax with him.Wishing everyone a very happy New Year and many blessings in 2013! -
Peb - so sorry about your achy legs! I am doing the TC regime as well and the worst for me has been the terrible heartburn! I had it so bad yesterday it was between my shoulder blades and my husband had to just keep rubbing and rubbing . Finally found a packet of Pepcid ac and plan to call dr to get precription for Prevacid or nexium . My whole,digestive system just seems very acidic. Ate some soft boiled eggs toast milk and bananas this am and that seems to be settling better . I am kind if restless and tired at the same time too - Giess I should get out for that walk in this California sunshine !!!
Peggy- looked at that beaubeau website (4women.com ). And it looks great - will order a couple right now !!!
Nichole is sounds like u are managing this all ok and you are blessed to have a husband and kids that are supportive ! I wish I was as brave as u about getting a buz - I think at this point I am just going to "wait and see " on my hair and take one step at a time .
Happy new year to all !!
Sandy -
Nicole503 - Beautiful post!
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Nicole I love your optimistic view of chemo brain, and I agree that I've been forced to sit back and enjoy the simpler things that I often overlook.
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Hi gang. Peb - I take Tylenol and it seems to help with many gripes. You will probably start feeling better tomorrow. I'm on the same chemo exactly three weeks ahead of you and I remember feeling great within a week. I think our immunity is lowest however from like day 7 to 10.
Julie - I hope you feel better soon! Adding the flu on top of treatment is so unfair! Hang on! Hopefully this will be it for the season.
Nicole - LOVE your sunrise post! Thank you for sharing that! So how did the buzz cut go? You ready to drop and give me 20 yet? My GI Jane has morphed into Sinead. I still feel pretty tough though.
Sandra - I've been having heartburn too and Zantac seems to take pretty good care of it.
Today is Day 4 and I definitely wound up with a cold. A cold plus chemo is pretty annoying although it occurred to me, again, how good the timing is. I am off work til the 7th so hopefully this will be the one and only bug I get this season (you hear that universe? I'm talking to you!)
DH and ventured out to the bookstore today as I absolutely had to get out of the house! Being New Years I normally spend time writing in my journal and coming up with my plan for the year. It's always the same stuff (lose weight, exercise, save money, blah blah blah). Well I guess this year I can add kicking cancer's ass to the top of the list! So to inspire me I bought a book called "Crazy Sexy Cancer Survivor". Hope to have fun with that!
Then we stopped and bought three variations of Ben and Jerry's to ring in the New Year with. The weight loss goal can start tomorrow. -
I had my second round of AC on Friday. My white blood count was down from 4000 to 3200, but it was ok to get my treatment. All my other Bloodwork was great. Does anyone know how low WBC has to be before they postpone your treatment?
We're staying tonight. Might watch a movie On Demand. DH found an action movie on the guide today that looked really good, though I usually prefer a good drama. Will probably have a snack, kiss at midnight, and go to sleep.
I pray you all have a great year, with great health, prosperity, love, joy, and hope.
Blessings
Paula -
Warmest wishes for a snug New Year's Eve and good, good things in the New Year.
Love to my new friends,
Martha
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FriendGwen ~ I definitely want a review of "Crazy Sexy Cancer Survivor". Sounds like a fun read!
My 1/4 inch buzz cut is a shock, and that's all there is to it. I had a brown Buff that matches my sweater ready to pop on my head when it was done, and I walked out of Great Clips feeling good. The funniest moment was when I came home from lunch with my husband. I had put on my wig before lunch and when I walked in my sister said "I thought you were getting your head shaved, not cut & colored". Wow! When I look at myself in the mirror with my wig, my image screams *WIG* to me but it must be better than I think since I fooled my own sister!
I am glad it's shaved and I think it might be more Sinead that GI Jane but it's not something I need to get too attached to either way!
Wishing everyone a festive and comfortable crossing into 2013! Happy New Year!
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Gwen - I think most of us want to know how the book is
Maybe we all need it for a little inspiration!
Wishing you all a Happy and Healthier New Year in 2013!
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Happy New Year to all of my bc sisters. I called my dr and got a prescription for tamiflu so hopefully I will recover quickly with no complications. I had to postpone my treatment until next Monday, but that is only 5 more days so I guess it's ok. And I never get the flu! My head is pretty much totally bald, especially on the sides. Still have some stubble on top. Every time I look in the mirror, I am still shocked at my appearance. I do walk around the house bald but would feel naked without something on my head. And the wig I got is cute but it feels like I am wearing a hat and I feel like tugging it down all the time which is a big giveaway that it's a wig. I admire you ladies with your gi Jane attitude. I need to develop that in myself a little more.
Here is something that makes me happy: my dogs never even noticed that I am bald! They love me just the same! Yay for pets! -
Happy new year ladies !! Wow my acid reflux is finally starting to subside - yea . The Prevacid says only fake for 14 days so I will have to ask the onc about starting the next course prior to the infusion on 1/17 bc I do not want to go thru that again !
I don't mean to vent here - but I have to ask if anyone else wakes up in the morning with nightmares , feeling agitated and generally miserable ? I used to love that "fresh morning " feeling when i woke and thought I might get that back on new years day - but I woke up after such a bad nightmare this am and feeling so awful ( just all over awful ). That I just had to start balling to my husband . Its just a general all over feeling of malaise ......
I am up now about 30 minutes and feeling somewhat better but just wondered if anyone else is experiencing this ?? ???
Sorry for bummer of a posting right away -
Sandra~Are you getting steroids with your chemo? I had my second treatment the day after your first one.
I'm on steroids starting at chemo and the 3 days following. I find that about Day 6 or so, I have a real downer of a day. I wish I had the ability to cry it out, but tears don't come easy for me. It really helped me to learn the downer is the steroids leaving my system, and for me, Thank GOD, I only had one day of it.
I'm on AC, so I'm not sure of all the meds they give for your particular chemo.
I pray, this proves to be very minimal to you too. If I had known about this Se before treatment, I think I would have hunkered in and rode it out better.
Blessings
Paula -
Happy New Year All! 5 years ago I was waiting on biopsy results. A good friend had called to wish me Happy Birthday and the call waiting rang through from the hospital. Didn't interrupt my conversation and then found it was the number you can't call back. The next morning when the my surgeon called with the bad news of DIC I asked him if he had called and he said yes but I saw it was your birthday and hung up. Things went quicker that time and I had my surgery on Jan 3.
Sorry for rambling, it is taking me longer to get going this am than yesterday but we did hit the High St progressive dinner last night. Maybe I overdid.
Sandra I was just mad when I woke up and felt bad again, but it seems if I get upright and eat things get better.
Nicole I have been wearing the wig here and there and had fooled lots of people too. Last night I put it on for the last stop bc everyone wanted to see it and it got rave reviews even from the neighbor who does all the hair cutting on our street. She said she could help with any adjustments. I am waiting til my hair starts to fall on the chance that it may not. I had a friend who had treatment and all the guys shaved their hair in support and his never fell out.. I know it is wishful thinking.
I have rambled enough. Happy And Healthy New Year to all!! -
Happy 2013 ladies. Let's make this year ours!!
I started reading the Crazy Sexy Cancer Survivor book and adore the writer. Her name is Kris Carr and she's a fabulous cancer thriver. She's very inspiring and in spite of her inoperable stage four cancer ten years ago she is full of health (it's a rare cancer that is on her lungs and liver).
Paula, thanks for the reminder about the steroid meltdown. I feel both antsy and exhausted and it's getting on my nerves. And topped with a head cold. Part of me wants to get outside and hike. The other side gets dizzy just standing up. I want to do something but my brain is foggy. Ahh. This too shall pass.
I've been remembering all my dreams the last few nights. It's like I go from deep REM to wide awake quickly and frequently throughout the night. Steroids again I bet. -
Well - eating often in small amounts is helping me . Maybe my blood sugar gets so low during the night that I wake up angry and irritated b/c of that or mayb it is the steroids . I stopped th steroids on Friday so it seems like I should be over that part - not sure .
Well getting out to exercise is in my plans - it defintely helps pass the time and makes me feel better . Gwen - will check out that book too - sounds great !!! -
Runnergirl: I noticed are stats are almost identical, I was diagnosed on October 9, 2012. My one positive node was a micromet, my reoccurrence rate was nine percent no chemo, and three percent with chemo, but my doctor is adamant about chemo, what was your oncs deciding factor to give you chemo, anyone else can weigh in as well.
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Hi scar yola ,
I am not a dr but from the research and reading I have done - if there are any lymph nodes involved they like to err on the safe side and so the chemo . Is the recurrence rate they quoted u based upon the onco type dx test ? -
No oncotype was done based on three tumors, my onc says I would probably have a low score, but no matter what she would advise chemo based on my age. What does that mean?
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I had a micromet in the lymph node too which has lead me to chemo and, apparently radiation. Is anyone else here following up with rads? I've had too much time on my hands the last few days and am reading about and questioning whether rads are really necessary. I met with the RO back in november and I recall he made a pretty good argument for it but at that point I hadn't yet met with my MO and so wasn't certain chemo was going to be required. Rads seemed like the lesser of two evils but now I'm doing chemo I like to think I can forego rads. Chemo is harder short term but rads seems harder on my other organs. I meet again with the RO in Feb but need to start gathering my thoughts now.
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Hi everyone,
My sentinel node had 1mm mirco met. They did an auxiliary node biopsy took 22 nodes all clear, and everything else was clear. I am having Chemo. I start on January 11th 4 cycles of T/C. I have seen on some other threads that some Oncologist do not do Chemo with a mirco, mine highly recommended it.
Carla
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Happy New Year to all of my friends here!
Wanted to share about a wonderful book that I read..."Kicking Cancer in the Kitchen" . The authors are two young survivor/thrivers who have written a wonderful guide to taking this on and kicking its butt! The first half of the book is their stroy...no holds barred...the second half is recipes. Each recipe is noted for whatever SE it might help...
I also loved Kris Carr's book...so positive and uplifting.
I'm getting nervous..chemo class is on THursday and chemo begins the 9th. Wishng you all a strong week filled with hope and light.
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Gwen - there are some shorter courses of rads from what I understand and u might qualify for those instead of the typical 5 week treatment . I too do not want to go thru rads but since my tumor was over 2 cm I feel I must to play it safe - also I had a lumpectomy . Hey it looks like u had a masectomy and I was told by my surgeon normally radiation nor required with masectomy . U need to get plenty of info before u meet with ro
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