DIEP 2013

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  • seagan
    seagan Member Posts: 166
    edited December 2012

    Wow, thanks so much, calm! Your description really helps me as well.

    I was wondering about the scan thing, too; I've read other instances where those were done before a DIEP and I've been wondering why my PS hasn't talked about that. Maybe it's only done in cases where women only want to go through with the surgery if it's for sure going to be a DIEP (whereas I've OK'd going ahead with a muscle-sparing TRAM if that's what's needed), so they do the scan to confirm there are adequate blood vessels, etc. for a DIEP?

    Thanks again!

  • SheChirple
    SheChirple Member Posts: 954
    edited December 2012

    I have posted in the 2012 thread, but now have my surgery date, 5/24/2013.  The late date is to accommodate many things, including my own schedule.

    I am also borderline on enough good belly fat.  Although I am still heavy, at 169 lbs, 5'7", my PS originally said no to DIEP/TRAM.  With failed implants we are now recommending DIEP.  So, I'll likley be more of a C cup than a D, but....

    I also authorized TRAM if ther ei snot enough fat tissue with good blood supply, but that's unlikely.

    PS specifically said 'do nothing special, just stay healthy'. 

  • BleuGirl
    BleuGirl Member Posts: 21
    edited December 2012

    My PS did an abdominal CT angiogram to have an idea about my vessels before the surgery.  He doesn't use these images to decide who can or can't have the DIEP but just to give him more info going in.

  • MartyJ
    MartyJ Member Posts: 1,859
    edited December 2012

    My surgeon also had me go for a CTA the day before surgery. They took two passes, one without and one with contrast. Unfortunately when she reviewed the images she didn't see much in the way of supportive vessels. On the morning of surgery, she pulled out her handy portable ultrasound and marked at least 6 acceptable vessels.

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2012

    @calm......Thanks again (and again) for your info. I have spent the afternoon reading through the bazillion posts on the NOLA thread and although there is a lot of info on there, my god, it sounds like the women are on a never ending revolving door of surgeries! My whole reason for going the diep route is to "stop the madness" associated with having implants, and the surgeries I have had because of issues with them. Boy, I really hope to get a consult date soon, to help get things sorted out! 

    I sure was glad to hear you had a private room. A friend had a mastectomy done at Foothills last year. Her "roommate" was a MAN, and they shared a bathroom with another room. In the midst of her first "bathing" post op, another patient walked in on her from the other room. Talk about trauma! 

  • christina0001
    christina0001 Member Posts: 1,491
    edited December 2012

    I'm scheduled for a DIEP July 30th. Boy that sounds far away, I guess it is. I wanted to wait until spring but as it turned out, that is my surgeon's first available surgical appointment! She is very busy giving us midwestern gals new, natural breasts!

    I'm getting a new right breast and she is going to lift my left breast too. I'm really not sure what the lift will involve but I figured, it'll be small potatoes compared to the right side, so why not be a little perkier on my "good" side? lol

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2012

    Does anybody have any idea what the difference is "surgically" when diep surgery involves removing an implant that has developed a capsular contraction? That is what my situation is. I'm wondering if the skin that has been stretched over the implant will be removed, or become part of the new flap?

  • SheChirple
    SheChirple Member Posts: 954
    edited December 2012

    nihahi:  I have a left implant, which will be removed when they do a bilateral DIEP in May.

    Just today I had a consult with my PS. He indicated that they will hvae more skin remaining on the left, meaning less transplant of actual skin, than on the right. The difference is minor, however, and he indicates not noticeable.   The right implant was removed in August and has remained absent since.  The left remains stretched.

    The DIEP is a recommended therapy for repeated capsular contraction issues and usually resolves the issue.  This was my research based on various articles.  But, ask your PS.

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2012

    Just want to say thanks to everyone responding to my torrent of questions. I have just recently found this site and have so much "bottled up" that with my first post thoughts just started to pour out of me. I find it difficult to "sort through all this stuff with my friends and family. Although supportive, I get the impression they think I am obsessing about the details, and some don't even support my need to remove the failed implants and get back to "just me", but with breasts. Once I know I have an appointment to talk to the PS, I'll be able to hopefully use him as a sounding board too. Until then, you are my lifeline.

  • MartyJ
    MartyJ Member Posts: 1,859
    edited December 2012

    Nihahi - I had bi-lat diep and bi-lat removal of implants.   I had capsular contraction on both sides, with one much worse than the other.  The surgeons told me that they spent considerable time breaking up scar tissue.  They were able to use the scars from prior surgeries and the flap was placed under the existing skin.

    Please keep asking questions.  We are all happy to pay it forward.  This forum has been so very helpful to me as I move through this process.

  • Del11
    Del11 Member Posts: 944
    edited December 2012

    Nihahi - DIEP (and other flap surgeries) are a process like any other form of reconstruction. It's very unusual to stop after the first stage surgery, although I've met at least one woman who did.  There are things she would like to change but she wants to not have any more surgeries--and she spared her nipples--so she'll just live with the aesthetic issues.  She might change her mind later when her kids are a little older.

    Most doctors will do at least 2 surgeries... one to harvest and place the flap/s (and do a mastectomy first, if needed), the second to correct the donor site/s, reshape the breast, make nipples, etc.  But many doctors will split the second stage to optimize the results, for example, waiting on nipples until the breast shape settles.  If someone has had a flap failure, that will increase or double the number of surgeries, depending on where someone was in the process when it failed.

    But... once you're done, you're done. Forever.

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2012

    Thanks ladies....things are getting clearer! I think I can feel my heart rate drop closer to normal with every message I read from you all. Love the "once you're done, you're done. Forever" That's the goal for sure!!!!!!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited December 2012

    Add me to the list!  I just made a pre-op appointment with my PS, and it felt so hopeful, so future-thinking, I almost cried with joy.  All the horrid slogging through treatment--the lumpectomy, port placement, open biopsy, 4 months of chemo, mastectomy, 37 radiation treatments, MORE chemo...it's all behind me.

    I'm hoping for the middle of April.  Yes, I know my chest will look like Franken-boobie, but I don't care.  We'll replace lefty and do a prophylactic mastectomy on the right side, with DIEP reconstruction for both.  

    I've told my friends I'm scheduling my "addaracktomy" surgery. 

  • heavenschild
    heavenschild Member Posts: 212
    edited December 2012

    @SheChirple - yikes!  I am 5'6" and 160 lbs, I hope that is enough.  The PS seemed to think he had enough to work with.  He kept playing with my belly fat with my hubby watching, it was kind of embarrasing.  I've been on a diet and will stop. 

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2012

    @sbelizabeth...Glad to hear you've got your date! Wild ride isn't it, to be so excited about knowing you are going to have such a major surgery. Just goes to show the effort and strength it takes to get to the point where you are done with the treatments, ready for the next step. Congratulations and well done!

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2012

    Just a thought, as physio (physical therapy to some of you) is being talked about  on another thread. Diep is a surgery that has a long "wait for it" type of scenario - has anyone been advised to do any kind of pre-surgery fitness program? I assume that most of the women having surgery done at the NOLA center are given similar instructions, so I am wondering what is the norm at other places, as not all of us are NOLA people.

  • SheChirple
    SheChirple Member Posts: 954
    edited December 2012

    My PS specifically said DO NOTHING.  Do not diet, do not try to gain or lose weight.  Studies hvae shown no difference in success rate for hard core exercise routines. The important thing is to maintain overall good health, circulation and respiratory volume.  In other words, cardio.  But, not too much. You are not trying to drop pounds, just stay healthy.

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2012

    @ shechirple...thanks. Probably for me the best way to keep stress somewhat undercontrol too! When I can't get outside and move, I'm a basketcase even in the best of times.

  • shells43
    shells43 Member Posts: 1,022
    edited December 2012

    Hi Can I join this group? I will see the PS in mid January and I'm trying to decide between having both sides done, or just the MX side. I really don't want to have more surgery later, if it turns out that boob is bad too. I know they can only harvest the tissue one time, but can make two breasts out of it. Otherwise, my good side would need a lift, which would be a separate surgery AFTER the DIEP on the right heals. What do you gals think?

  • kimdy
    kimdy Member Posts: 66
    edited December 2012

    Well, my DIEP surgery date is 1/14/2013 and as it approaches I get a little more anxious.  Have a telephone consult on 1/02/12 with the PS nurse.  Also have been tyring to get preop lab, EKG, chest xray scheduled locally as requested before traveling to San Antonio.

    I know this is what I want to do....just getting a little overwhelmed with the idea now and with all the preparations for kids back at home, car rental lodging......

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited December 2012

    Shells43--Like you, I had to decide between getting the mastectomy side DIEP'ed and leaving the "healthy" side alone (well, maybe a little shaping to match lefty), or having them both DIEP'ed and being finished with breasts.

    For ME, the decision was easy.  The cancer on my left side popped up so fast and nasty, I wanted nothing to do with leaving the other side to try to do the same thing.  I had an "all clear" mammogram in June 2011, and discovered my Stage III cancer just three months later. 

    Come April, no more real breasts for me.  The fake ones will be just fine.

  • heavenschild
    heavenschild Member Posts: 212
    edited December 2012

    @shells43:  I had cancer on the right hand side, 2 lumpectomies.  One year+ later they discovered DCIS on the left hand side.  I was an easy decision for me as the right hand side after radiation just plain 'ole hurts all the time, even hugging someone is uncomfortable.  So I welcome the chance to be able to hug someone without wincing.  The thing that I like is that with the foobs, I won't have to worry about cancer reocurrence.  BTW, I don't see your SX date up top. 

    @Kimdy:  praying for you!  I hated the long wait for my SX, but there is so much planning, and I am not traveling and my kids are all grown! 

    I am soooo glad the NOLA ladies have dropped by our thread here!  I had no idea that the additonal lipo was for recontouring of dimples, etc., I thought that they could make my foobs bigger is they had too small a graft. 

  • llr010200
    llr010200 Member Posts: 67
    edited December 2012

    Well said sbelizabeth! Although I was technically too young for a mammogram I did have a clinical examine by my ob/gyn that found nothing. Then two months later I found the left knot that turned out to be Stage 3/Grade 3! So off with them both. The fake ones in April will be fine for me as well. :-)

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2012

    Almost at "the year" for many of us. Hope everyone has a Happy New Year to kick off the start of putting all the tough stuff behind us, once and for all! Just wondering how the ladies who had their diep's most recently are doing with their recovery journey. My "new years wish" is for an early appointment with the surgeon!

    @calm, I sure hope to be like you and leave the hospital with no drains!!!!!! Does not seem to be the norm for most people, though.

    Does anyone have experience with post-op mobility at home getting out of a tempurepedic mattress? I love ours, as you can feel the mattress slightly molding around you when you lay down, but am starting to think it could be a real problem getting out of it! Not sure we can get a recliner into our condo living area.

  • shells43
    shells43 Member Posts: 1,022
    edited December 2012

    No, I don't have a surgery date yet. I'm just starting to talk to the PS about it and looking at pictures online of the finished "product". I really want to know if the multiple surgeries are worth the end result. I'm going going flat on the one side, but I really think that if I am going to go through the DIEP, that I would rather have both sides done and not have to worry about mammos or BC again. Is that a correct assumption?

  • calm
    calm Member Posts: 46
    edited December 2012

    Hi Nihahi--I don't have tempurpedic mattress--but i think it would be a nice thing to have--as you'd be very cushioned in bed--my bed is quite firm and so I had one pillow under my bum, two under my knees (some people have wedges which would be even better) and about three or four behind my back--so it was like a reclined position in bed--This system of pillows worked for me (I had this in place for the first three weeks post-op). They had a physiotherapist come and see me twice in the hospital before I was discharged--once to show me how to get out of bed wihout straining my abdomen area and again on the day of discharge when she wanted to make sure I could go up and down stairs--and she gave me the brochure of exercises to do at home. The exercises were split into those to do the first three weeks post-op, the next three weeks and then finally at 6 weeks--the ones during the first six weeks are for arm mobility (very similar to the post mastectomy ones) and after 6 weeks they are geared towards the abdominal muscles. I have stuck to the regiman religously and everything has worked out so far--I can get I think 6 or 7 paid PT sessions if i feel i need them, but I don't see any need. I am about 6 weeks now--and I am very mobile (not hunched over any more, can walk lond distancesfine), arm mobility is fully back and I will start on my abdominal muscles now--I must say, however, that i still lie on my back when sleeping and I am just starting to lie on my side for a bit--I think most others do this sooner than i have. When I get out of bed I still do it carefully as I can still feel my abdominal area/incision--still a bit tender--but I only feel it when i get out of bed. I did go in for a two week post discharge visit to the PS--where everything looked fine. It is not uncommon for there to be a bit of oozing but my sites were healing up fine--they tore off the steri strips (which I was glad for, becasue it would have taken me forever to get the nerve to take them off).

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2012

    Oh calm, you are truly going to be my role model! Sounds like you have done awesome. I hear ya about the steristrips, too. I really want to thank you for all your reassuring messages. Keep your fingers crossed that I get an appointment soon, with a not too distant surgery date.

  • wraithg
    wraithg Member Posts: 93
    edited December 2012

    so 14 years later I have been diagnosed again , same breast, same spot . masectomy is recommended and if I do it I want reconstruction right away. thinking of the diep , ab tuck method. The time off is scary to me as I freelance and have no way of supporting myself and son. I hope to be able to work as quickly as possible. All of the comments above are so helpful. Feeling scared,and  a little depressed.

  • nihahi
    nihahi Member Posts: 3,841
    edited December 2012

    @Geralyn....well crap. So sorry to hear this news from you. Your feelings are absolutely real and valid. Not sure where you are, or what your options are for the recon that you want. Hoping for the best for you. ((((((((hugs)))))))))

  • wraithg
    wraithg Member Posts: 93
    edited December 2012

    thank you , when I have more info I will post but for now here is hoping our new year will be a good one!! 

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