Starting chemo November 2012

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Hey there girls, found a picture that looks like my hairdoo, that about says it all - so what do you think?

     Powermom, that sucks - but keep in mind I as well as others will be on the Arimadex or Tamoxafin for 5-10 years also and I'll be so old!!!

    BetNY hope you are home reading this - don't push yourself..I had #3 10 days ago and still feel nauseas at time, eating like a bird - Haven't lost an ounce!!!!!

    Anyone have water retention/weight gain/weight lose?  I bet only skinny people lose weight, us chunky ones don't lose anything we just puff upYell.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Oh my 5LuvBugs, that does look like a baby Clarabell! So cute. I just got mine buzzed about an hour ago. My husband Jimmy, son Jesse, and Grandaughter Jana all helped.



    I may post the pic on here later. It was easier than expected and somewhat freeing.



    Blessings

    Paula

  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Love your new look Paula. Don't you think we are all beginning to look like each other? Cute right ?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    5LuvBugs~yes we are cute, aren't we? We can Rock this as well as the kids can!

    I found it to be very liberating.



  • Sickofpink
    Sickofpink Member Posts: 190
    edited December 2012

    Love the pics! MIneis more like Paula than Luvbugs. A woman in the grocery store just approached me (in my hat and fake bangs) and tried to sell me a certificate for a new hair salon. I told her I had no hair and was tempted to show her. But it was the frozen foods aisle. Too cold.

    Icky mouth. Everything tastes bad. Day 8 nausea. Offers of gourmet dinners from relatives on way to visit, such a waste. Tired, but time to bundle up and walk on beach path to get rid of grouchies...wish you all could join me....

  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Oh sickofpink, I want to come take a walk with you.  It is so windy and cold here (NJ) I won't even go next door to my daughters for dinner...I feel the same as you and I'm on day 10 - just can't eat much at a time and nothing tastes good anyway - Don't you just love those fake bangs - now this is going to make all of you laugh out loud so have nothing in your mouth when you read this......

    OK Everyone - My brother in law asked his wife if I lost ALL my hair (from everywhere), I quickly took the bangs from under my turban and put them "down below" - said tell him no you saw it for yourself..... Am I sick or what -- we laughed so hard hope you did too.  LOL

  • michellej1980
    michellej1980 Member Posts: 342
    edited December 2012

    Hello ladies. Hoping everyone had a reasonably good Christmas. I managed to somewhat enjoy my Christmas lunch despite knowing that it tasted better than what my taste buds would allow!



    I'm feeling pretty fed up. I feel more tired than I have after previous chemos and I really dread the next ones. I attempted to avoid oral thrush this time by taking my med as a preventative but today it appeared. Yukky white mouth. I feel generally wiped out and am wondering if I'm also feeling a bit fluey in terms of mild aches and pains. Again, there is no single huge side effect that's bothering me, just lots of little ones that put together are making me feel shitty. :-(



    I've had half my chemo now and thought it would feel good but I'm in a 'glass half empty' mood, just wondering how I'll feel after 3 more treatments. I envy those of you almost done. At this point in each cycle so far I've thought, 'perhaps I'll just settle for 4 cycles' but at the same time I know I want to take whatever the docs will offer me.



    I've been managing to sleep so that's good but I wish I could sleep 24/7 till I feel better! Each day drags and I just look forward to a time that it's reasonable to go to bed! It's nearly 10pm now so I've been up a good 9 hours.



    Wishing you all the best.

  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    OK Michelle, you need a big hug (((((o))))).   I haven't had the thrush issues, just sore mouth and I rinse with the baking soda and water mixture - I keep a pitcher in the fridge and it makes my mouth feel so much better..try it.

    I've been really tired this time also but was told that each one you get more fatiqued.  Hope you fell better soon/

  • powermom
    powermom Member Posts: 195
    edited December 2012

    Wait for me . . .  I'm cute too! Soteria and LuvBugs, you inspired me to put up a new avatar.  

    Paula, I swear you look familiar to me.  Maybe we're just kindred spirits?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Powermom~Oh Girl...You're cute too! I posted my buzzed pic on Facebook earlier today, and my son, Jesse, told me, he was so proud of me for posting it on there.

    That was one of the best compliments I'd ever received. A girlfriend told me, I'm the bravest person she knows. They just made my day!



    5LuvBugs....You are a HOOT!!!



    Blessings

    Paula

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited December 2012

    Michelle

    Hope u feel better



    U ladies look great'!!!

  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    love the new pictures. we are a strong group of women!

    Michelle - I'm like you on a six treatment schedule. Nurse said muscle and bone pain was from the Taxol,too. If it gets worse they'll put me on pain meds.

    I too feel like I'm still going uphill on this chemo schedule. Can't wait to be done.



    Had #3 yesterday now I can't sleep. Neulasta shot later this morning.

  • politicomama
    politicomama Member Posts: 187
    edited December 2012

    Paula, love the buzz! 

    Sounds like we are all hanging in there.  I had AC 4 yesterday, and I will start my twelve weekly taxols on January 10.  Holy fatigue batman.  AC wiped me on my hiney.  I slept in the car on the way home, dozed on the couch all evening, and slept from 9:30 to midnight, woke up sweaty, wiped off, took an ativan and slept until after 8 this morning.  Just little pangs of uck today cured with small bites to eat.  

    Waiting to hear back from my sil if our dd is going to see the Harlem Globtrotters tonight,  if so I need to get dd up to the park and ride, so I don't want to take anything unless absolutely nessecary.  

    I am heading to the showering, then nap, the my last nuelasta.  Which works, my counts have been great.  

  • maryah930
    maryah930 Member Posts: 322
    edited December 2012

    Does anyone have a chronic runny nose?  I don't have a cold or allergies, but I started having a runny nose about 3 weeks after my first chemo and it hasn't stopped.  Annoying.

    I love the buzz cut and told my family it's going to be difficult for me to want to grow my hair back.  I had thick, curly hair and love the fact that I just have to wash my scalp. Eyelashes and eyebrows are a different story. I cannot wait until they grow back.

    I've been losing weight (6 lbs in one week), but nothing tastes good.  I actually threw out a whole tray of cookies I made. I needed to lose a few pounds, but this was not the weight watchers I want to join! Wink

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Mary~The runny nose can be caused from the chemo, but also, when we lose our nose hairs, (yes those go too) we can have drippy nose. Have you checked out the tips for chemo thread? Really great tips on there. One of which, is to carry tissues all the time for the drippy nose.



    I just finished the cytoxan. The IV machine is beeping away. Finally, I can go home.

    Home Sweet Home, Where you Can Scratch Where it Itches. Lol



    Blessings

    Paula

  • Eleni
    Eleni Member Posts: 130
    edited December 2012

    Michelle, I know exactly how you feel. We have three more to go. We'll make it. With great difficulty, I'm dreaming of not going to the hospital for the rest, but we'll do it. We don't have a bloody alternative.

    Are you going to be taking any other medication after the chemo?

  • michellej1980
    michellej1980 Member Posts: 342
    edited December 2012

    Thanks for the encouragement. I guess we all need it at times. Eleni, I will be starting hormonal treatment after chemo so I'm worrying about SEs of that too. It sounds as if I will be on Arimidex even though I'm only 32 as all my previous chemo for Hodgkin's has already taken care of my ovarian function!



    Have any of the older ladies ever taken HRT? I was put on estrogen replacement at age 17 as I was getting hot flushes and so my paediatric onc at the time put me straight on patches. Could have done without that I suppose. I wish we had known sooner how dangerous it could be. I was on it a few years before the research came out showing the links to BC and I asked my haematologist if I could stop taking it. I wasn't even ever 'suffering' with menopausal symptoms anyway, just the flushes which soon wore off, and my periods came back in between treatments. so I took the damn stuff for way too long. I realise my radiation played an extremely significant role in my BC, but I feel angry that we gave it a little help too. :-(

  • Eleni
    Eleni Member Posts: 130
    edited December 2012

    Michelle, let it go. You can't change that anymore. Now try to be very well informed and question everything. The doctors have to explain why they're choosing to do what they want to do.

    I had BC four years ago. The 2012 mammogram was clean. When I complained about a tumor, the echo showed that it was there, 1.9cm. When they checked again, they found the tumor in the mammogram of 2011!!!I could have avoided all of these if someone had done his job well. I try not to think about it. I can't change it anymore.

  • michellej1980
    michellej1980 Member Posts: 342
    edited December 2012

    Well I recently saw my MRI report from 2011 and it was so poorly written. It mentioned something abnormal but didn't even specify which breast it was! I can only assume it was the left one. Until this year, all I was getting was a letter from the BS saying my scans were 'satisfactory'. I didn't question anything as I was happy for 'clean' results and kept moving on. Fools. I wonder what the point of following me closely was if they ignore signs anyway.



    From now on I want to see all reports related to me and my body, but it can be such a hassle to get hold of them in this country...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Michelle~ ((((((((( hugs for Michelle across the pond))))))))



    Honey, don't keep looking back. You only make yourself miserable. You have every reason to be angry, but focus that energy towards KICKING CANCER'S ASS!!!!



    Blessings

    Paula

  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    Michelle - ditto what Paula said.  Look to the future and kicking cancer's butt!!

    Mary - my nose runs more, too.  Figured it was the loss of nose hair.  Sinuses have been effected by the chemo too.  Every treatment makes the sinus cavity bloody and have to use saline spray to keep them moisturized.  Ask your onc about it.

    Had round 3 yesterday and Neulasta shot today.  Normal reactions to everything so far.

    Found something sad/sort of funny today.  The doctor's office charges $9,450 for the Neulasta shot.  Insurance's agreed amount $2,950.  Very glad I'm not responsible for the difference.  What a difference!!!  Sad that some people have to pay that much.

  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    Also what do you think about this???

    My friend who was diagnosed had her double MX last week.  3 of 3 nodes were positive.  They have not done any other scans/test other than the breast MRI.  Surgeon is telling her she is stage 2.  How can she say that if they haven't check to see if it's spread to any other part of the body? 

  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Well now I'm upset that Michelle had to go through all of that shit and at such a young age!!!  I guess we can never let other people take charge of our health we have to take matters in our own hands and ask for a copy of every test/report we ever get!!!!!  Damn I'm mad!!!! So Michelle get out there and kick ass and we will be kicking with you..

    Eleni I understand what your talking about with the 2011 mammo report - I do believe mine would have showed up also but it was done by a different group of radiology imagining....Glad I transfered my films and went somewhere new this year...

    Politicomom, I guess it's true what they say - each treatment leaves you more fatiqued...Not looking forward to that but will lay low when it comes...

    Maryah - I usually get a runny nose during the week after chemo,, after the diahreah ends!!! if it isn't one thing it's another.  Oh and it's not fair that you lost 6 lbs...I'm still "chunky" - what the heck....

    Junebug - #3 Neulasta bothered me alot more in the lower legs so if that happens to you, don't get too worried, take a hot shower and use some warmth on them....

    Paula you made me laugh so hard i was doing a big ole belly roll... Glad you got home to scratch where it itchesTongue Out

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    txjunebug~usually they don't do the scans until all the drains are out, at least that's how my team does it. Tell her to ask her onc about scans, and tell her to demand answers. I was stage 2 before surgery just because a node or 2 were involved. After surgery pathology came back it was stage 3c. I had ct scans & bone scan a couple of weeks before starting chemo.



    5LuvBugs~I'm so glad I gave you a good belly laugh. Laughter is great medicine!



    Blessings

    Paula

  • BetNY22
    BetNY22 Member Posts: 80
    edited December 2012

    Michelle- I can't believe everything you've been through :(

    Hi ladies- had tx3 of AC on Wednesday---a lot different than the last 2 that barely affected me- knocked me on my ass with nausea and fatigue. Thought I might end up in ER with dehydration since I wasn't able to drink liquids. A friend came by today with some med marajuna and within a half hour I was back to myself. It was actually a chocolate cookie, I only ate1/8th of it and was feeling great, eating and drinking (not high). My oncologist had said it was helpful as long as I didn't tell her about it.lol...hadn't needed it till now!



    Dont know if I mentioned b4-short term memory loss terrible. But my breast cancer was not evident on my mammogram, I was very lucky that my Gyno found it and sent me immediately for a ultrasound instead of just mammo. I was told I have very dense breasts.



    Question- are any of you planning on a diep flap after radiation? I am, it can't come soon enough- 6 monts post radiation

  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Junebug about that Neulasta shot..OMG we would all be in trouble and very very sick....Frown

    BetNY of course you forgot to mention short term memory loss because you have it!! We all do...Embarassed

    Girls, see the hair on this babys head - mine looks just like that, I decided not to cut it off but wait and if it doesn't all fall out, I will cut it to the scalp when new hair starts to grow, whenever that is = meanwhile I wear a hat or wig......

  • Loafer
    Loafer Member Posts: 121
    edited December 2012

    Hi ladies! Sounds like most of you had a quiet holiday with minimal SEs. I am going into my 4th treatment on Friday and getting nervous for the neulesta shot. Has anyone else experienced progressively worse symptoms with this shot? First one - no problems. Second one - knock and shoulder pain. Third one - down and out with bone pain head to ankle. My skin even hurt all over with no relief from meds. I have no idea what's in this stuff. Just wondering if I'm alone with these symptoms and what the next shot will bring on. Happy new year to all you courageous ladies!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Loafer~Are you taking Claritin or the generic Loratidine? Take it the day before shot, and several days after. It may not cut the pain entirely, but it will certainly take the edge off.

    I was on arimidex for a few weeks before surgery. We were delaying surgery because of insurance issues, and docs wanted me to be doing something.

    Arimidex cause the same pain, but because I took Claritin every morning, I only had some pain on the backs of my hands, and was still after sitting or getting up from bed. Just walking through house once would usually get rid of the stiffness.



    This is Day 2, second round of AC. I feel ok, just wish I could drum up some motivation. I don't know how you girls with kids & jobs do it!



    Blessings

    Paula

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited December 2012

    Soteria-

    I feel that the kids and work are what keep me moving ... Lol. They are so busy and I didn't want to change their life if at all possible. Thank god for them everyday.

    Hope u get that energy. ...

  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    Thanks Sorteria for clearing that up for me.  Hadn't thought about her drains needing to be out first.  I'm just afraid for her that it has spread.  She has been very emotional about it all from the start.  I wish I could get her past this stage and more into the I'm mad as hell and ready to kick butt phase.

    So far day 3 after tx3 of TC and I'm a little more tired than the past two.  Nausea has been minimal but the stupid neuropathy in my right foot is already started back up.  It's feeling stinging at time and tingling.  

    5Luvbugs - My thoughts exactly on the cost of the Neulasta shot.  My treatments run about $20k each.  Very thankful for extremely good insurance.  How do people without it survive this??  Makes me very sad.

    I haven't lost all of my hair and what hair is still here is growing some.  I really thought I be smooth on top but I'm still stubbly. 

    Please say an extra prayer/thought for my DD that her genetic testing comes back negative.  It would be so wonderful to know that I did not pass this down to her.

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