Sister with newly dx Stage IV completely pushing me away...
Ok, my 56 year old sister has just been diagnosed with Stage IV. She is in another state. We offered to come down and support her over Christmas. She is with her husband and I'm assuming allows her close network to be around... but I have no idea. The only connection I have with her is an occaisional text sent out to 29 other people... Ya...
So, not realizing the "terms" of our relationship had changed, I made every attempt to accomodate the new rules... I wasn't allowed to "ask how she felt" or not to expect talking on the phone much - all this on top of general pulling away this last year in general. This is how I knew something was wrong with her, long before she was diagnosed.
Anyway, now she's been in the hospital 2 weeks(?). They can't start chemo because she had a sinus infection. They gave her IV antibiotics and now she's struggling with kidney failure. So they're keeping her to flush her system, but now her white count is up and they are going to test for c-diff.
Bottom line: if she dies, I will not have seen or spoken to her again. I see that some BC women feel they lose the support of friends and family after they've been diagnosed... but it's happening the other way for me, me and my family are being pushed away.
Can anyone explain to me how I can possibly understand her state of mind? What reasons she would do this? And what, if anything, can I do for her.
Thanks.
Comments
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I would suggest making the visit to see her especially since she is in the hospital. As you put it you dont know if you will see her again. Often people say one thing but would be happy to encounter a different reality.
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I' taking a different point of view---Is it u'r sister that has actually changed this last year or is it her husban who likes her to be free from her family. U'd have to have a good haandle on how well u really know u'r sister and her husband.
Sometimes they really want to be alone going thru all this mess--In my opinion I woould want my sister with me every minute. I t seems strange that she tells people than shuts u out. Do u get along well with her husband, do u like him? Can u call and talk to him? or is that strained also.Were u always close to u'r sister or did she keep a distance?--I'm asking all these questions just to have u think of the whole picture. But again I would go out there on the next plane and stay with her for a while to see just what is happening and u can always say u'r family is worried and u'r kind of the rep. for them since she wouldn't want everyone coming at once. Good Luck.
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The pain of her pushing me completely out of the picture is unbearable to me. She will speak with everyone else... I assume, except me. They have brought her home from the hospital hoping the kidney failure is more in control. Why they gave her the super strong IV antibiotics for a sinus infection... which has now caused her to get a c-diff infection is beyond me. I found this article about c-diff that is terrifying - about doctors over RX-ing the "big guns" ( http://usat.ly/WIWpn4 ) and how it is senselessly killing 30,000/year and how docs and hospitals won't face it and do what needs to be done. It is highly contagious.
At any rate, I don't know why my sister wants nothing to do with me. We had a decent relationship until about 9 months ago when she started avoiding me. This seems to coincide with her being in so much pain, from what we now know were/are tumors growing in her spine. We live on other sides of the country, but enjoyed at least phoning once a month. We tried to visit each other every 2 years or so.
Someone asked if this could all be from her husband. Yes, it could. We have different life outlooks, we're church goers, right-leaning, family-focused... Her husband's political beliefs are quite extreme to the other side. This last political cycle has been brutal and people have been more indulgent in allowing the differences to divide. We've had some sad problems with that in our family. Her last husband forbid her from having anything to do with me because I stood up to him about some abuse/neglect they did to our mother. I would not be surprised if her new husband is like that. Once I advised my sister to see a rheumatologist to help her deal with the family RA. She said, "no, I could never do that because B would never stay with me if he found out I was a sick old woman." (He has his own little porn collection, however.)
The last time we were there, our sons 12 and 14 at the time, her husband turned on the TV for himself and was watching something R rated with sex scenes or something in it. He had no concept that you don't invite kids to watch it. (They don't have any - he's been divorce 3-4 times.) We had to all go upstairs. It could simply be he doesn't want us around because our character "makes him feel bad about himself" and why would he want his home invaded by his wife's family who might do that?
This also explains why she didn't get her other health check ups the way she should have - like her mammograms. He is thriving being the soul source of information distribution to the minions who want to care about her. Maybe it's just a big rush... I'll never know...
In the last few months when I had the RARE occaision of speaking to her, she was critical, intolerant, irritated, impatient - and always just SOOO busy... where she used to be happy and positive, at least towards me, she has been cold and compared me to her manipulative step-mother.
I am having a really hard time dealing with this because I'm now in a place where I would be a fool to even go to her funeral. They did discharge her from the hospital because that was the only way to get a PET scan. She now has a hospital bed and wheel chair. This tells me it's really bad.
My last memories of her will be this. It sucks so bad. It's going to take a long time to forgive her. I can not rationalize that dying of anything gives anyone the right to become an (fill in the blank). I'm sorry. And my brother, who she does allow in, is now in camp with her view... angry with me because I just wanted to help out and be a sister to her... which is officially a crime and I'm a freak for wanting that. I suspect that this will end my relationship with my brother as well. Maybe she's directing all her anger about her situation towards me... I'll never know. But it has become toxic and I can't be around it anymore.
Whoever reads through this, thank you for listening. I'm sure I'm just really talking to myself about it...it's not like I have a sister to talk to anymore... I can't even tell our mother who has end stage alzheimer's in the nursing home up the street.
If you do have breast cancer, please think twice about how you treat others around you. Please think twice.
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Daisy--to me it sounds like her husband is in contol and she dare not offend him--and u (ro him) sre a big threat to his way of keeping his control. And when women are in that situation rheir fear over rides there xommon courtesy He sounds selfish, mean and a piglke man, bt u'r sister has to deal with him, so she doesn't want any bumps in this road cuz he can react.
I wouldn't take it personally cuz she's so scred of her conditin and who knows she mifhr be afraid he'll leave so she's more vigilant in pleasing him. When women get this far into a relationship the don't know what else they can do. So they close themselves up to the world, because he's her world now. It's such a sad situation and u wonder how any woman can put up with this type of treatment, but even the healthy woman gets stuck like this so imagine if she's sick and scared--she's not going to stand up to him.
I know it's breaking u'r heart and I understand--personally I know what I would do--but being older I don't give a damn about bad people and at this point u really can't help her unless she asks for help. Please don't be so hard n u'rself or u sister--u know the true her and she sounds like she reacting to the true him--kind of like she's protectin herself mentally at least. If there is anyway u can call and talk to her why don't u just call and tell her u'r thinking about her and hope she feels better then say ood-by Just to show u'r support for her. She's afraid now of everything so that's leaves u kind of out of her life and it does sound like it's about him.
Good Luck and keep us posted
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Daisy,oh i so feel for you, you are being rejected and we are not made for rejection. ye sister should be tresuring every moment with HER family, you were there b4 any inlaws were, i would hate my sisters not being around me, well we do live a long way from each other, but i have phone access to them, i do wonder if it be her husband controling the situation and wants to run the show and she is too fragile to fight back. i really do think you should hang in there and don't give up. its a sad state of affairs when we get pushed away esp with an illness present and this kind of situation can rear its ugly head, but we must remain level headed and she is probably very confused and does not know where to turn. i do hope this sorts out very quickly. not just for yr sake but hers. if it is him he has no right to alinate her from you, thats if it is him. hang in there girl and be there for her no matter what. you have all the sistas on here right around the world. gentle hugs x0x0
i /2011, IDC, 1cm, Stage Ia, Grade 3, ER+/PR+, HER2-Surgery 08/31/2011 Lumpectomy (Left); Lymph Node Removal: Sentinel Lymph Node Dissection (Left)Radiation Therapy 10/10/2011 ExternalHormonal Therapy 11/23/2011 Tamoxifen
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Im sorry but I am speechless reading that your sister is the one dying from cancer and you are the one talking about it will take 'a long time to forgive her' and that her situation has 'become toxic and I can't be around it anymore'
Speechless. -
Letlet,
You took the words right out of my mouth. My younger sister passed away almost 2 yrs. ago from uterine cancer. Because of a major issue we had with her husband, I never saw or spoke with her during her final months nor did I go to her funeral. It was beyond painful but I never lost sight of the fact that she was the one with cancer. Whether I liked it or not, this is what she, or perhaps her husband, chose. She suffered and died and I can't be upset with her in any way.
Daisy, I know this is heartbreaking for you. I have been there too but this isn't about you. Find a way to mourn the demise of your relationship and remember what you love about her. I made my peace by helping my elderly parents when they traveled to my part of the country during my sister's illness and when she passed. A week after her funeral, I traveled back east and visited her grave. That was my closure. I hope you find peace during this difficult time.
Caryn
PS: I have mentioned that I lost my sister many times on this forum but I have never told the complete story. It is still difficult but I never held anything against her. She was the one dying, not me. -
I kind of have to agree with Letlet here. This isn't about you or her husband or anyone else, it's about her.
Since my DX, I've stopped talking to a lot of people. I kind of flipped out in the beginning, well not kind of, I lost it. I stopped calling all the people I talk to, stopped going anywhere, stopped doing anything. Well, in the time that I wasn't calling anyone, I noticed none of them bothered to call me either. I realized that in the majority of my relationships, I was the only one putting any effort into them. I was always the one to call, unless they wanted something, I didn't hear from them. My sister is one of them. I've decided that whatever time I have left will not be wasted on people like this.
You said "I can not rationalize that dying of anything gives anyone the right to become an (fill in the blank)." I'm sorry you feel this way. Let me try to explain, tho I don't fully understand myself. Emotions arn't really my thing...but here goes...
I have 3 kids that need me, I have a husband who loves me, I am not ready to die. I have lived for all of 37 years and I am not done yet. I am MAD, so very mad. Right now I am full of anger, hate, sadness, jealousy and a whole pile of other negative emotions that I really have no control of at times. I feel like I've been cheated and I'm pissed off about it. I'm scared to death. I can hardly look at my kids without thinking "What are they going to do when I die soon." It kills me. Sometimes, all that comes out in unexpected ways, at people who don't deserve it. All I can do is hope they can try to understand what I'm dealing with and forgive me.
Get over it, call your sister and talk to her while you still have the chance.
I don't mean to sound harsh, but I would really really love for my sister to call me because she cares and not because she wants something.
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Daisy - no words of wisdom here - other than to make the observation that you sound like a good person. And that cancer destroys lives, shatters dreams and doesn't necessarily change people in ways it should.
So sorry for your loss in many ways. There is no right or wrong way. Send her a card. Tell her you care. That's all that counts. That she KNOW you care. It is indeed about her at this time. Later, you can grieve, seek counsel, and lick your wounds.
Best of luck in a difficult situation.
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Hello...first, gentle hugs to you and your sister.
I'd like to say, be sure to understand one very important thing...you will never be able to understand what she is Going through or how its affecting her emotionally.
Now, here's the way I work...I let the person know when I will be there and my agenda. I arrive and do exactly what I said I Would do. So, I clean, play with children, take care of pets, mail, organization etc. I don't ask what they need, or if I can...I just do it. Then I leave. I am not unusual when I don't want to tell people What I need done...there are too many things that are just obvious. -
OK I'm back--keep in mind I'm sick as a dog right now (only a cold) but I have a fever so my brain is all over the place.
first--this is about u'r sister and her sickness and her feelings--so there is not much u can do.
But u'r brother seems to know what's goin on--now can't u call him nicely and ask him what her situation is. I know a few women who had hospital beds and treatment and got better and no more hospital beds. So u really don't know what the reall lowdown is. I would make it my mission to find out thru u'r brother or anyway u can--and u'r brother sounds most likely- Maybe somewhere alon the line u did or said something u'r not even aware of that caught her wrong. This is a very sad scenario and I have said stupid things to my sister and her to me--but we laugh about it. Something (in her mind) might have happened a few months back and she told u brother so he's with her cuz she's sick. Find out--break down and call him nicely and talk nicely and open u'r heart to him and maybe u can figure this mess out. Start the New Year with a clean Slate--and I don't think u really meant u'r so mad u won't speak to her--u'r just venting and I'm preaching. OK
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I agree with most of the comments here, except I definitely advise against turning up at your sister's place without an invitation. That is not only rude, but could create a worse situation of conflict.
You can try to guess what may be driving your sister's behaviour but you could be very wrong.
Your sister's wishes and comfort are of greatest importance in this situation.
You could try speaking to your brother to see if he can give any insight into your sister's situation and attitude towards you.
You can reach out and show your concern by writing to your sister, telling her that you love her and offering any support she would like. You can write regularly so she knows you are thinking of her, but you need to be sensitive in the way you write.
I hope your sister is able to get the treatment and support that she needs and that you are able to resolve the impasse with her. -
"If you do have breast cancer, please think twice about how you treat others around you. Please think twice."
Daisy, when one is facing a life threatening illness the focus is often not on others but on the horrors of the disease and the toll it takes physically, emotionally and mentally. I have been around several people during the last stages of their lives and I have never once been concerned about how they were treating me as I was not the one who was dying. I have stage IV bc and eventually, it will get the upper hand. When that happens I can't say how I might treat others but I know that those who love me will understand that if I am not my usual kind self, then it is still ok.
Daisy, I hope the new year brings you the insight, love and compassion you will need to deal with this difficult situation. -
Happy new Year Daisy, i hope that this year will bring some resolving and even though i have posted on this subject, i have to agree with these ladies, that sometimes we have to step back and think, well its is my sister that is dying, not me and how i would feel if it was me. its difficult to place ourselves in these situations and when we are hurting it is difficult to see others are in a worst situation thanourselves. Hurting people, hurt others, and your sister is hurting, physically, mentally and emotionly and really needs to foucus on what happening to her at this present time, to me.she is the one with illness. I do feel for you, i feel for the whole situation and really hope it can be resolved for all of you, but yr sister needs to feel peace right now as she faces what is ahead of her, not conflict, i do wish you all the very best for this year and for you. my warmest hugs.
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I have read this entire post and my heart goes to both Daisy's sister and Daisy...but I agree with those who mention that a diagnosis can change things dramatically. And unfortunately if this is a case of a controlling husband (which would be a shame) showing up un-announced (although I could see how this might be tempting if you want to see her) might give him credibility if he's not the biggest fan of you already. My advice is to keep trying, keep emphasizing that you care...
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Whatever you want - give it first. If you want understanding and compassion - be the one to give it. You cannot control your sister's reactions. You also cannot possibly understand what mental and physical hell she is going through right now. If you don't think a fatal diagnosis is reason enough to act in any number of ways, well then, what is? Witholding forgiveness over circumstances that you don't even fully understand seems quite petty given her diagnosis. For all you know, she is avoiding you because she cannot bear to have you see her in this state. Maybe she doesn't have the words to express her fear, pain and disappointment. You just don't know/can't know what's going on in her mind. There are people in my life that I would love to tell about my dx, but don't - because I don't want to hurt them. Because I know it will. Later they may think, "Well, I wasn't important enough - me me me me!!!" But they'd be wrong.
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i'm so sorry to tell you this, but this is not about you. Your sister is facing the end of her life--please allow her peace. Given the serious differences you all have encountered--and I hear a lot of judgement--it could be just too much for her.
I hope you can get some support whether it be a minister, a counselor or someone else who has been through this. I pray that you will find peace also.
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Daisy I keep comng back to see if anything has been resolved or f u know more. I uess not But there are a lot of variables with u'r sister too. Sometmes it takes a while even before treatment cuz ther are infections and counts are off and it's a waiting game. Nothing is certain wth this beast but to let u know my sister s still working full time and it's been 5 yrs snce her diagnosis--we both ggot t withing 4 months of each other, so there mght be more tme than either of u know. One tme had to put off Chemo for 3 months due to nfections and my blood panel so it does happen. I hope u and u'r sister have a long time to work things out and u both have peace in u'r heart and mnd.
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Daisy I keep comng back to see if anything has been resolved or f u know more. I uess not But there are a lot of variables with u'r sister too. Sometmes it takes a while even before treatment cuz ther are infections and counts are off and it's a waiting game. Nothing is certain wth this beast but to let u know my sister s still working full time and it's been 5 yrs snce her diagnosis--we both ggot t withing 4 months of each other, so there mght be more tme than either of u know. One tme had to put off Chemo for 3 months due to nfections and my blood panel so it does happen. I hope u and u'r sister have a long time to work things out and u both have peace in u'r heart and mnd.
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