In shock
Comments
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Oh my gosh Websister, I don't know how you do it! I wish I had your drive and stick-with-it-ness. Impressive! Just making the bed was enough for me today. It looks grand tho'. I love getting into freshly washed sheets. Enjoy your brunch tomorrow. The last chemo treatment was well timed for you as you can really enjoy your Christmas celebrations.
Dakota - Happy birthday to you, happy birthday to you, happpy BIRTHday dear Dakota, happy birthday to you. AND MANY MOOOOOOOOORE! ♫ ♫
Edi, no Primark in Canada. There's even a website saying there should be a Primark in Canada. So no tights for me but lots of folks are raving about them so you're in good company. Have a restful sleep, dear Edi
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HAPPY BIRTHDAY DAKOTA........hope you had a lovely day/night and the kids spoilt you rotten
Hands are getting better , whoo hoo.....so excited to have 'normal' looking hands within a couple of days, they are a little itchy but I guess thats what 'burns ' do when they are healing !
Benny, I did have the Neulasta shot 24 hours after Taxotere so guessing thats why you have the repeats on your prescription.
Glad you are feeling really good......thats what we want to hear.
Websister, glad your mum is doing ok.....time for healing ..... Christmas brunch sounds nice...have fun tomorrow
Edi, love your profile pic
glad you are feeling well....cold but well.....and have your fleecys on!Went out last minute shopping today as I have a full on 4 days ahead of me.
Tomorrow to one of my auntys house, unfortunately not one with the pool but one with horses, its 39degress tomorrow I think I would melt outside so no horse riding for us....to hot for us and the horses
!!Monday to the 'out laws' as I call them (yeh me...just can't wait ) no sarcasm at all...lol......so that should be fun then home, nap, ready for Christmas Eve mass.
Tuesday, SANTA comes ...Oh wait, and my DS TURNS THREE !!! yeh can't wait to see DS face when he gets to ride on his much much much awaited digger ride on (just hope we have a back yard after his done with it ) lol
Wednesday, we have decided to have around 20ish or so people over (last minute cos I'm feeling bloody good - knock on wood) for my DS day after party......just doing finger food this year or a BBQ so will decide soon so I can get that organised...
Well out to the beach for fish n chips and icecream tonight....its 29 degrees and very hot ! Stay rugged up sisters , Bevlee, I can imagine how exxtra hot it is over in Perth....stay cool, lots of fluids and flush that chemo out, how are you feeling hun ?
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Dakota, HAPPY BIRTHDAY YAY !! Hope it is a good one, but as you say start of new year 41. Hope it is a totally different one full of love, good health and joy for you. As we are all still here :-) you must have made the aliens decide against finishing us off. Thank you.Bet the children make it special for you too.X
Websister, life sounds hectic for you right now, have fun, but look after yourself you are precious to us all. X
All have a fun packed day, minimal SE's
Will catch up tonight Edi X
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Ewwww, it's 0345 am and I am up, wide awake. The ailment list this morning: fatigue, serious indigestion, CONSTIPATION. I hate constipation. I'd take diarrhea ANY day over constipation. Am drinking my hot-water-on-empty-bowels trick and hoping for the best. So far..... nothing
Good grief, you should see me. Picture it: black/green plaid flannel pants, thermal grey checked socks, mid-calf length cowboy boot slippers in gold, an orange sleep shirt that says "GRUMPY", and a red plaid shirt over my shoulders for warmth. Yup, I'm a real looker this morning. Oh yeah, and my pink sleep cap. No wonder I'm single haha!
Okay, there is some gurgling going on in tummy region (TMI, sorry!). Will grab a book and visit the loo, as Edi calls it. Wish me luck!
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Hi everyone -
Had a great birthday. The girls at work bought me lunch and flowers and the family went out to dinner. I got two alix and Ani bracelets and flowers. I hear u Benny at 9:00 my stomach started think from the calamari I ate and spent to next 4 hours in the loo( TMI)! Better now but will be tired!!!! Have a great day warrior sisters!!! -
Oh yeah I think the outfit sounds perfect !
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Dakota,
Happy belated birthday!!! Sounds like you had a great day..
This is a question to everyone. Do you guys know how much % your hormone receptors are. I am really struggling with what treatment plan is for me now. I went from aggressive every two weeks when they thought I was TN to a less aggressive treatment plan. I talked to my Oncologist yesterday and he said if I went with the more aggressive it would be coming from my heart not recommendations. He did say he wouldn't have a problem if I wanted to get a second opinion. Glad at least the surgery is done and I feel good.
Everyone have a great weekend!
Carla -
Hi
My name is Amy and I'm 58 recently had a lumpectomy and sentinel node biopsy.
Nodes were clear, and margins also.
But, one year ago my mammogram was not perfect , and I also have had 3 markers placed in 2007 for calcification a which were benign.
My report from 2011 states I have dense breasts, no kidding and radiologist suggested a US , neither the hospital or the breast surgeon chose to offer me additional screening and what do you think?
One year later to the day, the radiologist rates me Birads 5 and wants a diagnostic mammogram and a US and a biopsy of the exact spot from 2011!
I'm devastated at the neglect and I'm considering filing a medical malpractice against both the radiologist and the breast surgeon.
A dentist could have read my report for all it's worth
I'm presently taking 5 year plan of Tamoxifen and doing 33 rounds of whole breast radiation !
Tell me if anyone else has had similar issue
Thanks -
Hi Everyone!!
I have been crazy busy prepping for family....cleaning, baking, shopping, dealing with tons of snow and cold...supposed to drop to -33 with windchill. I made sure my bird feeders are full of seed for the birds...
Benny you sound so much better, you got this girl, I also had wicked indigestion for a few days each round, doc gave me a prescription for Ranitidine and it worked wonders. Up to day 10 pretty much felt like a slug, things improved after that.
Dakota Happy Birthday, hope it was awesome....congrats on the final AC.
Websister hope you get to slow down a bit through the holidays.
Edi enjoy that special little GD through the holidays, you are sailing through girl!
Traii enjoy your family, wow, 39 degrees..that is hot hot hot....with us having a windchill of minus 33 ...that is a wide spectrum, lol...we should both be at about 23 degrees a nice not too hot, or cold day....dreaming here...
Carla, we are with you girl as you journey ahead towards chemo....warrior on!!
Lesleyann, Bevlee and Luvmygoats.....warrior on girls....I love goats, lol...back in the 1990's we bought a brand new white camero, went over to visit a friend with goats and one yup jumped right on the front hood....
Everyone have a Merry Christmas just in case I don't have time to write....next Christmas hair for sure!!.....xx -
Hi, everyone.
Dakota, birthday sounds great. 4 hours in loo not great. Hope you are ok now. x
Benny, outfit sounds like real supermodel look lol. Bit like me at bedtime too, as long as warm and comfy, who cares. Did the hot water trick work ? Hot tea seems to send me off every morning TMI better than that awful tummy ache. Hope you still soldiering on x
Traii, Hands doing really well. hopefully this is last of the awful burning peeling CMF side effects not sure about, bit scared to read up lol. DS birthday and xmas together how lovely.As for fish and chips plus ice cream in that heat wow.x
Websister,hope your brunch went well. smallest GD still calls baby Jesus, baby cheeses, nativity set all ready to assemble for the baby to be put in place Xmas morning.x
Bearcub, gosh you have been busy !! I am about to hit our supermarket with DH for last few bits. Saves dashing about tomorrow.Hope you have a great Xmas x
Carla, hope you get your answer from here, mine is hormone neg so all these percentages confuse me to bits. Admire the way you are investigating everything. I just went with what they said, hope I have done right. x
Wirewidow, Welcome, I too have dense breast tissue. Went Sept 2011 had an US not very nice Doc said more or less go away you are wasting our time. Twelve months later lump appeared nearly didn't go back, then thought sod it I am worried. US different Doc and after bit of searching tumour found. Lumpectomy,clear margins and no node involvement. chemo (8) then 25 rads to come. They reassured me that even tho it may have been there for a year all will be fine. Have to believe them or crack up.
Bevlee, Joanne,Luvmygoats all take care. Off for some Xmas cheer.Edi x
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carlads - my estrogen receptor status was a score of 8/8, >67 % nuclear staining with strong average intensity, progesterone receptor status was 7/8, >67% nuclear staining with moderate average intensity, and HER2neu 3+. Due to the HER2 status and nodes positive for macrometastases I had fairly aggressive chemo and will continue with Herceptin to August 2013.
wirewidow - I had a mammogram/ultrasound in January 2011. With the ultrasound the tech was concerned about an area on the right breast (exactly where the cancer was found in June 2012) and called the radiologist in to have a look. The radiologist insisted that the area the tech was concerned about was scar tissue from a previous lumpectomy, even though I insisted that the lumpectomy was on the other side of the breast. In hindsight I should have stood my ground and insisted on a biopsy
Benny - use a laxative like Senokot S sooner than later if you need it, ondansetron is known for constipation
Traii - glad your hands are doing better
Dakota - glad you had a good birthday, the loo part - not so good
Brunch turned out great, relaxing now. My son's girlfriend's family are wonderful people, we will be related now. My husband was an absolute angel, helping out wherever, couldn't have done it without him.
Traveling tomorrow to my son's place in British Columbia. Cold both here and there. Looking forward to seeing the grandchildren and their parents.
Wishing everyone a wonderful Christmas with little or no side effects.
Take care. -
It's almost 6 p.m. here and I feel crappy. Face is flushed but no temp. I had the neulasta shot at 1:45 p.m. yesterday but had no pain or side effects from it. Do you think maybe it didn't work? Blah, digestive system is raw and making it painful to eat. So worried I'm going to end up back at the hospital
Websister, have a wonderful time in BC
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Benny - the flushed face could be from the dexamethasone, it happens to a lot of us, doesn't usually last long. Don't worry that the Neulasta is not working, if you don't have symptoms, be thankful. If you have taken you allowed dose of anti-reflux you could try Tums or Rolaids, don't stop eating and drinking. Keeping your head raised even while sleeping can be helpful also. I found heartburn worse after I started the Neulasta shots. I know it's hard not to, but worrying doesn't help re: digestion. Sending hugs, read over some old posts, drink lots of fluids and do something to distract yourself.
Thanks for the well wishes for our time in BC. Take care
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Benny - Big (((HUGS))). Find some stupid funny movie to put on. Good you don't have sx from the Neulasta. Don't think it means a thing about it not working. Count yourself lucky. Love you.
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Yes Benny the flushing is normal on AC, as Websister said, it won't last long maybe a few days. Always stay on top of constipation take senekot and take fluids.
It is very important to stay positive, keep your mind as busy as you can, bundle up and take a walk, if just to go around the block, get a good book from the library, try and do a puzzle. Keep the mind busy and not always thinking cancer..if you can play with Benny, I bought a cute mouse from Walmart for my Lily(Siamese cat)..if you tap it, it squeaks, it's her Xmas Gift but she has heard it and is already looking for it. You will feel well enough soon to go see Diamond, and hopefully clear sailing until the next AC. Are you having 4 rounds of AC? Have a great week! Merry Christmas... -
Benny, sisters are right, compared to last time you are being " normal " no SE's from Neu shot great, told you I didn't, and it worked beautifully for me.Know that it is easy to dwell on all the crap parts of this but as Bearcub says find something to take your mind off BC.
Funny movie sounds like a good idea too.If it is any consolation day 6 and I feel really sad and weepy :-( been redesigning the loo again, feels like everything is passing out of my body and it is burning and uncomfortable. TMI sorry Benny, but you aren't on your own.
They have filled us up with chemicals to fight this and THEY are letting us know they are in there. In a few more days you will be ok and you won't end up back in hospital !
Diamond ad Benny need you, so do we, hang on in there brave warrior.
Edi X
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Websister, Hope your trip is magical for you. Have a wonderful time. Edi XXX
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Benny -
Hang in there girlfriend u doing so much better than last time!!!!
Edi-
Sorry ur redecorating again hope it gets better for u!!!
It's 6:45 am here and I am hanging out in the hockey rink waiting for my sons hockey game. Thank god for the blessings if my kiddies and thank god for all of u!
I hope everyone enjoys their holiday we all deserve as many days to think about less about what we are going thru with the help of family and friends!
God bless !!! -
Websister, Luvmygoats, Bearcub, Dakota, Edi, you guys are the best! Love you lots! Thanks for the support. It's 4:30 in the morning and I have soaked the bed again (not sure what that's about) so changing sheets. Throat sore, chest sore, lungs sore, teeny tiny bit of poop (tmi) only and waffling on taking 3 senna tablets before I have to take my chemo meds at 0700. Being a vegetarian, constipation is something I've never had to deal with so this is awful. But Edi, I wouldn't want the opposite either, which sounds like what you've got. My, what a pair we are! I'm rearranging the loo too and have assembled a collection of books in there now. Still terrible indigestion and can't even burp 'cause throat is sore sore. Weird.
Bearcub, oncologist didn't say if I have to do 4 A/C. I was supposed to do 3 FECs but I'll bet he's changed me to 4 A/Cs. Time will tell. I think I have the mouse your bought Lily! Was it on a string? I bought one for Benny last year and he ignored it. I spent more time with it than he did LOL
Oh dear, poor intestines want to work but are struggling. Okay, signing off for now, gonna take the 3 sennas and see what happens. Don't want to go out and get a suppository as it's -23 C with a windchill of -32 C and snow everywhere. Truck probably won't even start. Am starting to cough. This is when it would be good to have a husband.
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Hey Sisters, just been reading through the posts...have been skimming through them yesterday but was sooo tired after the beach and this heat is crazy...was 39 today and way too hot...its 12:30am here and its still 28 degrees !!
Ok so my hands look like old peoples hands, like they are 90year old hands......moisturising doing everything and now looks like they want to peel again ! feet, well soaked them in that salty beach water yesterday and walked along the sand bare foot much much better....ok I did bring some of that sea water home with me and i'm soaking them as I type....ahhhhhh then to moisturise and bed!
I;ve got cold like symtoms today, blocked nose / runny nose (doesn't know what it wants to do) ... and i can not taste a darn thing.....I had lunch at an auntys today and couldn't taste anything....:(
Benny, like the sisters said, don't compare your 1st chemo with this...its GREAT that you are feeling good....night sweats .... blah I hate them they wake me up too.....I end up getting up and pacing the house at crazy times of the morning......Websister is right, the dex would be the one to make you have a flushed face...I have it for about 3 days ... try keeping a diary of all of this..I do so I can speak with onc at my next appt and compare to next cycle......(but don't go looking at the days and think this is whats going to happen next cycle) my SE's were always different...oh and I had no SEs from the Neulasta shot this time too.....it doesn't mean it hasn't worked, look at the people that don't loose all there hair with certain chemos when some do......it doesn't mean it doesn't work hun, just means that we are all different and have different SE.s
I can't believe how cold you ladies have it over there.....poor things...your chill factor , put a plus in front of it and pretend you are having my weather
Edi, I'm on CMF on the 2nd Jan, so you telling me that the hands will continue to 'shed' that its 'all part of it'
bearcub, have fun with your grandkids and their parents for christmas......
Well Christmas Eve here today....another busy day ... take care my warrior sisters.....
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Traii, read post again !! didn't say CMF causes skin shedding, said all being well that would be over but haven't read SE's of it, to scared to just yet. Not supposed to cause hait loss so ours should start to grow back Yay. Hope cold type symptoms will be gone in the morning for you. Salty water and walk in sand sounds an excellent exfoliate for your feet, clever girl. Have a restful sleep.x
Benny, isn't it great that we can compare symptoms with the sisters ? My SE's have abated somewhat. Johny Cash " ring of fire " is now my signature tune lol. Same SE as last time but one day later, as Traii says it might not happen next time so don't expect it. Baking soda baths really help soothe things :-) Have you tried it to help with the indigestion ? drinking it, not sitting in it.just a tiny bit in water my DH uses it when no meds in house.
My loo is real cosy now, books, notepad and pen,radio and radiator well if have to be in there a while it should be comfy. The room is white, blue and silver. Have tiny blue lights around the mirror.Big pale blue crystals on the edge of the mirror. Tiny silver reindeer on the windowsill with blue crystal eyes. Crystal snowflake on the soap dispenser too. Xmas dec mad me.
Hope today improves for you. x
Dakota, what a fab Mum you are ! Hope the game went well. How are you feeling ? x
Just demolished pancakes with lemon yum, only fancy stuff that is really flavoured,as Xmas eve tomorrow we scale back and no Sunday roast today. We are having one of our favourite meals in the whole world. Sausage,egg and chips !! When we got engaged 46 years ago that was our celebration meal. We were poor but happy, not a lot has changed lol.
Laters Edi X
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Sorry Edi, my bad.......little dilerious from lack of sleep
Heard the hair can come back so am hopeful, considering I still have 'some' hair left up there!! lol...Oh yum, pancakes with lemon.......Sausage , egg and chips sounds scrumptious...ok now you are making me hungry at 1:30 am ..... lol I think time for bed before I go and raid the pantry!!!
enjoy your day..Traii xx
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Ok u Celsius ladies i put an app on my phone so I know what temps u girls are talking about. Would love to be walking on the beach. It's 32f here and windy no snow tho. I feel pretty good day 3 from # 4 A/C. I can't complain. Have a few things to day but not to much. My holiday for relatives is our Easter so we will travel for the holiday. Busy but less stress.
Benny hope ur sleeping!! -
Benny - re: soaking sheets. It's called chemopause - menopause-like symptoms brought on by the chemotherapy. Fun, eh?
I hope your three senna weren't overkill - I have a fairly sensitive system and two did me in after chemo #4, wasn't good.
Edi - you definitely have a way with words, you really should write a book. Love your sausage, egg and chips tradition.
Traii - my hands are like yours - someone took a picture of me holding a baby the other night and it shocked me when I saw my hands in the picture. The fingers aren't working well either, have had to ask for lots of help opening things in the last week. Christmas Eve already over there! Enjoy!
Dakota - you are an incredible Mom! To be at a hockey arena in the early morning the same week as chemo - you are my hero!
Bearcub - stay warm, I' m headed for your province in a few hours. -
Sounds like you are doing so much better Benny!!! Not of course without challenges, but chemo is chemo, not a walk in the park, wink wink. I think the no pain with Neulasta does not mean it is not working, that is exactly why I mentioned I know some folks had trouble with Neupogen but not Neulasta...
Constipation let me tell you, I know they mention it as a side effect but I was going to write an ENTIRE book about this, unless you have experienced cancer constipation first hand there is just no way Drs and nurses really get it. This is not your standard constipation...maybe that will be the book title : )
All the rest of you ladies, I am keeping up with your progress. I hope you all have minimal side effects and can enjoy your holidays, whichever you celebrate, as much as possible. Ask me anything anytime!
Big hugs to all of you brave, courageous, and wonderful women -
Thanks lesleyanne, looking forward to the book lol, Luv you for your support X.
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Traii, poor cyber baby, lack of sleep not funny ! Bet your house is hectic too as Xmas Eve, that is sooo weird as still day before here. Hope Santa stuffs something fantastic into your stocking.Blessings to you and your lovely family X
websister, Chemopause ! whatever next ? lovely that someone can explain that dear Benny isn't melting, hope it doesn't last too long for her.
Your poor hands :-( I have noticed mine not as strong too. If DH not about lids stay on bottles etc.Keep meaning to start a book, will get Xmas out of the way so who know's ? Safe journey special lady x
Going to start the Sausage. egg and chips.:-)
((( hugs ))) to all warrior sisters.
Edi X
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Chemopause! Oh my that sounds about right. I only soak the upper portion of the sheets right around my neck/chest/head area. So annoying! And I have my favourite sheets on the bed right now and they're wet again. Grr. I'm drinking tons of water but it's just coming out through my pores and my, well, you know. I might as well just pour it on the sheets and skip a step. Lungs are killing me because of the indigestion. Edi, I will try baking soda and will also sing Ring Of Fire on my guitar as an ode for you ♥ The loo sounds lovely. Mine is done up in Warren Kimble cats. I have to say I'm tired of looking at the cats these past few days.
Traii, can you put gloves on your hands? Load them up with really good lotion and put cotton gloves on and leave them on overnight. And wear gloves during the day as well?
Dakota, I did get some sleep in but the indigestion is bad. And still no *developments* to speak of.
Lesleyanne, you might be onto something there with the poop book. You're right, the doctors sit and smile and say 'just take this' and expect it'll all work out. Uh, it's not working out.Okay, here I go to do something other than moan and gripe. Might just go back to bed as it's too cold to do anything and I haven't any strength for cleaning. Tonight at 7 p.m. will be my last dose of Zofran, then I'm on my own. Oh, quick question..... when do we start counting chemo days? Is the day of infusion considered day one or is the next day considered day one? I wondered about that.
Okay, love to you all. ♥ ♥ ♥ ♥
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I seem to eat a lot of potatoes during chemo. It's the only thing that doesn't hurt (much)to eat. I don't know how you all are doing calamari, sausages and lemon things..... I'd be in agony. I'm living off cereal and potatoes and soda crackers. And water.
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Do you eat porridge ? Easy to eat and digest, little milk and sugar on, or maybe some golden syrup.there is a microwave one in satchets takes 2 and a half mins.
Will keep you feeling full for ages and is a slow release carb for energy.Also cereal called weetabix I ate nothing else for most of my pregnancies and Doc said it is one of the finest foods known to man lol.
Thanks for the guitar ode, DH chuckling at the thought.
Hope things ease a bit by Xmas. What are your plans ? do hope something nice happening for you. x
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