Ovary removal
Hi--Has anyone had the ovaries/tubes removed? I recently found out that I am BRCA2+--I have not had cancer (my mother did and passed before she was 40), and as a preventative measure I'm having my ovaries removed this month. I'm almost 45 and am freaking out a bit about both the procedure and surgical menopause--if you have any words of wisdom/experience or anything else you can share, I'd appreciate it.
Comments
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Zeeba, I can't speak about surgical menopause since I had my ovaries out when I was post-menopausal.
As far as the surgery - are you having it done laparoscopically? If you are, the pain is minimal. I had 3 tiny iincisions, none of which hurt unless I actually pressed hard on them (yeah, I know, why do it? Curiosity). Many women have pain/discomfort as the gas used during surgery dissipates but I didn't have that, either.
One thing I would definitely stress is that you MUST rest and take care of yourself after the surgery. Even though you don't have pain, your body went throuh a trauma and you must heal inside. I didn't do that at first and paid for it afterwards. I started to go back to my normal routine and ended up feeling awful - not in pain, but that weak-under the weather-just don't feel good AT ALL type of thing. Hint: if you're invited to a wedding 5 days after the surgery, don't go.
Best of luck with the surgery. I hope it goes well and your recovery is uneventful.
Leah
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Hi--Thanks for the response--yes, it is laproscopic--the surgeon says it takes about 1/2 hour, which surprised me. I'm having it done right before Christmas so I have the 2 easy/short holiday weeks to work from home if I need to and relax--figured I'd skip a New Year's Eve party :-) He said i should be OK in a week, but that sounded VERY optimistic for me. The waiting has the toughest part--I decided to have the procedure a few months ago and should have just done it rather than wait til I had an easy time at work. Now, I'm just getting a bit nervously nutty, that that too shall pass. Thanks again!
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Hi Zeeba,
While you are waiting for more members to respond, you may want to check out the information on ovary removal on the main breastcancer.org site.
We hope this helps!
The mods
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Hi Zeeba, I just had my tubes removed plus a D&C last week and I'm feeling pretty good overall. I did take it super easy for the first three days after (I literally did nothing and enjoyed being a couch potato!) and am still going at a gentle pace, working from home, etc, but I'm not sure I even need to, I feel really good and basically back to normal already. Like Leah_S above, I had no issues with the gas used in laproscopic surgery. Compared to my mastectomy and lymph node removal, this had been much, much easier.
You stated in your original post "having ovaries/tubes removed", I hope that means you are having your tubes also removed as recent research has shown that many if not most ovarian cancers actually start in the fallopian tubes. This was my reasoning, as due to no family history of bc or ovarian cancer, I haven't had the genetic testing, and am not at this time considered a candidate for having ovaries out. But since I wanted to have my tubes tied anyway for family planning, and I've already had bc, my obgyn advised I could have the entire tubes removed to lower my risk.
Best of luck with the surgery, laproscropic is minimally invasive and really not too hard on the body overall. it's always a little anxiety-producing, but will be over quickly...and I'm sure well worth it!
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Hi-- Yes, I'm having both my tubes and ovaries removed--I've decided to keep my uterus as there is nothing wrong w/ it and the universal standard of preventative care for BRCA2+ is removal of just the tubes and ovaries. Glad to hear you all had easy experiences...now I just need to get it over with... Thanks again!!!
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Hi Zeeba! I am 1 year post risk reducing BSO . Taking HRT was very important to me, a huge quality of life issue. Do u still have your breast tissue? If not, HRT is a great option. If u still have breasts, the BSO reduces your BC risk by 50!% as per research. Be sure to have a Brca savvy doc who will work with u, my best advice. Good luck !
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Hi, Lisa--Thanks for the response--both the gyn/onc and my gyn are fine w/ my taking hormones if I need them--they recommend to see how I do first (I'm 44)...the genetic counselor was fine with it too. For now, I've decided on surveillance for my breasts and will cross that bridge when I'm ready. Just a few more days and it's over with!
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Having ovaries removed on teh 20th of this month. My obgyn said he wants me up and moving after surgery, no sitting around he said. ??? Have to double check that as I am looking forward to a week off work. I wonder about horseback riding, have to ask about that too. were any of you under lifting restrictions?
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hi Zeeba! Have you considered also "donating" your cervix and uterus and getting a full hyster? I feel much better also having those potential cancer problems out - I used to have abnormal paps, and at 44, suddenly developed huge fibroids that caused heavy bleeding. Just wondering if you considered it since you'll already be in surgery with the right group of doctors! Best of luck and do take it slowly after your surgery. Hugs!
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I actually did talk to them about it, and they recommended that everything else stay in place since I've never had any issues before....it was actually a pretty tough decision whether or not to do the whole hyster or not and after a ton of research and discussions, I decided to just have the BSO...let's hope I made the right one!
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Good luck Zeeba, I was given the same advice by my Brca savvy gyn/ onc. Very personal decisions!
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Thanks for all the input--I have my preop appointment tomorrow (wigging out about that too)...I really just NEED this all to be over and done with! I really never knew that I could be so anxious when there is nothing really wrong with me, and that in the long run this will reduce my chances of ever having something wrong w/ me. Sigh....
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CherylinOhio - Absolutely NO horseback riding or lifting heavy objects for minimal 3 weeks. Even when you start back riding you will notice some discomfort using core muscles. I had to board my horses during my recovery phase to avoid barn chores. After surgery the initial pain is from the gas used to inflate the abdominal cavity. Walked out a few hours later with 3 band aides on my stomach and felt much better the next day. This is where you have to be careful about feeling so good that you over do and hurt yourself.
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My preop testing is this afteroon--I'm really hoping I don't freak out and make a a** of myself....I really wish I had a better handle on this...just one more week.
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Zeeba - I think after you are done that you will have better peace of mind with your BRCA status. I was premenopause at the time of chemo which stopped my periods. However, during my rad treatments I really felt like my periods were trying to turn on again. I was afraid with my strong ER+, PR+ status to risk elevated hormone levels so I insisted on ooph surgery. After what I had been through it was a very easy procedure and recovery. This is why I mentioned you have to be careful to allow for recovery and not over do exertion/exercise. I was driving 2 days later but avoided lifting heavy objects.
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Just a few more days til this is all over with! Had my pre-op appt on Friday, which was pretty uneventful...let's hope the rest of this continues to be uneventful---Thanks again for your help! I am feeling somewhat better, but can't wait to be back to normal after this is over and I have the pathology reports back.
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Good luck!! Here is a great site with good info:
http://www.hystersisters.com/vb2/
I think there is an ooph thread.
I know what you mean about rolling the dice - I had everything out EXCEPT ovaries because I didn't want to go into early menopause and have to take estrogen which would feed my breast problems. I have ovarian and BC in the family, so this was a very tough decision. Some times I have regrets since ovarian is like a silent killer, by the time you realize it, it's often pretty advanced throughout the area. Vaginal bleeding is a symptom but that won't be happening after the hyster. No more paps. Hmmm.
We just do the best we can and don't look back! I hope you heal quickly. xxx
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Thanks again for the advice--must say it wasn't all that bad--I look like I swallowed a basket ball, but the swelling is going down. Still taking some pain meds and pretty sore, but much better than I imagined. And it was quick!! Surgery was at 730 and I was at home by 11. Hope everyone has a wonderful holiday!!
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You had better luck than me, Zeeba! I was scheduled for laparoscopic removal of the ovaries; the surgeon could not find them! He had to do it the old-fashioned way, with an abdominal incision. DH jokes that the ovaries heard he was coming for them and hid!
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Ouch--hope you are healing easily! The three little holes aren't too comfortable--the old way must be tough--funny thinking that they tried to hide :-)
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I'm still pretty swollen and a little sore, but that's about it. Have had a few warm moments starting yesterday and been a bit more emotional than normal, and if that's as bad as it gets, I'm good to go--my fingers are crossed on that front.
The big issue is that I'm EXHAUSTED...How long should that last? I was hoping to go back to work for a few hours tomorrow, but right now I can barely keep my head up.
Thanks for everything and I hope everyone had a great Christmas! -
yes have been told and read that if brca + very high risk of ovarian cancer so now im waiting for genetic results and will have ovaries removed if positive.
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