Lots of weight to lose...help.

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cs34
cs34 Member Posts: 253

January 2nd will be four years since I was diagnosed. DMX, immediate latt flap, chemo, radiation, ooph (surgical menopause), just left my fiance and joining a kick boxing class this weekend with 60 lbs to lose.

My Onc and other dr's tell me the leg pain I have has more to do with my weight than chemo in 2009 or Tamoxifen.

Has anyone else lost a significant amount of weight after treatment?

Did anyone find the leg pain/aches went away when they started a workout regiment?

I guess I just want to hear that once the weight starts coming off, I won't feel as tired and crampy.

I want my life back. It's my time now but I fear not "feeling" like I used to pre-cancer/treatment days when I start working out...i just don't know if I feel this way because of treatment or weight. I have never been this over weight before in my life and I'm almost 43.

I know everyone is different and all bodies are not the same but just would love to hear other's experiences.

Thank you.

Comments

  • NatsFan
    NatsFan Member Posts: 3,745
    edited December 2012

    NJ - I lost 60 pounds prior to dx.  Chemo put 22 of those pounds back on.  It's been a long road, but I have managed to lose 17 of those 22 pounds while on Femara.  The aches and pains aren't gone, but they are better.  And my arm and truncal lymphedema is much more controlled now as well. 

    There's no magic bullet - it's just diet and exercise.  Can you manage 30 minutes of exercise a day?  It doesn't have to be all aerobic - it might be a Pilates or yoga class or DVD, it might be a brisk walk, it might be weight training (start small and light since I see you have nodes removed and are a risk for lymphedema).  If you can't manage 30 minutes, start with 5 or 10 or 15 minutes - whatever you can manage now is better than nothing.  One suggestion - come on over and join us on the Let's Post Our Daily Exercise thread.  We have women at all stages of treatment and women of all weights and shapes.  The idea of the thread is simple - we post whatever exercise we've done that day.  Whether it's a aerobic DVD, a session with a Wii Fit, taking the dog for a walk, or just doing a few stretches - we post it.  Something about that accountability keeps you going! It's a wonderful supportive group and we all encourage each other. 

    Good luck - you can do it - starting today, get out there and do SOMETHING for those 5, 10, or 30 minutes. 

  • Jomama2
    Jomama2 Member Posts: 96
    edited December 2012

    I'm a lot older, 61, but have been on over 26 diets in my lifetime so far.  I figured I've lost and regained hundreds of pounds.  I have been at a normal weight many times, but several years ago,  I just let things go.  So, now I have about 80 pounds to lose.  I've started attending Curves on a regular basis, have cut down on cheese, cut out milk totally, am buying organic produce when I can afford it, and am eating no red meat unless it's grass-fed bison. I rarely eat processed foods, and buy only free renge hormone and antibiotic-free poultry. That said,  I have type II diabetes, so am insulin resistant, and I think that factors in to very stubborn fat cells.  After the holidays, I am going to set one goal a week and KEEP to it--such as being vigilant about portion size, huge reduction in carbs (I try to eat whole grain only, pass on bread, but I don't like whole wheat pasta, sorry). I wish you well.  I keep waiting for the "magic bullet" or "fat spinitron" but, alas, it hasn't appeared.  I guess it comes down to moving more and eating less.  I wish you well on your journey.  Some of the books I am using are: Anti Cancer by Dr. David Servan-Shreiber, The Ultra-Wellness Cookbook, South Beach Diet Cookbook, and my many other cookbooks that feature whole foods. I'm also reading The China Study, but I'm not ready to go vegan. 

    I used to have major leg cramps when I was on statins.  Make sure you are getting enough magnesium and potassium.  Stay well-hydrated.  I have knee pain, I think as a result of my weight.  Love that you signed up for kick-boxing!  I know I started to feel less depressed when I began a regimen of better eating, supplements and upped my Vitamin D levels.  I've got to believe we can do it!!!

  • DLL66
    DLL66 Member Posts: 700
    edited December 2012

    cs34, I am a few years older than you & finished treatment in May of 2011. I have been on tamoxifen since then. I started using MyFitnessPal (a free website & app) this past June & have dropped 25 lbs, which equates to 3 pants sizes (went from a longtime 12 down to a 6). I definitely have more energy now than I have had in a long time. My feet & legs do feel a lot better. I work in retail management, so I am always on my feet at work.

    Had I known I could do this, I could have/would have/should have started a long time ago! I had planned on using Weight Watchers, but a friend suggested MyFitnessPal & I already knew a couple of people that were successfully using it, so I figured I'd try that first & have been pleasantly surprised.

    Good luck to you!

  • thatsvanity
    thatsvanity Member Posts: 391
    edited December 2012

    You should try the app my fitness pal, it is really good to easily track your calories and there is a lot of support.

    Amy

    www.myfitnesspal.com

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited December 2012

    Two years ago I was told I needed a new knee.  I was in agony with every step.  No one said a word about the fact that I was 100 pounds overweight!  But before I went into surgery I knew I had to lose the weight.  So I lost 60 pounds.  And the knee which I was told was totally lost, was fine!  No pain at all.  I could walk for miles and miles.  Duh!  lol

    Then I discovered the lump.  During chemo who could think of dieting?  I re-gained the 60 pounds.

    And yes, I am aching all over.  The onco tells me that excercize will help the pain from the AI's.

    It will also help my depression, my blood pressure, my diabetes.  A half hour a day of excercize cuts the chance of recurrence too.  And he said that's it's impossible to lose weight without excercizing.  

    So there's really no getting around it!  Sigh...  At least there's something we CAN do to help ourselves.

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited December 2012

    cs34 – I’ve been overweight since I hit 40. The pounds just kept creeping on, until I weighed 204 last year.  I had severe fibromyalgia (often spending the day in bed or on the couch) and was taking a dozen different prescription medications.

    Then in September 2011, I was dx’d with BC, and had a BMX w/TEs in December 2011. I was fortunate in that I didn’t need chemo or rads, so I was surprised when my MO told me I had to take Arimidex for 5 years. (I’m 100% ER+)

    I told her there was NO estrogen in my body, because I was 15 years post-menopausal and 14 years post-hysterectomy.

    She very kindly replied that estrogen is produced in body fat, especially belly fat, of which I had plenty.

    At that point I had no snappy comeback, so I started thinking about what I might do to give me ammunition to refuse the AI. (I REALLY didn’t want to take it!!!)

    I decided to enter Kaiser’s weight management program. It’s open to the public, and based on Optifast. I had considered it two years ago but the thought of going on a liquid diet seemed impossible to me, and I cancelled the day of the Orientation.

    But this time I showed up, and learned that the next class would not be for several weeks. I decided to start myself. I switched out meals for Trader Joe’s Whey Protein smoothies, and Progresso Light Soups. I also made lots of soups, getting ready to eliminate food from my diet.

    Because this was a Very Low Calorie diet, I had to be cleared medically to participate. This took physical exams and extensive lab work, but I was o.k. to go. In March of this year, we started. I was in a cohort of 11 other people, and we would remain together for the next 8 months. I was taken off ALL my prescription medications except for thyroid.

    On March 26, 2012 I began Optifast. I had managed to lose 16 pounds from my pre-BMX weight of 204, so I started at 188. I am 5’5” tall. I wore a size 18 dress/pants, and a 1X or 2X top.

    Amazingly, the meals were tasty and filling. I was never hungry.

    We had to weigh in weekly, see the nurse for vital signs, and stay for a class/group session. I grew to love the other members of my cohort. (I was initially dreading that part, since I HATED Weight Watchers groups with a passion.) We also had to have regular extensive lab work, and meet with the physician every few weeks.

    The other thing we had to do was exercise. I knew this would be a challenge for me with all my health issues, but we were given pedometers, and told our daily goal was 10,000 steps. For the first time, I found myself volunteering to walk to the mailbox to get the mail! Anything to get more steps in…

    We could also do ANYTHING and have it count for exercise… housework, laundry, gardening, a quick walk to the end of the block…all they wanted us to do was to not be sedentary.

    Within a few weeks the pounds began to fall off. But more than that, I started noticing that my fibromyalgia pain had gone from about a 9 on my pain scale to around a 2 or a 3. Then I made the connection: Optifast is gluten-free!

    I started feeling good enough to actually walk for exercise. In the beginning, I had to hold on to DH’s arm to limp down to the mailbox and back. Then I walked to the end of the block and back. Then around the block…until finally I was power walking for an hour. I was so proud of myself!

    I also started back in my water aerobics class at the local rehabilitation hospital. Their indoor therapy pool is heated to 94 degrees – heaven on sore joints and muscles!!! I did 90 minutes of pool exercise three times a week.

    We were on the liquid diet for four months. In July 2012, we started “Transition” where real foods were slowly re-introduced, and Optifast products were reduced. None of us wanted to do this – we didn’t believe we could lose weight while eating real food. Our guidelines were the American Diabetes Association diet. It all had to do with limiting food choices, and portion control. If it wasn’t on my list, I didn’t eat it.  When Transition ended after 14 weeks, we started “Lifestyle” (calorie-based meal plans) which will continue for another year.

    A few weeks ago, I met my goal of losing 60 pounds. I went from 204 to 144. I also lost more than 65 inches all over my body. I went from a size 18 dress/pants to a size 8. My chest measurement (under the New Girls) went from 40” to 32”.

    But the best news of all: I feel better than I have in 20 years. I am STILL off all prescription medication except for thyroid, and yes, Anastrozole. (I realized that my MO only had my best interests at heart. Fortunately, I have very minimal SEs.) My fibromyalgia pain is still minimal, and I have remained gluten-free.

    The MO says I have further reduced my risk of recurrence by 23% just by losing the weight.

    It was a long road, but I just got up every morning and did what I was supposed to. I made changes in my lifestyle to accommodate my diet. DH was wonderful and supportive. The months flew by.

    Sometimes it’s hard to figure out who you want to be once you’ve been through BC. I decided that my body was worth taking care of, and losing this weight has made me realize that there were SO many benefits to getting healthy! I know that being physically fit is no guarantee I won’t have a recurrence, but in the meantime, it has helped me in so many other areas. I now feel strong and capable, instead of weak and sick.

    All you have to do is start. All you have to do is get up every day and put one foot in front of the other. Forget about the long run. Just concentrate on doing the best you can each hour, each day. And if you make a bad choice, so what. You have to live your life. Food isn’t “good” or “bad”. WE aren’t “good” or “bad” according to what we put in our mouths. And stay off the scale. We can’t live or die by the numbers. They don’t define us.

    Please let me know if you want any more information about the plan I was on.

    Wishing you success in whatever you choose to do…I’ll be one of your cheerleaders!!!!

  • Jomama2
    Jomama2 Member Posts: 96
    edited December 2012

    Blessings -- You are my inspiration!  I just got an invite for the Kaiser Optifast program, but I live more than an hour away and I don't know how much it costs (not covered by my insurance), but I probably can't afford it.  Besides being insulin resistant, I am also exercise resistant, but, since I'm paying Curves, I tend to go.  Next step is getting on the treadmill I purchased 2 years ago.  (Can you give an app. idea of how much the program you used was? -- only if you feel comfortable)

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited December 2012

    Hi, Jomama2 -

    Unfortunately, the one downside to Kaiser's Optifast program is the cost. It's $4,300 for the year and a half program. This includes all the medical exams, lab work, diagnostic work, and Optifast products.

    The price is the same for both Kaiser members and non-members.

    The director did say that sometimes non-members can be reimbursed by their insurance companies for the medical part. AND - the cost of the program is tax-deductible!

    The good news is that it's payable in small installments.

    We did have two members that commuted in from an hour away. You only have to go in once a week - to weigh in, pick up your products, and attend class.

  • sptmm62
    sptmm62 Member Posts: 665
    edited December 2012

    CS, I was diagnosed in May 2010 at a weight of 210 lb. Since diagnosis I have lost 80 lbs., now at a healthy 5'4" and 130 lbs.  I am in the best shape of my life right now, and I feel it.  In answer to your question, yes those aches and pains will disappear when you begin your exercise regimen.  I joined a gym in January 2011 after finishing chemo and radiation at the suggestion of my oncologist who said that exercise would help alleviate those aches and pains that I had too, as well as reduce my risk of recurrence.  I started with a goal of just 4 hours a week, walking on the treadmill.  I now take various classes at the gym and also began running in March of this year. I urge you to begin small, walking, with a goal of maybe 1/2 hour or so a day.  Then just up your intensity and time as the weeks go on.  Don't make weight loss your goal, that will come with the exercise.  If you can eventually, I would encourage you to run.  I only run twice a week but it is a fantastic way to get in shape and it fits very well into a busy lifestyle.  A 1/2 hour run is a great aerobic calorie burner and can be done anywhere, just put on your shoes and go! When I first began I HATED running, but I did it because it was good for me.  My first run I didn't even make it half a mile before I started walking, but that was okay.  Each time I ran I went one block further, and now I can run up to 8 miles at a time (although I usually only run 6).  Whatever you choose to do, just do some form of exercise, you absolutely will begin to feel better both mentally and physically.  And if you need some encouragement, or a friend to help along the way, just PM me!

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited December 2012

    2 hours ago kayb wrote:

    It was really encouraging for me to see how much exercise compensated for calories I took in. I never felt deprived because if I wanted to eat something fattening, I could check to see how much exercise I needed to do to balance it.

    kayb - LOVE IT!!! That is exactly what I have to learn. Now that we're off the Fasting Phase and the Transition Phase of our Optifast program, our "Lifestyle" phase (maintenance) is calorie-based. I'm still getting the hang of it.

    The first time I heard that a there are 3,500 calories in a pound, I just about fell off my chair! I asked if that meant I had to cut back 350 calories a day for ten days just to lose a pound, and the instructor said yes, or just exercise more each day. DUH!!!! That never occurred to me...Undecided

    So now I'm going to post charts everywhere telling me how much or how little exercise I can do to burn more calories.

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited December 2012

    blessings, what a wonderful story!  I will try to use it as an inspiration.  

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited December 2012

    TimbuktuLaughing

    kayb - I'm not feeling so dedicated tonight, as I had both ice cream AND popcorn this afternoon!!! But I only had a bowl of veggie soup for dinner, so maybe that will offset it...Undecided I think I'm just pushing the envelope to see how much I can get away with before the pounds start creeping back up again. 

    As for programs, I'm totally stoked by the "Lose It" program on my iPhone. Instead of typing in all my foods, all I have to do is scan the bar code with my phone and it automatically imports all the nutritional data. How cool is that!!! 

    Now all I need to do is get my butt out there and "Move it, move it...."

  • deltaskye
    deltaskye Member Posts: 14
    edited January 2013

    For those who deal with compulsive overeating/binging, my therapist recommended a great self-help book that I bought via Amazon. It's called "The Binge Eating & Compulsive Overeating Workbook" by Carolyn Coker Ross MD.

    I'm not normally a fan of self-help books -- there are so many and many of them churn out duplicative or unhelpful stuff -- but this one is focused and meaningful. It has been helpful to me in curbing my tendency to eat during stress.

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