In shock

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  • Traii
    Traii Member Posts: 1,138
    edited December 2012

    Well Benny, chemo #2 = check with a BIG TICK Laughing

    Please like Edi said, don't go waiting or looking out for those SE's ..... go with the flow, enjoy each day, take a nap when your body tells you to and make sure you keep drinking that water......that will flush away that red pee.!!

    Glad you got the shot covered also :) extra bonus for you so when this is all done you can go out and buy another Diamond Wink

    Websister truely is amazing and I'm Santa will be giving her something extra special this Christmas .

    How is your mum Websister?

    Dakota, we'll be in your pocket , half way there is another mark in our calender, exciting stuff....almost there :)

    Edi, so  glad you are not experiencing bad SE's I don't know how you can give yourself those shots, I just can't do it so I go down to my local GP ! (guess I am a sooky la la after all) lol

    Came into work this morning to find a bottle of wine and a gorgeous hamper from the guys.....thank goodness I brought a 'thank you' pressie for my boss and manager....parker pen engraved with their name on it and a bottle of sav blanc each!!

    We are off to order our yummy pizza for lunch :)

    Hugs to all, enjoy your day. My last couple more hours at work and then 3 weeks Christmas Holidays.

    Traii xx

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  • websister
    websister Member Posts: 1,092
    edited December 2012

    I am so happy to hear that the Neulasta is all sorted out for you, Benny (and I'm not blushing, that's another hot flash ;). I was very happy to be there and I'm expecting this time to be much better for you. Use the Claritin with the Neulasta, it can't hurt and it very well may help. What Benny didn't post was that she bought me a lovely 'chemo cap' which I am wearing as I type, it has cats and teapots on it and the colors are perfect. Thank you, Benny :)



    Edi - very happy to hear that you continue to feel well



    Traii - sorry to hear about the peeling feet, glad you aren't feeling the pain that you had last time though, hope the tiredness passes soon



    Dakota - there with you tomorrow for the final AC



    Everyone - you are all wonderful sisters



    Take care

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  • bearcub
    bearcub Member Posts: 485
    edited December 2012

    Benny good to hear things went well and Websister sounds like a gem, you are so lucky to have her in Calgary. I hope things work out with the AC. I had fatigue from about day 5 to 9, and some indigestion around week 2.

    I hope everyone has a great week!

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  • carlads
    carlads Member Posts: 241
    edited December 2012

    Hi Everyone,

    Looks like everyone is doing well!  I am still reeling from all the new information and changes trying to do research but so many different opinions. I really like my Oncologist so I don't think I need a second opinion.  I went from Triple Negative with dose dense treatments of A/C then Taxotere to, not really considered TN because I do have some hormone recepts not a lot but enough to make a difference in treatment, which is only 4 cycles of T/C.  I have gone over my pathology report with a fine tooth comb, I just want to make sure I get enough to knock any stray cells out. 

    I have to go to a Chemo class next Weds, my Oncologist has it in his office,  I feel like I know most of it from all of you. 

    Love to you all,

    Carla

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  • Lesleyanne67
    Lesleyanne67 Member Posts: 225
    edited December 2012

    For whatvit is worth you might get lucky. I only had Neulasta never had Neupogen and took it the day after around 4 pm with a pain pill prescribed and I never had pain. I know people who had pain with Neupogen. Fingers and toes crossed this round goes better!!!

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  • Traii
    Traii Member Posts: 1,138
    edited December 2012

    carlads good to hear from you. Happy that you like your oncologist...makes things easier. Just jot down as many questions as you have for your chemo class, thats where you'll get lots of knowledge too but yes you are right, there is nothing like hearing it from everyone on these boards that KNOW what side effects are about. Yes we all have different SEs but what the nurses have on paper, we have it happening in different ways .!

    So have they given you a start date yet ?

    Websister, how cute, cats and teapots on your head.....Benny will be blushing now :)

    Bearcub, hope you are doing well along with Edi (no SE's mummy!!) Dakota, how you going??

    Bevlee, are you out there in hot hot Perth?? where are you? how are you feeling ?

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  • Bevlee
    Bevlee Member Posts: 28
    edited December 2012

    Hello Ladies!!!

    I'm back!  Day 7.  All has gone fairly well considering..  well, SE's I'm talkin about.. everythinhg else seems to have gone pear shaped!  My internet connection has been out due to a large storm, so I have been missing you guys and my facebook addiction!  My beautiful daughter who has been here daily to make sure I'm OK has come down with a nasty cold..  SHIT! so I'm quarantined -  she is coming over tonight with a mask on.. LOL!   My ceiling fan broke.. (Perth Summer.. EEK!)  Car air con is broke..  and well, I could go on - but I won't.  Things are looking up.. I'm recovering well from first treatment and should enjoy my Christmas Dinner cooked by my new son in law..  I am feeling very lucky with all of the love and support I have around me.. and there will be a whole gang of bald people here when my hair falls out.. LOL!  Will post a pic.  Well, enough about me, let's talk about ME!!!   Hope you all are feeling OK and that Christmas is unfeasabley AWESOME!!  Big Loves Sisters XXX  Bevlee 

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  • scouser47
    scouser47 Member Posts: 963
    edited December 2012

    Hi you wonderful ,wonderful sisters.

    You all truly make each day a treat. I can't get downstairs fast enough eac h morning to make a mug of tea and switch on this machine.

    Traii, Cyber Mummy is tough as old boots lol I inject my insulin everyday so Neu shot doddle just longer needle EEK !

    Wine and hamper, how lovely. Your thank you present too really thoughtful. Hope Pizza gorgeous. Soon lots of fun with DS x

    Websister, Chemo cap sounds fabulous, I still feel fine  :-) mouth like bottom of a birdcage yuk but lots and lots of fluids sorts that all out.How is your Mum ? x

    Bearcub, Hope all ok with you ? x

    Carla, proud of you, getting all information in place, your Onc sounds good and you do need a connection with them. Mine looks like an un made bed with a beard ! All I needed to know was that he is the best and all the others go to him for advice, sorted. Traii is right take a notebook and pen, never go to hospital without mine.Let us know how chemo classes go. x

    Lesley, didn't realise Neu shot could cause any pain perhaps not knowing made it pain free ? Hope you are well x

    Bevlee, was getting bit worried that my fellow scouser had a problem. Oh goodness what a raft of them you had !! Hope everything now fixed. Glad your SE's not too awful and Xmas dinner good to go. Your daughter sounds like an angel too. Waiting for the photo lol x

    Benny, please, please be ok today. As Traii says lots and lots of fluids it really does flush it through. Soon be able to see Diamond ( subject to weather )Nap today, recharge those batteries then get back to being you. All SE's are manageable if you need help ask for it, that is what your support team are there for x

    Laters Edi x

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  • scouser47
    scouser47 Member Posts: 963
    edited December 2012

    Dakota, on your shoulder, stock of funny stories at the ready. Hope all goes well x

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  • bennymuffins
    bennymuffins Member Posts: 412
    edited December 2012

    Good morning, Warrior sister team! So far so good with me at this point. I have no nausea at all, just a little tired. I do have this weird swelling at the back of my knees and my legs feel puffy and swollen (?) and my affected breast is red and inflamed, but onc saw it day before yesterday and said no worries. Seeing as he's an oncologist and I'm a social worker, his opinion trumps mine Laughing

    Luvmygoats, Nellie is so sweet. I'm sorry she's gone but happy to know she had a wonderful life with you. Many animals are not so lucky. One of the reasons why I board Diamond where I do is because the owner has a heart of gold and I know he loves his animals. He's rescued numerous fuzzy ones from uncertain fates. Just last year he took in a llama (Louie), two sheep (Dodge [he's a ram, Dodge ram, get it?], his DW Eunice [Ewe nice, get it?] Nancy, Stella and two sheep Bandit and Biscuit. This is in addition to the 32 horses he oversees. Numerous folks have abandoned their horses there and he keeps them rather than dispose of them, which he is legally entitled to do if people don't pay their board. Anyway, how did I get on this topic? Oh yeah, I believe there's a special place in heaven for people who are kind to animals.

    Dakota, congrats on the half way mark! It seems like it went really fast, no? Hope you're doing okay today (hugs)

    Edi, there is no way on this planet I could ever give myself a needle. God help me if I develop diabetes cuz I'd be whooped! I have a friend who is an RN and she's going to come over tonight and give me the shot. I'm thrilled to hear you had no pain with it! 

    Carla, good to hear from you. I know it's hard sometimes to pop in and provide updates but we all worry about each other and wonder when we don't hear from each other. I don't always post but do read every day. Depends on what's going on in my life and my energy level.

    Lesleyanne, I had significant pain with the Neupogen. It was like nothing I'd ever felt before. Intense spasms in my shoulder blades, spine, and hips. Lasted for about 3 hours I think then subsided. I had three shots in the hospital. The first one felt nothing, the second and third were intense. The third one required codeine to manage pain. And that was just the Neupogen, so that's why I'm worried about the Neulasta. The oncologist said he's never seen anyone with such a sensitive system as mine. It's made this cancer/chemo journey pretty tough for me.

    Bevlee, I'm trying really really hard to drum up sympathy for you with that heat, but it's not coming haha! I'm sitting here wearing big fluffy slippers, a heavy terrycloth housecoat and flannel jammies, and freezing my *** off! The sky is grey and it's cold outside. Wanna trade??

    Okay, better head off to the hospital to pick up that Neulasta shot before my energy gets worse. I just want to go back to bed but have a few things to do first. I am tired and weak, must admit.

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited December 2012

    Benny - You sound so great this morning. So you're a social worker, I'm an RN but gently retired (get it, not yet retirement age).  LOVED my SWs in my hospice job. They were awesome.

    Read that Neulasta is subcutaneous (SQ in med. terms) - that means shallow injection. The injection itself should not be that painful and probably would be much like insulin injection. Website says 27 gauge needle prefilled that's really small. Hoping SE from it are better than Neupogen were for you.

    I love my goats. Was out this morning warming water for them and it was only in the lower 30s. They are just for fun certainly not for making a profit. All I do is spend money on them. I have 17 I think (I try not to count too closely) but do have couple that need to move on. I may try milking one in the spring. She has a great udder but a crappy personality, not a people goat and she was born here. Lots of goats come from big herds where they get little people interaction but not here.

    Love and lotsa (((HUGS)))

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  • Dakota212
    Dakota212 Member Posts: 1,153
    edited December 2012

    Benny !!!!

    U sound soooo great!!! I love it!!!!!



    Edi- hope u slept well



    Web sister, Traii -

    Thanks A/C down taxol next bring it on!!

    Bevlee, carlads, Lesley good to hear from u!!!

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  • bennymuffins
    bennymuffins Member Posts: 412
    edited December 2012

    Traii, is it December 21 over there yet? I'm just wondering if you're okay. Was the Mayan calendar right? Is it the end of the world yet? ;-) I'm wondering if I should set my alarm. I have a few things to do before the world ends.

    Luvmygoats, the RNs and the SW at my little hospital have such a strong kinship. I used to always joke that the RNs were so good they were almost like SWs! LOL SWs and RNs are a good combo, I think. Are goats like horses? I'm guessing so, each with their own personality and quirks.

    It's the evening of day 2 and my legs feel a bit better but my stomach is a bit crampy. I'm mildly fatigued but I did quite a bit today too so can't complain. Last time I plummeted on day 3 so I am wary of what tomorrow brings. I'm a bit worried about Websister as I've sent her an email (3 times) and it's bounced back. Either her email is full or she's blocked me! Wink

    Okay, off to fold laundry ~sigh~ Should a warrior have to fold her own laundry? Seems wrong to me.

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  • Traii
    Traii Member Posts: 1,138
    edited December 2012

    Benny the tone in your messages sound wonderful :)

    It is the 21st dec...fold that laundrey cos we're all still here...lol though they not sure what time...if its 2121pm or 2100pm lol..... well im going shopping anyway!!!

    The neulasta shots not all that bad...just take panadol or whatever u have if u start to feel pain. I did and it was minimal if any!

    Im so sorry to hear you are all rugged up while i sit here with my air con on after a gorgeous picnic in the park with my son and my girlfriend and her daughters exchanging chrissie gifts!!! Lol

    I love this time if year regardless what im going through.....we will have fun!

    Back ti play with ds and his new Fireman Sam firestation!

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  • websister
    websister Member Posts: 1,092
    edited December 2012

    Dakota - good to hear that A/C is done for you.



    Benny - didn't block you - honest ;). Email isn't full, not sure what the problem might be but I emailed you so maybe if you copy/paste what you wrote into a reply to mine we can get back on track.



    Edi - Mom was moved to the rehab facility this afternoon, one more step on the road to recovery.



    Better get to bed, big day tomorrow

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  • bennymuffins
    bennymuffins Member Posts: 412
    edited December 2012

    Websister, I got your email but of course it bounced back when I replied. I have now sent 5 messages, all bounced back. This is what it says:

    The following message to <(removed)> was undeliverable.
    The reason for the problem:
    5.1.0 - Unknown address error 550-'5.7.0 Blocked - see https://support.proofpoint.com/dnsbl-lookup.cgi?ip=64.59.134.9: (removed)

    I removed your email address, as you can see. Not sure what the problem is? Will try again tomorrow morning. Did mom make it to the rehab place you were hoping for?

    Traii, I'm really glad to hear the world didn't end. Looks like my procrastination has paid off again! Laughing

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  • bennymuffins
    bennymuffins Member Posts: 412
    edited December 2012

    Looks like it's interpreting my emails as spam. I tried changing the title in the subject line and re-sending, but it bounced back. Not sure what else to do?

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  • scouser47
    scouser47 Member Posts: 963
    edited December 2012

    Morning sisters mug of tea in hand, smiling with delight at your posts
    BENNY ! Wow such a difference well done,looks as if they may have cracked it this time
    stay positive ! how was neu shot ? I inject with gay abandon after doing it for fifteen years I assure you that you would do it if your life depended on it.
    netbook stuck again !! flippin fed up looking at a new laptop should we survive past 11.12 am this morning>
    fab pic on face book of two mayan warriors one with goblet in hand asking second warrior who is carving out calendar would he like a drink of tequila ?I am doing this he says but ok as i am sure the world wont end if I dont finish it lol Hope it is right !!Keep well and NO Warriors should not have to fold their own laundry. Out to bash mine on a few rocks in the stream lol x

    Websister, glad things moving on for your Mum is she walking yet ? hope you have a wonderful peaceful sleep.x

    Traii, I need some sunshine !! how you feeling today ? have the little trotters improved any.I still feel ok but keep waiting for a big hand to come from the sky and go SPLAT fooled ya. If not a ball of fire later this morning will paddle out and finish few bits for Xmas.

    Weather here is coldish but soooo wet, flood warnings all over and getting worse by the minute. There are going to be some horrendous xmas memories for people in these areas.x

    Dakota, how you doing ? another one down isn't it great.

    Have you got xmas done and dusted.? I wasn't going to get little ones anything but their big pressie and then found some fantastic books, and sweet ballet shoe type slippers yesterday so that went out the window. lolx

    Carla,Bevlee,Lesley, Luvmygoats, Bearcub and any one else reading this hope you are all ok. X

    Laters ( mayan calendar permitting ) edi x

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  • Traii
    Traii Member Posts: 1,138
    edited December 2012

    Edi...its now the 22nd Dec...well just got back from late night shopping and all is ok...mayen calender ran out of paper I think.....lol

    So glad no major SEs for you....its going to stay that way ;)

    My trotters are ok...peeling but ok. Its my horrible hands that look as though Ive burnt myself in the same spot on each side....oh well " all part of IT"!!



    Sending u all sunshine my sisters and nil SEs as we get closer to Santa coming to town!!

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  • websister
    websister Member Posts: 1,092
    edited December 2012

    Benny - you can use my AHS email until I figure out what is going on, I am getting other emails through.



    Edi - mom is walking very slowly with a walker with two people assisting, it will take some time. The little ones will enjoy the extra spoiling with the books and ballet slippers :)



    Traii - hope your hands feel better quickly



    Dakota - thinking of you, hope you had a good night

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  • Dakota212
    Dakota212 Member Posts: 1,153
    edited December 2012

    Traii-

    Glad life as we know it still exists over there ... Lol

    Edi-

    Ur posts make my day. Glad ur doing. Spoil those kiddies while u can is my motto

    Benny-

    Can't tell u how happy I am for u!!!

    The cranky my be constipation sorry if its TMI, that's what they told me anyway. Good luck day number 3 keep us posted!

    Web sister -

    Goid luck with mom. I am doing pretty good. Physically I couldn't ask for more!!

    Bear cub, carlads, Becker, Lesley hope all ur S/E's are minimal !!!!

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  • scouser47
    scouser47 Member Posts: 963
    edited December 2012

    Hi Sisters, Had a lazy day, had shower, painted my face ( it needs it ) put on nice sweater dress with cosy tights ( fluffy lining yay ) bit of jewelry and sat down to await the big boom.

    Got to 11.11 am and not even a puff !! Wish these morons who fortell all this would just do one !! i.e. chuck themselves off a mountain or something lol.Now will have to do the shopping I put off just in case ha ha.

    Seriously sisters haven't we got enough on our plates without doom and gloom ? It seems there were little kids crying in the school playgrounds thinking they would never see their Mummy's and Daddy's again, sometimes TV radio and the internet can do more harm than good.

    Anyway some silly bxxxxxs are still waiting for alien space ships to come and rescue them ! GET A LIFE. Rant over :-))

    Then I climbed into loft and found some extra xmas decs and the Nativity Set, so baby cheeses will soon be set in place by smallest GD. Best time of the year.

    Benny, Hope you are still SE free.Cramps could be constipation as Dakota says, I eat an orange or tangerine every night and that cured it. Pain WAS really nasty.

    Traii,Have you finished all shopping ? Hope your poor hands improve soon. bet DS is besides himself with excitment.

    Websister, lovely news about your Mum, she will be mobile again before you know it.

    Dakota, Glad you ok, you are right about little ones making the most of them before they stop believing in Santa. Got Santa suit out of loft for DH, he moans like hell but loves to see their little faces when he stomps in with their presents.

    Bevlee, have things improved re your disasters ? Hope SE's minimal.

    Carla, bearcub, Lesley, Joanne, luvmygoats ( Hugs to you all )

    Must go and rummage in the freezer, DH will need feeding soon, he has been driving mad shoppers around all day and isn't a happy bunny.

    Edi X

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  • bennymuffins
    bennymuffins Member Posts: 412
    edited December 2012

    Oh dear, who would tell kids that the world is going to end?? Oh my what a bunch of no-minds! I am sorry I brought it up but my comments were meant tongue-in-cheek as I think the whole thing is hilarious! LOL It's been nothing but entertainment for me. Poor kids tho'.

    Day 3 started out okay, a bit nauseous but manageable. I can feel the intestines starting to burn tho' and I hate that. I know what's coming: burning gut, inflamed lungs, no windpower. My RN friend is coming today at 1300 hours to give me the shot. Got codeine here in preparation. I noticed the onc ordered 4 refills on the Neulasta. Do we get it after the Taxotere too? I wonder if he's extending my A/C to 4 more sessions in light of the fact he reduced me from FEC to A/C? Got a call from the radiation department today as they've already scheduled me for radiation. Things are ticking along.

    Edi, you sound lovely in your sweater dress and tights. I'm a boring dresser, jeans every day unless I'm forced into something else! Love my Wrangler Q-baby Tuff Buck jeans and a simple T-shirt. So why do I have so much laundry?? I don't know.

    Okay, back to stripping the sheets off the bed for more laundry :/

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited December 2012

    Benny - Onco might have just OK'd refills "just in case" so won't have to do it if you need it again.  Thinking positively!!

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  • scouser47
    scouser47 Member Posts: 963
    edited December 2012

    Benny, The end of the world was funny as you said, I found it so.they  My ED said her friends eight year old was sobbing all night no matter what her Mum said. Thank goodness it is all over until the next one lol.

    Hope nausea has faded some, good luck with Neu shot, sure it will be painfree.

    I always wear sweaters and slacks but my youngest discovered these thick fleece lined tights, OMG what comfort and tuck into my boots without trailing in the wet. I look a bugger in jeans have lots of pairs from the daughters wish I looked good in them.

    Hope things improve tomorrow. Have you seen plush toy, or is it too cold to go out ? Still expecting to see Noah walking about collecting animals here. Suppose better than thick snow as England grinds to a halt when that happens.

    Bed stripping tomorrow here, my least favourite job :-(.

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  • bennymuffins
    bennymuffins Member Posts: 412
    edited December 2012

    Luvmygoats, yes, you are so right! I just had the Neulasta shot and my mind is in anticipation of what's to follow. I read the insert on the drug box and it said spleen rupture, respiratory distress, etc are rare side effects. Well, as soon as I read that, guess who felt pain in her left upper abdomen and shortness of breath?? It's amazing what the mind can do and so it makes sense to put it to good use, not bad. Now if I could just master that skill I'd be homefree!

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  • bennymuffins
    bennymuffins Member Posts: 412
    edited December 2012

    Edi, it's freezing here today. It's -18 C with a windchill of -29 in the city here. Of course out on the farm it's usually 5 degrees colder still because there's no windbreak. I'm glad my horse has a shelter, even tho' she's not using it today. She's tougher than me. I like the idea of thick fleece-lined tights. I could put them on under my jeans on cold days. That would be a step up in the fashion for me. I will search for them.

    The bed stripping is moving really slowly. I've stripped, now I've got the clean mattress pad on and I have chosen which duvet I want to use. But now I think it's time for some sweet tea so bed will have to wait. I might have a bite to eat too.... maybe some baby cheeses!!! Laughing

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  • scouser47
    scouser47 Member Posts: 963
    edited December 2012

    Benny, you sound wonderful, really happy and positive in a few days you will be nice and normal when all the chemicals washed out. Sweet tea and cheeses, love it lol. I am drinking sooo much and sure it is why I feel so good. Only problem is needing the loo every few hours through the night. Try and stay in a sleep walking type of mode .so don't wake up too much.

    Temperature where you are sounds like a nightmare ! Those tights are from a shop called Primark here, not sure if they have branches where you are ? Diamond could do with some four legged ones brrr.

    Eyes closing even though it is two hours before my normal bedtime. Electric blanket on fluffy pj's at the ready think I will go and hibernate for a while.

    Catch you all in the morning. Night night.

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  • Dakota212
    Dakota212 Member Posts: 1,153
    edited December 2012

    Well all it's my birthday so glad the world didn't end today!!!

    So glad to out year 40 behind me and can't waith for a better age 41 and 2013. Being it on world !!!😍😍😍

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  • websister
    websister Member Posts: 1,092
    edited December 2012

    Happy Birthday, Dakota!



    Edi - loved the 'baby cheeses' :)



    Traii - hope all is well with you today



    Benny - re: Neulaasta x 4, I started my prescription just after chemo 3, prescription had 3 refills - seems standard for here and yes, I had Neulasta with Taxotere but he may plan on AC for you, all can drop the white blood cell count. I read the insert also, good to keep the mind occupied by other things.



    I went to our work Christmas celebration today. It started at work at 0900, we went to a restaurant for lunch about 1100 and ended with 'secret Santa' gifts. Very nice but I am definitely tired this afternoon. Half to get in gear as I am having a Christmas brunch here tomorrow morning.



    Take care everyone

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