Feeling alone...my husband has disconnected.

Options
1356

Comments

  • milkyway2
    milkyway2 Member Posts: 259
    edited December 2012

    Dear slikny and psu222 its time to focus on us. Dont let other crapy things discourage us. We have fights bfore last night of chemo tom is my 2nd chemo sometimes we have to fights or deal for so many cruel things n our life its all unexpected. Suppportive husband is rwal blessing from god. I cry when i read thread about husband is ok with one boob because the love n sincerity can not be compared with just breast tissue. Ok our body betrayed us its not our fault nobody have right to remind us everyday.we are women should proud to see our kids growing









    we dont need to show any certificate that



    shows our feminity At. Least we act like



    human we do respect others feeling. Atleast we never cross our

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited December 2012

    That comment, that you really want it to come back, was just horrific!  I don't blame you for being angry.

    My husband was my hero and my rock throughout treatment.  I fell in love with him all over again...it had been awhile.  But once treatment was over...I found out that he'd been lying to me about some things, manipulating me as always.  I really thought that he'd grown and realized that this is it, that we're a team, we're old, we have to pull together, for each other.  But no, he had another agenda all of the time and something in me has broken beyond repair.  It was a dream come true, finally having a "partner".  Now I feel I'm on my own for the duration.  If there is no honesty and trust in a marriage there really is no marriage.   Sorry to be so down but it's been a rough few months.  

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited December 2012

    Just wondering....   has anyone else had their grown children abandon them in their illness?

    I was so close to my son, he'd call 4 or 5 times a week just to chat.  I babysat at least 2 days a week for his kids.  When I got sick he cut himself off from me entirely.  I havent' spoken to him in over a year.  I've emailed him.  My daughter called and begged him to talk to me as has my husband.  No luck.  I've told him I wanted to discuss what happened and he refuses.  Has anyone else experienced anything like this?  It's as though he's turned the whole thing around and blames me for it.

  • PSU222
    PSU222 Member Posts: 127
    edited December 2012

    My children are older and my daughter is much more understanding than my son.  My son tries very hard but I do believe he is more fearful of the cancer and this might be his way of dealing with all of this crap.  When he calls it's always "hey whats up"?....  He hates to hear anything but "I am having a great day".  Which is what he wants to hear...  I really want to say " I am having a horrible day and I miss you father terribly" and I cry everday.  Men are so different.  I am so lonely and scared but I guess I will have to get used to this.  Counseling helps, but thats only 1 hour a week.........

  • Fearlessfoot
    Fearlessfoot Member Posts: 165
    edited December 2012

    My heart just goes out to everyone on this topic.  I will be having my 25th wedding anniversary in 2013.  I have both highly positive AND some very negative feelings about my DH in regards to how he has reacted with my BC. It feels supportive to be here with you, to read what you have written, to contemplate my own experiences.  My one lesson I have learned is that I have to continue to be my most authentic self, keep my promises to myself and my DH, live in the present moment and enjoy as much as possible. 

    Sending healing thoughts out to all of you, sending sparks of hope (you never know who might benefit).  A suggestion I wish to take as well:  Try practicing mindful self-compassion.

  • dlw58
    dlw58 Member Posts: 1
    edited December 2012

    Have a question for you good ladies: Arimidex has killed sex drive & vaginal dryness is freaking unbelievable!!! During all of my information overload from my onc, I slightly remember him saying something about being careful about what lubricant to use.....one with no hormones in it? I guess I could call him, but, wanted a female perspective. Any advice?

  • LeeA
    LeeA Member Posts: 1,660
    edited December 2012

    Fearlessfoot: 

    Thanks for this reminder: 

    "live in the present moment and enjoy as much as possible." 

    It's one I needed to read this morning (and should be reading every single day). 

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2012

    dlw58, this article from the main Breastcancer.org site talks about some of the vaginal estrogen preparations that doctors sometimes recommend, although it sounds as though your doctor doesn't want you to use them.

    There's more information about Solutions for Libido Loss: Lubricants, including name brands and application suggestions. Also, lots more on Loss of Libido at this link.

  • Robin_Brooke
    Robin_Brooke Member Posts: 30
    edited December 2012

    I have to say the topic really caught me. We've been together for about 10 years but the relationship was winding down just before my dx. There are many days when I wish it would have ended prior to my dx because I think I would have been better off emotionally without him. He was very supportive early on and through the first surgery, after that the support has lessened pretty steadily. There have been plenty of fights and I fully recognize this has changed me and I'm full of emotion, but he acts like I should be fine/the same/over it even though I just finished chemo on 12.19.

    Throughout the whole process I've tried to keep life as normal as possible for my family which in retrospect I'm not sure is the wisest course. I've stayed so strong they all often forget I have cancer, I have pain/discomfort, I'm scared (still), and really that things aren't normal-just look at this bald head and you can tell that. I still have radiation, physical therapy, and reconstruction to go through in 2013. I think no one can understand this unless they have been through it but I know I would support someone differently than he has me. He has in fact said he's over this whole cancer thing but he doesn't want to be that guy who leaves his gf who has cancer...how do you respond to that and still try and make a go of the relationship? I understand people get tired of hearing about cancer, I get tired of talking about it and most times when people ask just tell them I'm fine, but man it's painful to be so lonely in a relationship.

  • emsky
    emsky Member Posts: 5
    edited December 2012

    Dlw58 If your cancer is hormone positive you must stay away from anything that has estrogen in it. Products like Replens and Astroglide help. I've seen other discussions about this that mention something called Scream Cream that other women's doctors tell them about although I've never asked for it. You can google it.

    My husband and I don't have sex anymore. He won't go anywhere near me. He has been completely unsupportive and selfish throughout. I am stage 4 with boys 12 and 13. I feel totally trapped because divorce will mean I have less time with my kids and I can't bear that. I'm also afraid that the additional stress with make my health worse. it's almost 3am and I can't sleep. glad this site is here for me to vent.

    Yes, Robin it is painful to be lonely. The thing is that no one gets what we go through. I try all the time to see the good around me but those moments are too few. New Year's Eve is just days away and I know that when the clocks strikes 12 my husband will be no where near me. But by the grace of G-d I'm still here so I'll focus on that and the prospect that I'll be a mom to my kids a while longer. that they will remember that I still exist. Happy New Year and G-d bless your all!

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited December 2012

    emsky...I'm so sorry you have to go through this alone.  I don't think anyone truly realizes how important support is.

    Now that I know this, I have made a promise to myself that no matter what I will be there for other people.  I think that's the only way we can fix it for ourselves, make it right for others.  And it truly makes me so happy, when I can help someone else.

    You still have those kids so you know what your life is about.  Every day of your life has purpose.  Every day is a gift.

    My husband and I spend a lot of time avoiding each other.  It's better than hurting each other.

    I saw the new movie of Les Miserables today.  I sobbed from the first frame to the last.  I had to stifle my sobs so as not to disturb anyone else.  I was totally overwhelmed.  There is such wisdom in that story.  i bought the book.

    To love another person is to see the face of God.  That sums it up and I think it sums up life.

  • emsky
    emsky Member Posts: 5
    edited December 2012

    Timbuktu. You are right that doing for others and having that connection with another human being with just the most simple kind act is really what it is all about.



    thank you for your kindness.

  • Robin_Brooke
    Robin_Brooke Member Posts: 30
    edited December 2012

    Emsky I'm sorry it's such a challenge and so painful for you too. I agree we have to keep finding the good and the positive in other relationships around us. It's the only way to get through and go on. Hugs

  • Layla2525
    Layla2525 Member Posts: 827
    edited December 2012

    So whose running off to the Biltmore,Cancun? Certainly not me. I have been dating this man for 12 yrs and was engaged when this happened. He was fine with the TE but after the exchange,he kind of shut down. Now he has taken to drinking a lot and criticizing me. Especially my driving, everywhere we go,I have to drive because he has been drinking!

    He told me that he was going to his bachelor party tonight and gave the name of the guy giving it. When I mentioned it to the guy,he denied it. He said he would be out of town for New Years starting Fri! So now I wonder if my fiance is looking for a replacement for me. He hasnt really been interested in sex since the exchange even tho he was spending a lot of time with me until New Years came up. I am thnkg to spend it by myself and not answer the phone. I am so disgusted with all of it. He has always cheated off and on anyway. I dont think I will marry him. I am thinkg to get someone else but what do you do about the yourself given the aftermath. I am having capsular contracture so the dr has not operated to put on the nipples. I bought some fake ones but couldnt get them to stick, self adhesive my $%$^!!!

  • slinky
    slinky Member Posts: 397
    edited January 2013

    Sorry to see so many of us in the same boat.

    It takes so much effort to avoid each other.  Its like a second job!

    Since my first post, I have grown stronger and more self assured.  The relationship I was in was on a downward spiral for so long, it seemed normal.  Since I have had a chance to step back and look at the relationship, I now realize how unhealthy it has been.  For over ten years! Thats how long my DH has been sleeping in his own room.  I guess I was in extreme denial.  This is not normal.  My DH has emotional problems and anger issues - he has made his issues my problem.  He used the silent treatment as his weapon of choice.  Not just for weeks, but for years!

    I have been thinking alot about dating.  How a new person will react to my reconstruction and all my scars.  For this reason, I don't want to start anything with anybody.  Of course, I don't feel ready, but I do want companionship.  I have been cut off from any intimacy for so long by a very resentful, angry man who used the silent treatment to get back at me for what? Trying to love him? He is not worthy of my love or my body.  I am sure there are many men out there who would love to be with me and share the simple things in life.

    I told my DH that maybe he has to experience a life threatening disease in order to appreciate what he has.  He needs to be humbled by this type of experience.  Then maybe he won't take everything for granted!

  • ang7894
    ang7894 Member Posts: 540
    edited January 2013

    Slinky, your last paragraph is totally what I said to my husband of 20 years.. he has never had an illness I feel no one knows what we actually go through. And he can sit and tell me this and that about cancer like the last year was no big deal we got through it . WE did?  thought that was me going through all that poison in the body. I am NEVER to talk about my cancer, or my treatments, or cry etc. I am to act like this never happened to me.  If I do he gets angry his mood changes immediately so when you think you can turn to your spouse you can't. The other day we where not even talking about me or my  cancer,  BUT some one Else's has returned and HE brings it up then HE gets mad WHAT THE HECK WHAT DID I DO?  He brings it up so even IF it's about someone else he still don't want to talk about it. I have felt so alone for some time now. Ladies I know what your going through My heart goes out to all of you.

  • smile_all_the_way
    smile_all_the_way Member Posts: 7
    edited January 2013

    Hello ladies, I thought I would add about my DH, you may actually believe you have a saint afterwards Wink. I have come to the conclusion that some men are just selfish and insular (at least mine is), although he says he loves me to bits.

    When I had my surgery he took the day off work to 'be with me', but then went home and worked. Even when the consultant called him to say I was out of surgery he decided to 'let me rest' while he finished working. He bought the kids up late that evening (after the kids bedtime) and spent the time there being really noisy and winding my 9 year old up to the point he was screeching. 

    My sister has accompanied me on all chemo/treatment as DH does not 'do needles' and throughout the treatment I have still done practically all of the cooking/washing/child care etc as he shouts and gets angry so quickly (personally I believe he is stressed and has been for years but he refuses to look after himself). On one chemo day I asked him to put the rubbish out as I had to leave and when I arrived home it wasn't done. When I questioned him on it he snapped that he had been too busy working....my sisters face was a picture Laughing

    At the weekend after chemo I am generally very tired and after the 3rd lot I decided it is best just to stay in bed for a couple of days. On the Saturday DH did not even check if I was still alive or needed anything (drink etc) but did shout at the kids to be quiet, and on the Sunday ended up shouting at my son because he couldn't find his rugby kit - so I ended up getting up to sort it.

    Add to this the fact I get to tidy the house, pack holiday bags, load up cars etc I am really not sure what DH is bringing to this party.

    I know my husband loves me to bits but it seems I am looking after him. Almost laughable was the fact he had a bug over Xmas (must be the Norovirus!) and I was running round after him as he was too ill to get up! Boy aren't we lucky that we don't have any side effects from chemo - sickness, aches, mouth ulcers, thrush...need I go on Cool

    Obviously now is not a good time to do anything rash (as still have more chemo/radiotherapy etc) - but I will say BC has opened up a whole new world. I think DH would be horrified to think I thought he wasn't pulling his weight but my life is just as it always was, with hospital appointments added into my calendar. DH is actually taking my son to rugby/sports now at weekends as I just cannot do it, and doing some food shopping but not sure what I really expected from a 'carer' - maybe it is me and I am just too strong minded and stubborn, but I did try leaving the washing for 2 days in the machines and no magic fairies came..lol

    Question is - am I expecting too much or should I have expected more?

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2013

    So sorry to hear these stories, as cancer is tough enough! This is very obvious, but therapy really can help (couples/individual), in some situations - though many of you may have already been down that road. We are thinking of you, in any case!!!!! 

    Your Mods

  • slinky
    slinky Member Posts: 397
    edited January 2013

    It has been a little over a month since I filed for legal divorce.  We still live in the same house, but we are in separate areas of the house.

    There is no reconciliation for us.  It is over.  He sees his therapist (same one he has been seeing for eight years).  I have recently started seeing a therapist (yet again).  My self esteem has soared since all these men are coming out of the woodwork! I am very interested in companionship, but I have no interest in these guys who are surfacing.  I guess I am not interested in getting involved with anyone right now.

    I am totally engaged...to me! Everything is me, me and me! Of course, my kids are first...then it is me,me,me! Very liberating feeling! Exhilarating to know I am not saddled down by a storm cloud anymore (DH).

    Just wanted everyone to know that if divorce is inevitable, it is not bad at all!

  • milkyway2
    milkyway2 Member Posts: 259
    edited January 2013

    Dear smile on the way

    Its sad but we are not the lucky ones with supportive husband

    We have to face cancer and unpleasant annoying behaviours. Eat well and take care of yourself because you are imp to your kids and your parents

    If somebody wants to live in their own world you cant help it. Me n my husband sleeping in different rooms he is stressed he is in pain more then me strange. He needs to be pampered not me. in human is the perfect word dont worry you are not alone

  • Robin_Brooke
    Robin_Brooke Member Posts: 30
    edited January 2013

    I'm pretty sure my DH would say he has been supportive and there for me but I sure couldn't agree. I'm so sad to see many of us in this boat even knowing many women have had the opposite experience.

    As soon as I finished chemo last month I was expected to be "normal" again with no pain, no peripheral swelling, no other side effects, and somehow I'm to have a raging sex drive. Laughable. We have no mental or emotional closeness and haven't for months and months, and he thinks I'm interested in sex when I resent the heck out of him? Blah.

    In only complaining and hardly ever picking up the slack around the house or in paying bills, I'm completely disengaged and uninterested. I did everything the same as before BC with minimal help from him and a lot of help from friends. I hate to be such a whiner, but you'd think sometime we could be the one not having to worry about everything all the time when we have a DH. I think it honestly would be so much less stressful with him gone.

  • gutsy
    gutsy Member Posts: 391
    edited January 2013

    I found a realtor ad for a penthouse apartment in the car we share a couple of days before Christmas. When I asked my husband about it, he told me that he wanted to have time for himself and live a life for himself. He just started his PHD 6 months ago, and is upstairs all the time. We have 3 school-aged children. I convinced him that we need to work on the relationship and that there is so much at stake. Walking on egg-shells. Today I just asked him if he could apply for a passport for our youngest daughter. He pretty much bit my head off, shouting to me  is the office open today, is the office open today.  I do 90% of the kids stuff, clean the house by myself, laundry, yard etc while working and paying half of all the bills and more. I feel like he is trying to throw me under the bus, but I am still too scared to have him leave.

  • Momine
    Momine Member Posts: 7,859
    edited January 2013

    Gutsy, blech, I am really sorry. I gotta say though that you probably should start planning an exit strategy here. First step is to get yourself a bank account, your name only, and sock away whatever cash you can. 

  • gutsy
    gutsy Member Posts: 391
    edited January 2013

    I do work, and have my own money etc. However, he will be entitled to half of everything I have saved, and I will be entitled to his debts student loans, visa, etc. I will also be entitled to half or so of his work pension in 10 yrs, but I see fire in his eyes when I ever bring it up. We also have a line of credit and I am the only one putting money towards it. He wants to use his own money to pay for his PHD.

    So much for, you had Breast Cancer, now you need to live a more balanced life. Really, how does one do that when you have a husband who thinks that he is more important than anyone else. His mother also totally supports him in that, she told me that he has debts because of me. I want to scream at both of them and what will come out is not going to be pretty. So, I just swallow it and push it all down because I have 3 children.

  • divina913
    divina913 Member Posts: 45
    edited January 2013

    Morning ladies!! My husband & I haven't really had the best relationship prior breast cancer. I thought that with me getting diagnosed with this October 2011that I would finally see some TLC from him. He was kind in the beginning. Always saying "it's gonna be ok" BUT as the ole saying goes Actions speaks LOUDER than Words!!! Halfway through my treatments I was just voicing my opinions on things...he says I needed to talk to a psychiatrist because I WAS DRIVING HIM CRAZY!! That I was so Negative!! That Broke my heart!! So today im in Remission dealing with CHF on heart meds/tamoxifen. Deciding if this marriage is over. Can't help but think what if I get sick again...am I goin to drive him crazy again?? I dnt think I can be around someone with that mentality if heaven forbid I get cancer again!! Advice ladies?? Anything?? Maybe I misunderstood him??

  • slinky
    slinky Member Posts: 397
    edited January 2013

    divina913,

    It is so hard to make decisions when our emotions are on a rollercoaster from cancer.  And then to have to deal with a questionable relationship/marriage.  For better or for worse? 

    It is amazing to see how incompatible two people can be over a long period of time.  The quirks that I found to be amusing early in the relationship, now annoys the hell out of me...LOL! One thing I have not lost with breast cancer and the end of my marriage, is my sense of humor.  There has to be levity in everything I do, or things can become very intense and dark.  If I am going to die, I want to die with a smile on my face!

  • divina913
    divina913 Member Posts: 45
    edited January 2013

    Thx SLinky!! It was hard to deal with cancer as it was..and to deal with a non-supportive hubby was even worst. I just dn't think sometimes that yur spouse realize what going through cancer is about. It's not like you just have the flu. Thx for your in-put!! I am in remission now & i wanna be happy for however long i have here. we all don't know wat tomorow will bring & with that in mind....i just wanna enjoy LIFE!!!

  • PSU222
    PSU222 Member Posts: 127
    edited February 2013

    My husband has moved out and never asks when I have appointments or mammo's.  My son is the same exact way, they say I am mean and just don't undertand why I am like this??    My husband states that he does not want to go through another catastrophe with me!!  How selfish.  We are currently getting ready to put our house on the market.  I have no idea of what to think or what to do at this point in my life.  I feel alone and scared and have no clue of what to do next.   I did see an attorney and she said that I need to take him to domestic relations.  I can't do this.......... What is wrong with me?  I need support and strength and I feel alone and empty..

  • PSU222
    PSU222 Member Posts: 127
    edited February 2013

    Well today I found out that my husband is sleeping with someone from his workplace.  This just affirms what my gut has been telling me.  Karma, it will happen........  Devasted but will be OK.......

  • Timbuktu
    Timbuktu Member Posts: 1,906
    edited February 2013

    I'm sad.  I last posted in December.  Said my husband and I were avoiding each other.  And here I am again, months later, and I haven't spoken to him in days. 

    I'm suffering terrible side effects from aromasin.  Pains in my shoulders, my knees, my legs.  I could go on but I'd rather not.  I was in bed, trying to get to sleep in spite of the pain.  Impossible.  So depressed, weeping alone.  When suddenly he storms upstairs and says that I left the door open to be passive aggressive.  HUH?  It got hot here.  I'm congested and wanted some fresh air.  He was the last thing on my mind.  I asked if he noticed that the window was open?  that I'd turned the thermostat down.  What does the door have to do with him anyway.  He looked at me with such a paranoid stare, as though, he knew better.  That I opened the door, not to get some fresh air but to somehow hurt him.  

    I took a codeine.  It's helped.  In the end maybe he did me a favor, I was trying to tough out the pain.

    But what a nut case I'm married to!  Maybe I'll go to a motel tomorrow?  I don't know what to do anymore.

    I've been in therapy for months...

Categories