I.V. Mistletoe treatments

Reality
Reality Member Posts: 782
edited June 2014 in Alternative Medicine

Greetings to all. As you may see in my profile, I am not new to BC.org. I am, however, new to the Alternative Medicine Forum. I have triple-negative, metatstatic breast cancer to my lungs and bones. I thought I had completed treatment when I finished radiation last January, but to my regret, I had not. After being very insistent concerning severe pain in my left arm, my onc ordered a bone scan. The bone scan lead to a CT scan as lung lesions actually showed up on my bone scan. Following a badly botched lung bx and collapsed lung, I had a successful lung bx that determined the cancer cells in my lungs are triple neg breast cancer. 

I was immediately started on chemo - carboplatin and gemzar. My onc did not even want to wait for my port to be installed before starting chemo. In the past two months, I have only had two full chemo infusions, and one at 50% as the chemo causes severe drops in my platelets, RBC and WBC counts. I had transfusions and Neulasta, but counts dropped again after infusion. 

I recently decided that I am done with chemo., so here I am, frightened, but optimistic. My PNPS and onc nurses cannot believe I have stopped treatment. I left several calls on the office answering machine, asking that one of the PNPs return my call (that's the regular routine at my oncs office). I cannot believe that one of them has not called me!

I am currently waiting to see if my insurance will cover an ND in Vermont. (I live in Northern NY). He has been treating cancer patients with I.V. mistletoe for 21 years. He is the first licensed ND in Vermont. If my BC/BS Excellus will not cover an ND, I have decided to look for a D.O. in Vermont. (Northern New York is severely deprived of oncologists - in fact, my current oncologist drives 3 hours, one-way, every Thurs. to work in NY (lives, teaches and has a practice in VT). He spends the night in my little town, sees patients on Fri., then drives back to VT Fri. eves. He is the ONLY onc in a 250 mile radius!

Please let me know if anyone has any experiences, good or bad, with ND's and/or iwth I.V. mistletoe treatments. 

Thanks - 

Sherry

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Comments

  • Reality
    Reality Member Posts: 782
    edited December 2012

    update - my BC/BS Excellus, PPO plan WILL cover the ND I willl now go to!!He is a participating member in my plan, even though he is in VT! 

    Whew - almost gave up on going to him, but my adult daughter kept encouraging me! 

    Sherry

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  • Momine
    Momine Member Posts: 7,859
    edited December 2012

    Reality, that is a good start. I checked out the mistletoe, sounds interesting.

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  • lightandwind
    lightandwind Member Posts: 754
    edited December 2012

    I started mistletoe but couldn't keep it up because with the femara I take, it was too much on my body. It was powerful and I might have to give it a whirl again but will be if/when i stop the femara. I too would like to hear anyone's experiences with mistletoe.

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  • HLB
    HLB Member Posts: 1,760
    edited December 2012

    Suzanne Somers took it and she gave it to herself as a shot in the belly every morning. She might even still be doing it.

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  • Reality
    Reality Member Posts: 782
    edited December 2012

    Thanks for your responses. I will let you know how it goes. I am really looking forward to meeting my ND.

    Sherry

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  • amhammed1
    amhammed1 Member Posts: 1
    edited December 2012

    Hi Sherry,

     You need to read Suzanne Somers book "Knockout". I am in process of reading it and she is the first person that I have heard of using Mistletoe extract (iscador). She is 10 years + out and a survivor of breast cancer though I am not sure as of yet what her exact diagnosis was. I am also reading "Beating Cancer With Nutrition" by Patrick Quillin. Joanna Budwig diet is something you should research as well. I have researched so much and am combining all of the various diets for cancer as well as boosting my immune system with antioxidents, superfoods and supplements all of which are natural. I may win , I may lose but Nutrition has given me hope.

    I have Her2+ breast cancer 2 years out but I just had it removed again from my lymph nodes under same arm and side. PET was clear every where else thank GOD! Life on the "C" side is certainly not for the faint at heart.

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