New research article

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snorfia
snorfia Member Posts: 47
edited June 2014 in Lymphedema

http://www.eurekalert.org/pub_releases/2012-12/sumc-bta121312.php

Here is an interesting research article from Stanford University regarding the diagnosis of LE. I remember feeling very frustrated that no one would come out and tell me, "You have lymphedema." Perhaps this will help establish some diagnostic criteria.

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  • Binney4
    Binney4 Member Posts: 8,609
    edited December 2012

    Oh, my goodness! Let's hope this pans out and is for real, because it could sure help put LE on the medical map if we could point to a reality doctors understand, like a blood test.

    Of course we still have to convince our insurance companies to pay for the test...

    Thanks for posting, Snorfia!
    Binney

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  • kira66715
    kira66715 Member Posts: 4,681
    edited December 2012

    He told me about this research a few years ago. Very hopeful it will lead to a diagnostic criteria for LE.

    Now if his ketoprofen study ever gets published....

    This could be a real break through. Thanks.

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  • hugz4u
    hugz4u Member Posts: 2,781
    edited December 2012

    Am in a hurry and so I just skimmed thru article. I would be glad to pay for a blood test if it meant that this was a green light to have insurance pay for all our needs if we checked in as positive for LE. Its so hard to have them believe we have this condition in the first place especially if it is subclinical or close to it. That said I would be broken hearted if the blood test was too expensive, making it unavailable to most of us.



    Is there a way to push this project ahead or us to rally for it?

    I can't wait to read the article fully. I should have saved my comment for then, but I am so excited to hear of such a study I just had to say something! :)

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  • carol57
    carol57 Member Posts: 3,567
    edited December 2012

    If it pans out, what a great opportunity for early surveillance after BC treatment...no baseline measures even needed!  I sure hope this research advances speedily.

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  • hugz4u
    hugz4u Member Posts: 2,781
    edited December 2012

    Oh, I surely hope that our BC sisters, daughters, friends have this type of diagnostic tool.

    To think of it also that it could lead to drugs for LE, This would be so grand.



    Snorfia, Glad to have the article to read, Thanks for posting.

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  • kira66715
    kira66715 Member Posts: 4,681
    edited December 2012

    I heard back from Dr. Rockson, and here is the link: PLoS ONE is an open access journal. It's very interesting: all about inflammation and abnormal fat deposition. When you get bogged down in the science stuff, read the conclusion, very on target.

    http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0052021

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  • NatsFan
    NatsFan Member Posts: 3,745
    edited December 2012

    Wow - this would be fabulous. And as others have echoed, if it pans out, a positive blood test would be a big step in convincing our surgeons and insurance companies that it's not all our imaginations, that it's not "post-surgical swelling", that it never happens with "just" an SNB, etc. etc. 

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  • kira66715
    kira66715 Member Posts: 4,681
    edited December 2012

    Mary, I've been reading "Henrietta Lacks" and thinking about you and Hopkins...

    Binney sent the article to a great LE researcher and he's excited. Not completely sure how it will work clinically, and felt they could have looked at even more markers but realistically they had set some limits.

    I did notice that they might be marketing the panel: they named it, and good for them.

    It's 6 biomarkers. If we could predict and confirm with 90% accuracy, it would be huge.

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  • Binney4
    Binney4 Member Posts: 8,609
    edited January 2013

    Bumping for PuppetLady--thanks for bringing this up again, PL! It's really hopeful!

    Be well,
    Binney

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