A&E for me....

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KeepingFaith69
KeepingFaith69 Member Posts: 508
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

So I visited a GP for my breathing issues and was referred straight to Hospital, I'm now in acute oncology.

While waiting, I googled prognosis statistics for stage iv with lung mets. Now I wish I didn't!!!!!!!

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited December 2012

    Keepingfaith please don't drop your bundle yet. As we all know the statistics on Dr Google are waaaay out if date so don't take any notice. There are so many more option available to us than there were so as your name implies, keep the faith and hang in there.



    Love n hugs to you. Chrissy

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited December 2012

    KeepingFaith, the first thing I'll tell you is that online stats are notoriously out of date. There are a lot of women with lung mets on these boards (and elsewhere!) who do well for very many years.

    The second thing is - I know you're scared. I can't take the fear away, no one can, but I can "hold your hand" while you go through this.

    Sending love.

    Leah

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  • HLB
    HLB Member Posts: 1,760
    edited December 2012

    Hi KeepingFaith, very sorry to hear this and I feel for you, I know the anxiety this causes. Are they sure its mets? It wasn't totally clear to me from your post. Anyway, the girls are right, we have MANY options! I don't know what the stats say that you read but I've been here since July and I'm feeling SO MUCH better from talking to everyone here and seeing how well they are doing for a long time! When your treatment starts and esp when your breathing is better you will feel a lot better. I get short of breath when I have anxiety so I can't imagine having breathing problems making me anxious and the anxiety making the breathing even worse that! Hang in there and I hope you are NED quickly!

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited December 2012

    Thank you for your support.



    I'm really struggling to keep the faith. I am booked in for a drain in the morning. Ct and other scans As well.



    They are checking for lung and liver mets. I'll know for sure when I meet oncologist on Wednesday.



    I'm wondering of the anxiety is causing the breathing issues. I'm a mess!!!



    Thanks again for listening and guiding me through

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  • Jennt28
    Jennt28 Member Posts: 2,021
    edited December 2012

    KeepingFaith - so glad that you were seen today and there is some action happening tomorrow.



    As the others said, although you have Stage IV mets there is no "use by date" stamped on you. There are many treatment options and you may find one that works for you!



    Jenn

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Keeping Faith Im so sorry to hear the extreme devastation, horror and anxiety you must feeling right now. I hope you did enjoy your trip to Milford, but this must be terrifying for you. I know that severe anxiety can most certainly cause breathing issues.  Im thinking of you and hoping that everything goes well when they do this draining. It is encouraging what these ladies have to say. It is so great to have a forum lke BC Forums where we can support and help one another. Hang in there.

    Gentle Hugs.

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited December 2012

    Hey ladies,



    I had some fluid aspirated. They only managed 200ml of what they think is 1litre. Better than nothing. I felt almost instant relief.



    Meet with onc tomorrow. Preparing for the worst and trusting that with treatment, I'll be here to celebrate next Christmas - hopefully more.



    Thank you for 'holding my hand', I really appreciate you all.

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  • midnight1327
    midnight1327 Member Posts: 1,475
    edited December 2012

    Keeping Faith, there is a hymn, that is called, i dont know about tomorrow, i just live from day to day. many things  about tomorrow i dont seem to understand, but i know WHO holds tomorrow and i know WHO holds my hand., those are just the few lines i remember, it is a favourite of mine.  But reflect on that, we are holding yr hand and God is as well. warm hugs

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  • Racy
    Racy Member Posts: 2,651
    edited December 2012

    Saying a prayer for you, Keeping Faith.

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  • melmcbee
    melmcbee Member Posts: 1,119
    edited December 2012

    Sending healing hugs and prayers.

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  • Angela-R
    Angela-R Member Posts: 273
    edited December 2012

    Holding hands with you tomorrow.

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  • cheryl1946
    cheryl1946 Member Posts: 1,308
    edited December 2012

    Sending prayers and {{{HUGS}}}.

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited December 2012

    Heya,



    Just finished meeting with oncologist.



    Initial tests show no evidence of cancer. Testing of the fluid taken from my lung is underway and results will be available in a week. Cat-scan has been booked too.

    Meeting oncologist again at the beginning of Janyary and will definately know what's up. If it is cancer, I will start chemo the same day.



    Can't have herceptin as i had a recurrence.

    Suggested xeloda / tykerb, hope it works.



    I choose chest infection, not that other bastard of a C word.



    Wishing you all health and vitality.

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited December 2012

    Yay Keepingfaith! First reports are sounding good and sure hope the next lot Re showing the same...... I'm with you on hoping for an infection.



    Try to enjoy yourself thought out the holidays and put all this behind you till the new year.



    Love n hugs. Chrissy

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  • lovetodance
    lovetodance Member Posts: 9
    edited December 2012

    GOD BLESS THAT INFECTION !!!! BEEN PRAYING FOR YOU. FUCK CANCER BIG TIME

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  • Angela-R
    Angela-R Member Posts: 273
    edited December 2012

    Infection, infection, infection !!!

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  • cheryl1946
    cheryl1946 Member Posts: 1,308
    edited December 2012

    Never thought I'd say it, but I love infection.

    Great news.

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited December 2012

    Thank you all.



    Well ive been admitted to hospital for SOB, coughing till I vomit and pain in my back, ribs and joints and a chest infection.



    These are all now being treated and I feel much better.



    The results of test have come back as malignant. Boo hoo!



    I grateful that I am feeling better and will be happy when a treatment plan is on place.

    I am scheduled for an onc meeting on the 9th of Jan. I have Sked that it be moved forward.

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  • Angela-R
    Angela-R Member Posts: 273
    edited December 2012

    Bugger.

    I know nothing about lung issues, but send you a big hug across the ditch.

    Angela xxx

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  • MarleneFlorrie
    MarleneFlorrie Member Posts: 8
    edited January 2013

    KeepingFaith69

    I hope you are doing well and feeling better,  have you started your treatments yet? I am wondering about your original diagnosis, it says you were stage 0, does that mean you started out with dcis, non invasive breast cancer or did you have a small invasive component to the dcis? I hope all goes well for you with all your treatments and that this year ahead is full of positive beautiful things for you and your family. It is a blessing to know we don't walk through this life alone, may God bless you always.

    MarleneFlorrie 

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  • LoriKnous
    LoriKnous Member Posts: 80
    edited January 2013

    KeepingFaith69, I am wondering about the reocurrence statement you made about the herceptin. My original diagnosis was in 2007 and I did have chemo, surgery, radiation and herceptin for a year. This time they found it mets and I am on herceptin again along with perjeta every 3 weeks. Is there something about how the reoccurance presents itself that tells them if herceptin can be used again? I will say that herceptin and perjeta have stablized my progression. I have to be thankful for that because surgery is out of the question.  ~LORI~

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited January 2013

    Hi Lori,



    Sorry for the delayed response.

    My Herceptin tx was stopped as soon as the recurrence was confirmed. The explanation being that it failed. Perjeta isn't yet available in NZ so it's not an option.

    I am now on Xeloda / Tykerb and praying it will work.

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