Calling all TNs

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  • OBXK
    OBXK Member Posts: 791
    edited December 2012

    HopeFC - here's a link that explains staging:

    http://www.breastcancer.org/symptoms/diagnosis/staging







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  • HopeFaithCourage
    HopeFaithCourage Member Posts: 156
    edited December 2012

    Thank you

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  • OBXK
    OBXK Member Posts: 791
    edited December 2012

    HopeFC - you may see your onco before your treatment on Tuesday. Here are some questions you may want to ask:

    http://www.caring.com/articles/questions-to-ask-oncologist

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited December 2012

    Forget cancer for five minutes and think of these little angles

    Fly high you precious souls x

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  • QueenKong
    QueenKong Member Posts: 154
    edited December 2012

    HopeX: That Chinese food was the best I'd had in years! I'm glad you understand. What is this about blabbing secrets in surgery? Does that happen? I had some very strange dreams when I came up. I hope I didn't blab my secrets!

    HopeFaith: That sounds frightening. When I first found the tumor, it was growing very fast. My goal was to start chemo as soon as possible. I don't know what it was when they started finally but it was over 6cm when I had my first MRI. I could see it coming out of the side of my breast, has skin change and nipple pain while I was going through tests to get started. When do you start chemo?

    Mermaid: That sounds like a lot to deal with. It sounds like you are on the right track with treatments and very lucky to have no SE's. All I can say is keep going, you're doing great. 

    Anne: Welcome, there is a lot of great info on this site and keep us posted with your progress. I am sorry for the loss of your friend. 

    It's bed time.

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  • bak94
    bak94 Member Posts: 1,846
    edited December 2012

    CS-that is heartbreaking. I cannot imagine what the parents are going through or the fear the little ones (and adults) suffered during the last minutes of their lives.

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  • mags20487
    mags20487 Member Posts: 1,591
    edited December 2012

    hopefaithcourage...my results read metastatic disease because it had gone to 3 of my lymph nodes.  It did travel quickly through my body.  Surgery happened pretty quickly for me 6 days from official diagnosis. 

    mermaid...I am sorry that you must endure all of this.  Your treatment plan sounds about right and horray to you for no SE's.  We are always here to listen to anything

    Maggie 

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  • 5thSib
    5thSib Member Posts: 141
    edited December 2012

    RUSSELL33 -- your diagnosis is very similar to mine but I did have SN involvement. Originally they told me radiation only but with the TN they had to add chemo. Good luck and you will feel more in control when you have your treatment plan in place.



    Unfortunately chemo kicked my butt this past week. This is the first day I have even felt like getting on the site since Tuesday. I took the meds like clockwork but still dizzy and nauseous. My DIL buzzed my hair on Wednesday and DH shaved it slick. I have some stubble though so he says I did it too soon. I've cried and felt sorry for myself some this past week but realize how blessed I am when I think of the tragedy in Conn.



    Planning to head to a Look Good Feel Better class in a little bit. I wish for everyone to have a good day.



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  • mags20487
    mags20487 Member Posts: 1,591
    edited December 2012

    5thsib...the goody bag they give you is so nice...enjoy your day!

    maggie

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  • jenjenl
    jenjenl Member Posts: 948
    edited December 2012

    Just left my chemo class...with a headache.  I can't get a grip since they changed my dx to triple negative...so hopeless.  I hope the chemo kicks some serious ass, I am so worried - I think going back to work will help.  I have too much time to think about death and every ache and pain.  I went from being a power player to a total crying wuss.  DAMN IT.

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  • QueenKong
    QueenKong Member Posts: 154
    edited December 2012

    Chin up jenjen. There is plenty of hope. I am wondering what a chemo class entails?  When do you start chemo?

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  • jenjenl
    jenjenl Member Posts: 948
    edited December 2012

    yes, 9:15 Adriamycin, Cytoxan and Taxtore (sp).  The chemo class was to go over what the day will look like, the SE, what to expect/preventative. 

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  • jenjenl
    jenjenl Member Posts: 948
    edited December 2012

    all drugged up and on my steroids, clariton, depression meds, xanax.  I have had quite the back and pelvis aches (for a while now...maybe 1.5 weeks) and headache (not eating enough) I am drinking lot's of water.  List made for tomorrow, bag packed, list of questions for the MO...after my dx I had a CT scan which was clear (but I understand it identifies larger/pronounced area's of concern) now that my dx switched to TN I want a baseline PET scan bc of some of the pains I've been having with my back and pelvis....he's gonna hate me but I would rather baseline and check now vs starting chemo since those are SE. 

    Making a dinner tonight since I know I will LOVE it.  No bath for the kids tonight...yay! Tomorrow - drop kids off, go to church, then off to treatment.  Calling it treatment is a huge step for me before I called it poison. 

    Recieved nice flowers today and a box from my boss.  She has sent me a box of goodies every 2 weeks for the last few months. 

    I feel a little more peaceful today, i guess I just know IT'S TIME TO DO THIS SHIT!  Tomorrows game time is 9:15!

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited December 2012

    Good luck, Jenjen!  You'll do fine tomorrow!!!

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  • Reality
    Reality Member Posts: 782
    edited December 2012

    Jen - I will be thinking of you. I did the class and the AC/Tax regimine last year. Here's a big hug. 

    Sherry

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  • Titan
    Titan Member Posts: 2,956
    edited December 2012

    Jen..good luck tomorrow...you will do fine..you are ready and prepared....the first chemo is the scariest...after that ..well..it's something you just have to do...hang in there..! 

    Cocker..I'm just so sick about the Newtown murders of those babies..and the adults...to be honest I hope that the shooter is burning in hell right now....

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  • borntosurvive
    borntosurvive Member Posts: 213
    edited December 2012

    Jen: YOU GOT THIS!!!!!  I will be holding your hand the whole time.  xo

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited December 2012

    Titan I too hope the bastard is in hell and suffering. We think we suffer but those babies suffered more.

    Y'all forgive me for posting so much about this but I can't get these little ones off of my mind. Give us comfort and strength Lord, please.  

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  • OBXK
    OBXK Member Posts: 791
    edited December 2012

    Jen - you've got this! Good thoughts your way.

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  • liv-
    liv- Member Posts: 521
    edited December 2012

    hi all,

    sorry melissa cant help with nails, did have a bit of burning during initial chemo treatment but nothing too concerning.

    congrats tazzy, over another milestone.  if you dont mind me asking what is the trial you are on?

    ive just finished rads too, didnt mind them and was more worried to stop treatment thinking the (pip)rascal might be around the corner just waiting to pounce.

    been on xeloda for 2 months now just starting naveline, so far no side effects with x just a bit on hand and feet,  hopefully navelbine will be no hassles too.

    x

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited December 2012

    Why We Put Angels On Top Of Christmas Trees

     Author Unknown

    One Christmas, a long time ago, Santa Claus was getting ready for his annual trip; but there were problems …… everywhere. Four of his elves were away sick and the trainee elves did not produce the toys as fast as the regular ones. So, Santa was beginning to feel the pressure of being behind schedule. Then, Mrs. Claus popped in to tell Santa that her mother was coming to stay for Christmas; which stressed him even more. After a while, he went to harness the reindeer, he found that three of them were about to give birth and two had jumped the fence and run away, heaven knows where to.

     Then, when he began to load the sleigh one of the boards broke and several large toy- bags fell to the ground, scattering their contents all over the place. Needless to say, Santa was not in the best of moods. Suddenly, the doorbell rang and he went to the door expecting another problem. But when he opened it, there was a little angel with a great big Christmas tree that she had brought especially to cheer him up. The angel greeted him very cheerfully, “Merry Christmas Santa Claus. Isn’t it just a wonderful day? I have a beautiful tree for you. See, isn’t it just the loveliest Christmas tree you’ve ever seen? Where would you like me to put it?” Thus began the tradition of the little angel on top of the Christmas tree..

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  • HopeFaithCourage
    HopeFaithCourage Member Posts: 156
    edited December 2012

    Jen Jen today is my first chemotherapy fast too. I go at 430 tonight. Stress headaches for days already! I'm more scared of the cancer r then the chemotherapy. But I'm so moody if you asked me in five minutes I'd likely say something different. We have to do this. We have to be well! I'll be thinking of you today. Peace my sister.

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  • borntosurvive
    borntosurvive Member Posts: 213
    edited December 2012

    Cocker: That is beautiful and made me cry.  Silent night is on the radio right now which, probably makes me more emotional.  My heart breaks for all those children and families.  It would be my worst nightmare.  May God embrace them all and help to health those families.  The world seems so scary and unfair at times. 

    Jen and Hope: Good luck today girls.  GO get em xo

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Hi Ladies, I have not posted in the longest time, however I have been lurking. I have a question for anyone that has had a lumpectomy/segment mx and rads. I had a segmented mx, and rads- I have lymphedema in my breast an side. Anyone deal with this? I have searched through the lymphedema threads and can't find anything. I am wondering how long this is going to go on- mine seems to get worse, then it subsides a bit, them bad again (like now).

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  • Babs37
    Babs37 Member Posts: 455
    edited December 2012

    Lory- I had a right mx/rads and now have "breast" and side lymphedema too. I have to wear a compression bra. It has helped a lot with the swelling and the pain. The brand name I use is Angel Care. Hope that helps.  

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Babs, thank you for the info, I will ask my fitter about this one. I have hard spots that are taking forever to go away.

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  • melissa119
    melissa119 Member Posts: 172
    edited December 2012

    Hi ladies



    I don't post much but I am checking in on you guys every day. Been trying to get ready for the holidays and its just been so busy. Anyway hope you all are doing well. Ladies that are just starting chemo. You definitely can do it! The first is the worst because of anxiety but it is really not as bad as our minds tell us it is. You will get thru it. Think positive drink lots and take the meds and you'll be fine :-).

    For those out of treatment I have a question. When your hair grew back did it come back gray?? I was so happy mine was coming back but it is coming gray and now I have something else to be upset about! Does it ever end? Anyway let me know what everyone else experienced. Thanks! Have a 6mo surgery follow up with BS tomorrow. I don't know what to expect so I am nervous. Anyway have I sight on that? I don't feel like going for any scans now around the holidays :-(

    Anyway. Hope everyone has a good day. On top of everything else my thoughts have been in CT and with those poor families that list loved ones. So sad and horrible that they have to go thru this. I have been kissing and hugging and saying I love u to my kids more these days....

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  • russell33
    russell33 Member Posts: 48
    edited December 2012

    Hi I am Anne,  was just diagnoised with Stage 1, Invasive Ductal Carcinoma, Grade 3, no lymph node involvement.  My question is I was given 2 different regimens and not sure what to do.  The first one Taxotere with Cytoxin or Adriamycin, Cytoxan and Taxol.  How do you decide.  I also have the option to be in a trial and they will pick one for me.  My docotor thinks I should do the Taxotere and Cytoxen.  I'm leaning towards that.  just wondering if anyone has similar diagnoises and what chemo they are taking. This is all so hard....

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  • russell33
    russell33 Member Posts: 48
    edited December 2012

    Thank you for the reply.  I hope you are feeling better and that you can enjoy the Holidays.  What chemo regimen are you taking?  I have 2 options and haven't decided yet.  I have the choice of Taxotere and Cytoxan (which My oncologist suggests) or Taxol, Cytoxan, and Adriamycin.  He doesn't think I need the Adriamycin, I quess it's really strong.  So, decisions, decisions.  Thank you for listening.  Stay well.

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  • carlads
    carlads Member Posts: 241
    edited December 2012

    Hi everyone I haven't been here in awhile, not sure what group I belong in now.  I think I mentioned my pathology report came back some hormone recept positive in both Estrogen and Progesterone.  My Oncologist said it enough to push me out of the TN diagnosis.  I am not so sure.  I did put in a phone call to him today I went through my pathology report yesterday and I have so many questions.  When I met with him on Friday I hadn't reviewed it myself yet..

    I am also struggling with which type of treatment now..  I was going to do the dose-dense A/C then T.  Now he says only 4 cycles of T/C.  I am just wondering if I should still do the Adriamcycin?  However, the Taxotere and Adriamycin are the same type of Chemo Microtubule inhibitors..  I am so confused.. 

     Carla

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