Fuzzy's Romp Room

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2012

    Heard from Fuzzy's DH, she wants everyone to know she's FIESTY. Dh was happy to hear that Veggy updated everyone. They did a bone scan and it was negative to rule out you know what b/c her symptoms made it necessary to be sure__YAY NED to bones . The doc says it's likely an infection from sx, and a hospital acquired infection from her stay. That's why they sent her home so quick with the IV antibx's to be given at home. She's worn out, but thinking of everyone.

    I finished the novena--got my hours correct. It's a powerful concentration of thought and comforting when reading the words and thinking of the intended which was Fuzzy and all of us here and others on these boards and Veggy's dear friend. I know prayer is not in everyone's belief system, but I do believe. I also believe in the strength of collective prayer. I'm not enough of a wordsmith to communicate what it is that causes me to believe. It transends being brought up with the teachings.

    There is a woman on Ma111's thread that has written a story of her journey with her Dad through his cancer and hospice. Linda-Ranch is a wordsmith. I asked permission to repost her story here. She now has BC. She expressed interest in joining us. I was rethinking the reposting, but it's so poignant. I'll leave it at that , repost her story for you to read. L&H&P's Namaste sassy. 

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2012

    reposted from Ma111's thread with permission :)

    Dec  1, 2012 11:40 AM Linda-Ranching-in-the-mTns wrote:

    Hope I am not out of place here.

    I was caretaker for my father: first a year of fighting esophogeal cancer (chemo/radiation and a million doctor visits and treatments) - then his caretaker in Hospice after he had a seizure and they found a stage 4 brain tumor.

    I was honored to help him say his goodbyes and I participated fulling in his last living and his leaving. My sister and I shared the responsibility of his funeral/life celebration -- and then helping my mother cope with her new widow-hood and financial changes after 61 years of marriage to the best man I had ever known.

    In May I was diagnosed with my own cancer (BC - had a dbl mastectomy and immediate recon Nov 6).

    I am realizing now how my experience with Dad's cancer and death was an incredible blessing -- I learned so much -- and wanted to share a couple of ideas with you wonderful women who are facing Stage 4.

    It wasn't easy or convienent to be a caretaker for over a year. But it was a phenomenal opportuinty to love my father, honor my parents, experience life with an intensity that no one who hasn't lived with death can comprehend. For those of you who may fear you are over-taxing your loved ones... please know that you are also providing them with a wonderful blessing, a vital experience -- and helping them prepare for what lies ahead after you are gone.

    Every single one of us will die. No one escapes it.

    Hospice was a Godsend. Dad's Hospice was in Kansas City, but they are everywhere -- and for anyone who may not have reasearched yet -- Hospice is FREE and provides incredible and compassionate care in an extremely supportive (non-hospital-like) setting. Dad's was like a very comfortable upscale hotel -- we were there a month, with the best of care - morphine as needed, and a lovely room which included a sleeping couch and comfortable fold-out cot for family. Meals and a million cookies/cupcakes were available for the families 24/7, as well as grief therapists and clergy.

    My Dad taught Boy Scouts for over 50 years. Every day we spent in the (very nice) garden at Hospice, sitting with nature. When it seemed Death was imminent -- one of the nurses suggested they could roll Dad's bed outside into the garden, so he could die surrounded by natural beauty. It was perfect -- for 4 days and 3 nights, Dad and I camped in the garden and never came back inside. We watched the leaves turn red and yellow. We watched the contellations pass over, and talked by the light of the moon. We shared the sun rises and sun sets. He died under the stars... and I will forever be thankful for our last shared experience -- I likened it to his base camp, supported by family and friends, while he waited to make his final ascent.

    Another (potentially helpful) thing I would like to share is about the practicality of what happens after death. I see many of you are making practical preparations, so perhaps a few words from someone who did this last year would be helpful. We chose cremation, because it allowed us more time to prepare the service (we wrote the service ourselves) and a breather-space for Mom to adjust before having to see all their friends at the funeral. Cremation allowed us to wait 2 weeks to have the service. It also was incredibly cheaper - we saved thousands over a casket/etc -- and provided our own urn (I was a potter for years, and so we used my Dad's favorite cookie jar, which I had made).

    We also created a 3-sided poster board in Hospice, while Dad was still with us... and covered it with photos of Dad with family and friends. It was a wonderful opportunity to reminice about good times we all shared, and marvel at how young and beautiful we all (and especially my Dad) once were... pre-cancer, pre-old-age. We then used that at the funeral service, and my mother loves looking at it still.

    Lastly, I would like to share how fortunate I feel to have had deep conversations about Death and the Afterlife with my Dad during that last month. Even though we were very very close, we had never discussed those things. And I would like to reassure you that (at least for me) what I thought would be a tragic and debilitating loss -- was instead a huge opening of Spirit and Love.

    I now see my father in every stunning mountain vista. I see him in every glorious sunset and sunrise. And more than that -- I feel his presence, every time I think of him -- which is often. There are no boundaries now. In my perception of the afterlife -- he can be anywhere at anytime. He is here. He is everywhere. I feel him here as I write this now... and it feels good. :)

    Helping Dad through his cancer and death changed me forever and continues to bring me gratitude and a much-deeper appreciation for this beautiful life here on earth. Helping him prepared me for my own BC experience -- because from the first diagnosis, I KNEW that just as there was beauty and epiphany in my sharing of Dad's death -- my own cancer experience will also bring me unknown blessings. Already it has caused me to let down my vain facade, and exposed me as fully human - both frail and strong -- to my lover. It has allowed him to show me the incredible kind of man he is -- and I know we are experiencing a MUCH deeper connection because of the cancer now in our life.

    Lastly -- I would like to tell you about a conversation Dad and I had about a week before he died.

    I was (at the time) 56 years old. My entire life I have had a pretty miserable track record with men.

    I jokingly told Dad that once he was in heaven -- if he found himself with some spare time... I would be very receptive to his 'meddling' -- Could he help send me a great man?

    He chuckled and told me he would.

    I was corresponding with several men through E-Harmony at the time -- via my laptop every night as I lay in Dad's room at Hospice. I often couldn't sleep, because Dad would awake with a start - disoriented, attempting to leap out of bed to "go clean the garage" -- but he was too weak to stand -- so it was important that I be ready to reassure him and keep him in bed. Anyway, after that conversation with Dad --  one wonderful man on E-Harmony began to quickly emerge as the total 'keeper'. He was a wildlife biologist, who lives on an incredibly beautiful ranch in the mountains. My father (the old Boy Scout) would have loved this place. He would have loved the conversations about elk, deer, land management. He would have loved this kind, gentle angel of a man with whom I now live -- and it comforts me to see Dad's hand in sending him to me. No one could have done a better job, and no one but Dad could have known how perfectly we would connect.

    I urge you to consider having these sorts of conversations with your own loved ones. Whether you can follow through from the other side or not -- it will bring your families MUCH joy to see your "meddling' in their happiness, even after you are gone. And who knows -- maybe you can actually pull some strings.

    We are all made of energy. The first law of thermodynamics is that energy can't be created or destroyed -- it can only change form and move from place to place. 

    So it must be with life energy, too. Somehow -- our energy goes on. We simply change form, and move to another place.

    Love and Light to you all -- You may not know it -- but you are a gift -- and you are unknowingly bestowing blessings to all around you.

    Linda

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited December 2012

    Thanks for sending word of Fuzzy.

    I had a terrible day: sore throat, cough, headache, sinus pain plus the sore foob. I know. My fault. I stayed in my pajamas all day and in bed nearly all day. I wish I could get back to sleep.

    Last night I dreamed that I had been taking some drugs (for the cancer) and that the doctors decided it wasn't doing any good and so took me off it. This meant I had about a month or two to live. I was begging them to keep me on the drug (because in my mind, as long as I was on the drug, I would live). I did a lot of crying in the dream, and it has stayed with me today.

    As possibly the only person on this particular forum who turned down conventional treatment, I generally keep that to myself (except that it shows on my signature line).  Anyway, it can be really hard at times. Did I make the right decision? Should I have trusted my own judgement on this? A lot of self-doubt. What particularly disturbs me is that I should be acting like such a baby about dying from this cancer. I want to be graceful about it -- whenever my time comes. Fear and crying are not my definition of graceful. Anyway, between the sense I had that I was doing Christmas cards for the last time and then this dream, I have a feeling . . .

    I'll try to come meddling and haunting anyone who wants me though.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited December 2012

    Hey Veggy---thanks for the update on Fuzzy...Im so sorry about your friend.As always both of you are in my prayers along with all the other sistas...

    2 more of those steroid pills left.Im starvin all the time...eating everything in sight ripping this apt apart.I feel like i can run run run and then boom.im down for the count.started at 8am this morning and just got done...and i made a big mess thats waiting for me tomorrow.Gotta do it now before i crash....

    I hope I kicked this thing...I feel like I did.Gotta go back on monday for my last visit before i go to pa on the 20th.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited December 2012

    Hello my best friends and my dearest sisters!  Tonight is the night I felt I could suck it up and send a message...The light bothers me pretty bad which is why I haven't been able to get here...I'm going to catch up on the last four pages but I don't think I could do it just yet...

    I am home, with a pic line and home health.  I went to the hospital around 3:00am last Saturday with pain that I would not be able to describe - and the hospital was 1.5 hours away....got there and they gave me pain meds and took blood.  My pain came down and my WBC was 18,000.  Doc didn't really want to keep me but I told him that I would not make a second trip if that pain came back...needless to say, I stayed.  Started me on that Dilaudid (synthetic and more potent form of morpheine).  The next day, I started feeling weird, my breathing was slower, no energy...I tried to talk to the idoit asshole bitch nurse and, as you can see, that didn't go well.  So I asked her to page the doc.  She did not - she felt the doc would not want to be paged (not kidding).  So, when the next shift came on, I asked her to page the doc.  He came in about 9:00 - this is my PS - the one I have had the whole time....I told him I was having trouble breathing, I'm showing MORE sympoms and not less, I have a fever and just didn't feel right....he said, "You exaggerate."  I thought, oh crap, I don't want to beTHAT patient...I felt horrible about it...that's the last thing I really remember.  Apparently, DH decided to come visit me, everyone knew I was talking like I was wasted, the nurse injected another round of Dilaudid and then I stopped breathing.  My oxxygen went down and my fever spiked to 103.7.  I'm still recovering from this overdose and reaction (which is where the photosensitivity comes in).  When I finally woke up, I thought I had been run over (head first).  Then, I found out I had anoter infection in the recon site.  I had the option to have a pic line installed and go home so I jumped  at it....little did I know how bad that pic line would hurt - they hit my nerve twice and got mad at me for complaining about it....oh if they only knew how much I wanted to give them somethiong to really be pissed at...it was literally the most horrible hospital visit I have evber had.  They did not change my bedding the entire time...I asked to have my face washed - denied...I asked to have an oxygen monitor - denied (she didn't like the beeping noise)...

    So, I'm home...all I do is lay here in pain, feeling like I'm going to puke all over my fuzzy blanekets...LOL but I'm going to see the doc on Monday (then the decision will be made if the implant is to be removed or if the antibiotics did their job).  So far, I still have pain from infection so I assume we have to start over. 

    I'm so disappointed that my doc...the one I thought walked on water...almost let me die because he thought I exagggerated...here's a super secret...but, I told you my DH appreared at the hospital that night and knew I was talking stupid...well, he watched as I stopped breathing and the events that followed and then, when my breathing came back....HE LEFT THE HOSPITAL!!!!  He left me there, alone, with the people who almost killed me.  I am so upset right now I don't even know what to think.  On the way to the hospital...I was in so much agony and DH literally told me  he can't do this - he couldn't drive me to the hospital...I asked him to pull over and call an ambulance but he ended up driving me there.  WHFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFFF  I'm so confused.

    Oh I'm so sorry about all my bitchiing.  I love love love love love you all.  I'm sick of being sick and sick of being in the wrong hands at the wrong time!  Oh - I did have a bone scan that came back clean...that was awesome news.  And I got to be with my oldeest every day and my youngest called me everyday.  What do I do....I am not sure I feel very safe....Ugh.  Left me there???Alone and unconcious???  Who does that???

    Ok.  I will try to catch up a little at a time....I hope everyone has had a really good week and I hope you will forgive me for not getting on here sooner.  This is the first and only place I came to tonight and I think I''ll have to shut the computer down now.  I have it tilited at an angle so I hope my spelling isn't too bad!!  LOL

    You are all so fuckin awesomne I can't stand it......you know this right??  LOVE YOU!  Hmmm...my attitutde is coming back...that's a good sign right?

  • Linda-Ranching-in-the-mTns
    Linda-Ranching-in-the-mTns Member Posts: 319
    edited December 2012

    Man, Fuzzy -- I am so glad to hear you are OK -- but the rest of it -- WOW.

    I learned from care-taking my parents through their surgeries -- you must have an advocate with you the entire time at the hospital. Someone needed to stand up to those know-it-all nurses and non-believing doctor. And you didn't have the focus/strength to do it for yourself.

    I don't blame you for wondering what the.... about your dh right now. You and he need to have a long talk when you are stronger. To be fair -- he is no doubt suffering from PTSD, too -- after all the woman he loves is seriously ill -- but if he can't be there for you when you need him most, then you need to know that so you can make plans to cover your butt in a different way (sister, friend -- someone!)

    My heart goes out to you both -- and I'm wishing you all the best re your infection and flap recovery...

    Linda

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2012

    Fuzzy, can't write much, but this awful when you trusted so deeply. As to Dh he left b/c he trusted that they would care for you. He's a lay person. He doesn't know how bad the errors can be and were in this situation. Even when he was watching, he thought they were doing there best. He likely knows now that his trust was misplaced. It's has shocked you to your core. This will be hard to get over. Once you regain your strength and mind, you can work on a plan. But forgive DH. He's used to lumber, not medical emergencies. He likely felt helpless in a situation that was out of control and totally outside his knowledge base. So incredibly sorry that you went through this. It's care at it's worst. Love you sassy

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2012

    Dunes sounds like you may have the beginnings of the Bad bad bug. It moves quick. If it does advance , don't delay getting to your primary care doc.

    We all second guess what we have chosen. If you really are changing your mind talk to your MO.

    Also, talk to your primary about your meds, some can cause mild to severe sleep problems inclusive of dreaming changes and being emotional labile ( fancy words for wanting to cry alot, bursts of anger etc). Hugs hoping for improvement.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2012

    Sorry friends posting so much over last two days, but the obsessive complusive-OCD_ thing is in overdrive. The following will help all as well as Fuzzy.

    Fuzzy The following will only be able to be done when your head is back on straight. When they stopped your breathing with the IV push pain med, it wasn't that it was an overdose, it was more likely HOW it was given (pushed). Read the rant on ports a few pages ago. The section on speed shock, I mentioned cardiovascular affect only. When any med is pushed too fast it can get to the central nervous system(CNS) control center(medula)too fast undiluted by blood. This area controls cardiovascular and RESPIRATORY function. In the case of narcotics, if a drug is given too fast and undiluted(i.e in 1cc-3cc versus 10cc), it can "knockout" STOP or interfere with the cardio/vascular/respiratory work. Result on cardio is the heart malfunctions (weird rhythms or stops) and vascular(blood pressure drops out) or respirations are depressed( rate--slowed even to the point of stopping) and chest excursion reduced(respiratory muscles don't work right).  To avoid a negative affect on the CNS several things can be done. First--slow push which allows for further dilution in blood b/c the blood is flowing. Second--dilution, med drawn up in a 10cc syringe with saline or dextrose versus 1-3cc. First two already mentioned above. Third--position of upper body should be as low as possible, flat preferably. Problems can occur even if the above are followed, but are majorly avoided by doing these three things. Over the years, can't tell you how many times I taught the above to nurses.

    I even trained my patients in the above for self protection(as I hope all of you, can now do too). Also, trained my ambulatory patients that as soon as they called me for pain med that they pee and get back in bed and put their heads in low position. This avoids falls related to being under the influence of a drug that can drop blood pressure by getting up too fast to go pee. Regretfully, falls related to this are still very common nationwide, easily solved by having the patient pee before getting the drug.

    At the last hospital I worked at I had the total above discussion with the head of pharmacy. Convinced him that if only 10cc prefilled syringes used for dilution were stocked than the nurses wouldn't have a choice about using the prefilled 3cc versus 10cc.

    For completeness, there are a few meds that should be given rapidly in the smallest volume. Atropine and Adenosine and there may newer drugs I don't know about.

     So,---Slow push, diluted, head flat for IV drugs will keep you from having trouble. AND don't forget to pee.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2012

    OCD again.

    Paging the doc. When a patient asks for their doc to be paged and troubleshooting doesn't resolve the concern--no question the doc should be paged. Nurse refuses, you pick up your phone and call their office. If they aren't there, the answering service will answer. The shit will hit the fan in the nurses direction. Anyone admonishing you or any patient is WRONG. You have a right to have your concerns addressed if the nurse can't solve the problem.

    Fuzzy--your symptoms described to the doc the following "I told him I was having trouble breathing, I'm showing MORE sympoms and not less, I have a fever and just didn't feel right"  I'd be saying to myself "Oh shit". Oodles of troubleshooting here. Recheck temp/bp/heart(listen and ekg )/oxygen levels by pulse ox/respiratory concern pulmonary embolism /drug affect/Check wound--concern local and body wide problem--which the temp said it was a system wide problem not local . First rule of medicine is"do no harm" second rule that few have heard of is" If you LISTEN to your patients they will tell you whats wrong." The OH Shit thought, can't tell you how often patients go sour after saying something like this--You did. The phrase that it's put under is "a sense of impending doom". Probably the most responsive medical/nursing staff to this type of statement are seasoned emergency folks.

  • dogeyed
    dogeyed Member Posts: 884
    edited December 2012

    FUZZY, FUZZY, FUZZZY, OMG, my best girl is home and alive, and even has the okay to kick that man of yours in the ass if he goofs up.  Men are so weak about some things.  But now, I've got about an extra 20 years on you, so I called husband and told him I'd love to see him but he could also stay home if he preferred, because he is a disaster area.  Both of us are sick as dogs, so we're annoyed, but extremely grateful to be able to say hello as we pass by each other in the kitchen every hour or so!!!

    I finally found your regular email, Fuzzy, and later today was probably going to call you.  I did not want you to haul off and die without me giving you a little bunny hug.  Did you hear that Sec State Hillary Clinton got a tummy virus, was home and fainted, hit her head and got a concussion, and spent some time in the hospital, but apparently is so out of it that soon-to-be-Secretary State Bob Kerry said she had no business making any speeches to Congress or going on any trips. GOOD FOR HIM.  Hill was home when she fell down. So, just WHERE IN THE EFF WAS BILL???  Ye gads.  Now, HE'S REALLY gonna be in trouble.

    Sweetie pie, you must make your husband submit without killing him, and then convince him to send your daughters to the Bahamas, and then you two go to the best hotel within a couple hundred miles of your house with good food, room service, AND MASSAGE.  You'll need a heat pad or blanket, they must finish by putting you in the bed, and give you a list of dinners and a movie grouping to order up.  REST REST REST, child.

    I'm still a little sick, but at least I can breathe.  When I couldn't breathe, it terrified me.  I'm just glad I'm home with my doggie. And I KNOWS you are loving being home with your little doggie. Ain't we lucky!!!???  I LOVE YOU SWEET THING.  Always, Gail   

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2012

    Gail why are we up???????

  • ridergirl
    ridergirl Member Posts: 443
    edited December 2012

    FUZZY (((((big hugs)))) so glad to see you here. was worried sick just like all the rest of us of course.  So sorry you had such a horrible hospital experience, we are all supposed to believe that these are the people we can trust(in the hospital) and then something like this happens. So glad you made it through in spite of all your doctor's 'help' Smile

    Had a great time last night with mom and DF looking at all the lights, then went out for dinner afterwards. First time since I got sick that I've actually felt like going out to a restaurant, found something i wanted on the menu, and still felt well enough by the time it came to enjoy it. So big big night for me.

  • Alyson
    Alyson Member Posts: 4,308
    edited December 2012

    Fuzzy, sending you gentle hugs. That story about your treatment is just horrible so hard to believe. I really do think you should put in a complaint. Hope things get sorted.

    Big hugs for all

  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2012

    I'll bet Hillary fainted for the same reason I did. Stomach problems stimulate the vagus nerve which drops blood pressure, and out you are. I got a black eye from falling into the wastebasket (which probably saved me from a concussion from hitting the tile floor). Sounds like her concussion might be more than mild. As for Bill, do you ask your husband to come with you to the bathroom when you are going to throw up or have diahrrea? Actually, I do sometimes now.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited December 2012

    Alyson, linda, dunes.....xoxoxo

    Sassy...that is really helpful information. Thank you so much! My DH said they gave me too many doses of the Dilaudid while he was sitting there...I began to babble and look wasted and my temp spiked after the first injection so they gave me another which must have been the one that finally crashed my respiratory system.

    EVERYONE...its so special to read your posts...im honored and blessed to have you all in my life. Its cleansing and refreshing to feel so much love and concern, warmth and sincerity. I know how I feel about each of you and I can only hope you can feel some of the love I send to you...but the kindness you gave to me in my time of need was selfless and just makes me fall more in love with my sisters. Thank you all. Thank you.

    There's so much more I want to say but the letters get super fuzzy and hard to see...more later darlings! Big hugsand kisses! Gotta get all geeked up for my next infusion...blech....

    Wren, GG, Rider, Veggy, Special, Granny, Luvmygoats, Mama, Sassy, everyone....just wow. Thank you all.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited December 2012

    Fuzzy..so glad to hear your doing better. Had problems here, so had not been on. You take care, and be good to yourself. We need you. Love, hugs, and prayers.

  • crog234
    crog234 Member Posts: 801
    edited December 2012

    (((Fuzzy))) glad you are home. I haven't been on for a few days. What an ordeal you had at the hospital. Down right scary!!!



    I need to go back and catch up on the last few pages. Will do that just not tonight... I am tired so I am going to turn in for the night.



    Take care all



    Cindy







  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited December 2012

    I am so glady you felt up to checking in on us Fuzzy. What you went through at that hospital, though, that sucks big ones. That is horrible treatment. How dare they treat our Fuzzy like that! And I hope you get a humble apology from your PS. Man, were the planets in some sort of weird alignment for everyone to be acting so freaking uncaring? I don't know what to say about dh. I know that hurt you deeply, and he should probably be informed of that. And when you are feeling better, some intense make-up time should be scheduled. Embarassed Anyway, everyone is pulling for you; and I'm sure I heard a collective sigh of relief as each person ready your update.

    Regarding my cold: I actually have an appointment with my NEW PCP in the morning. My old PCP quit the practice! Thank you Obamacare! So I scheduled this appt to meet the new one. I guess she will have to check my chest while I'm there.

    Damn! Are you all ready for Christmas? I am NOT! My mother wouldn't tell me anything she wants, so all I have for her are a bag of socks she wants. Today she said she would like new blank VHS tapes and a VCR cleaning tape. Oh well. I WAS having to borrow money from her to get by, so it made sense then, but now I am getting the disability retirement, so I have enough to buy her something. Grrrr. Plus her birthday is January 6th. So, while we were out today she admired a smiley face spatula, so I think I will buy that tomorrow. I don't know if I will be able to finish the painting (just a little I promise) because I am going to her house for the solstice. I don't know what might happen with the Mayan calendar ending on that date and a major never-happens planetary line-up occurring. Then we also have the a-holes who don't like to let a "crisis" go to waste. I wouldn't be surprised if SOMETHING bad happens that day, so I am packing up my birds and going to be with my mom. Just in case.

    Of course, that means I will not be on the internet from the 21st, or even 20th, through at least Christmas. I'd like to pack my battery backups, but I don't know if I can get all that in the car. I need to pack a suitcase, take books, have my pill supply. Well, I'll get working on all that tomorrow. The bird cage is quite large. I can't believe how quickly Christmas snuck up on me!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    I need to breathe. Too much to do and I feel like I am not getting anywhere.

    My incision opened up again. Stupid radiated skin! Called the plastic surgeon. Probably have to go for another procedure this week to have it closed or have the tissue expander taken out. DH is behind on his work but will want to take me.

    My dear friend died early Saturday morning. I was there as her last breath excaped her mouth. She is no longer in pain. I've cried as she was getting sicker. I can't cry now. It will come some day but not now. Been helping family clean up the house. I have some things she wanted me to have. Now I am trying to find places for it in my tiny house. She was a cat lover and 95% of the things she has cats on them.

    I'm waiting on the plastic surgeon's office to call. I thought of some friends who might be able to take me. Hopefully DH will agree to let someone else take me. He needs a break. He can be stubborn.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2012

    Oh well notes to everyone went to the netherworld, all now are shorter

    Veggy condolences andhugs

    Dunes good luck with new Pcp,will be watching with you on Dec21st, looking forward to Dec 22nd. Enjoy your holidays with Mom. Congratualtions on disability coming through--I missed that post. What a economic relief whew.

    Rider --small joys of life enjoying a meal Yoohoo.

    Gail hope the chest is better. Bad bug

    Crog nice to see you-Hugs

    Linda-Ranch Welcome. I think you are a brilliant writer and agree with your PM thoughts about you doing it professionally.

    LMG's , soleria, duckyB,kathindic Hugs!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2012

    Fuzzy sweetie--yes Very happy that DBF is moving in, every day is better. So much to tell you, but that must wait. Till your brain is recovered.

    I'm analyzing your post sentence by sentence. First to help you understand and then to help others understand. Some might think it's beating it to death, but it was so horrific.

    You have seen the BLACK side of medicine and nursing. I hate it so. I have seen it too often with myself and family/friends and here on BCO. The only way I can help you and others, is teach how to protect yourselves.

    When you can either PM or have DH call with the names of your antibx's

    When your nurse changes your picc line dressing ask to wear a mask so you can look at the insertion site. Have your nurse teach you how to evaluate the site for infection. Technically patients should always wear a mask, looking the opposite direction just doesn't cut it from an infection control standpoint, but is the industry accepted standard.

    Part of my agenda besides above, I need you to understand that DH didn't abandon you. He trusted those caring for you. All that I have written or will write about with this failed experience will address that these nurses didn't know/forgot/didn't apply what is accepted standard practice to the situation. Otherwise it wouldn't have happened. A layperson seeing what is happening can't decipher-what is error/correct/untoward(unusual to expected and can't be predicted).

    What Linda-Ranch wrote about advocate is right on mark. I call it camping when I recommend the family stays in the hospital. Regretfully, Advocacy is actually becoming a growth industry

    Much of above is getting reposted to FRR as it will save time. Lovey-Hugs and kisses back Muah sassy.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited December 2012

    Wish Christmas was over. I know ....bah humbug....it's all bullshit....and not what the season should be about. To me it is an over-rated, commercialized, gift giving holiday, that fills the churches Xmas eve, and the majority will not go back till Palm Sunday, then back Easter.

    Ok, glad Igot that off my chest.

  • dogeyed
    dogeyed Member Posts: 884
    edited December 2012

    VEGGY, I wonder if they can just go ahead with the reconsruction with the skin they have.  They may have to trim a few edges, but at least it'll stick out fairly normally.  Of course, if you're trying to match up with a diff size, still looks like they could put a good-sized saline implant in there and a good saline snuggy incision holder, and pump the stuff in until it's the right size.  I invented that term "saline snuggy incision holder."  I have NO IDEA about these matters.  Veg, I miss your girlfriend, too. I'm glad you were there.  The shock will probably last a week.  I've lost three best friends at diff times, it's a significant event and just SO hopeless. One of my boyfriend ones sits in the car with me a lot.

    DUNES, you are sounding perhaps 1/4 smoother than before.  If we all go to another planet on December 21, I'll come by and say hi, gotta see them budgies and YOU.  I quit drinking 25 years ago, bit thought I'd pick up some Jack Daniels or Southern Comfort to make some whiskey sours, and see will husband just stretch out with me and watch a great movie on TV and order up some pizza stuff.  Just in case, you know.  I figured I'd put a long leash on our dog, too.  I picture everyone floating off into space.

    FUZZY, gosh it's good to hear you're settling in and relaxing like you're supposed to. Fuzzy, do you realize you created this thread, in your name, it's more than 160 pages long now, and you ain't too sure how come we all love you so much.  Gee, I can't imagine.  Maybe it's your ears.  Hahahaha.  I hope your puppy-ette is puttin some lovin on you, becuz that's exactly what we'd do.  Love, love, love, hearts and bunny hugs to my owne tru sister.  Always, Gail

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited December 2012

    Fuzzy and All ---next chapter. Already addressed the "How" of drug administration problems. Now to a very intrisinic and skilled area of administration---Titration.

    Quote:"everyone knew I was talking like I was wasted, the nurse injected another round of Dilaudid and then I stopped breathing."

    Overt overdose, using this word overt here to describe an overdose where more than the correct dose of a drug is drawn up and administered. Not the case for Fuzzy.

    Covert overdose, using this word covert to describe an overdose of a medicine given when the patient is already medicated with the same or similarly acting drug. This use of the word is my analogy and is not in the textbooks. (continuing to write, but IE is acting funny so saving as I go along). Technical definition from dictionary--secret: not intended to be known, seen, or found out. The part of the definition I'm using for the analogy is "seen". The patient has medicine inside their body, therefore it can't be "seen", but the affects of the medicine can be seen by physical assessment. The following concepts can be applied to all routes of drug administartion--oral,nasal,under the tongue,rectal, inhalation,topical, but all descriptions will refer to Intravenous-IV- b/c that is the problem being addressed. Also, b/c the problem was use of a narcotic, I will address that specifically. Assessment for other IV drugs i.e.blood pressure is similar, but focus is different.

    Keyword defined:Central Nervous System-CNS. Definition from internet: CNS--"nervous system excluding peripheral nerves: the part of the nervous system, consisting of the brain and spinal cord, that controls and coordinates most functions of the body and mind (emphasis mine). Impulses from sense organs travel to the central nervous system and impulses to muscles and glands travel from it.".

    Narcotics affect multiple areas of the brain. Previously described how drugs affect the medulla that controls Cardio/vascular/respiratory--narcotics affect all three. Not particularly heart, unless overdose--overt or covert is high. Significant affect on vascular and respiratory centers is dose dependent. The other part of the brain significantly affected is consciousness. Mild--feeling a bit spacy/high, to severe ---completely unresponsive. The affects of narcotics on the brain are on this spectrum of mild to severe and can be evaluated by the staff from assessing the physical signs. The physical signs primarily include: Level of consciousness(LOC), Blood pressure, respiratory rate and quality, and pulse.  Again all indicate how the CNS is functioning in the presense of a drug that alters activity of each control area in the brain.

    A concept in drug administration is "Titration". The dictionary doesn't even include a discription of how this word is used for drug administration. In giving a drug, the administrator in order to titrate the response needs to assess a baseline LOC, airway/breathing rate and quality -respiratory function, circulation BP/pulse-cardio/vascular functions. Commonly abbreviated --ABC's.  This is done preadministration which is the "baseline", during administartion, and after administration. Once basline information is gathered and decision is made to administer more drug, the first minutes after administartion are highly important. It is then that the amount of drug in the system is at it's highest during IV delivery i.e Drug in body + new drug given= total drug. Therefore, the most significant alteration of LOC& ABC's can be seen during this time.

    What went wrong with Fuzzy?

    Her Level of consciousness was altered "Everyone knew I was talking like I was wasted". She was already showing signs of significant CNS affect. What the administrator should have done is give small increments of the drug over one to two minutes, evaluate LOC&ABC"S over several minutes before administering any more drug. What I can only surmise from the fact that Fuzzy stopped breathing is the How(page previous) and Titration wasn't  done. A covert overdose because while the nurse had in hand the ordered amount of drug, she didn't base the administering of the drug on the "seen" affects of the drug. Thus, didn't titrate to response. Fuzzy stopped breathing. At that point a drug was given to reverse the narcotic affect. Fuzzy returned.

    I know my chapters are long, I previously stated I'm trying so hard to protect you all. To some it's way TMI, to others it's a gold mine.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    I finally have tomorrow straightened out My brain feels a little less fried. And my family is warned about causing any undue stressful situations. The phone has stopped ringing and I think, maybe, just maybe, I can get a shower.

    Hugs to everyone!

  • Wren44
    Wren44 Member Posts: 8,585
    edited December 2012

    Veggy, Condolences and hugs.

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited December 2012

    Hello everyone!! Ducky, Crog, GG,SAS, Veggy...thank you all...for real. What I would give to have had everyone in that room with me today, with my PS, DH and the nurse. Suddenly, the doc recognizes im depressed...whoa! News flash! I've been in therapy for over a year!! Then he goes on to tell me WHY im depressed and how I need to help myself out of this. He said there's a black cloud following me around....really?? I don't see it but whatever....and I KNOW WHAT HAS ME DOWN, HE DOESNT!! He thinks I bluffed my way thru treatments-being all "happy"... he thinks cancer is my problem....bullshit bullshit bullshit!!! Getting diagnosed was tough, treatment sucked, but I did it. The part that "got me" was changes that happened unfairly...months and months of shit put me here...sucky-ass people got to me...he now wants me on an ANTIDEPRESSANT! WHAT???? OH, because he knows my situation soooooooo well. Assumes im like his other patients. Assumes to know the depths and shallows of me. Black cloud???? Then tried to convince me im a survivor!!! He said I "beat it"!!! WHAT????? I know it can return...I know this. I don't live everyday like its the last one but I know the reality and that's my way...I know some gals like the idea of its gone and that's that...and that's wonderful...but its part of my life and the shit ain't sneaking up on me again. So, I just nodded my head...whatever. Yeah, he cares but im too fucking sick and tired to fight...or argue...or explain the last two years of shit I've been through.

    Sorry...long story short....I would have looooooved to have had a few of ya with me today.

    XOXOXXXXXOOOOOO

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2012

    If you get a warm, fuzzy feeling today It's me hugging you!

    ♥                                 ♥                                ♥

  • sheila888
    sheila888 Member Posts: 25,634
    edited December 2012

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