Possible lung, liver and bone mets...

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Velociraptor
Velociraptor Member Posts: 45
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

Hi, I'm another scared/concerned daughter trying to find out more so I can help my mum.

Mum's first cancer was treated via lumpectomy in 2008 then chemo and rads and was TN.

She seemed to be clear for a few years.

Jan 2012 found a growing cancerous tumour in the same breast/area of the last lump and they did a mastectomy, and removed as many lymph nodes as they could and they all tested positive.

Bone scan saw something in her knee - surgeon said its probs arthritis, but her oncologist today said it looks like it may be bone mets. 

Abdominal scan was done today and there were lesions on her liver that they need to look at more closely.

She also has a spot in her lung that was found in her xray that they are going to look at.

She'd doing bloodwork and an MRI this week and that will shed more light.

I'm so bummed about this. What is next? Onc mentioned possible palliative chemo... this just makes me want to curl up under a blanket and cry. :(

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  • leggo
    leggo Member Posts: 3,293
    edited May 2012

    Don't give up hope Velociraptor. If after further testing, this really is the case, there are many women on here with metastases to all of these areas and more. I myself had lung, bone, liver and brain mets at one point. My bone and lung mets have been stable for years, my liver mets have all but disappeared, and my brain mets are no longer visible. It's been six years and I'm still here. There's no reason your mother can't go on for years with the proper treatment. Don't let the word "palliative" chemo scare you. At this stage, every treatment is considered palliative.

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  • Velociraptor
    Velociraptor Member Posts: 45
    edited May 2012

    Thank you so much Gracie, this makes me feel a tonne better!

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  • beljmc45
    beljmc45 Member Posts: 19
    edited May 2012

    i really need to hear from a tn person who has mets to bone lung liver and has some good news this is my new adventure and i also have been a mess for weeks. i have 2 grandbabies coming this year. i am already starting to feel the effects in my lungs. starting chemo on the 29th. would love to hear from a tn person with hope

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  • Velociraptor
    Velociraptor Member Posts: 45
    edited May 2012

    beljmc45 - you are in the same boat as my mum. well further testing to confirm but so far looks like possible bone lung and liver mets and she is TN. and i hope to be giving her one more grandbaby soon as well.

    is this a recurrence for you?

    big hugs. cancer sucks.

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  • Karen2012
    Karen2012 Member Posts: 390
    edited June 2012

    Stupid question.... I'm new to the boards. What does TN mean?

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  • jenn333
    jenn333 Member Posts: 178
    edited June 2012

    Triple Negative - ER-, PR-, HER2-.

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  • Karen2012
    Karen2012 Member Posts: 390
    edited June 2012

    Thanks Jenn333

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  • joys
    joys Member Posts: 15
    edited July 2012

    Mum just diagnosed stage 4 mets to lung. Largest is 21mm, with multiple smaller ones. Elsewhere clear, but more beause she hasn't done any more tests! Initial lung biopsy results came back on Saturday and she is starting chemo (taxotere only) first thing tomorrow morning. Onco recommends 3 initial rounds to see how it responds, then possibly more. She was on femara for a v little while, then arimidex for about 2 yrs then tamoxifen. She's been feeling tired, had a fall 2 months ago and sprained her ankle. Then vomiting (suspected food poisoning), then possible bronchitis, then TB and of course the biopsy showed it to be lung mets. Waiting for results to show er/pr/her2 stuff.



    Anyone else been on AI then had lung mets and now doing chemo just taxotere?



    Onco says if there are mets elsewhere, taxotere will target that as well so I've advised her not to do any further tests now. Perhaps do MRI for bone and brain mets after initial 3 rounds of taxotere. Does that sound sensible?



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  • joys
    joys Member Posts: 15
    edited July 2012

    Mum just diagnosed stage 4 mets to lung. Largest is 21mm, with multiple smaller ones. Elsewhere clear, but more beause she hasn't done any more tests! Initial lung biopsy results came back on Saturday and she is starting chemo (taxotere only) first thing tomorrow morning. Onco recommends 3 initial rounds to see how it responds, then possibly more. She was on femara for a v little while, then arimidex for about 2 yrs then tamoxifen. She's been feeling tired, had a fall 2 months ago and sprained her ankle. Then vomiting (suspected food poisoning), then possible bronchitis, then TB and of course the biopsy showed it to be lung mets. Waiting for results to show er/pr/her2 stuff.



    Anyone else been on AI then had lung mets and now doing chemo just taxotere?



    Onco says if there are mets elsewhere, taxotere will target that as well so I've advised her not to do any further tests now. Perhaps do MRI for bone and brain mets after initial 3 rounds of taxotere. Does that sound sensible?



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  • putti
    putti Member Posts: 1
    edited December 2012

    hi everyone... iam from INdia and i need to know about metastatic disease...my mom was diagnosed first in  jan 2007 and she had bone mets in october 2010 and then liver mets in april 2012...she had MRM plus chemo the first time and then chemo again for bone mets..then  this yr october end she had spine surgery cause she had pain again...she took xeloda for 5 months..(one week off, one week on) so far her LFT and other blood tests have been normal so her oncologist said that "we will watch and wait". I am glad she is ok but her liver is quite enlarged and though she doesnt complain of pian, she has loss of appetite and feels tired a lot...so are there any of you who have an enlarged liver with liver mets??? 

    worried cause iam getting married in February 2013!! i want her to be there!!! :((

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