Starting chemo November 2012

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Politico~Since you're a couple of ACs ahead of me, I have questions.



    1. Feeling really down today (totally unlike me). Is it the AC? And will it go away before next treatment?

    2. I haven't needed any nausea meds yet at the end of my 6th day, does that mean, I'm probably in the clear?

    3. My eyesight is a bit fuzzy at times, almost like the room is just a bit smoky. Sound familiar?

    4. Do the SEs get worse with each treatment or is it basically the same?



    I came across a Taxol thread earlier this evening. It's fairly new. Just trying to get ahead of the game.



    Blessings

    Paula

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  • pands
    pands Member Posts: 80
    edited December 2012

    adagio - didnt have pins and needles during treatment but my hands went ice cold and they had to put heated blankets on them to warm them up ...wonder if that will happen with second treatment on monday...

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Adiago I would call the MO today because tingling in hands and feet was a question my doc asked me - call and let us know what's what....

    Girls it looks like a lot of you are having that "fire down below" issue from constipation to hemmoroids and all that peeing during/after the chemo .  I am going to try those wipes in the fridge - also clear aloe in the fridge seems to help.  Husband can't believe how many rolls of toilet paper we (I) are using...Surprised

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Sickofpink, Your book is in my Amazon cart...can't wait until May so I can read it and think of you...

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  • keetmom
    keetmom Member Posts: 432
    edited December 2012

    Have to share...DH shaved his head last night after I went to bed...So I am not the only one around here with a cold head!

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  • Dakota212
    Dakota212 Member Posts: 1,153
    edited December 2012

    Sick -

    What's the book ? I missed it I'm sorry.

    Keet-

    That's awesome!! I love that!!

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  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    Soteria - My understanding was that the side effects regardless of which drugs they use are cumulative.

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Keetmom - now that's true love!!! Smile

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  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    I totally missed that post Keetmom.  That was soooo sweet!!!!  Laughing

    SickofPink - what's the name of your book??  I just bought a Kindle Fire HD so I'm ready to download it in the spring!! 

    What a difference a day makes!  Woke up with some energy this morning. 

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  • maryah930
    maryah930 Member Posts: 322
    edited December 2012

    Copy and paste from my FB page, but is this happening to anyone else?

    Okay, if you're familiar with chemo, you know that you lose your hair. It's expected, no problem. You lose not only the hair on your head, but body hair, and in some cases, eyebrow and eyelashes. Again no problem, it's temporary, except in rare cases. What would be nice is if leg hair was included in this hair loss. Instead, it seems like the loss in other places is heading south to my legs. I mean, REALLY??? How unfair is that?

    My legs are hairier than they have ever been and I just got them waxed pre-chemo, but have to shave every other day. 

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  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    Maryah - Hair is leaving everywhere except my arms.

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  • Eleni
    Eleni Member Posts: 130
    edited December 2012

    Junebug, I don't know how your husband looks like but tell him you gonna rub his belly for good luck :-)

    5luvbugs, it's so funny how your husband reacts :-)

    Keetmom, that's so sweet.


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  • michellej1980
    michellej1980 Member Posts: 342
    edited December 2012

    Has anyone had sore or itchy eyes? The last few days they've been watery, but at the same time feel dry and are a bit sore.



    Thrush has cleared up and although my taste is better, I feel like I haven't got all my taste buds back. It's mostly sweet that I still can't taste properly.

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  • Eleni
    Eleni Member Posts: 130
    edited December 2012

    I have a lot of energy and I'm cleaning the house for Christmas...hmm...that sounds stupid. Oh well, I hope I can go out tomorrow for tea (no more alcoholic drinks for me, for the time being) and dancing. Will the wig stay or it'll be flying over the dance floor? Tongue Out

    Next week is my good week, so I hope I don't get a cold again and manage to get out of the house.

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  • Eleni
    Eleni Member Posts: 130
    edited December 2012

    Any news from Macyhen? It didn't sound very good at her last post.

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    ELENI- drink (water) dance and be happy and if your wig ends up on the floor just dip into it and put it back on..Go out and have a great weekend. No alcohol, no passing out!!!

    Let's all say a prayer for Macyhen and hope she gets some good news...Amen!

    Michelle, itcy,dry and watery eyes - doc says normal - hope your taste buds get juicy because there's lot of good food coming ahead - I can't taste much either but that doesn't stop me from eating - I ate better the first round now I'm eating junk, tired cooking all that good food...

    Junebug rub that Budda for me too- and give him a hug from the rest of us...Glad you got energized this week..I'm in my good week too, wrapped a lot of gifts.

    Maryah I still have some hair down south but haven't had to shave my legs or underarms since treatment, haven't had to trim my nails either. but tomorrow I have to go have my ingrown toenail trimmed...I'd rather have a pedi at least they massage your legs and polish your toes....

    Dakota our girl SickofPink  -- so proud of her...

    Where is sickofpink anyway and did Megan leave us?

    Soteria your SE's sound normal, 2nd TX was not as bad but tired longer..

    Hi there Jenifer and Pands, how are you girls feeling?

    OK girls that's as far back as I can scroll - if I missed you it doesn't mean I'm ignoring you  because

    "We are Family, I've got all my sisters in me" .....

    Love The Mom

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  • pands
    pands Member Posts: 80
    edited December 2012

    5luvbugs - thanks for the shout out...going for bloodwork and to see doc tomorrow...and it isnt even by regular one..i think mine is out of town...next chemo is on monday...and starting to lose hair..but DH doesn't want me to shave it off now....even though it hurts..i think he wants me to have more hair than him...lol...8)..will let everyone know how it goes on monday...

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  • powermom
    powermom Member Posts: 195
    edited December 2012

    Pands - Good luck Monday.  My head feels itchy (I think), or maybe it's just anticipation of what's to come.

    LuvBugs- now I will have that song in my head all day!! "We are family . . . " And I'll think of all of you while I sing it to myself.

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  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    Hubby is partially bald himself so I can always just rub his head any day of the week I want!

    Speaking of DH - we were married 16 years ago today.  Right before my yearly mammogram, we talked about getting away for this week on a cruise.  How plans do change with this diagnosis.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Txjunebug~Happy Anniversary!

    Yes, BC sure can screw up our plans, can't it? I'd love to go on a cruise. I hear they're fabulous. We haven't gone on a vacation since 1993. Sad, huh?



    Just make that cruise your plan for next year, to celebrate being cancer FREE!!!



    Blessings

    Paula

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  • politicomama
    politicomama Member Posts: 187
    edited December 2012

    Paula,

    Yesterday was AC 3.  I had them change the Zofran, as it was giving me a three day headache. they switch me to Aloxi,  no headache.  I have had little to no nausea and no vomiting.  I did have the severe constipation/diarrhea issues with cycle two.  I switch to Sennakot this time and so far no issues.  The tireds lasted a little longer with 2.  Yesterday with three i came home and slept from 7 to 7.  I'm tired today, but manganing work, and baby. Oh what the baby is out in the pantry rummaging, but at least is occupued right? :)

    Feeling down.  I hit rock bottom the Monday after my first AC. First day without steriods, and it was my birthday.  Second AC was a little low/weepy Monday/Tuesday, but managible, just not like myself.  I think coming off the steriods messes with your chemical balance in your body, among all of the other crap we are being pumped full of.  My little smart phone study video said it is normal.  My biggest complaint is the cummialitive fatigue.  Kids, work, wife, cancer.  It adds up. 

    Are you doing radiation.  We met with Julia White yesterday.  I am in love.  We had contemplated staying in town if radiation was nessecary but we were both sold.  Quite the doc.

    Keetsmom, my hubby did that too, and I about cried.  It's nice to not be bald alone!

    I noticed several of us are talking taste.  Spicy and chocolate seem to be my go toos. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Wendy~I too had headache from zophran. Lucky for me, it only lasted a few hours, but I'm going to ask them to change that.

    I was really tired on Tuesday, first day off steroids, and Wednsday I was in a funk. I've had no nausea, but can't taste much except Edy's Peppermint Ice Cream.

    When do the taste buds return?



    I'm having rads following taxol. Her name is Dr. quick.



    Even though, my SEs have been minimal, I really dread the next treatment, but look forward to getting this behind me.



    Blessings

    Paula

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  • maryah930
    maryah930 Member Posts: 322
    edited December 2012

    Off to treatment #2 today.  Such a long day.  Not looking forward to the Neulasta shot tomorrow although she did say she was going to decrease my dose because my bloodwork was so good the last time.  I want all, if not most SEs overwith by Christmas. Knock on real wood. 

    Hoping with this treatment the hair fall off my legs!!!!Tongue Out

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  • macyhen111
    macyhen111 Member Posts: 754
    edited December 2012

    Hi everyone I'm back. I have been going through a lot of test. I am now dx at a stage IV because my Bc met to my right hip bone. Thank God my brain and clivus bone is clear. My onc has completely changed my chemo and treatments. I am doing ok mentaly it is what it is. Thank you guys for all your prayers and concerns. Now that I know what I am dealing with I am ready to fight this cancer crap head on. My treatments start Monday.

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  • Tlym
    Tlym Member Posts: 115
    edited December 2012

    Maryah-Good luck today! I am off for tx#3 this morning-long day for me too, as I'm doing cold caps. Seven hours of scalp freezing! Hopefully it'll be a good weekend for the both of us!

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  • maryah930
    maryah930 Member Posts: 322
    edited December 2012

    Macyhen111 - I'm very sorry for the new dx, but many hugs to you. 

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  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    Macyhen - Sorry to hear of the new dx.  We will be here to send you hugs!!!

    Anyone on the CT regimen having issues with your kidneys?  I have to go to my family doctor this afternoon to rule out a UTI but MO nurse said it might be side effects from the Taxotere.   

    Also having sinus like issues but it's the lining in my sinus cavity is upset from the chemo, too.

    Poor hubby has to take me to the doctor on our anniversary.  He must really love me to put up with all of this.  Wink

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  • michellej1980
    michellej1980 Member Posts: 342
    edited December 2012

    I'm so sorry about your mets, macyhen. This disease is so scary. Did you have any symptoms or did you have routine scans? My onc has not even mentioned checking the rest of my body and I wonder why not. Have the rest of you had full body scans?



    Those of you struggling with coming off the steroids - ask your oncs about coming off gradually. I took them for an extra 3 days to cut down the dose gradually and found it much easier.

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  • macyhen111
    macyhen111 Member Posts: 754
    edited December 2012

    Michelle my dd suggested to my onc to do a pet scan and she did. That's how it was found. I have been having pain in my hip for a while but it only hurt when I was physically active. I was stunned with the news but so thankfull that it skipped all my major organs. My onc seems to be on top of things and for that I am very grateful. The new dx is a bit scary but I am ready to kick this cancer shits ass. I refuse to let this beat me, I am gonna fight this with everything I have in me.

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  • Dakota212
    Dakota212 Member Posts: 1,153
    edited December 2012

    Maychen-

    Sorry to hear, ur right kick a**!!!

    Maryah-

    Good luck!!

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