If you are not Stage IV but have questions, you may post here

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Bone mets scare - i phoned my onc to say i have had bad pain in my leg at night and its getting worse and i have nausea on and off.  I had no idea that these were in any way bone mets symptoms. I thought my bones would hurt in day not just night to be bone mets. I told them i hardly notice the pain in the day at all . They have me set up for bone scan already it is monday i called on friday afternoon. Anyone know about night time bone mets pain? Has anyone had this. I am just a bit surprised by their reaction.  Crossing my fingers and toes its not.

Thanks Rocket -sad to hear you had a fracture but happy to hear that there are other things this may be for me.

Well I will chime in to say that I have been having mild nausea the past couple days. I also have back pain, lower and middle.  Have had some pain around my ribs when I sweep barn floor but it feels muscular.  I have had 2 bone scans this year the last one was in June or July I believe and my last onc appt in October blood work was fine.  I am worried again!  I have an onc appt January 11 and for now will just chill and wait for the appt.  I hope everyone who is waiting on scans and results gets positive news!!!  ((HUGS)))

PS: Happy Belated Birthday Chrissy!!!

Happy birthday Chrissy!

Back again.....worried again....I know....right shoulder (same side as BC and recurrence) is giving me so much pain.  Also in back between shoulder blades.  Back aches at night and by in the morning I cannot get comfortable in bed....goes away once I get up and moving....may be the bed but even when in Vegas on another bed same issue.  Shoulder hurts all day.....aches when I am just holding it still....right on the top of the shoulder and down the arm to about 1/2 way to elbow....sometimes right hand will seem a bit numb.

Just a pinched nerve in the shoulder, right?  Had both pains for over a month.....both getting worse not better.  Have an appointment with Onc. on the 27th and had my last bone scan last December 22nd, 3 days after diagnosed with local recurrence....all clear then.  Will ask for another bone scan when I see him.

What do you guys think?

Wrsmith,

Definitely ask for the scan. It is important for peace of mind if nothing else. If it is mets, the sooner they catch it, the better. Fingers crossed for you!

Kay

GRRRRRRRRRRRRRRRR!  I am sorry you are still waiting for answers.  I dont think the doc's have a clue on how hard the waiting is! 

Beautiful picture Day, beautiful smile!!!

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Racy, They dont really know what causes breast cancer. Yes they have some pretty good guesses but they dont really know. I am the fourth in my family to have it and none of us were drinkers. One thing we have in common is that we all lived and I still live along the Mississippi River. My first onc told me there is a high concentration of many cancers along both sides of the river. Is it that?? we really dont know but I do think its a good guess. Theres not just one thing that stands out to make the river guilty but maybe a combination of things. I think there are different causes for most of us. Different causes maybe depending on what type of breast cancer we have. Over the years they have announced many things that caused cancer only to back track later on and find they were wrong. It's a crap shoot for now. Hugs

Here's to many more!!!!

@WrSmith - I too have had pain in my right scapula, shoulder, forearm, elbow area, and down to the wrist since my mastectomy with ALND (Feb 2012).  I contributed it all to post surgical pain, etc...   I finally saw a physical therapist because of the pain in July.    I have no lymphedema, but she did find some cording in that right arm, which does cause a numbing like sensation from my elbow down to the wrist on occasion.   My shoulder and back haven't been the same since surgery.   Looks like you had a DIEP??  You were on that operating table for a long time!!   And, if you're anything like I was, I really babied my right side after surgery.....I was very tentative in using it for awhile and I think I paid a price for that....frozen shoulder, some rotator cuff issues now, yada, yada, yada.   Sounds as if your pain is more severe than mine, but this is something to think about.  Maybe some PT is in order??   

Da y(love the new photo) and all, like you I have had shoulder pain since day one even though I did all my exercises and initially had excellent arm movement. Had similar treatment but then shoulder frooze and am slowly getting some movement back. Onc said that it is not uncommon. I have not had recon mainly because they had to take all the pec muscle so what movement I have is considered good.

Do have strange 'lump' on collar bone which is very painfull at present thought to be lymphatic thrombosis but it is being watched - grr. The doctors can feel the lump, see it, but cannot find anything on a scan. Must admit it does worry me.

My biggest problem is the fact I have rheumatoid arthritis and so have considerable pain so I and the docs put things down to the RA.

Questions for triple negatives who experienced a local recurrence after initial diagnosis.

1. How long was the time between initial diagnosis and local recurrence? 4 years, 1 month, 3 days

2. What was your tx after initial diagnosis? Lumpectomy, chemo (TC), and 33 rads

3. What was your tx after local recurrence? BMX with DIEP 

4. Did you go on to to have another local recurrence? If so, what was the time span between the two? not yet.....

5. Did you go on to develop mets after local recurrence? If so, what was time span?  not yet......

Thank you for your help - I am finding so little data out there and I need to know what I face.