June 2010 Mastectomy

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  • joystars
    joystars Member Posts: 95
    edited May 2011
    It's been really quiet here for a while. I hope is because everyone is busy enjoying their lifes again without the Cancer word chasing you.

    For me like I said last time I was around, chemo is over now! Three weeks ago was my last round and despite my cheerful spirits and happiness about being over it... the side effects of it hit me quite more. Oh the irony! Didn't throw up but I was in the border to it, felt super nauseous many times and on top of it the metallic taste didn't give in that easy, not fun at all! Oh well, it's over, it's in the past now.

    For Easter I had my sister visiting over for two weeks, was really really nice to see her and for her to know Vida Sofia. We had so much fun and I cried lots the day she went back to Mexico.

    Now in Norway weather is quite nice, with blue skies and sunny days, it feels like summer (sorry, we have very long winters here) and temperatures of almost 20°C. We are going out more often and even tho my hair is growing back and is about 1cm long and with very good coverage of the scalp, I'm still not bold enough to go out without the wig... hopefully that will change in the coming months.

    Today I started Tamoxifen, first time for the next 5 years. So Getty we are now on the same train, any advice, complain or good laugh about your experience with Tamox so far, is very welcome.
    I also joined the Tamoxifen thread here.... will see how it goes.

    So that's it. So far that's what the Frenchicans have been up to these past days. I really really hope everyone is doing good and enjoying the Spring time.

    Stor klem (big hug in Norwegian)
    Joy




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  • almagetty
    almagetty Member Posts: 316
    edited May 2011

    Hi Joy!

    I haven't checked in here for a few weeks, but decided to take a look at our thread this morning and was happy to see your post.

    I'm so glad that you're off the chemo train. Welcome to the Tamoxifen wagon. For me, the whole taking of tamoxifen has been completely nothing ... no side effects, no anything. I decided when I was about to start taking it that I wasn't going to read about side effects so that I wouldn't feel them by the power of suggestion. If something would have come up, I would have looked it up, but luckily ... nothing. :) I hope it's the same for you!! I started with the intention of counting down the 60 bottles that I would have to take over five years, but I forgot to keep track. lol

    Tomorrow marks 11 months since my mastectomy. These days the whole cancer thing isn't even a blip in my life. 

    Life is good here for my family. My younger daughter has been named salutatorian of her graduating high school class! Her graduation will happen at the beginning of June, two days after my niece's wedding. All in all, a much happier June for 2011 than for 2010! I'll take it! 

    Hugs to all!

    Getty 

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited May 2011

    reneemac- How did i miss your last post?  I hope your surgery went well back on 4/13!  Hopefully you'll pop in and let us all know how you are doing, feeling etc.  Are you happy with the results?  Glad to hear you had fun on your cruise and that you have another planned.  I'm jealous!  I would love a vacation.  I've always wanted to go to New Port Rhode Island and do the walking tours of the old mansions there.  It seems for the past few years I have either been pregnant, just had a baby or cancer.  Perhaps this year we will ditch the kids and go for a weekend.  I think I need to put a bug on my husbands ear:)

    Joy- I'm sorry to hear the chemo caught up to you in the end, but yay for being done!  I hope you have the same great results Getty has had with no side effects.  Enjoy the spring and summer with you DH and baby Sofia.  I love summer with kids, no socks, lots of skin available to kiss and they can explore!

    Getty- Congrats on your daughter being salutatorian and her upcoming graduation!  You must be very proud.  It sounds as though you do have a happy June ahead for you, we all do I think.  I hope your success of not having symptoms with the tamoxifen continues, I am sure it will.

    Spring has finally come to NH.  We have been doing lots of yard work and playing outside.  It feels so good to be out and about with the boys getting dirty.  It makes everyone sleep great and the days fly past.  Much better than being shut up in the house with two bored little boys.  My youngest is really starting to talk and repeating everything we are saying.  The other day he got a bug bite on his arm and he showed it to me, kind of concerned and I said, "it's ok it's just a bug bite."  He promptly walked over to my husband and showed him his arm and said "bug bite"  clear as a bell.  He's not quite 17 months!  It is amazing to watch a child grow.  I have two weeks to go for my tattoos.  I am looking forward to being done and not having any appointments on my calendar:D

    Happy Spring ladies, keep in touch and enjoy the sunshine!

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited May 2011

    the boys

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  • almagetty
    almagetty Member Posts: 316
    edited May 2011

    Laurie! The boys are beautiful!! It is so much fun to have little ones and watch them grow. 

    2 weeks until you're done, done, done! I can't wait to hear how your tattoos go. I still haven't decided whether I'm going to tattoo my graft for a better color match. 

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  • brazos58
    brazos58 Member Posts: 261
    edited May 2011

    (( Everyone ))

    Been checking in here and glad to hear everyone is in a so much better place than last year this time.

    It was a really long hard winter for me. I did not make it to my 6 month check up  w/o a chest wall nodule recur scare at 5 months. Been seeing Surg Onc every 6 weeks since decemeber. BLECH! US was neg. Now am under close recur watch for lypmh nodes under both arms for every 3 months.... I think I am angry for the first time since this all started.

    My lymphedema is under check, just swell if I over do it as its so easy to do now.

    I kicked butt in the yard this weekend, drove the tractor and weed wacked with my new Echo wacker...( i had waited for years for that wacker!)  But I did it and it rocked. I was totally hammered and got some sun.

    Just had my 1st cancerversary on 4/29.

    I am still having chest tightness with my incisions. Going foob free most of my days and just wearing them for occasions.  Not a drop of interest for recon.

    I am so happy it is now and not last year this time! Its 10 months since my surgery and I had no idea that it would take me this long to bounce back. Still have a while to go.

    I ditched my BS as he did not believe in LE and have another Onc BS.....

    Thanks for all your updates and pix. Sending you all love, light and healing.

    Hugs

    Brazos

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  • almagetty
    almagetty Member Posts: 316
    edited May 2011

    Good to hear from you, Brazos! So happy that you got to kick some butt outside. I'm sorry for your scares and hope that all of that is now behind you. I think anger is a good thing in some cases, like ours. What happened to us stinks big time.

    Keep healing ... :) 

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  • reneemac
    reneemac Member Posts: 73
    edited May 2011

    It's hard to say if I'm happy with the results because my left breast is still pretty swollen. This surgery has been a really tough one to recover from. My PS told me that he probably shouldn't have released me back to work so soon (after a week) and so he put me on part time hours for 3 weeks. I also had to see my GP because of the blood pressure being so high during my surgery. He didn't see a problem with the blood pressure but checked my lung capacity and found that they were working at 50% capacity. He put me on a couple of meds and it's been helping tremendously.

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited May 2011

    reneemac- I hope things have been improving and you're feeling better.  I have heard it is a rough surgery to go through.  Do they know why your lungs were only working at 50%?

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited May 2011

    My nipple tattoos are Monday and I'm getting nervous.  What if I picked the wrong color and am stuck with it?  It also feels weird to have done "the last thing".  This cancer crap and reconstruction seems to have dominated everything for a year.  Weird....

    Hope everyone is doing well!!

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  • almagetty
    almagetty Member Posts: 316
    edited May 2011

    So, Laurie ... how did the tattoo thing go? You must be so excited to have finished with that one last thing. Now you can kick stupid cancer and all it's accompanying friends right out the door. It doesn't belong at your house any more. ;)

    Everything is good here.  I'm glad to have my older daughter home from college for the summer. I'm finding it hard to believe that BOTH my girls will be away at college when fall rolls around.  Empty nest, here I come. :'( 

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited May 2011

    Getty- It went well- I think?  He said the color will look different once it heals and not to judge on how it looked today.  I panicked and changed my color choice at the last minute and changed to the one he preferred.  He's been right about everything else so why not this right?  It was uncomfortable, but not painful per se. 

    Empty nest...that is going to be hard! At least you are working now and that will occupy you.  Hopefully once you get used to it you will enjoy it.  But to not have either girl in the house- I can see why you'de be nervous!  Too bad we don't live closer, I could give you a dose of kid chaos with mineWink

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  • almagetty
    almagetty Member Posts: 316
    edited May 2011

    I'm so happy to hear that it went well for you with the tattoo! I'm sure the color will be perfect. Maybe it's something I can do in the fall ... I am regaining some feeling on part of the new nipple/areola, so I'm pretty scared that it will hurt.

    Thanks for the offer of sharing your boys! I wish you were closer, too! I think it's the quiet that's going to get to me most of all once both girls are out of the house. I do think there will be at least a couple of things that will be nice about it, but I know for sure it's going to feel ten kinds of weird. 

    Happy healing! ((Hugs)) 

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  • speech529
    speech529 Member Posts: 337
    edited May 2011

    Hi Everyone

    I have not been on the boards in a long while.  I see that so many of you are in various stages of treatment and recovery and I only hope that soon all of it will be long behind you!! 

    I can't believe the anniversary of my mastectomy is 6 weeks away.  Where did the year go?  Things got back to being very busy for us once I returned to work in August 2010.

    We've had our ups and downs here, too.  On Saturday, my oldest daughter graduated cum laude (double major) from the University of Arizona.  She is going to graduate school on a graduate fellowship at Clark University (Worcester MA).  I am so proud of her yet I am so sad that she will be all the way across the country!  In the midst of this happiness, my husband's mother suffered a severe cerebral hemmorrhage on Friday (she lives in India).  We found out during our daughter's graduation ceremony, so it was a rough day for him.  He left for Agra on Monday morning.

    It is a great sorrow for me--I was blessed with a very wonderful MIL and I love her so much--the last time I saw her was 2006.   I wanted to go see her in Nov 2010 with my husband, but my boss would not let me off work since I had taken two months in the summer for my surgical recovery.  I understood her point of view at the time, thinking that I would be able to see my MIL sometime this year.  Don't wait to do what you really want to do!!  

    We are having some gorgeous weather here in Phoenix...hopefully it will stay this way for the rest of May.  I am dreading the summer again.  I really wanted to go on trip (e.g. relaxing vacation) somewhere this summer to get out of the heat, but it's not going to happen.  I will be spending my vacation time moving my daughter to MA. **sigh** At least it will be out of the heat, right?

    Take care everyone...

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  • reneemac
    reneemac Member Posts: 73
    edited May 2011

    On June 2, I'll be celebrating my 1 year anniversary of my mastectomy. I saw the PS today for my 6 week follow up since the enhancement on the non-mastectomy side and I don't have to see him until November. My oncologist doesn't need to see me until then either. It will be so nice to have almost 6 months free of doctor's visits. I have been feeling pretty well these days. The left side is finally feeling normal and I have very little pain.

    Lots has been going on in my family. We are supposed to be looking forward to my step-daughter's high school graduation next week but since she is getting a "F" in a class that she needs to graduate, we don't know if it will happen. It is a day-to-day thing. Our 9 year old is almost done with 3rd grade and is doing well. My oldest just got his hours cut at work but he is being pro-active and looking for another job, in addition to perhaps working another part time job. My MIL has been in the hospital for a broken shoulder and then went to a rehab hospital for 2 months. She is scheduled to come home next week. Since she will have a walker and wheelchair, we moved her into the room where DH and I were as it is "wheel" friendly, The room she was in now belongs to DH and I. It's a 1000 square foot addition to the home and has a spectacular view of the valley. We have a loveseat back there and I come home from work to sit and look out the window, which goes the entire length of the back wall.

    Finally, life seems to be getting back to normal. Or what my PS refers to as my "new normal".

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  • joystars
    joystars Member Posts: 95
    edited July 2011
    Hello everyone! Very long time since someone posted something here. I want to think is because we all have moved on and continue with our lives post cancer battle. The "new normal" as I read on a book the other day.
    For me is being an amazing summer out and about almost every single day, enjoying my hubby (he is on parental leave until October) enjoying my beautiful Vida Sofia! She is 7 months and a half now and time is passing by so fast, each day are new adventures and the whole world seems full of more and more things to discover for my baby. I love it!

    Not long ago, about two weeks or so, the weather in Oslo started to be quite warm and this made completely impossible for me to continue wearing my beloved wig. Also I was thinking it was about time to move on and left the "cancer" thing behind... so I started to go out "commando" with no wig, no hat, no nothing on the head. Just my very short hair. and you know what? I'm happy... after only 3 months I have a very good length and coverage of my head. No curly hair so far but hair did change colour and quality. Oh well.. but I HAVE HAIR AND I AM HERE!

    So just wanted to come and check how is everyone doing, hope everyone is enjoying summer and perhaps holidays somewhere warm and sunny :) Wanted to share with you my new hair...
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  • joystars
    joystars Member Posts: 95
    edited July 2011
    New hair!
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  • joystars
    joystars Member Posts: 95
    edited July 2011
    And also to share a picture of my lovely baby girl, Vida Sofia!

    Vida Sofia is 7 months.
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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited July 2011

    Joy- Vida is gorgeous, and so are you!  I LOVE your hair and think you look wonderful.  I hope you feel confident without the wig, you should be!  It suits you.  I am glad to hear you are doing well and getting out and enjoying the weather and what summer has to offer.

    Renee- I hope your step daughter managed to pull off graduation.  I am so scared for when my little ones get older and then new stresses it will bring.  I hope things are gong well with you MIL.  It sounds like you have your hands full but are taking it all in stride, which is all we can do right?

    Speech- Congrats to you and your daughter for the graduation, you must be very proud!!  It's nice when our children give us happy things to  be proud of.  I am so sorry to hear of your MIL passing.  Losing someone you are close to is so sad and I hope your family is dealing with things ok.  It's never an easy thing.  No matter the physical distance between you.

    I hope moving your daughter went/goes well.

    I am glad a few of us still check in, we went through so much together and I am forever grateful to all of you.  We have had such a busy summer!  We've been going camping and it seems like we take day trips all the time.  To the lake, the city a friends whatever.  When we aren't running around we are just playing in the yard and swimming in the pool.  My oldest. 3 1/2 is now confident enough to swim on his own with his life jacket (with us watching of course!)  and just takes a tour of the pool screaming watch this!  It is very sweet.  All here is really going well.  I am not overly thrilled with the tattoos I got.  I don't care for the color at all.  I go back in August and see the PS, I may decide to go back in the fall and have work on the coloring.  No way I am going to do anything about it now, possibly not ever.  But it is, what it is and it is a bit disappointing.  For the grand hurrah- it was more of a flop in my opinion.

    Happy Summer everyone!

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  • reneemac
    reneemac Member Posts: 73
    edited September 2011

    Joy - Your photos are beautiful!

    My stepdaughter did graduate with honors since they took her GPA from the end of her junior year, which didn't take into account any of her senior year classes. She did end up getting a "D-" in the class she needed to graduate and it was enough to allow her to graduate. Two weeks after graduation, she moved in with her mom. Our guess is that our rules were too strict for her. Since she moved, she's lost most of her friends and fights with her boyfriend since he didn't support her moving 50 miles away from him/us. She's going to school part time and looking for a job since the one she had with us she quit.

    On a happier note, my stepson from my first marriage is getting married tomorrow and my son is in the wedding. We are so excited because my stepson is 33 and we didn't think he would ever get married! My 9 year old daughter and I have new dresses and we are taking my son's girlfriend along - they've been dating for 6 months and are pretty serious. We've already met her parents and brother.

    MIL is doing pretty well. She reads most of the time and just lays in bed. My husband moved his business home so he could make her meals and give her the medications she needs. She used to do geneology on the computer all the time but now she has lost all interest in it and the computer. I don't think that I could live like that but she seems to be okay with it.

    We have two months until our next vacation, which is a 5 day cruise to Cabo San Lucas. It is the week after Thanksgiving and just my husband and 9 year old daughter are going. Hopefully my annual mammogram and doctors visits will be done before then.

    Hope everyone else is doing well. Check in if you can because I'd love to know how you all are!

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  • speech529
    speech529 Member Posts: 337
    edited October 2011

    It's been too long since I've visited all my June 2010 sisters! Joystars...you are so BEAUTIFUL!!! I love your hair. Vida is like her lovely mama!



    reneemac...gosh life is like that with ups and downs...I hope your stepdaughter settles into adult life, finds her calling. Congrats on your stepson's wedding! You are obviously a very loving lady who has remained connected to all the people in her life. Our DDs are going through the early 20s trying to figure out what they want. It's hard for me to let go and trust that all will be okay in the end!! It will.



    Laurie...so glad you are enjoying your beautiful boys. I am sorry about your tattoos. This recon business is imperfect. My MX breast scar is tight enough that the indentation can be seen through a bra and t shirt. Still not used to the numbness.



    I don't think about June 2010 very often. Recently I told my husband that I was very stressed about something and it was the most stress I had ever experienced. He said, "even compared to last year?". I honestly had to stop and think. I guess time helps us to move on. I was stressed last year but I got through it.



    "everything will be okay in the end...and if it's not okay, it's not the end."



    Take care.



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  • lucylou
    lucylou Member Posts: 49
    edited December 2011

    It has been a very long time since i was last here. But hope that all of you June 2010 gals are doing well. And I just wanted to wish you all a Merry Christmas and a Happy New Year!!!!!

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  • reneemac
    reneemac Member Posts: 73
    edited January 2012

    Just wanted to revive this for the June 2010 ladies. I had my nipple reconstruction on Friday. What a difference between surgeries - I was awake in the PS office and talking to him the whole time. He did cover my face so my germs wouldn't get in the cut that he was making. The nipple is HUGE but he did warn me that it would shrink over time, probably to half the size. I had a little bit of stinging when he put the local anesthesia in, but no pain at all since. I unveiled it this morning for my first real shower since Friday (WOO HOO) and now have to bandage it back up until I see him a week from tomorrow.

    Otherwise, everything has been going well. Still on Evista and no side effects. My mammogram on the left breast in December was all clear. No recurrence of cancer and I am thankful for every day, and for you precious ladies who started this journey with me.

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  • MRDRN
    MRDRN Member Posts: 537
    edited December 2012

    Hi Ladies,

    It is that time of the year again to be grateful for our blessings.  I wanted to revive this thread as well :)  How is everyone doing?  I am trying really hard to be positive and "move beyond" BC, but it is always lingering in the back of my mind.  A cough I have had for a month that will not go away...of course I think the worse!  I also feel like I need a better Primary Care Doc.   My goal for the new year in to get better primary care.  Loose weight, eat better,...the usual.   Hope to hear from you other June 2010 ladies. 

    Happy Holidays to you all,

    MRDRN

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  • Laurie08
    Laurie08 Member Posts: 2,891
    edited December 2012

    Hi MRDRN!  Great to hear from you!  I too have a hard time getting past it all at times.  Things are going well, hard to believe that my son who was 7 months old at the time or surgery just turned three.  Time flies. 

    There aren't many ladies still active on the boards from when we went through our surgeries together.  I am so grateful to all of you for being such a support to me and helping me through such a difficult time.  I am still active through a cooking thread I started called So whats for dinner?  It is a great group of people and it keeps me addicted to BCO.  I try to stay away from the active topics....it's hard to separate yourself at times.

    Keep in touch, I have this thread on my favorites so will see you when you pop up.  Hugs to you and your family and a healthy New Year :)

    Laurie

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  • MRDRN
    MRDRN Member Posts: 537
    edited December 2012

    Hey Laurie!
    Nice to hear from you too! I should check out your thread.  I just bought a Vitamixer, um for my husband ;) and have been trying to eat more raw foods, and find good recipes. I have been taking IT classes.  The amount of support from this site really gave me the idea! It was so helpful at the worse time in my life!  Yes, I will keep this bookmarked as well and have told several about this site, so I still need to check up with them!  I bet the little one keeps you busy!  I remember being very inspired by you going through surg with a baby in the house. 

    Take care!

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  • joystars
    joystars Member Posts: 95
    edited September 2014

    So long time since the last time I logged in here, time really past us by so fast.
    Luckily, no bad news to report, just thinking about all you beautiful girls who were with me during the most difficult time in my life, offering support and answers to my one thousand questions....
    Life goes on. The past 4 years have been filled with different changes,  beautiful memories, traveling, birthdays, and my daughter is soon to be 4!
    I started to work again, we are still in Norway and I never got that implant for a new boob done... well at least not yet, but I'm pretty happy with the foobie from Amoena.

    So yes, blessings to you all brave girls from the June Mastectomy 2010. Wish I could meet you all in person one day....
    Take good care!
    :)

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  • reneemac
    reneemac Member Posts: 73
    edited June 2017

    I thought about all of you today, the 7th anniversary of my surgery. That's incredible to think about! So what's been happening since I last posted?

    I am seeing the Oncologist once a year. I still have mammograms on my left breast and now wish that I would have gone for a double mastectomy. At the time, I didn't want to do it since it wasn't medically necessary, but I now understand why people would choose to do it. I never had the nipple tattoo - the PS never followed up with me on when the tattoo artist would be available and I decided that it really wasn't needed. I have no feeling on that side and the breast kind of looks lumpy in places, but it's mine. The left side is bigger (I call it my "enhanced breast", due to the implant that the PS put in.) I wear sports bras only and have found that they are more comfortable than anything else. I've had clean reports since the surgery and am now off the meds, so I can almost forget that I had surgery! Until I look at the fake boob.... I did have my gallbladder removed last September. I think the pain of that was worse than the mastectomy!

    Family is all well. My stepdaughter has broken up with the BF, moved back into town and we see her pretty frequently now. She's working and seems to be happy. My son got married in 2014 and he and his wife have a 16 month old son - my first grandchild! They live with us now due to a job loss and are saving money to move out. The bonus to all of this is that I get to see the grandson every day! My MIL passed away in January of this year. We are still going through her things and dealing with medical bills that are never ending. My daughter is 15 and going to be entering her sophomore year of high school. I am still working full time and moving closer to retirement age. My husband is still working and will be long after I stop, since he's 9 years younger than I am.

    We are still cruising for vacations and leave at the end of July from New Orleans, where we have never been. We are spending a couple of days before and after to explore the area.

    If any of you still read this, I wish you the best and give us your updates. Take care!

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  • speech529
    speech529 Member Posts: 337
    edited August 2017

    Hello Sisters

    It's been 7 years since surgery-I had my surgery on June 28, 2010 and it's hard to believe it's been that long! My health is good, and life is, too. At the time of my surgery, our two daughters were in college. They are now on their own--one is a very successful history teacher, happily married. The other is a talented critical care/trauma nurse.

    I am still working full time in speech-language pathology and blessed with the stamina to keep up with my tiny clients!

    My DH retired a few years ago so he now takes care of all the household duties--lucky me!! We are traveling several times a year--our passion is hiking. We leave in a few days for a hiking trip to Colorado. Hopefully we'll get to do another 14er.

    There are times when I stop and think about diagnosis, treatment and recovery--it was a lot to go through. I go for annual mammo on the left breast. I don't see an oncologist but sometimes wonder if I should. I never did radiation or tamoxifen. Hope the mammo was enough to kick the a** of DCIS.


    God bless you all


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  • reneemac
    reneemac Member Posts: 73
    edited February 2018

    So on Friday, I received a letter from the Breast Imaging department at my local hospital, regarding my mammogram, which was done last Monday. It said that something was found (but it may be nothing) and I should contact my doctor for more information. When I contacted his office, they had not received the report yet. The doctor needs to review the report and he's out until next week, but there is another doctor who they will call to review it and I should hear next steps soon.

    My implant on the right side is flatter than normal and the doctor thinks it could be leaking, so I am hopeful that is what was found as they did a "soft" image of the right side, since there is only the implant there. I remember when discussing the mastectomy with my surgeon, he brought up that some women choose to have both breasts removed for cosmetic reasons, and to ensure that they won't have issues going forward. I have re-though that decision many times because at the time, I figured if it wasn't medically necessary, why do it? Depending on what I hear from the doctor, maybe I should have done it.

    Not knowing anything is the worst!

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