taxotere side effects
Comments
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You are welcome ladies - I really thought they were useful too. As we all know sometimes it is hard to keep all the SEs straight from day to day! Glad that they will work for you!
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Adding my thanks
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Ok so did you all loose your hair?
Im having #3 chemo Weds and ive still got hair not all but some??
Also any of u get lower back pain every now and then??
Thanks -
Traii - I went after my 3rd treatment and had my hair buzzed off. I had lost some, not all but it was really thin so I just decided to have it shaved off instead of waiting. I sometimes wonder if I should have just left it but I had found a wig so just decided to go for it. It is growing back now, of course it is still falling out some also, so I will be using the wig for some time I am afraid. I just finished my 5th treatment November 29 and will go for my 6th on December 20. I asked the onco if it would continue to fall out and he said yes, which seems strange, your hair grows back but yet falls out, does not make sense to me. As far as the lower back pain, I have not had that. I am having some today along with some other bone pain but I am attributing that to the Neulasta shot I had on Thursday.
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Thanks Jeanie
Amazing that the hair grows back and falls out again.....I will speak to my onc on Wednesday when I go for 3rd and final Taxotere !.
I've been wearing my wig too....hair is way to thin to not wear one...lol I'll be scaring a few people if I didnt' thats forsure !
I normally have the lower back pain after Neulasta shot also however as I haven't had one in almost 3 weeks I'm a little concerned its not something else! this too I will bring up with onc on Wednesday !
Hope you're doing well and will get back to you soon
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Hi Traii - I have had lower back pain with Taxotere, this time not Neulasta so think it's the Taxotere. I had FEC before the Taxotere/Herceptin, still had a bit of stubble after three FEC but since Taxotere/Herceptin that has gone also.
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Hi Websister, you put my mind at ease a little until Wednesday...thank you
I know i have pains at the first week due to shot and taxotere but normally not towards the 3rd week .
Thanks again:) -
Hope it's all good for you next week with your chemo, Traii.
If you are having fever, urinary frequency or pain on voiding though you should get checked out sooner, back pain can also be caused by urinary tract infection. -
Thanks Websister...chemo this Wednesday
Urinary frequency is all Im having thats due to lots of fluids as its hot down here -
Trail, Yes I did get lower back pain on taxotere. I got yanked after two treatment for other ses, then switched to taxol. Everybody kept reminding me that ses are cumulative, so maybe your back pain is just the ses adding up . Glad its your last one coming up. It's an accomplishment to finish.
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Thanks for the reassurance cowpower. You and Websister have put my mind at ease a little more.
Yes thank goodness its my last one coming up...not a nice drug this Taxotere.....! but definetely an accomplishment to finish it up and prepare for my next 3 rounds of CMF..Thanks again
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unfortunately every time I start something happens, first was the abscess, last week it was diverticulitis and was hospitalized for both....and off again, started in august and it only lasted 3 weeks before the abcess.....
sandy
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Just wondering if anyone else has had diarrhea past the first week of treatment. I had it on November 29 and today it is bad again. I had a liter of fluid along with a Neulasta shot on December 6 but these have never bothered me before. I do not remember having it this long after, usually it is about the 3rd or 4th day through about the 9th or 10th. I was wondering if something else is going on or if this is just normal. Also I do not seem to be bouncing back as quick this time, it was my 5th treatment so maybe it is just building up.
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Hi Jeanieb - I had diarrhea into the third week the first time, not so long the second time. It started sooner this third time, I will monitor to see how long it lasts. You should call and check with the oncologist or triage nurse if you are losing a lot of fluid with it. They may want to bring you in for more fluids and/or get a stool specimen to check for any bugs.
I definitely didn't bounce back as well after the second Taxotere and I am finding myself even more achy and tired this time. Thinking it will be a bit of time before I have energy again.
Take care ((())) -
Checking in after a long weekend on the couch! Taxotere is kicking my butt...day 6 and still feel like crap. Some of the aches are a bit better though I think. My tongue is still horribly sore and looks like a shriveled prune but not thrush. lol Let's see...sucked on ice during infusion, using Biotene and soda/water rinses. Guess I am doomed to this SE! Major joint and muscle pains seem a little better this morning so there is light at the end of the tunnel. Still some burning on bottom of feet and tingles in fingers but it's tolerable now. Mostly it is just the pure lack of energy and crummy feeling mouth! I never thought it could be so difficult to stand at the sink and wash a few dishes!
Hope everyone is doing ok today and got to enjoy some of this past weekend.
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Hi Halfcan, good to see you here! I think I will join you here, as our October thread seems to always be on the quiet side. Besides, Taxotere is on my brain these days -- so this thread seems more appropriate!
Hi Ladies~! I am new to this thread but am due for treatment #2 tomorrow. My WBC and Neutrophils are VERY high. Much higher than the normal range. I am hoping this is a good thing, and maybe even that I can reduce my number of neupogen shots! (wishful thinking). Did anyone else notice their counts did better on taxotere?
More alarmingly, they did a ferritin serum test, which I assume was to test for iron deficiency, and the results came back 6x higher than the acceptable range. I have too much iron in my blood??? And I'm a vegetarian! Does anyone know if taxotere or dex or even neupogen would cause your body to absorb too much iron? I'm concerned by my high numbers! Strangely, my drs office has not gotten my blood test results yet, so I can't discuss them with them yet (I can see my results online). I see a whole host of problems attributable to too much iron in the blood, and now I have something new to worry about!
Halfcan, my tongue was also swollen and my jaw hurt when I tried to move it. I was going to ice tomorrow like you recommended, but it seems that it didn't help?!?!
Also, my fingernails have been tender. Didn't ice the first time. Debating between icing and using sally hansen hard as nails clear polish, or painting my nails a dark color. I've read that taxotere is light sensitive. For those of you who have tried either the icing or the dark polish, do you have a recommendation of one over the other?
Thanks!! Gearing up for tomorrow. Had a rough time the first time, and am hoping for a better outcome. And halfcan, I had my treatment on Tuesday, and although it was rough, by Wednesday of the next week I was feeling better than I have in weeks! I hope you can get through these se's and feel amazing like I did!
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Hi fight4two-I too have Taxotere on the brain. Lol. I have clear polish on my finger nails and I iced them. Even so...I have a bit of tingling but the nails are not tender. Try everything possible!!! Strange about the iron! Hope you get that worked out soon. As far as icing your mouth...I was nauseas and couldn't keep icing the while time. Maybe next time will be better. I think the steroids and lack of sleep was upsetting my stomach. Best of luck tomorrow. Want some company in your pocket? Hugs.
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Halfcan, I too couldn't walk with the pain of like tingly pins and needles(and not in a funny haha way pins n needles) ...took me from Day 5 to Day 13 to come good...still get a little tingly at times but manageable....I could hardly walk let alone stand but I needed to get things done
I even called my onc to see what I could do and he said moisturise...yeh good for dry feet but didn't do anything for the pain or tingly
Glad you feeling a little better now.
Jeanie I had a little 'running to the loo' episode the last week. Nothing too severe but yes...i think some of the SE's have accumulated as we go on and do more Taxotere treatments.....don't you think ?
I too iced my nails on chemo # 2. I still had tenderish nails but nothing compared to my # 1 chemo where I had my hands all peeling and nail beds were achey....though I'm due for chemo # 3 tomorrow (final Taxotere
) and one of my thumb nails looks like it is going to lift and take off
I have been putting Sally Hansen nail hard strengthener on my nails and painting my toe nails ( I always have I just can't stand no colour...lol) toe nails are ok
fight4two I too heard that Taxotere is light sensitive, my onc recommended a hardner but I'm going to go the dark purplish colour nail polish tomorrow with the ice gloves ( just to be safe) ... lol can't harm doing both , 2 is better than none ! along with the hardner underneath the polish and on top....(think I have my nails 'covered')
Icing the mouth, I did that, I 've sucked on lollies too ...I think the lollies worked just as good ... can't stand to think of icing mouth, fingers and feet all at the same time so have my lollies ready for tomorrow along with ice for my feet and as for the hands my chemo room actually had one lady that left behind for other women whom wanted to ice their hands the ice gloves.....so i'm calling my chemo nurse today to remind her to put them in the freezer for me
Good luck for tomorrow fight4two looks like we have chemo together ... I'll be thinking of you.
Remember WE CAN DO THIS LADIES........KILL KILL FIGHT FIGHT Taxotere SE's we got you!!
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Best wishes tomorrow traii and congrats on finishing Taxotere! How about I hop in your pocket too? Hugs.
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Thanks Halfcan......yes please,come along in my pocket hun ! hugs to you too
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Traii and fight4two - I'll be there in your pockets with Halfcan (Halfcan move over
My nails were doing OK until last night, the right fourth finger got squished between my recliner handle and my water bottle (don't ask me how, only I could accomplish this), I think I will now lose that nail. The others have been sore and ends of fingers tingly but they are starting to settle down today. I didn't do icing or nail hardener.
Went out today to visit my Mom in the hospital and then for groceries. Wondered if I would make it through the checkout aisle near the end. Happy to be home and back in the recliner for a bit. -
Traii and fight4two - You better have a very large pocket or else Santas bag because I am coming along with you all. I hope that the SE are so minimal this time and the time will fly by so that it is just a distant memory before long.
websister - Thanks for the info, at least now I feel like it is just another side effect after all. I took Imodium and it does help so I think it is just from the Taxotere, plus this is my "on" week of Xeloda and I started that this morning, but it usually works the opposite on me, at least it did until I started on Tax.
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Websister & Jeanie, you two are more than welcome tp come along, the more the merrier in my pocket (its got to be a big pocket so might take that Santa sack...) lol
ouchy Websister, I'm not going to ask how you managed that, I know that I've managed crazier things that people think what the !!
Hope the nail suprises you and hangs in there. Good to hear that you didn't do any of the icing or polish and still kept your nails on Taxotere
Hope your mums doing well and well settled in by now enjoying her new place
Ahh thank goodness for recliners......I picture you feet up, cuppa on one side, bottle of water on the other and remote sitting on top of the recliner....ahhhhhh picture perfect
Lunch time here....yummy subway ( I was too lazy to make mine and hubbys lunch today ) !!
Good night sisters........x
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Back from treatment #2. Painted my nails with sally hansen and iced them with peas. The peas were not as cold as I expected (so maybe didn't do as good a job) but regardless, should be better than the first time. The nails aren't hurting yet, but I don't remember how soon they hurt the first time. Plus they are cut short this time, and were left long the first time.
My reaction to the dex doesn't seem as bad this time. So far no swallowing troubles and no tingly red lips. Just the extreme exhaustion. I get pale and tired with dex instead of red and wired. Unfortunately, due to my SEs the first round, my MO has prescribed MORE dex for me (two more days - five total!!! but 2 a day instead of 4 for the additional days) and a drug called protonix for my esophogas swallowing issues and severe abdominal pain. I hate the idea of taking more drugs and don't know what to do! The dex is because on day 4 post treatment, I woke up looking like I had my wisdom teeth taken out and I had facial pain/swelling from below the eyes to the chin. He thinks this was an allergic reaction to the tax. So far my esophogas is fine, and I want to skip the protonix. I also hate the side effects of the dex, but I guess I should take the extra two days. It would be great if it negates the facial swelling, but since so far my SEs are different, who knows if it would have come anyway??
Anyone else get a script for protonix? I think its also called pantoprazole. I think I will write my SEs down this time as I am really having trouble remembering what happened round 1 and when.
Halfcan, did you find a solution to the terrible tongue swelling? I definitely had that, to the point it was painful to try to stick out my tongue and brush my teeth.
I think I am due for a 20+ min walk on the treadmill, altho last time the balls of my feet got really red and tender (kind of blistery). She gave me my tx on the arm opposite my tumor side, and I always feel like the tumor shrinks more when she does it on the same side. Not sure if I'm imagining things or its coincidental..... but worry that my circulation is so poor that the drugs don't make it over there! The positive is that today my MO measured my tumor at half its original size! Hooray! Its working!
Traii, hope your infusion was uneventful. I usually feel pretty good day of, so hope you are feeling good so far too.
Thanks to all who were in my pocket today!
I needed you guys!
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Fight4two - I know what it's like not to want to take more meds but I think you should take the Dex for sure, the symptoms you describe from last time definitely sound like an allergic reaction, not to be taken lightly.
I am on pantoprozole and it works well, I haven't had any side effects from it and it is really effective for the acid reflux and pain. We do what we have to do to get through this, it doesn't mean you will be taking it long term.
Wonderful news that the tumor has shrunk by half
The balls of my feet were burning as I was walking around today, not fun. Hope you were able to do the treadmill. Maybe if I was still in your pocket at the time I got some of the benefit
Goodnight, hope it really is a good one for both you and Traii. -
Well # 3 went good for me and sounds like you did well to Fight4two
I think from memory my finger nails started becoming tender around the day 3 mark onwards and my feet around day 5 - 13 however I can feel them a little tingly this evening.
My onc said that they are dry and to moisturise every 1 hour for the first few days......and take panadol or ibrufen to reduce pain and swelling .... easy for him to say re moisturise considering I have a almost 3 year old that loves to keep me on my feet and way too hot here to walk around with socks!
I don't like Dex however as Websister says ,we gotta do what we got to do......I have 8 mgs in morning with food and 8 mgs in the arvo with food and thats for a day before and 2 days after. I asked my onc if I should have it for 5 days and he said no.....
I had facial swelling ( not extreme but to me noticable ) the first and part of the second tax...this time 2 days of having the DEX i don't have any swelling, actually my face is thinner
Thanks to all that were in my pocket and Websister on my shoulder......you all were helpful too
Heres' to minimal SE's for us Fight4two
I need to get out and partay, have 2 this Saturday so lets keep the balls of our feet to a minimal so we can walk.
sorry to hear Websister you are getting the pain on your feet too..... I iced my feet but don't know how it will go....guess like everything these side effects with suprise us when we least expect it..its like waking in the morning and not knowing what sort of day we will have so I don't like to 'plan' anything as such until I know if I'm getting out of bed with 'good ' balls or not...lol oh and hope your finger is better from getting them inbetween your recliner !
Good night all, its midnight here and I'm feeling kinda run down right now..... enjoy your day xx
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Will be going for #3 on Monday. The taste issue and fatigue have been my worst SE so far. I have had feet issues for the past 5 years or so with the tingling and burning. I went to a podiatrist and it was neuropathy caused by my extremely high arches. Basically she suggested orthotics to keep pressure and my weight off the balls of my feet. It helps minimally. Depending on the shoe I am wearing, the tingling and eventual burning pain kicks in from 4-5 hours in....So this SE for me is old hat. Maybe buying some shoe inserts from the store would help some of you. Good luck.
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Mouth fuzzy feeling is starting for me now schoolmum its horrible.
I bought some nike thongs that have padding...they seem to be ok at this point. As its summer here I like getting around the house barefoot but killing me on the tiles
Might give the shoe inserts a go for weekend..thanks for the tipjyst hoping i dont get sore feet but onc said i got it last round so sue i will get it again
Good luck with #3 on monday! -
Hang in there, traii, websister, fight4two, schoolmom, and everybody still on taxo. It does get better. Im 10 weeks pfc, just ditched the headwears (that sure felt the best), and starting on trying to get my life back. I still have herceptin every three weeks but im not waiting for that to be done to start my efforts back to normalcy.
Just stay with it, bear with the se's, and it will be over one day.
Prayers and hugs to all! -
Well back on Tax next wednesday, unfortunatelly everytime I get it I get sick....Started in July, 3 weeks on a week off, did 2 1/2 rounds and got hospitalized for 12 days because of the abcess, then took about a month off and then started again, 1 1/2 round of 2 weeks on a week off and then hospitalized for 5 days for acute diverticulitis.. now am going to try it again cause they keep telling me that getting sick is not a result of the chemo, although could contribute to it, but only b/c of the white count.....for me, I am on it until it doesn't work and then on to another one!!
Sandy
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