Starting chemo November 2012

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  • Sickofpink
    Sickofpink Member Posts: 190
    edited December 2012

    Yay 5 lovebugs glad u r ok! So jeslous if the liquor im not allowed at all:( what did u cook?



    About that tourettes- i swore like a truckdriver teaching my class last night (full of emmy winners and ad execs and lawyers all wannabe novelists ha) and realized that no, it wasn't my blonde(ish) wig, it was for the same reason others swear - because they can't think of a better word fast enough or are too lazy to - but not from chemo brain like us.



    Megan, my novel is What A Mother Knows, u can google it cuz its avail for preorder, just starting promo on website n fb with blog n early reviews. Yes someone in it has bc but its a scary coincidence and only on 2 pages of 345. Cue Twilight zone music....



    Txlove bugs and Paula good luck today! Drinking is the hardest part for me always on the verge of needing an IV.

    And tx glad the hr person is chill - i think people have NO idea what this is like - i sure didnt, was in denial n thought i could ease through it, ha.



    Now im drinking Smooth Moves tea and am nervous but about to take the Ativan to make up for not sleeping last night and having a cold today.

    Feels like a party in here! Sweet dreams. Xo

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  • pands
    pands Member Posts: 80
    edited December 2012

    Paula good luck with chemo also...5luvbugs is right....drink as much water as possible...and the best one i found is everytime you pee...drink a glass..ive never peed so much in my entire life (so it seems) but i think the se are kept to a minimum because of that...my crash happened on day 5 after chemo but i made sure i had lots of good magazines and books to keep me company...

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Ok, so now it's 2:45 am here on the east coast and my ole whiskey trick didn't work so I am here reading Megans reply and pissing my pants....Cool  It does sound funny doesn't it...

    Listen how about this granny, who really doesn't look, act or think 65 becomes a surrogate grandma to your kids, they would have a blast , they all love to come to grandmas - even if 2 live next door....Nite nite girls sweet dream, if your lucky enough to sleep

    EDited, sickofpink how did you sneak in here without me noticing....Actually my drink consists of one tablespoon of each:honey,whiskey,lemon - not enough to knock anyone out, so now I'm drinking Sweet Dreams tea by Bigalow that's it for my alcohol. Not what you were thinking is it...

    I am going to preorder your book real soon....I am soooooo proud of you!

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Oh hi Pands, sorry I missed you...see I'm slowing upEmbarassed

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Question of the day:  Why is my ass getting closer to the floor?

    (This is how simple I get when I don't sleep....sorry)Wink

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  • Megan2
    Megan2 Member Posts: 70
    edited December 2012

    5LuvBugs, I am sure we will all give due consideration to this matter, and come back to you with some advice regarding the potential reasons behind the close proximity of your ass to the floor.  Swiftly falling, or slowly sinking?

    Mine has been entirely unbudging from this spot on the couch. I may have to move to sleep. We will see.

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  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    Paula - drink that water but like 5Luvbugs said don't make yourself sick.  Nurse said it helps keep the chemo from burning on the way out and flushes the chemo out of our organs. 

    Just made some scrambled eggs, fruit and toast for breakfast.  Already started drinking my water in prep for my noon chemo.  Lucky me I get chemo for lunch!!! 

    Here's to a great side effect fee day!!

    Hugs to all.

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  • powermom
    powermom Member Posts: 195
    edited December 2012

    Good morning everybody!  Thought I posted this earlier, but must not have.  Paula, I am having my first chemo today, too.  Also went to LGFB Monday.  We'll have to compare notes as the days go by.

    Getting ready to shower and put on the Emla cream and pack up ice packs and water!  Wish me luck, as I do all of you.

    Martha

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Sick of Pink - I just read your book reviews and I repeat I am sooooo proud of and happy for you.  Is Amazon the best place to pre-order "What a Mother Knows" 

    Paula & Powermom - enjoy your cocktails today..drinknpee...

    Everyone else - have a great SE free, productive day...

    Love, the mom

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  • maryah930
    maryah930 Member Posts: 322
    edited December 2012

    Good luck Paula.  Agree with the above, drink and pee.  

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  • michellej1980
    michellej1980 Member Posts: 342
    edited December 2012

    Hey everyone and welcome bak 5luvbugs.



    Well I feel shit still. Completely wiped out of any energy at all. Got thrush again and desperate to taste nice food. I just want cold milky things so am just eating whatever I can manage. God I don't want to do this another FOUR times! :-(

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Michelle, you've been sick toooo long - you need some protein - try peanut butter or cheese or yogurt - get a big juicy steak or something - How about Gatorade?  I usually mix some with my water...Actually your just 2 days behind me in treatment and Wednesday was the first day I felt good so here's some magic get well --- ABRACADABRA make Michelle well - feel better now?

    Message me if you need a shoulder.. Feel better

    Tricia

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  • lesleyag
    lesleyag Member Posts: 10
    edited December 2012

    Another Friday and another Herceptin done, only 46 more to go! Feeling pretty good right now, no doubt that will change after chemo #3 next Friday Wink

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  • macyhen111
    macyhen111 Member Posts: 754
    edited December 2012

    Hi everyone I've been off the boards for a while. I went to my onc to began my chemo on the 28th, but wasn't able to start because of my pet scan results. My onc said they found a spot in my brain on my clivus bone and a spot on my right hip. So all this week I have been going for test to see if my Bc has metast. I won't see her until the 12th where she will give me the results. I am terrified. They did the bone biopsy today. Please pray for me. I feel like I am in the twilight zone.

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  • michellej1980
    michellej1980 Member Posts: 342
    edited December 2012

    Thanks Tricia. :) I am feeling really down at the moment and I know the way I feel physically isn't helping matters. I'm feeling really let down by so many people who are supposed to be friends and I feel so alone. I'm even starting to think what is the point of getting through this? I can't help it.



    Macyhen - I'm so sorry about your PET scan. What a worry, but we are all hoping you don't have mets. This disease is so damn scary.

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  • maryah930
    maryah930 Member Posts: 322
    edited December 2012

    Hugs to you Michelle.  

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  • Eleni
    Eleni Member Posts: 130
    edited December 2012

    Macyhen, lots of luck.

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  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    Michelle - wish we lived close to each other. I'd bring you dinner.  Wishing you a better day and sending you hugs!! 

    Macyhen - saying extra prayers for you.

    Had treatment #2 today.  Tummy is a little upset this time. Time to take some nausea meds.

    Hope everyone has a good evening.

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  • mafe
    mafe Member Posts: 34
    edited December 2012

    Thank you, Paula (Soteria205) for the tip. I'll try the mouthwash and will look for the Biotene products you suggested.

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Michelle, I know you've been having treatments for years and you have every right to get discouraged but you also have lots of good reasons to continue - #1 reason is right there in your mirror...Your friends still love you but they do have their own lives - it's easier to count on no one but yourself..If you need a bigger hug, fly to NJ, I'll meet you at the airport..

    Macyhen, of course you are so scared but please try to stay positive and remember besides all your family and friends at home, you also have lots of friends here when you need "quiet" conversations - relax your mind and body - love you girl so I'm sending lots of prayers and big hugs .You can fly to NJ with Michelle if you need another hug Kiss

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Junebug what do you want me to make you for that queasy stomach, some homemade chicken soup? I'll be right there....Wink

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    OK girls here is the answer to the  Question of the day: Why is my ass getting closer to the floor?

    Because I lost 2", not in my waist, hips or thighs but in my height!!!!!!  Thats right, I lost a full 2" since I turned 50!! ...Now I know why 3 new pair of jeans got longer in the closet over the summer...  I may change my name again to "The Shrinking Woman" Tongue Out

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Leslie what is this 46 more Herceptin treatments? Do you go everyday, I am confused?

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  • macyhen111
    macyhen111 Member Posts: 754
    edited December 2012

    Thanks everyone, I am so glad that I have others to talk to that understand what I am feeling and going through. My family is great my youngest daughter took a leave from her job to come down here and help her Dad take care of me. All of my family have been really great but it is hard to talk to them sometimes.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    GirlFriends~Thank you ALL for your well wishes and advice.

    I had my usual coffee this morning, but since it was chemo day I also had peanut butter toast.

    I was in a private room with my own tv, 2 chairs, a stack of magazines, and my sister. The nurses were wonderful. I had a hot chocolate (I know that doesn't count) and 3 bottles of water and a 20 oz diet Sprite while I was there. As soon as I got home I started on Cranberry Gingerale.



    5LuvBugs~You are a HOOT! I also don't look, feel, or act 62. I think that's why I get on so well with young people.



    Blessings

    Paula

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  • txjunebug
    txjunebug Member Posts: 212
    edited December 2012

    Nurse told me today that I should expect some swelling due to the Taxotere.  Told me to start reducing salt content in food by staying away from canned soups, chips (which I don't eat very often) and lunchmeat. So 5Luvbugs I'll be making your chicken soup.  Love the idea of spinach in it!!! Also told me to expect the 3rd and 4th treatments to be the hardest. 

    Since I'm an accountant she told me to watch closely for chemo brain.  Also that the best thing I could do for myself is get 8 hours of sleep every night.  (good luck with that on steroids)  Told me if I don't get 8 hours that I should take the next day as FMLA and rest.  Otherwise work the hours I feel like I can handle that they don't tell us what not to do just do what I feel like I can. 

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  • lesleyag
    lesleyag Member Posts: 10
    edited December 2012

    5LuvBugs - In addition to my 6 chemo infusions I have weekly Herceptin infusions for one year total, 6 down, 46 more to go :-)

    macyhen - positive thoughts headed your way, stay strong.

    Lesley

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Junebug you really saved my recipe??  I feel special

    8 Hours Sleep?  Do people really get that much sleep?  I usually don't get more than 4 hours sleep a night for the last 15 years (age 50 changes everything)...

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Macyhen~Please know that you are in my prayers. I have a dear friend that is 10 years in with bone mets. She lives a very active, fulfilling life, and looks beautiful too.

    I know this hard.....I really do know...well, sort of. I was told this morning that I won't be doing the Herceptin trial because they can't positively rule out bone mets on my shoulder. There was more activity there than in other places that I have arthritis or joint degeneration when I had a bone scan. So yesterday I had an MRI. I couldn't stand the pain in my back ( rock hard table/degenerative discs ) for the 2nd part of the MRI with contrast. So, it's inconclusive.

    I had already made up my mind before I got the results even from the earlier scans, " I will not live my life in fear! Cancer, I have you in my crosshairs!"



    Honey come here, rant, rave, cry, cuss if you have to. We will listen, pray, encourage, and hold your hand!



    Feel free to private message me if you'd like. I'm a born-again christian, and I would be delighted to talk to you and pray over the phone with you if you'd like.



    Blessings

    Paula

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  • 5LuvBugs
    5LuvBugs Member Posts: 506
    edited December 2012

    Paula my bone scan looked awful - hot spots knees, ankles, hips, back, I then had an MRI which is pretty much the same as you Degenerative Joint Disease, arthritis, osteoarthritis and osteopenia. 

     I hope and pray all good things for our girl Macyhen

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