Help I need some adivce!! I'm in a bit of shock!!

1american - I'm sorry that you had the shock of seeing your significantly smaller breast without warning. It would have been nice if your BS had prepared your for that but you should feel confident that you still have options. Even if you have clear margins, you may choose to go forward with a mastectomy or if you want to save your breast, I think that reconstruction is an option. Did you have an MRI prior to surgery? If not, it's something to consider if you still don't have clear margins.

Best wishes for a quick recovery.

They cant tell what type you have with an mri. Mri gives them size of tumour and will show it any where else in the breast or the other breast. My surgeon did tell me it is harder to get clear margins with IBC and in younger women.

Hi..

I also though my "top" notch doctor  didn't do everything the right way. I felt had he offered me the masectomy from the get go I could have been spared the agony of waiting, not knowing..

A year later and a lot of reasearching and I realize that lumpectomies are really larger scale biopsies. Screening is never 100% correct.

I went for the BMX because I had LCIS on the affected side..which is often found in the non cancer side( and was discovered after the surgery in the pathology report.

I doubt you would still have the scar from the lumpectomy, but that would be a good question for a surgeon, which, should be a 2nd opinion from a new surgeon. I cannot understand how your pathology IDC v ILC could change when they had so much time to verify if there was a question. And to tell you shortly before surgery with the misinformation that IDC and ILC are practically the same thing is just wrong. I'd ask around and get a second opinion.

Hi there, and sorry you have to deal with all this.

Give yourself a few days to start breathing again, and then I would urge you to get a second opinion. That your nodes are clear is excellent. 

ILC is unfortunately sneaky and difficult to detect. For that reason many women with LCIS or ILC choose double mastectomy. I don't know if an MRI can miss ILC, but know from experience that it can miss LCIS.

Usually some kind of recon is possible, even with extensive treatment. It is mostly a matter of finding the right doctor. The skill of the doctor matters in this regard, since it is just as much art as doctoring really. In other words, talk to several plastic surgeons when the time comes and don't rush into anything.

Some of us have chosen to remain flat, some using prostheses, some not. It is not for everyone, but know that some of us are living perfectly well this way and that it is also a viable option.

I believe that current research indicates that for LBC mri can miss it, up to 10% percent are missed. Thats high. The plan for me after mri showed other breast clear was initially left mx, now after surgery I wish I had asked for double because therre is no doubt in mind given what I have read and the research and family history, I will be having the other breast removed.

I have a question though, pre dx has anyone had nipple discharge that was spontaneous and expressed. not bloody.

See that is what I have both breasts after breast feeding also but my youngest is 13 now and still was there. but mri showed nothing in right breast. I am planning on going back and removing right one anyway but wish I did it with left and worried that there might be lobular there too that is getting missed. I am going to talk to surgeon about it again.