Fall 2012 Rads girls......come on in!

Options
1242526272830»

Comments

  • virginiab
    virginiab Member Posts: 205
    edited December 2012

    Almost Done!

    Today I had my first boost, then the weekly meeting with the RO. I was expecting 8 boost treatments, but he has changed it to only 5 boosts, so I only have 4 to go. I have gotten through radiation pretty easily. Quite a bit of fatigue, and I made real adjustments in my daily schedule so I would neither wear myself out or feel too frazzled. I had less than a week of open, moist skin under the breast, but that is closed and healing now.

    After the techs suggested (as many of you have) letting the area get some air, I got my trusty Sharpie and put on an old sweatshirt, laid down in the position that would move the boob up enough to expose the troubled area, and used the Sharpie to "tattoo" the sweatshirt to mark the "treatment field" where I wanted air. Then I cut a flap in the sweatshirt, so I could air out the underboob while still keeping my arm and shoulder warm.

    Today at my first boost, they outlined the area of the boost with the Sharpie. I think it looks like a fallen-oven snowman and I'm thinking of adding to the drawing with a different color Sharpie to add eyes, hat, scarf, mouth, and maybe buttons down the front before tomorrow's appointment.

    I'm getting a little frisky here at the end of treatment.

    My RO says I won't have a mammogram until May, which will be one year from the mammogram that started this whole thing. He warned me that they may want additional views and such at the May mammogram because it will be the new baseline, so I don't have to freak out when they read the films and ask for more.

  • heidismom
    heidismom Member Posts: 38
    edited December 2012

    Virginia, yay for you! Do you know why your boosts were shortened? What a great surprise! I'm one week behind you, had my scans today to prepare for boosts, and am scheduled for 7 following 26 whole breast zaps. Just wondered why the change, would love mine to be shortened too! We're leaving on a ski trip the very next day after I finish, kinda close. Love your sweatshirt cutout idea. I have been wearing a flannel pj top and pinning back the front just enough to give air and still stay warm. I do button up when family comes home. However I was nearly caught by the UPS man at door yesterday, lol. Also one day I was very loosely buttoned, bent over in front of my 17 yr old son and he said Mom! Cover up you skank! Really, barely any modesty left. Also fatigued like you, but working with it. Skin is pink/tan but no blistering or peeling, slightly itchy. Time to lotion up again in fact, before bed. Good luck and congrats on reaching the finish line soon without major issues.

  • virginiab
    virginiab Member Posts: 205
    edited December 2012

    heidismom--

    I don't know why the boosts were shortened, When he was updating the person who schedules his appointments (changed my visit with him next week from Thursday to Wednesday), he said that he had "changed the fractions."

    I decided -- totally on my own and in the absence of scientific evidence -- that electon radiation, like that used for the boosts, doesn't cause the same fatigue that the regular radiation causes. I may have to drink more caffiene to make this "true." Hey, it's worth a try!

  • cowpower
    cowpower Member Posts: 293
    edited December 2012

    Heidismom, I am laughing at your 17 yr old sons reactions. I have a 17 and a15 yr old son. We live right near school, so I get a lot of "boy traffic" when they have free periods and after school. My 17 yr old will warn me when people are coming over. He will text " boob and hair" for aquaintances. When close friends are coming over, it is a " just boob, hair optional" text. I dont know what I would have done without them this year. They have been the brand of tough love I have needed.



    Virginia, May all our boosts be shortened!

  • cider8
    cider8 Member Posts: 832
    edited December 2012

    The texts are precious!

  • cowpower
    cowpower Member Posts: 293
    edited December 2012

    Virginiab you are a woman after my own heart. I have convinced myself I am still not feeling fatigue after20 treatments, and as long as the Dunkin Donuts across the street from the hospital keeps brewing, I prove myself right every day.

  • heidismom
    heidismom Member Posts: 38
    edited December 2012

    Oh I love your texts from sons too, cowpower. They do help us keep it real, don't they?

  • virginiab
    virginiab Member Posts: 205
    edited December 2012

    Yesterday I joined the chemo alumni club. Now I just have the AI to deal with. I'm going to start taking that on the winter solstice.

  • heidismom
    heidismom Member Posts: 38
    edited December 2012

    Virginia, hope all goes well with the AI.  I am starting mine, Arimidex on 1/1.   Had my first rads boost today, 6 more to go.  Not a moment too soon for certain areas of skin to get a rest, mainly where bra rubs under arm.  I'm toasted and ready to be done.  NOT looking forward to hormone therapy AT ALL, but dr and nurses all say I'll be fine. How do they know that???   Really, the message from MO and RO was very serious:  we know it seems like overkill for the tiny micro-invasion you had, but a recurrence is much more difficult to treat, so much more aggressive.  And they tell me I'm young at 53, want to live many more.   So I'll give it a go!  But first going to enjoy the holidays with family and eat sugar and then really clean up my act in the New Year.  Exercise is already good, but I'm still 25 lbs heavier than I should be, and yet very strong underneath the flub!   Has your skin improved slowly or quickly?  How about emotionally?  

  • virginiab
    virginiab Member Posts: 205
    edited December 2012

    My last boost was Wednesday 12/12/12. The skin under my breast is already healing, although I know there may be more raw skin that appears in the next week or so, before we are finished with that issue. My underarm is running on a later calendar, it seems, and has been tender and pretty toasty-colored, so I suspect it is going to peel, but it has not done so yet. Some of the underarm was in my boost area, oi I'm just waiting it out to see what (if anything) happens there.

    Already I can feel the fatigue lifting. Yesterday I was active all day, doing chores, and then at 4pm I crashed and wanted a nap, but after a short rest kept going until late in the evening. This is such an improvement in energy that I can hardly believe it. I think the return of energy makes me more optimistic, too.

  • heidismom
    heidismom Member Posts: 38
    edited December 2012

    You have Good news all around! My fatigue really hasn't been bad until last couple days but I've been overdoing it, I know. Son home from college, tree decorated tonight, good distractions from my own situation and the horrible shooting in CT today. My heart breaks for the families.

  • Graceembraced
    Graceembraced Member Posts: 97
    edited December 2012

    Good morning ladies

    I have one more rad to go! Can't wait until tomorrow afternoon! The tight skin, burnt and peeling is itching like crazy, but they say the itching means its healing.



    Best to all of you...keep faith...there is always an end to rad treatment.

  • ffranny
    ffranny Member Posts: 16
    edited October 2013


    dventi: How do you feel now about doing the Canadian protocol after chemo? I would like to do the shorter program, but my RO is reluctant to do it after chemo -- she says there's not enough data to recommend it. She thinks there might be additional side effects that don't occur when doing IMRT without chemo. Obviously a sample of one isn't conclusive, but any info I can get would be helpful.


    Thanks!

Categories