December 2012 chemo group
Comments
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Just a quick update to everyone especially to Steiner
I had my port placed today and it was a piece of cake....it is a bit sore now so I am icing and taking Tylenol but definitely not a big deal for me
I then also started my chemo which took another 4-5 hours...it was boring and thankfully uneventful
I am tired and going to lay down.....hope everyone's first day goes like mine
The fear was way worse than the actual event -
I have one question...are your docs telling you to take the anti nausea pills proactively or are they saying to wait until you start to feel nauseous??
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Went to chemo class today, my 14 year old twin girls came with me, and their dad my husband met us there. It made it not so scary, however the tour of the place made me feel young, average age looked about 65. I told my family wish I could do it at children's hospital. I am a big kid at heart, however I am determined to be memorable and brighten up the place. Any ideas for my first visit....plus advice on port placement, say it will be in my arm, I am not very big 5'6" 125lbs .
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Runnergirl - take the meds proactively!! I took mine as prescribed and I still threw up and once I started vomiting - I just couldn't stop - threw up 10 times and had to phone my oncologist to get help by switching to a different med and getting suppositories since I couldn't keep anything down. Good luck!!
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Runnergirl2013 - I was told to take all the anti-nausea meds proactively, as well.
Question: my BS recommended today I get a port in my arm rather than my chest (he doesn't want it to mess with my new FOOBS/ NOOBS--I still can't decide what to call them?). Does anyone have the arm port/picc. I love to run and swim and hope that I can get back to one/both during chemo. Is one better than another if you are active? He even said it would be better to get the port in my side than my chest. Help! Thoughts?
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I have heard of the picc line - but I gather both the port and the picc are quite invasive. The difference is that with the port - you can swim, shower etc because it is inside. The picc line is outside of the body and needs to be covered up to have a shower and you can't swim with it. Please correct me if this is the wrong information.
I don't have either of these, so I am relying on my tiny little vein in one hand to get me through 8 rounds of chemo - not sure I will manage it, but my MO is quite opposed to the port.
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Adagio....why is ur doc opposed to the port????
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Lucky you, internutz1! I am having four rounds of TC too, two more to go. I had all possible side effects plus "bonus" after my first treatment with an exception of vomiting. I felt completely fine the day after the infusion, but then after Neulasta shot I've got it all. Really really bad bone pain, stomach cramps, bad taste, sore mouse, loss of appetite, fatigue, itchy rash. Also, my post mastectomy incision lines became infected ( they were completely healed before chemo). After second treatment none of the above except fatigue. Go figure, not sure what to expect next time. Hopefully not as bad as my first one
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I got my Power Port today. They can draw blood from it, give my chemo, and if I need scans they can give contrast dye thru it.
They put it in 10 hours ago. Since then I've taken 2 generic Tylenol, and I have absolutely NO pain.
The problem with not having a port is, you not only get stuck for chemo, but for all that blood work too. -
Runnergirl2013, my doctor advised not to wait for nausea symptoms. I was not taking real anti vomiting pills, I took compazine per my doctor advise. It's anti anxiety & anti nausea drug. Worked for me
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I guess it is time for me to join this thread. I am having pre surgery chemo! They found some cancer in my lymph node. I think they do A/C chemo first, then taxmofin and herceptin. I hope to learn more today. Port goes in Monday on my birthday, oh joy! I am terrified of the chemo, but I will take it because this cancer will die! I will win this war!!!!!
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I am joining my sisters here on this board since I am beginning chemo a week from today - December 12th. Will be doing 4 rounds of taxotere and cytoxan (with herceptin due to the her2+ status) Going to get a haircut this afternoon and thinking of doing something really short - unless I lose my nerve! I'm a little apprehensive about chemo but have been in limbo for so long now that I'm just ready to get this going. Looking forward to all the wisdom and encouragement from so many brave women here. Let's do this!
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My port still hurts, over a week after insertion. Now I have a continual chemo line in it and that gives me a twinge a few dozen times a day. Since my port is in use, I wasn't able to avoid the blood draws from the arm vein and they'll be sticking my arm weekly. The chemo is already hurting my mouth, so I'm using the salt rinse a lot. It's going to be a long six weeks.
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day 3 since chemo - tired - tingling in my hands...slight headache. Got a box of chocolate covered strawberries and apples though
If this is all I am going to have to deal with - I am one lucky gal.
My port area was really sore yesterday but just seems to be "bruised sore" feeling today - it was inserted last Thursday.
Elimar - I am so sorry you are going through all this :-( huge gentle hugs
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New Friends~I'm on an iPad and its difficult to keep scrolling up and down, so please forgive me for not mentioning you all by name.
Welcome to you all.
Day 2 after port placement, no pain at all. I took 2 Tylenol about 3 hours out when I felt the lidocaine wearing off. There was no pain. I could just feel the tape pulling a bit. Had Tylenol again before bed and again late this morning. Absolutely NO PAIN!
Connie~I hope your SEs never get worse than that, and that you have it even easier next time. I pray all is well with your son.
Blessings
Paula -
Connie that sounds about how I was on day 3. Hope it doesn't get any worse for you.
Elimar, sorry your port still hurts. Mine hurt for well over a week too. Hope your SE's get better soon.
Paula I am so glad you have no port pain. I wonder why some have more that others. Maybe the technique of the surgeon?
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I think the port stays sore on some of us if we had a nearby nerve that gets aggitated from the surgery. I keep hoping that it gets to the "no pain" stage. Thanks, ConnieGreen, and let me know if you eventually lose that soreness.
IFightLikeAWOman, Well, I can think of more fun things to do on a birthday, but what you are doing will get you more birthdays so it will be a very appropriate day to KILL SOME CANCER!
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Adagio - I don't have a port either and start chemo tomorrow. I intended on getting it but my oncology coordinator told me it's not essential and that I may as well see how I do with the first round. She said the nurses prefer the port so they don't have to search for the vein but after she spoke with my doctor she was reassured that it was optional. They will want to monitor me more closely I suppose tomorrow. Did your veins cooperate on your first round of chemo?
I went for an hour long walk during lunch today. I decided to keep an online diary monitoring my side effects and overall health during treatment. I have high hopes to come out of this whole thing in better shape than before.
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i just found out i will be starting abraxane and herceptin on 12/14/21. better than the next week which is my birthday. has anyone else taken these 2 together. what side effects have you had. i will be getting this on a fri. do you think i will be ok to go see a dance recital on sunday the 16th?
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FriendGwen - nice to know that someone else does not have a port. The chemo nurse used a vein on the back of my hand and there wasn't even a bruise!! I am having my 2nd round tomorrow, so we will see how that one goes. How many treatments are you having in total. I am scheduled for 8 rounds - 4 of A/C and then 4 of Taxol. My MO is of the opinion that a port is a foreign object in the body and that our body often tries to reject it. If I can get away without the port, I will be happy since I don't exactly like the idea of a further procedure!! Good luck with your first chemo and keep up the walking - it helps a lot.
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port doesn't hurt anymore at all unless it is bumped (my daughter hit it accidently today) just felt like a bruise when she did.
almost end of day 3 past chemo - still just really tired...hoping this is as bad as it gets
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I am new to this group (to this whole site really!) - but I think I found the place. I had my first chemo today : AC every 2 weeeks 4 times then taxol (eiter 1/week x 12 or every 2 weeks for 4 times...)
Runnergirl and Soteria - rsponding to your back and forth about the chemo's... I'm probably late to the game becuase I am curious and wonder about this...
I was under the impression that my chemo was pretty aggressive... maybe my docotr is too aggressive?
I am really frustrated that my doctor is leaving how I do the taxol up to me.... I have heard so many different sopinions but there is really no published stuidies I can find. Do you know of any?
My familiy is calling me to dinner - my first chemo finished 7 hours ago - yikes! do Ieat! I actually feel good just drowsy (probably the ativan I took) and a little headache...
I hope everyone is hanging in there and just remembering we are doing this for a reason! I wish everyone the best and am glad I found this place to come to when I need to vent/inquire/talk.
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mfml - welcome to the site. You will learn lots from the women here. You are on the same regime as me - and I am due to have my 2nd A/C tomorrow providing that my white cell count is up. It dropped to 0.3 after the last chemo!!
Hope you have a good night with minimal side effects.
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hi adagio - we are on similar treatments. Is your AC every two weekds??? I feel suprisingly good - just htis headache I don't know what to do about... How did your 2 weeks go between one and two?? So - I got over the nerves about today - now a bundle of nerves about what the next few days will bring me.
Best of luck tomorrow - I hope number two goes well. Amazing that you will already be half way done with that part!!!
M
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Mfml~I'm having Adria/cytoxan 4 treatment, every 3 weeks, and taxol weekly for 12 weeks. The onc didn't really give me a choice. It may have something to do with the fact that I had a larger tumor, 5.6 cm, and out of 16 nodes, 13 were positive. When I was first diagnosed I was told taxol would be 4 or 12 treatments, but that was before final pathology report after surgery.
I hope that helps a bit.
Blessings
Paula -
Port placement tomorrow, chemo Friday morning. I am nervous....so happy to see so many of you doing well. I will keep u posted on my progress, and everyone is in my prayers. United we stand, divided we fall.
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Volleymom~I got my port yesterday. It was a piece of cake. I was nervous for nothing. I've only taken Tylenol, slept on that side last night, and haven't had a second of discomfort. I also start chemo on Friday.
We will OVERCOME!!!
Blessings
Paula -
Sorry for the late check in. Had my first treatment Tuesday. Felt great that day, infusions went fine w/no reactions or anything. Was 8.5hrs instead of scheduled 4-6 because they were so busy and it took 2 hours to just get labs and pre-meds done. Went and got my hair cut afterward while I was still feeling okay. I wanted to see about donating it and thankfully it was long enough when my stylist sectioned it off! I figured I'd rather have it go to someone in need than all over my hairbrush or pillow. Childrenwithhairloss.us is who my stylist recommended sending it to, so I did.
Runnergirl, how have you been feeling? I hope well! Yes, stay on top of the anti-nausea meds is what my onco nurse told me. I'm feeling "okay" starting to get weak and tired but no major issues. I occasionally have some stomach cramping which makes me feel the urge to use the bathroom but no big D as of yet at least. I'm at work right now, hopefully at least for half a day.
Connie, I'm glad you're doing well so far. It's encouraging to see others who are having limited side effects. I pray today goes good for you!
Welcome to all the new women who have joined the thread. It's been hard to keep up now that it's gotten moving! My grad school semester ends next week so I'll have more time to follow and respond when it's done.
Blessings to everyone for today!
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I've donated hair before. Mine went to Pantene's Beautiful Lengths. ACS directs people there and to Wigs For Kids. The requirements for hair length can vary a little from place to place, and it is surprising that both of those places that work with children accept gray hair, while for Pantene it has to be hair with almost no gray. Their websites tell what they accept.
p.s. Steiner18, your new short 'do is cute!
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Hi all ....hope everyone is going ok ad hanging strong! How long did your docs say u should take the anti nausea medicine? How many days after chemo???
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