December 2012 chemo group

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  • peb
    peb Member Posts: 48
    edited November 2012

    I was wondering if I decide on port , is it surgery where they put you under and at the same place where I had surgery or at a doc office? I go to mo visit on tues ,

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited November 2012

    My port was put in at a Same-Day surgery.  It's about a 20-min. surgery, but with all the patient check-in and pre-op waiting, it can take 3-4 hours.  Mine took over 6 hours because my surgery got bumped by a trauma surgery.  It is done under "conscious sedation" sometimes known as "twilight sedation" which is a stupid name because I was totally out of it, but it means they do the surgery with you breathing on your own.

  • keetmom
    keetmom Member Posts: 432
    edited November 2012

    peb...they put mine in wide awake...just a local and it wasn't bad at all...

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited November 2012

    I wish I could have gotten that.  Isn't it funny that there is not a standard way to get the port installed?

  • LisaB58
    LisaB58 Member Posts: 6
    edited November 2012

    Thank you for starting this post!  Here I go...from November surgeries to December chemo.  I just met with my oncologist yesterday.  She has the treatment planned...just two more tests to see how far this has gone...too many nodes were positive.  We meet on Friday to discuss the test results and chemo should start the week of December 16th.  I do wish all of you the best...you deserve it!

  • JenMas
    JenMas Member Posts: 6
    edited November 2012

    I will be starting chemo on December 13th so i am part of this group as well. I have found so much good information and support here. I also don't feel quite so alone.

  • FriendGwen
    FriendGwen Member Posts: 177
    edited November 2012

    I met with my plastic surgeon today and she said I have no restrictions on exercise! Hoping to keep it up through chemo. I do find the more I exercise (and that includes nice long walks) the better my chest feels six weeks post surgery. This week I haven't felt any discomfort at all!

    Last weekend before chemo! I intend to play hard! Have a great weekend ladies!

  • Bren58
    Bren58 Member Posts: 1,048
    edited November 2012

    JenMas and LisaB58 - Welcome! These boards and are a wonderful resource of info and encouragement.

    Nanc620 - I did try the olive oil and it just made it more gummy. Whatever it was, it was stubborn coming off!

    FriendGwen - So glad you can get back to excercizing, I am sure it will help your mental state to stay strong.

    My lung issue looked a little better on the chest x-ray today so I had my first chemo. Everything went well, so far I feel ok, just exhausted form the last 2 days at the hospital. The whole infusion took about 6 hours because they wanted to run everything thru slowly to make sure there would be no reactions. I did do the frozen peas and ice packs on my hands and toes in an effort to reduce the nail issues from the Taxotere. Hopefully it will work! Right now I am exhausted and need to go lay down.

    Praying for no nausea for the next few days.

  • Nicole503
    Nicole503 Member Posts: 295
    edited November 2012

    Hello December chemo sisters,

    Today is the day I learned I would be joining your club.  I'm nervous and sad......and grateful for all of you! :)

    My medical oncologist uses a shared decision making tool that put my chances of being alive and without cancer in 10 years at 66% with no additional therapy.  That percentage is not high enough for me ~ I am only 45 years old and have three daughters that I really want to see into their own independent adulthoods.

    I'm going to try what he calls the "third generation regimen", a dose dense administration (every 14 days) of Adriamycin & Cytoxan (4 cycles) an Taxol (4 cycles).  Once I get through that 4 month slog, I will take tamoxifen for 5 years and if the statistical models hold true I will increase my chances of being alive and without cancer in 10 years at 89%.  That increase feels worth the pain, suffering and stress of chemo + hormone therapy.

    I really, really, really, really was hoping not to need chemo.  I am barely in the acceptance phase of grieving the loss of my breasts and now my hair is going to go and I am likely to gain weight and feel wretched for 4 months.  Blech!!!

    The one piece of good news today is that I had an appt at Nordtrom after my oncologist appt and that was a delight!  I am perfectly happy with my prosthetics and happy to have some pretty new bras to tuck them into.  I'm going to enjoy my next 3 weeks looking "normal" and then I'm going to hope that Santa brings me some hats for Christmas.

    I am glad to have the company of all of you.  My target start date is December 27th so I'm really glad to be able to gain wisdom and perspective of those of you who will be starting earlier in the month.  Wishing us all abundant resilience and support in the weeks ahead.

  • Bren58
    Bren58 Member Posts: 1,048
    edited December 2012

    Welcome Nicole! Glad you found us but sorry you have to be here too.

    So glad you at least had a good appt and are happy with your prosthetics. It took me quite a while to grieve the loss of my boobs even though I had recon. Eventually I accepted the "new" normal. It's a process and everyone goes through it differently. Pretty bras and nighties definitely helped me to feel feminine again.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Nicole~Welcome...but sorry you have a need to be here. You've come to the right place.

    Wow!!! You've been moving quickly, haven't you?



    My BS won't give me a script for bras or prosthesis until I'm 12 weeks post surgery. It's been almost 6.



    I had to have EKG, Echocariogram, bloodwork, and an MRI today. The MRI is to rule out mets to the shoulder because that area showed more activity than other places that I have arthritis or degeneration. We're still 99% sure that's all this on the shoulder is too.

    Anyway, MRI was last test of the day. As soon as they slid me inside I saw that it was just too close to my face. I'm not claustrophobic, but I felt like I couldn't breathe. So I asked them to stop. So, no MRI yet.



    As I was walking out of there, I thought to myself, if I'd taken a Xanax and worn a sleep blinder, I could have done it ok.



    Blessings

    Paula

  • Nicole503
    Nicole503 Member Posts: 295
    edited December 2012

    Hey Paula,

    I'm so glad you are here.  We are chemo buddies (both doing the Adriamycin & Cytoxan combo), and I am grateful for the light you will shine ahead of me on the path.

    You will do the MRI fine with Xanax and a sleep binder so don't worry.  I had an MRI before my surgery (which led to my decision to do bilateral and not just the right side which had a clear 3 cm. tumor).  It helps to focus on your breath and find an image or thought that is soothing to you and repeat it to yourself.  I also found it helpful to count the clanks/beeps.  Just simple counting.  Kept my mind busy and kept my anxiety in check.

    Wishing you well with your next attempt!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Oh sure Nicole...just let me be the guinia pig! Lol



    Ok, I'll go ahead of you if you ride in my pocket to keep me calm.



    Blessings

    Paula

  • ConnieGreene
    ConnieGreene Member Posts: 348
    edited December 2012

    I got my port put in Wednesday (29th) and start chemo on Monday the 3rd.

    Taxotere carboplatin and Herceptin.  The first two are 6 treatments and 1 year total for the Herceptin

    not sure what I need to take but I am taking a sweater and a blanket and my kindle or laptop.....

    oh and on the bra thing..I haven't wore one since she told me I could take off the surgical one :D I kinda like it!!! one more fill and done with that until the exchange surgery after radiation

  • Nicole503
    Nicole503 Member Posts: 295
    edited December 2012

    In vino veritas ~ in wine there is truth.

    Over a lovely dinner at a favorite restaurant with my husband tonight, I was somewhat surprised to come up against the truth of my rage about what breast cancer has taken and is about to take from me.  First my breasts, then my hair, my fitness, my energy level and possibly a whole lot more (risks of heart problems, neuropathy, etc).

    I only decided yesterday that I want chemo and hormone therapy (to increase my odds of being cancer free and alive in 10 years from 66% to 89% according to the computer models) so I am really wrestling with the emotions of this decision this weekend.

    I'm wondering if any of you here have found some inspiration that helped move you from anger to acceptance and possibly even embracing the hope that is offered by doing chemotherapy??  It's more of a philosophical/spiritual question than anything else, but it's where I'm at right now.

    Wishing you all a peaceful Sunday. Innocent

  • heatherb8
    heatherb8 Member Posts: 263
    edited December 2012

    Hello Ladies.  I was in the same place all of you were last year.  And a few folks already through the journey posted in our thread last year and it did make me feel a bit better.  The ride is not a pleasant one, but I can say going through all of this helped me reprioritize my life.  AT dx my son was 5 and I was 42 and it wasn't easy, but you get through it.  I had my head shaved right before Christmas and it was quite a liberating experience.  I had a lumpectomy, 4 rounds t/c, 31 rads.  I did not get the neulasta shot the first time and did end up in the hospital for a lovely 3 night 4 day all inclusive visit.  I suggest neulasta it's not worth the risk. You do get achy afterwards, but not horrible.  I wish all of you luck and the 2011 December sisters are a great resource.  If you have any questions I would be more than happy to help  if I can.  If I can't I am certain one of the December 2011 sisters can.  God Bless All of You!

    Heather

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2012

    Heather~Thank you for encouraging all of us starting treatment. It's the stories of the veterans on this forum that gives us Hope, and helps us cope.



    Nicole~Not long after dx I was standing at the bathroom mirror mourning the breast I was about to lose, feeling sorry for myself. Then I remembered the brother of a man in my church. Jim had a spot on his face that his family kept pushing him to get checked, but Jim was stubborn and wouldn't go. Long story short...It ended up being cancer all through his face. He had to have the whole left side of his face removed. Nose, cheek, jaw, part of his mouth. He was able to keep the eye.

    Anyway, I thought to myself...I'm mourning a breast...This poor man is basically losing his identity...His Face!!!

    It helped me put things into perspective.



    They say, What Doesn't Kill Us Makes Us Stronger. By the time we finish this, WE SHOULD BE ABLE TO BENCH PRESS A BUICK!!!



    Blessings

    Paula

  • FriendGwen
    FriendGwen Member Posts: 177
    edited December 2012

    Heather - thank you for visiting us and giving us inspiration. It really helps.

    Nicole - posts like Heather's really help give me something to hang my hat on. I didn't expect to be in this situation but am focusing on all the ways I can turn this sucky situation into one that will help me grow and give me the tools to live an even happier and more empowered life (for many many decades)! I have always exercised but rarely taken it to the next level, which I hope to do now. I understand chemo may throw me for a loop but I'll do what I can. Meanwhile I focus in what I might like to do this summer once treatment is done and my pixie cut would be returning. I have found myself really belly laughing more since diagnosed. I work with my best friend which allows us to find a lot of humor in life's quirks. Like all of us I really do not look forward to losing my hair but it will be an experience that will enable me to look past my shoulder length bob with bangs that I've been sporting for way too long! Maybe I'll discover short hair is awesome which is something I may not have ever had the courage to do before. I'm also reminded frequently how many people are thrown crappy challenges and how many rise to the occasion. I work on a college campus. The other day I was walking and saw a student who I am assuming had been in a fire as his face was quite different (not sure what word to use here but you get the idea). He was walking with two other students and chatting and looked content. It was very humbling. I realized ok I will lose my hair but I can simply put on a wig. The hair will grow back on its own, no surgery required. This young man will probably continue to have surgeries and long term scars. I look at the breast cancer survivors I know and they look great. We can do this. The time will go by quickly enough. Keep picturing yourself happily being outside this summer doing something you love, or maybe even doing something new you would never have tried before BC!

  • Bren58
    Bren58 Member Posts: 1,048
    edited December 2012

    Heather, thank you for the inspiration to those of us just starting this chemo journey. It is no nice to hear from those who have sucessfully navigated this path before.

    I am 3 days out from chemo and not feeling too bad. Just tired, constipated and a small amount of finger tingling. I didn't really have any effects from the steroids other than not sleeping. If I can get some sleep tonight I might try to go to work for a couple hours tomorrow.

  • Nancy44
    Nancy44 Member Posts: 43
    edited December 2012

    Good Morning Nancy620, sorry to intrude but I can't help but notice you live very near me.  Can you please share the boutique's name you are going to?

    Best of luck to you and if you want to speak, feel free to message me.  I live in Troy and it may be interesting to compare notes, treatment, shops, etc.  I had my first TC on 11/28 and will continue 6 rounds every 21 days.

    Blessed Be, Nancy

  • Nicole503
    Nicole503 Member Posts: 295
    edited December 2012

    Thank you ladies for your words of encouragement.  In the light of a new day, after a reasonable night's sleep I see last night's rage as just part of the 5 stages of grief ~ something to be experienced, passed through, and let go of.  No need to hang onto or feed that energy!

    One image I find helpful is the work of Tibetan monks who build excruciatingly intricate and beautiful sand mandalas.  Once they are finished, they are blown away completely.  This exercise is offered to remind us that nothing lasts, including our suffering.  

    I wish to be brave enough to experience and feel the pain, anger and fear of this journey but to let it go, rather than hold it close.

    I wish to have an attitude of gratitude for all these treatments that promise much better odds for a cancer free life.

    And I wish to travel this road both offering and receiving support of my fellow travelers.  Thank you all for what you have offered.

    Be well. 

  • bcoct
    bcoct Member Posts: 28
    edited December 2012

    Hello All,

    I will have my first chemo tomorrow after some obstacles with panels.  I am actually looking FORWARD to starting the process after the delay and know it will prolong my life and help kill any remaining cells after my mastectomy.

    We can do this!  We are strong warrior women and have to keep moving like sharks....they keep moving.  It is a lot to handle I am very aware but have friends whose lives have been saved and prolonged (one over 20 years) due to chemo.  It is part of the process and so take your steriods and nausea pills, many people just fall asleep I have heard.  Had one friend say it was never as bad as she thought...think in our minds things are much worse anyhow especially after surgery and things you never expected.  You can wear a cute hat or wig but you will be able to do this.  Peace to all of you starting this week like me and blessings.

    bcoct

  • ConnieGreene
    ConnieGreene Member Posts: 348
    edited December 2012

    bcoct - my first one is tomorrow also...

  • HopeFaithCourage
    HopeFaithCourage Member Posts: 156
    edited December 2012

    I thought i was crazy looking foward to my first chemo! Glad Im not the only one. This ugly monstrous thing is inside me trying to get loose in my body and kill me! I want it destroyed! I still dont have appoinments for my PET scan, port placement, or heart test. Im supposed to see the onco on the 11th so hope all that is going to get done in time. Im so glad o find this sisterhood!

  • Runnergirl2013
    Runnergirl2013 Member Posts: 83
    edited December 2012

    Hi everyone, good luck this week to everyone starting chemo.  I get my port placed on Tuesday morning followed by chemo the same day.  I got my hair cut short this weekend and purchased a bunch of hats.  The anxiet of waiting to go through this is killing me.  I love hearing how others face this as it helps a lot.

    For me, waking up every day, I am still in shock but I start the day by saying what I am grateful and it helps to lift the burden of cancer - if that makes sense.

    Thanks you for your friendship and support as we all go through this.

    One question - what type of prescriptions were called in for you before starting chemo?  I just have the steriords and anti-nausea meds...is that what you have?

  • bcoct
    bcoct Member Posts: 28
    edited December 2012

    Yes the same ones.  Good luck to all of us and it will be over and you will go on with your life again.  I heard its hard to sleep but think I am tired enough to do that tonite anyhow.  Thoughts and positive prayers to our Dec. group

  • heatherb8
    heatherb8 Member Posts: 263
    edited December 2012

    I know sleeping can be a tough one.  I did get an rx for xanax which definately helped and also an rx for celexa.  That helped calm down all the nerves.  Again good luck to all of you starting.

  • beckstar18
    beckstar18 Member Posts: 253
    edited December 2012

    bcoct and connie....best wishes for tomorrow!  Runnergirl, you and I both start the same day.  I went to the pharmacy to pick up my meds last night (5 Rx).  The pharmacist had this surprised look on his face, and said "wow, 5 of 'em huh?"  I said, "Yeah I start chemo Tues."  Then it clicked for him and he really took his time to counsel me on each medication, when to take, side effects and everything.  I was grateful to say the least, because my onco didn't do that!  In fact, I didn't even know what meds she was calling in for me--I didn't find out until I went to pick them up!  The pharmacist did give me one last thought of encouragement, he said that chemo meds today are nothing like 10-20 years ago and people nowadays do really well with them comparatively speaking.  So that made me feel a little better. 

    And I totally agree with those of you "looking forward" to starting.  I'm doing so because I just want to know how I'm gonna tolerate it!  The suspense/uncertainty is killing me.

    BTW, to answer your question on the meds Runnergirl.  I got 2 anti-nausea, 1 anti-anxiety (which also works for nausea), 1 steroid, and lidocaine cream to put on the port site and cover with saran wrap 1 hour before my appt time.

  • ConnieGreene
    ConnieGreene Member Posts: 348
    edited December 2012

    i got 2 anti nausea - decadron (steroid to take the day before the day of and the day after) and cream to put on the port area an hour before I get there....

    I am bipolar so already take Lexapro lamictal xanax (as needed) and ambien....

  • Nanc620
    Nanc620 Member Posts: 38
    edited December 2012

    Hi Nancy!!

    The name of the shop is "A Woman's Image"...they have locations in Clinton Twp and Royal Oak.  We went to the Royal Oak location; it is right at 12 Mile and Woodward.  Stacy is wonderful and made the situation one filled with laughter, hugs and much love.  Are you going to Troy Beaumont?  I considered it but with St. Joe's so close and their program so solid I decided to stick close to home.

    Look forward to sharing this journey...I believe it will be one best traveled with a friend.  I'll send you a pm andwe can exchange numbers etc.  Make sure you take that Look Good Feel Better class if you haven't already...it was terrific!

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