Calling all TNs
Comments
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At ta girl! Luv your input Bernie.
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LOL, rolling around in the aisles, Annie and Bernie. Hilarious!
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I have not posted in a while, had a lot going on, sorry to read of some of the se and issues everyone is having. I had my bmx on Monday the 19th with spacers put in, you know the drive by kind, kicked out of hospital on the 20th only to return a couple of days later with a blood clot in my chest. That was the most pain I have ever had in my life. Stayed overnight, feeling much better now, however, I look worse with the bruising showing up mainly on my cancerous breast it is almost completely black and with all the swelling I still have a nice size chest. Hope everyone has a great weekend with little se's and no break downs! Omg I almost forgot to tell you the best news, the lab results from surgery showed NO CANCER, the chemo I had done first work 100%, now lets just hope it was enough for a life time.
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I have given up the hope of having a better past......all we have is here and now ladies, lets put our best foot forward and march on.
Have a wonderful weekend
Hugs Kymn
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cograts on the no cancer, Browler!
Well, I'm about to dump on you ladies, because no one else wants to hear it, but I know you'll understand.
This Tuesday the 4th will be my 4 year cancerversary.
My 1st year cancerversay saw me filled with terror and almost debilitated with PTSD. I started seeing a psychiatrist and a therapist around this time because I couldn't go on.
My 2nd year cancerversary was a little better. Fear still there, but gaining a bit of confidence back. Trying to have fun again.
3rd year canserversary... I allowed myself to think I might, just might have beat it. I was almost back to the old me, at least superficially. But inside I was irreperably changed and trying to find myself.
And then came 2012, a black nightmare of a year. My marriage, already strained by cancer, exploded on me. My husband got involved in many emotional affairs because I was "too busy" trying to find myself. He wanted permission to sleep with people outside the marriage because my sex drive was so low, even though I made my best efforts. Hell no, and in the middle of divorce talks, I found The Lump. Same place, same size...evil wicked deja vu. It was confirmed cancer in the middle of May. I was forced into a CAT/PT that I knew would find SOMETHING - but it didn't. I so clearly remember the day I saw the BS - mammo, US, biopsy. The repeat of misery I never though I'd go through again. I went to the car and started screaming, thrashing, crying, vomiting. Husband said not a word, just stood by and gave me a bag to throw up in.
When we found out it was cancer again, my two boys laid on me in the bed and sobbed. My husband laid there and sobbed, and said my name over and over. I didn't cry. I felt numb as stone.
Surgery took out the cancer. Then I did radiation for a month. I was too wiped for work and took most of the summer as STD. It was actually relaxing, minus the morning rads appt. I'd nap most of the afternoon and than hang at the pool with the kids.
After going back to work end of summer, it all went downhill. No compassion or sympathy from bosses. Work piled on, major stress. Feeling lots of pain in surgery/rads area. Then I took a second job one night a week for more $$$ and this had its own set of unique stresses. My husband and I ignored the elephant in the room, I even thought the cancer might have woken him up to step out of his selfishness. So I asked him about it the other night and he says he's still not happy, and not sure if he wants to stick around. I need a man I can depend on! Or maybe I don't. Maybe I should just forge ahead on my own. But if I get sick again, there's no one. My mom and dad are useless, my sister busy with her own life.
So not the cancerversary I would have liked. I got out so so far, and then wham, it came back. My life is still spend moving from one sh!tstorm to the next. If I didn't have ativan, cymbalta, oxycodone, and ambien I'd have jumped off a bridge ages ago.
I want to run away from it all - him, work, stress, home, my family. Well, except my youngest boy, who is always good to me. I want to spend a few months at a cottage in NC just walking up and down the beach, up and down, soothing my troubled spirit with the waves.
I deserve to be happy! Why am I still in such a crappy place? What about me, what I want for my life? Why do things keep getting worse instead of better?
If you've read this, thank you. I obviously need some outside help. You guys rock.
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Hugs to you, Minxie. Keep looking forward, girl. One day at a time. And I think you hit the nail on the head.....You do NOT need a man to get along in life. Your H sounds very selfish. Maybe its time that you think about if YOU want to stay in the marriage. If you do....is it possible that the 2 of you can get into some marriage counseling? I think the stress of just living day to day with the status quo would be horrible. And if you decide that you want to end it, then at least you can be in charge of making some decisions. Remember to treat yourself well. Get enough rest if you can. Vent away here...we get it. probably more than you realize.
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Minxie, my sister........I feel so badly for you. And I totally understand you. Much hugs and love to you. PM me if you need to. Tell hubby he is a weak man and not worthy of your love and then kick him to the curb. You are worth better. We are here for you even if he isn't. You strike me as very strong. I believe that you can survive!
Namaste', Minxie.
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Minxie--yes you DO deserve to be happy. I wish I had something magical to say that could help you to feel better but I am a blank page. All I can offer you is a HUG! Find what makes you happy
Maggie
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(((Minxie))) I hope you get to that cottage on the beach in NC!
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Mixie - damn - I just sold the cottage! I can however, offer you a guest room at my house - the drive down to the is OBX is 45 minutes.
Sorry you find yourself in such a bad place. Forgive your husband and set him free - for yourself. If he died getting hit by a bus, you'd be in the same pickle - why wait, public transportation is so unreliable. -
Minxie: I'm so sorry you have to struggle with husband issues while going through
This crappy cancer again. You don't need that added stress on you either. I think you should go alone and have that walk on the beach to sort things out. We are here for you!
Big cyber hug to you!!!!!
Erin -
Minxie, look at all you've been through and you were able to face all of it with great strength. You deserve much better from him, and if he can't give it, then he's a drain on your emotional battery because you are having to deal with his unreasonable demands. I'm really sorry you are going through all this crap on top of dealing with the recurrence.
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Minxie - what did I say to you the other day. Dust off those suitcases and get the hell outta there to a place where you long to be and can find peace. Your hubby says he is not happy and doesn't feel he wants to be there so let him go. Yes you do need a man you can depend on, one that will stick around through thick and thin, the good and the bad, as you would do for him, but if he is not like this and he is obviously not dependable, then depend on yourself without a man. If you don't think your marriage can survive then set him free so some other poor bugger gets him. You deserve, want and need better than this. You say you will be on your own but you are on your own now because he is emotionally with other women and not there for you. Take the money you told us about and do something with it for you, find that longed for peace and healing. Karen is right public transport is unreliable (Mind you I would probably be driving the bus) and you can't wait around for something to happen. Make things happen for you because you can't waste your life. You have years ahead of you yet so make the most of them. Big big hugs and lots of love and prayers for this big decision you may make. Annie
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Minxie, take your walk on the beach. We will be with you with every step you take.
Twenty years from now you will be more disappointed by the things that you didn't do than by the ones you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sails. Explore. Dream. Discover.
Mark Twain
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Minxie, I'm so sorry that you're going through such a shitty time. I wish that there were something that we could do to ease your pain.
I think that when we stare our own mortality in the face as we all have done, we realise that there's no point on wasting time or energy on things and people who don't enhance our lives in some way. Similarly, perhaps there are things that we should cherish more and devote more effort to. I sometimes feel sorry for all the people who carry on blinkered, just going through the motions of life and never achieve such clarity of thought. I hope that you can find the time, space and support that you need to figure out your important questions. You do deserve to be happy and you must believe that you will be again, whether that involves mending your existing problems, or accepting that that may not be possible and moving on to new and brighter things.
Take care of yourself, and consider yourself hugged lots of times over by people who totally get what you are saying.
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Hi all, I am relatively new to this. Diagnosed with triple negative and currently going through chemo (T&C). I have read a lot of the bios and it looks like many women started with a lumpectomy and eventually got a mastectomy or went straight for a mastectomy. This makes me rather nervous. Are there long term lumpectomy success stories without recurrence?
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Hey Loafer...how long term do you want to hear about? I will be 4 years out in March.so far so good... IF tn is going to reoccur ..it is usually in the first couple of years...not sure of any stats of reoccurences based on lx or mx...I would be interested in hearing those stats of anyone has them as well.
Minxie...hugs to you....go for it..whatever you need to do to make YOU happy....we women seem to take care of everyone else...forgetting about ourselves....we are certainly backing you in every way...
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oh Minxie, you do deserve to be happy. You have had a rough 5 years. Sending hugs to you.
Loafer, I had a 3.5 cm lump and had a lumpectomy. I did not have a recurrence for 9 years. (Had a new primary opposite breast and am brca 1 pos, thats a different story.) I am sure there are many good stories, I have heard many! Thank goodness many stick around here, like Titan, to offer support for newly diagnosed!
Has anyone heard from Dawn?
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Sandlake, yes, I do hair. And I lost many of my clients, I was surprised how many actually stuck with me. The quality of my work was suffering a bit as I was miserable while working. Yes it is hard. I will miss my clients, they are fabulous, I will stay in touch with them. I have been seeing many of them for over 25 years! I can not believe how much less stress it is to not worry about work and trying to figure out what to wear to keep cool and not having to worry about sweating all over everybody, yeah, I know, gross! I am still going to school so hopefully eventually I can find a desk job.
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Loafer: I was told that the locoregional recurrence rate for lumpectomy with clear margins+radiation is roughly the same as for mastectomy+radiation. I decided to go this route because my lump was fairly small (1.5 cm) and I'm well enough endowed in that area that the cosmetic appearance is good.
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bak I haven't seen Dawn (inmate) here but am friends on FB with her and she posted a few days ago.
Hi to newbies. Sorry you had to join us but you have come to the right place for support on the good and not so good days to come as well as knowledge. Ask away and you will get answers from this great bunch of ladies
Mags
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BernieEllen, Thank you for the funny radio story. I didn't anticipate that response but loved it!
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Minxie -- I cried as I read your post. I am so sorry you are going through this. None of us deserve a first time of all this much less a second time. I am praying for you to have the strength and courage to face all of this and that needed support will come your way. Thank God for a place like this site where we can share with each other.
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Minxie,
I'm sorry as well that you are going through the trial of recurrence and your husband not being there for you in many ways. I don't want to sound like I'm supporting your husband in any way but I have noticed tension come up from my husband lately, like saying, "I do everything. . . " Which lately has been true. Face it girls, we are the stronger sex in so many ways. Do you think many men can go through these treatments?
My hospital in Morristown, NJ has many groups we can go to for help, weekly and monthly, as well as many free treatments (Reiki, healing touch, Tai Chi, QiGong, etc.). They are also available to our families which is great too. However, I just recently noticed there is almost nothing for our caregivers. There is no support group for them to vent their frustrations and mourn the loss of their lives before their loved ones got sick. I've just begun to send emails to some people at the hospital asking how we can get a group going. Believe me, I know you do, they need to vent too. If stress is a contributing factor in our illnesses, and I believe that, our loved ones are also going through an incredible amount as well -- often without acknowledgement.
Let me reiterate, I'm not condoning your husband's actions in any way, but it is incredibly hard for them too. They have too remember one of the vows they took on that beautiful day you got married, "in sickness and in health." Notice how the sickness statement comes first?
Much love to you during this difficult time in your journey. -
thanks all for the advice. I talked to two good friends today about the whole mess, and they're not sure what I should do either... I did make inquiries into the cottage in NC, and it is of course avilable in january (lol!) and quite reasonable. So I think I may be doing that at least, and hope it clears my head without making me terrible lonely. I'll keep you all posted.
I see the plastic surgeon the 19th and I'm hoping we can start fixing the sad boob January as well. Maybe if I look like a normal person I can face the thought of being single again more easily!
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Hi everyone,
Minxie- It hurts my heart to think what you are going through, you are in my prayers a broken heart is one of the worst pains a person can endure and having to deal with that while fighting BC is awful!
I have a question for anyone.. I am having my surgery Tuesday, bi-lateral no TE I decided to wait until after Chemo.. My question is what surprise may I expect? That is my biggest fear. I know it is IDC grade 2 TN. I do realize I won't be staged until after surgery. I guess I am just asking if the Core Biopsy's are pretty accurate on the type of BC. Size according to biopsy is 1.7 cm this was a core needle ultra sound guided. The first ultra-sound said almost 2cm. I am trying not to be nervous but as the day gets near the fear is building. I am so thankful for this forum..
Thanks,
Carla
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An attractive blonde from Cork, Ireland, arrived at the casino. She seemed a
little intoxicated and bet twenty thousand dollars in a single roll of the
dice.
She said, "I hope you don't mind, but I feel much luckier when I'm
completely nude." with that, she stripped from the neck down, rolled the
dice and with an Irish brogue yelled, "Come on, baby, Mama needs new
clothes!"
As the dice came to a stop, she jumped up and down and squealed... "Yes!
Yes! I won, I won!"
She hugged each of the dealers, picked up her winnings and her clothes and
quickly parted.
The dealers stared at each other dumbfounded.
Finally, one of them asked, "What did she roll?" The other answered, "I
don't know - I thought you were watching."
MORAL OF THE STORY
Not all Irish are drunks, not all blondes are dumb.....
But all men...Are men! -
Carlads-I can only tell you my experience. I did chemo first and had many scans to watch what the cancer was doing. I had about a 2.5 cm grade 3, auxillary nodes looked negative and im nodes were positive-confirmed by biopsy. After chemo my last scans showed no cancer, doctor was cautiously optimistic. Surgery confirmed no cancer, so imaging was correct for me. My doc did say different imaging can show different sizes because of the angle and the type of technology, so I wouldn't be worried about the size difference of less than .3. Also, I had bc 10 years ago and had core biopsy and mri and ultrasound. Size was 3.5 cm. I had lumpectomy that time before chemo, and surgery confirmed size and type of cancer, same as at the time of biopsy. They did think my nodes were negative that time, but they found microscopic cancer in two nodes. My doc also said that they give the size of tumor by the longest side, on my path report it read something like 3.5x1.6x2.8. I hope this helps you. When I first read your question I thought you were going to ask about surprises regarding surgery, which I did have a big surprise! As they were getting me settled into my room, I realized I had this huge billowing blanket on me! They were blowing warm air into it and it was practicaly covering my face, I felt a bit clausterphobic and wanted them to take it off, but they wouldn't Said I needed to have it on for a bit! Now I laugh about it, but I was mad that they wouldn't take it off in my groggy state of mind. I was soooo scared before my bmx, for weeks before it. I really feel for you because I remember that fear and not knowing what to expect. Take a deep breath, you will get through this. We are there for you!
Bernie-Good one!!!
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Minxie, Years ago, after my first diagnoses I drove to a beach just north of San Francisco from Seattle, about a 12 hour drive. I took one of my dogs and I had one of the most relaxing wonderful times I have ever had. It is actually the only time I had done something like that without friends or hubby. I hope you do it. I think you will have a much needed relaxing time.
Mags, thanks for the update. Dawn-come visit us!!!
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Carla, I also had BMX with TE. I the most startling thing that happened to me was the PS coming to see me in the preop area. She pulled the privacy curtain all around my bed and had me undress and sit at the side of the bed. With a purple marker in her hand, she very carefully looked me over and started to make markings on my chest and each breast. Reality hit me hard at that moment.....I started to cry. She finished drawing and gave me a hug. DH was in tears, too. I hadn't really cried over losing my breasts until that moment. And I haven't cried over that part of this journey since. Many tears over cancer, but NOT again about the loss of my breasts.
I will be thinking of you, tomorrow. You will get through this. Check in when your up to it.
Well, I will be off the boards for a few days. I am leaving tomorrow to see my Navyson. His deployment starts on Wednesday. DH and I will be there to see him off. Trying to stay strong for my DIL and grandson.
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