If you have just been diagnosed....

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  • valerie0118
    valerie0118 Member Posts: 126
    edited April 2012

    I've just been diagnosed with invasive ductal carcinoma in my right breast right behind my nipple and atypical cells in two spots in my left breast.  The pathology report said the cancer is well-differentiated and I didn't respond to HER2.  I have no symptoms.  I can't feel a lump or tough flesh or anything and the surgeon said I'm in a very early stage.  They did both mammogram supported biopsies and then MRI supported biopsies on both breasts.  I'm like the rest of you....scared out of my mind.  There is no family history of any type cancer except prostate.  This is the last thing I ever expected to get.  I thought for sure that heart disease was going to factor into the equation!  No sign of high blood pressure, high cholesterol, nothing.......now this!  The surgeon said he is going to do a mastectomy on the right and a lumpectomy on the left so that the pathologist can further examine the atypical cells.  I'm almost tempted to tell them to take both off. 

    Now I am doing further waiting.  I've been dealing with this since mid-February when the first mammogram showed calcifications and I was called back for more mammograms.....now they are trying to get the surgeon and plastic surgeon coordinated and keep delaying the surgery.  I just want this cut out of me and taken away!

  • melissa119
    melissa119 Member Posts: 172
    edited April 2012

    I was diagnosed February 28 this year after going for a baseline mammo.  I am 36 years old.  I am terrified of the whole process I am faced with.  I am triple negative which is really scaring me to death.  I had a bilateral breast MRI, bone scan and CT scan all that came back negative.  I also had an axillary ultrasound and lymph node needle biopsy which also came back negative.  My mass last measured I was told was 2.75.  I was given options by my surgeon of lumpectomy or single or double mastectomy.  She said many of her younger patients opt for the more aggressive in hopes of it not coming back.  I have made the decision to do the DMX with tissue expander reconstruction.  The surgery is scheduled for May 2.  This waiting and back and forth for testing and results has been torture for me and an emotional roller coaster.  Now I am scared of the surgery which I have been told is not as bad as I am envisioning but I am a total baby when it comes to any needles, surgery etc and I am a basketcase.  After that I have to go thru chemo anyway because my triple negative is only receptive to chemo!  I have 2 young children and just want to get thru this.  Any words of wisdom from others that have been down this road?? 

  • BucGirl1
    BucGirl1 Member Posts: 2
    edited April 2012

    Hi Artsysue,I'm doing Ok now and thank you for asking.

    I'm over the shock and now ready to face this thing head-on.  I have another surgery on the 27th to test the lymph nodes and clean up the areas from the first surgery.  I'm cautiously optimistic that all will be OK but I'm also being realistic.  I have some swelling under my arm and my surgeon swears it's just swelling from the surgery but I'm not so sure.  But, I'm ready for whatever is ahead.  Like everyone else on this board, the waiting is torture.  I just want to get moving and take care of this already.  But I'm no longer afraid of possibly having to get chemo.  I live in Florida so no hair or extremely short hair will be a blessing in the middle of August!  Hey...you've gotta try and have some humor in all this.  It really helps!  Thanks again for your thoughts and you will be in mine, too.

    Gina

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited April 2012

    Melissa Im so sorry you had to join this club but you will get alot of support and words of wisdom here.  Yes cancer dx is very scary for us all but once your doctors have a plan in effect it will get easier to deal with and you will get through this.  Your children are counting on you and that in itself will keep you positive.  Best of luck to you and keep coming here for support.  Sending positive thoughts and prayers your way.

    hugs

  • artsysuz007
    artsysuz007 Member Posts: 9
    edited April 2012

    Hi Gina just had my wire guided excisional on Tues and should hear from my Dr what the next step is..... trying to maintain focus and some humor but I hate the "wait" time. So glad things are moving along for you and you're attitude is up there! Blessings!

  • PixieNel
    PixieNel Member Posts: 90
    edited April 2012

    Hi all . I am new to this boardSmile.

    I was diagnosed with IDC last 21/04/2012. My lump is about 3.2cm in size and it is located just beside the nipple area. Pathology Report shows ER 3+ 90% positive, PR 3+ 50% positive and c-erb-B2 3+ 50 % positive.  As i was told to either go for lumpectomy or mastectomy will entirely depends on the outcome of my incoming mammotome of  a baby lump on Tuesday. If its found to be cancerous, I have no choice but to undergo mastectomy.

    I guess the feeling of having your breast removed is a big blow to a woman's pride. I am imagining the excruciating pain that I will incur when subjecting myself with all the operation and therapy procedures.  Need your insights on these. Thanks and wishing all of you a speedy recovery.

  • cat61
    cat61 Member Posts: 64
    edited April 2012

    I was diagnosed on Tuesday the 17th, I new in my heart that it was going to be cancer but hoped for the best. My doctor told me over the phone because I didnt want to wait another day to hear it. My husband is very suportive and with me all the way. I have been diagnosed with DCIS , I am waiting to go see a surgeon , hopefully soon. The information you have given me helps. Its info I need because the more I know the more it helps me to cope. If thats what you can call it ! I woke up yesterday very angry and wanting to take the cancer out of my body myself. But I have a co worker who was diagnosed with amost the same cancer and she is my suporter as well. she has offered to help me with anything and everything. I think without her I may flounder. She told me about this web site and it is  a God send. Again thank you for your information, it will help.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited April 2012

    This in between waiting game is the hardest part of the breast cancer journey.  I just wanted to bring some encouragement to those of you waiting for your course of treatment.  The limbo waiting is horrific.  Surgery (I had a single mastectomy) was not difficult physically.  I had never had surgery before and I am 55 yrs old.  I recovered fast.   I needed 5 months of chemo.  Now that I am down to one more month to go, I can look back and say it is not a walk in the park, but you can do it.  And you do forget alot of it once you start getting stronger and better.

    I still have radiation to do, so can't speak to that, but I can speak to the horror of waiting to speak to a surgeon or an oncologist to find out just where you are at in this process. 

    Someone asked me what I felt was the most important part of BC Treatment, I would say picking the right surgeon and oncologist.  You HAVE to have confidence in them.  If you have the LEAST BIT of doubt at their ability or what you have been told, RUN to get another opinion.  There are plenty of doctors in my city, but I had no trust of them.  I travel 120 miles round trip to see my Oncologist and get treatment.  It is worth every mile.  I feel confident putting my life in his hands.   And I felt confident putting my life in my Breast Surgeon's hands.  She was amazing.    MAKE SURE YOU HAVE THAT CONFIDENCE.  You will just know.     

  • jav
    jav Member Posts: 1
    edited June 2012

    Things moved really fast for me. I had surgery for a duct removal on May 15th and was diagnoised with breast cancer on May 21. By June 1 I was scheduled for a lumpectomy with a possible Mastectomy. Ended up having to have a mastectomy. My dx is DCIS with invasive breast cancer. My Dr. has moved me to stage 2 breast cancer. I was told out of the 22 lymph nodes only the first one was cancerous. The sad thing for me about all of this is that I did my mamograms faithfully and none of my cancer ever showed up on the mamograms. If I hadn't started having a discharge from my breast the cancer would not had been found until it was maybe to late. I am suppose to start chemo and maybe radiation. I am nervouse about the chemo because I also have a disease called ankylosing spondlytis. Which I already have a low cbc count and have to take shots to keep my blood count up.Any advise?? Thanks

  • toddsmom
    toddsmom Member Posts: 1
    edited July 2012
    Just diagnosed 2 1/2 weeks ago: 1.2 cm IDC ER/PR+, HER2-. The surgeon thought it would be a simple lumpectomy, followed by radiation, but the MRI came back with 2 "satellite" nodules about 1 cm away from the tumor. He still thinks lumpectomy is a good option, even if the modules are malignant. The radiation oncologist said that in the event I had node involvement, the surgeon would likely take 1 or 2 nodes, that's all. If "dirty", I'd get my underarm radiated too. Now I'm concerned that their treatment of this "worst case" is not aggressive enough. Are they persisting with lumpectomy/radiation because I'm 72? I just want the best option for cancer not to return. Would appreciate any advice you can give!
  • crystaldot
    crystaldot Member Posts: 1
    edited July 2012

    My mom was just diagnosed 9 weeks ago, she is 88, they recommended masectomy but she declined due to her age and she also declined lumpectomy did not want to go through that with her other health issues. She was a candidate for the oral pill and tried Arimidex for 2 weeks, but the side effects were horrible. She sees oncologist on Monday but she has decided no further pills she will be 89 next month and wants to enjoy whatever time she has left not being b ed ridden until the she has to. She is a strong woman and of sound mind so I have to respect her decision even if I would make other choices. Then today I got results from my mammogram taken 2 weeks ago that they found an abnormality and I need to go for further testing. Needless to say heavy on all our minds. My mom grows more tired everyday and sleeps more but at least she is eating again since stopping that pill.Although today she woke up with pain in the other breast, plus having alot of issues with her feet and hands.

  • Mundini01
    Mundini01 Member Posts: 1
    edited July 2012

    My sister has been diagnosed with hr2-breast cancer. Can u pls help us where to starts. And where we can be helped in time. We are living in south Africa in Limpopo province

  • Peggyk2
    Peggyk2 Member Posts: 3
    edited August 2012

    I've just been diagnosed with stage 1 breast cancer. I'm going to be 84 next month and weigh 87lbs.  My Dr. said it's a slow growing cancer. I'm inclined to turn down surgery and just wait it out.  i've read where there's a high percentage of something else killing me before the breast cancer at my age. Is there anyone else in the same predicament? I feel really good and I know surgery will lay me low and then I'll come down with something else.

  • Peggyk2
    Peggyk2 Member Posts: 3
    edited August 2012

    I just posted about this a few days ago.  I'm in the same situation as your mom, I'm going to be 84 next month and feel the same as she does.  Could I ask what stage cancer she has, I have stage 1 and am in no pain, so I'm hoping to outlive it. I feel good and can still golf a few times a week and don't want to be layed low with an operation and then be left open to anything else that might come along.

  • Peggyk2
    Peggyk2 Member Posts: 3
    edited August 2012

    I just posted about this a few days ago.  I'm in the same situation as your mom, I'm going to be 84 next month and feel the same as she does.  Could I ask what stage cancer she has, I have stage 1 and am in no pain, so I'm hoping to outlive it. I feel good and can still golf a few times a week and don't want to be layed low with an operation and then be left open to anything else that might come along.

  • HLB
    HLB Member Posts: 1,760
    edited August 2012

    Hi peggy, I understand what you're saying since you are older and have slow growing cancer, but my opinion is at least get a lumpectomy. Its not a big deal at all and at least the tumor will be out. I guess it all depends how your health is. What if you live 10 more years? This is a sneaky disease and I would want it out regarless. If you're worried aby anesthesia I would think they could even do local. That is how my lump was taken out when they didn't think it was cancer and rather than a biopsy they just excised the whole thing because they didn't want to shoot the gun thingy too close to my lungs.

  • jenndurk
    jenndurk Member Posts: 2
    edited August 2012

    Hi all, I was just diagnosed with stage III Invasive Ductal Carcinoma, just 4 days ago, one of the tumors is greater than 6 cm, the other two, I'm not sure of their size. I'm going for my PET scan tomorrow to see just how far the cancer has spread, but my breast surgeon is sure it is in my lymph nodes and possibly my ribs already...but I won't know until next week just how far the cancer has spread. It seems to be pretty aggressive because 2 months ago I had normal breasts, just a small lump in my left breast, now I have a left breast that is much larger and misshapen than my right and 3 distinct and very large tumors growing in it. I swear, everyday this breast is larger and larger. I'm supposed to start my chemo next week, I'll have 3 months of chemo and then a radical double mastectomy. I'm only 41 years old with no history of breast cancer in my family. To say I was terrified is an understatement. My husband just lost his only sister 2 years ago to breast cancer and she was only 43 when she passed, so this is especially hard on him.

    My doctor says this is not a death sentence, but to me it seems that way. Does anyone know the survival rates for someone with my type and stage? I will post more details as I learn them, I am still so early in the process and everything is moving so quickly it's kind of making my head spin.

    Thanks for listening,

    Jenn

  • mrskimber47
    mrskimber47 Member Posts: 97
    edited August 2012

    I have just been diagnosed with IDC but don't have any idea what stage. I suppose if I had to guess I would say a 3? I meet with my doc this wed to go over the path report and hopefully he has a game plan. I have never been more scared in my life. 

    Kim 

  • mrskimber47
    mrskimber47 Member Posts: 97
    edited August 2012

    Hi Jenndurk, 

    I spent a good ten minutes writing a response to you last night and my wifi decided to kick the bucket and I lost the post before I could submit! Anyway, this won't be as long but I wanted you to know that you are not alone. This website if full of amazing, strong wonderful women and men who are compassionate and  understand what we are all going through. My only advice to you, as I am also new to the BC world and still haven't been staged, is that it might be better to avoid looking at the numbers for awhile, like survival rates. You have a lot to do to stay healthy and the most important right now is to keep you mental health. You and I and every other woman with a new diagnosis are going to beat this. The odds are in our favor and if we can try to keep out minds busy with the good stuff in life, the less likely we'll be to fall into a depression. I felt this coming on a few days ago and I ended up drinking myself silly. I hadn't started any treatment yet so I knew I could handle it, but my point is that it is very easy to let this dx control our lives, lets NOT LET IT. Lets fight the urge to focus on it and focus on the good stuff instead!

    Much love and hugs to you and I am always here if you want to talk! God Bless! 

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited August 2012

    Hello..... iwas diagnost on Augost06-2012....Im so scare and so lost i will start chemo the first and i cant find any one that i can talk to I have stage 2 and i have invasive Carcinoma...please if anyone can help me i feel so alone...

    Please help

  • mrskimber47
    mrskimber47 Member Posts: 97
    edited August 2012

    patriciahur-

    I am so sorry you're going through this and I can totally relate. I was diagnosed Aug 2nd of this year and its been tough. You're not alone either. There are hundreds of people on this site and we are all here for you.

    I still don't know what stage I am, still in that process, but have IDC. Sending lots of ((((HUGS)))) way. It will be okay. You will get through this just like all of the amazing women on this site.  

  • mrskimber47
    mrskimber47 Member Posts: 97
    edited August 2012

    Just got back from Dr's office. My left breast has been painful and there's a thickening. Dr ordered US to see if this is a new cancer in my other breast... If anything is very early stage, or DCIS. Cancer in both, just too much. Having my surgery in Boston instead of Milford, Dr's moving it up so hopefully we can get this out of me in the next couple of weeks and depending on results with have dbl mastectomy and recon later. 

  • angelface
    angelface Member Posts: 21
    edited September 2012

    I was just diagnosed with Stage 2 breast cancer yesterday.  I believe I was in a huge state of shock although I had a gut feeling I was joining the list of upcoming cancer SURVIVORS.

    My question is, has anyone here opted for a lumpectomy & been disappointed with the results???  I have one scheduled for the 24th of this month and really am not afraid of any deformation that may occur.  My concern is with the aftermath.  The follow up care, the probability of a relapse (is that the right word?) etc.  I know a lot of women opt for a mastectomy right off the bat.  I don't want to have to do that if it's not hugely necessary.  Being that I was given the option, I'm assuming a lumpectomy may be successful for me but I'm just curious if anyone who has gone with that option regrets it.

    Thanks!!! 

  • Ella_117
    Ella_117 Member Posts: 54
    edited September 2012

    Angel face,



    I was diagnosed I year ago and opted for the lumpectomy with radiation.

    I had my surgery at Sloan Kettering in NY, and my surgeon explained to me that the survival rates were the same as mastectomy.

    But before selecting my surgeon, I met with 4 surgeons, and all 4 felt that the lumpectomy was the best choice given the size and location of my tumor.

    Two additional things I did that aided in making my decision was to have genetic testing, and an MRI. The genetic testing came back negative. If it was pos. I would have chose mastectomy. The MRI (which i initially dreaded having at the time) was done to make sure that the cancer was only contained to one breast and luckily it was, but if anything was found in the other breast or even another quadrant on the breast that contained cancer, I would have had to have a mastectomy. I observed a very strong trend in my support group to chose mastectomy, but I have been happy with my decision as it involved much less surgery. You have to be happy with your decision, and do not want to look back.....i wish you much luck with whatever decision you make.

  • Ella_117
    Ella_117 Member Posts: 54
    edited September 2012

    Patricahurtado,

    I was diagnosed a year ago and know of the fear and uncertainty that you are feeling, but just know that it does get better.

    What helped me most was joining a local support group called "breast friends", where I met many wonderful women of all ages that support each other. Try to located a support group in your area...many are associated with the hospitals, perhaps there is one where you are receiving chemo? I was also very lucky to find an amazing psychologist that specialized in cancer diagnosis.

    You will find great support on these boards. You might want to start with posting on the chemo board so that you can connect with others that are currently going thru chemo.

    {{{{{{Hugs}}}}}}}}

  • cjm1957
    cjm1957 Member Posts: 3
    edited November 2012

    ER+ PR+ her2 negative, lymph nodes negative...stage 1,  1.2 cm . mammaprint came back high risk...Had lympectomy, now Dr wants me to have chemo, radiation and medication...any one else have a high risk mammaprint?

  • dimples68
    dimples68 Member Posts: 46
    edited December 2012

    I was just diagnosed on 12/26/12 with intrusive ductal carcinoma in my left breast. No history of breast cancer in my family and I will be 45 years old next month. I'm scared and in shock! But I know I can beat this. I'm just curious about my treatment. My gyno recommended me to a surgeon but I want to make sure in getting the best care. How many other surgeons should I talk to and should it be just a surgeon or an oncologist? Or are those two different doctors in this process?

  • carlads
    carlads Member Posts: 241
    edited December 2012

    Hi, talk to a surgeon first and if you aren't happy with him get a second opinion.  I was very lucky and liked my surgeon so I didn't need a second opinion.  Just don't wait around get in a find out what needs to be done.  I was diagnosed in Nov and had my surgery Dec 4th.  I have my first Chemo on January 11th. 

    You have come to the right place the ladies here are amazing and have a lot of knowledge.  Don't be afraid to ask questions and take notes. 

    Good luck and keep us posted,

    Carla

  • CatKiki
    CatKiki Member Posts: 2
    edited January 2013

    I was diagnosed on Nov 17, 2012 at age 55

    I am frustrated since I have not had my surgery yet. I do not have insurance since I am unemployed. I qualified for a special cancer program here in California that covers everything related to the treatment. But it takes so long to be approved. I just came home from my MRI. Kind of hard to do for someone with burstisus in my shoulder.

    My surgery is now scheduled for January 28th since I have to stop taking one of my medications 10 days before the surgery. I am worried that in that time, the cancer would have spread. I had the lump in my breast for over 6 months but thought it would be like the others, just a cyst. Well in wasn't a cyst. It was infiltrating Ductal carcenoma. Possible stage 2.

    I am hoping that it hasn't spread during this delay. The FNP at the hospital says it hasn't but I don't really know.

  • Maureen1
    Maureen1 Member Posts: 614
    edited January 2013

    CatKiki - so sorry for your news, waiting really tough...once you know there's a lump and it's breast cancer it's normal to just want to get it out. Has your surgeon recommended a lumpectomy or mastectomy yet? If not, the MRI will give you more information to help make surgical decisions. It really is easier once you know what you're up against and have a treatment plan...take care (((hugs))) Maureen

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