For pattiezupp

Patti posted this on 5/19 I moved it here for more prayers
she hasn't posted again since, I did send her a card there has been so much going on , on the boards lately didnt want Pattie to be missed hope this was okay for me to do. She"s kinda new to the boards regesterd in Jan. and only has about 20 some post.
hugs,
Carrie


Hi all, If you may have wondered where I DROPPED off this planet to, well here is my story.
Went through all my BC treatments and was done with radiation's on 1/13/06. I HAD MY MEDIPORT taken out 1/20/06 and was given the green light of no evidence of disease (NEOD).
At the end of March started to have a back ache. Went to DR. who sent me to ER, where all test where done to see if my BC had come back as well as xray. after 8 hrs at ER no results came back for cancer and I was sent home (ohh yeah back still hurt) so went back to Dr. that Monday and still no help for back...because I then had diarrhea and a rash which turned into hives and the a sunburn and peeling (was a virial infection) I was sooo swollen that no blood could be drawn that day. Roswell redid a catscan and xray. they did see "something" on my spine. a shadow as they said, but need to take care of rash and other symptoms. So the Monday after Easter I was scheduled for a bone scan at Roswell.
Well, on Easter Sunday my legs got weaker and weaker, so I slept on recliner and couch. I woke up at about 2am Monday morning TOTALLY PARALYZED from my rib cage down to my toes. So after a call to Roswell they said to go to nearest ER cause I need ER treatment immediately. So I went to Mercy on Abbott and after mega test had emergany surgery at 6pm to take care of the collasped "T5" vertbra and the return of my BC in form of tumor on spine which caused the collaspe of vertbra and paralaise of lower body. I have gone from stage 2 to stage 4 due to spread of BC, but have been told not to get hung up on stage of BC, CAUSE THERE ARE MANY STAGE 4 GOING ON 20-30 YRS OF SURVIVING. Yes, I walked to bed (couch) Easter Sunday and woke up paralyzed...way to surreal for me.
I was told (still being told) that there was a 50/50 chance that I would stay paralized.But I woke up with feeling a limited movement. Was given excerises to do by the Physical Therapist at Mercy. I was able to do 8 out of 10 by myself which I did do 3x's a day and when Russ got here we did the other ones WITH me. So I was building strength each day. My right leg was about 50% stronger then the left.
After 2 LONG weeks at Mercy I was moved to ECMC for spinal cord rehabilitation. I am in room #822 and my # is 716-898-1617....but I have a laptop causing lack of phone. If you try and try you can get me on my cell 716-860-3191 or e-mail me I still have AOL as well as adelphia (pattiezupp@aol.com or pattiezupp@adelphia.net)
Now for ECMC, it was best move I could have done. Mercy let me sit in bed for 21 hrs every day and the PT only visit with me 5-10 min 2-3x's each week. SO the move to ECMC has been great, they move me and I GO to PT 3X'S EACH DAY YEAH!!!!! Another reason I my not be answering my phone. Is that I go 8-9 getting ready, 9-10 am and 10-11 an and then 2-3 to therapy Monday-Friday and 11-12 on sat. Sunday is a free day,,,wow but it is great to be able to see my progress. Last week I WALKED 10feet one day on the parallel bars and 20 feet the next day on the parallel bars.....verrry exciting. But then I had ALOT of pain this week and lose of strength in left leg causing a lot of concern. SO A catscan was done and spread of cancer was ruled out as well as ruling out of a cracked vertabra, or intestnal blockage (yes deal with constipation, but think as of last 2days this may be going in right direction HAHAHAHAHA GET IT) THE pain was because the nerves are regenerating (yes). SO they worked on meds and am going in right direction. HAVE had tried 2 blood transfusions and as of wed 5/17 1am a platelet trnfusins All giving me very bad reaction. SO AS OF NOW CAN NEVER HAVE BLOOD OR PLATELET TRANSFUSIONS (NOT A GOOD THING)
The DR. s at ECMC are working very closely with my DR's AT Roswell so I will be doing 10 treatments of radiation to rest of tumor (surgery got out about 90-95% of tumor) but they are monitoring the tumor which is staying same so working on getting stonger so I CAN WALK OUT OF HERE!!!! We are taking care of issues as they arise. We (RUSS and I are getting plans done for an addition of a 1st floor bedroom and handicap accessible bathroom) even though I NEVER PLAN on using it. Remember I plan on walking out of here:)
So that is what I/we have been up to. I AM keeping my spirits up high and am very determined. The DR's all say I am best spinal cord/Breast cancer Met (RETURN) they have ever had. Yes, I am tough and determined and will make it though this. So feel free to keep the prayers and well wishes coming. Talk to you soon and take care.
Pattie

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Pattie
Elma NY 5/8/05
Mas 6/8/05
9/19 nodes positve