Calling all TNs

bak-- no need to apologise for venting here.  We understand.  I did see a mind lying around somewhere a few days ago, but I've lost mine too so can't remember where I saw it.

DesertMama--Congratulations on finishing chemo.  I had my final one last week, and am also feeling a combination of elation and fear.  I have my "radiation planning" session tomorrow where I'll be scanned and get my tattoos.

(((Bak))) Just think about all the fun things you'll have time to do now!

We got home from Vegas about midnight last night, tired but we had a great time.  I took lots of pictures of the hot air balloon ride and I will post a link to them in the next day or two, when I have time to do a blog entry.  The weather was fabulous, we ate a couple of really excellent meals, and the hotel was a technology marvel.

Desertmama - Congratulations! And may you never, ever, ever get back together with that chemo chair!

Desertmama:  Congrats on finishing chemo.  Enjoy the feeling of getting your body back and healthy again. 

Bak: I can hear your emotion in your words.  I am so happy your DH was supportive and said exactly what you needed to hear.  Luah is right, never look back and just move forward now.  Sending you hugs and support in your choice xo

Bak: I'm so sorry for your pain but so happy that your DH totally supports your decision. I think you did the right thing! Someone on a thread said, don't look back, your not going that way! Move forward! And you will! Take care of yourself!!

Are terrible headaches a SE any of you have had. First chemo was Monday and had a headache all afternoon. Tuesday was ok and I went to work. Wednesday I was in bed all day with terrible headache and it is no better this morning. Tylenol is not helping at all.



My schedule is going to be A/C every two weeks for 4 treatments, then Taxol every week for 12 weeks.

5thSib:  I don't think I had headaches like you describe,  But my head always felt weird and heavy for the first several days after chemo.  Call your Onc today.  Let them know how you are feeling.  Others will be along here soon that may have more insight, too.  But do call your Onc TODAY.  Don't suffer/worry in silence.

5thsib, I head serious woozy head problems for two days after each A/C.  Seemed like I was drunk.  Bright lights and watching TV were a problem.  Third day I was back to normal.  

Brenda, I agree with Luah and Annie - I feel for you having to wear compression garments with the hot flashes.  It is difficult for me to wear synthetics at all right now even in the winter, so take a look at all your "outer garments."((((Hugs))))

5thSib - I get headaches from chemo. Tell your oncologist. It may be from the steroids or nausea meds. They may try to rule that out, by eliminating or changing drugs. You might also as for a script for Ultram. If you can, be still, dark room, no noise with an ice -pack. If you can't manage that - hit yourself in the big toe with a hammer - you'll forget the headache   Hope you are feeling better in a day or two.

EnglisgRose - Enjoy your time off!

Luv - Can't wait to see your photos. I use to have a friend in Charlottesville with a hot air balloon - Magical.

I'm off to our local charity shop, to look for tacky Christmas sweaters, for our silly Christmas card photo.

Wishing everyone a great day!

5thsib: Cytoxin is known to cause head-aches. Probably just a SE but mention it to your onc  - they may have a suggestion. Be sure to drink lots of water -  day before, day of, and 2 days after infusions. 

Hi Ladies,

I have a quick question I meant to ask my Dr yesterday.  I am TN but my grade is a 2.  I have noticed most are 3. I was just wondering why?  It seems that with TN everyone is very similar. 

My surgery is getting closer by the day nervous but I want it done.  Decorated the tree, now on my way down to my oldest daughters for dinner all my kids are here and it is wonderful..

Everyone have a great night,

Carla

Thanks everyone for all the comments on headaches. I called and the nurse said heaches could be either from one of the nausea meds (Aloxi) or the Neulasta (never mentioned the Cytoxan or steroid). They said they would adjust the nausea med next time and they gave me a prescription for Loritab. I doubt I will take it because it always makes me feel nauseated and dizzy. The headache is better tonight, but I still just generally have that "yucky" feeling you have after a stomach virus.

Luv, just looked at those photos and read about your trip.  What a fun time you had!  And what a nice finish to have champagne and a snack after that balloon ride.  And I know what you mean when you say that the strip really beat you up.  I went to Vegas a few weeks ago for 3 nights and we walked from the Wynn to NYNY and my feet and my legs and my back....hell, I guess just about every bone in my body was sore!  All I could think about was how my Grandma could walk the strip when it was a bit smaller....she wore pump shoes and was 80 years old the final time she visited Vegas.  Makes me feel like a whiner!  Thank so much for sharing your trip with us.

OBXK, thanks for making me laugh.  You are a real Pip!

Carla, I have seen a few TNs that are grade 2.  But I think that most of us are grade 3.  But treatment would be the same either way.  When is surgery?

5thSib, glad that you called the Onc.  Keep hydrating. And get rest and more rest.

I found an excellent book written by a college professor who has TNBC. She did a lot of research on the subject and the book is excellent. It is called Suriving Triple-Negative Breast Cancer by Patricia Prijatel. You can order it from Amazon. They have a Kindle version also. I found it to be a very helpful resource.

The following letter was forwarded by someone who teaches at a small high school in country NSW (Australia). The letter was sent to the principal's office after the school had sponsored a luncheon for the elderly.


Dear School,
God bless you for the beautiful radio I won at your recent senior citizen's luncheon. I'm 94 years old and live at the local County Home for the Aged.
My family has long since passed away and I rarely have visitors. As a result, I have very limited contact with the outside world. This makes your gift especially welcome My roommate, Maggie Cook, has had her own radio for as long as I've known her. She listens to it all the time, though usually with an earplug or with the volume so low, I can't hear it. For some reason, she has never wanted to share it.
Last Sunday morning, while listening to her morning gospel programs, she accidentally knocked her radio off its shelf. It smashed into many pieces, and caused her to cry. It was so sad.
Fortunately, I had my new radio. Knowing this, Maggie asked if she could listen to mine.
I told her to f**k off.

Bless you.
Sincerely,
Edna Johnson