Different MLD methods

Options
purple32
purple32 Member Posts: 3,188
edited June 2014 in Lymphedema

Hi all

Someone sugested that I ask this,and I think it is a good questions.  Can anyone give us an idea of some of the different MLD methods now taught ?  ( or even what you use )

I know doing it wrong can actually be COUNTER productive so I think this may be beneficial to all.

I am planning a visit back to my LE therapist for  a true demo/tx since I only had a handout, but I had been following a  youtube video which she very quiclkly told me was 'not good' .

Mine was mild breast truncal which is now also in the fingers/arm.

Input ?

THX!

Comments

  • carol57
    carol57 Member Posts: 3,567
    edited October 2012

    There are differences in the methods our LE therapists learn, depending on which school they go to.  There are several very reputable LE therapy schools, so 'different' does not necessarily translate to 'wrong.'  I watched a Joanne Rovig video, for example, and she does not seem to do any stationery circles, just sweeps.  My therapist (and some other videos I've seen) uses a method of circles moving toward trapped fluid first, followed by sweeps to move fluid away from the trapped area. Sometimes I read descriptions that include the term 'scoop.'  I've never heard 'scoop' from my therapist, and I've never heard the word on a video. No wonder this is so confusing!! 

    Do we know how the various schools differ in their MLD training?  If watching a YouTube video, how can we tell good technique from bad technique, if there are so many differences in what are accepted as effective MLD methods?

    Lots of us have trouble finding therapists who are adequately qualified. Could knowing something of the range of 'correct' MLD techniques help us tell the difference between the poorly qualified and the truly qualified?

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    How about DVDs or even youtube videos ?>
    What / WHO do ppl trust  as someone with the ' gold standard'?

    I didnt like discovering I was doing this all wrong.  I sure dont want to do anything that might make the LE worse .

    Suggestions of DVDs , demos etc ???

  • Binney4
    Binney4 Member Posts: 8,609
    edited October 2012

    Purple, there's a book called "Lymphedema: A Breast Cancer Patient's Guide to Prevention and Healing" by Burt and White that has good illustrated instructions (and a lot of other good information as well). It doesn't pertain to bilateral surgery, but it's clear and reliable.

    Hope that helps!
    Binney

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    Sounds ideal for me actually !
    THX BINNEY

      I get fitted for my sleeve Friday.

  • carol57
    carol57 Member Posts: 3,567
    edited October 2012

    Binney, I was interested in purple's comment that her CLT told her that an MLD method was not good, and that got me thinking that there seem to be many different, but effective methods (not that I believe for a minute that all the youtube demos are based on legitimate, effective technique).

    How do we know if a method we learn is 'wrong' vs. simply 'different'? True, MLD patterns should be customized to our specific LE needs, but do you think it's likely that one CLT who learned, say Vodder, might criticize what I was taught by another CLT who learned her technique from a different school?  Just because she does not recognize its elements?

    Carol

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    http://books.google.com/books?id=nDY5UF0j0S4C&printsec=frontcover#v=onepage&q&f=false

    Here is a 53 page preview of the book Binney just recommended.  Really informative - esp. for newbies like myself. The preview won't show you the MLD of course ( you'll have to order) but great for prevention as well...good tips!

  • Binney4
    Binney4 Member Posts: 8,609
    edited October 2012

    Purple, what video was your therapist talking about?

    Carol, the schools used to be pretty snooty about talking down the others' methods. As a result of that attitude there are still bad feelings among some therapists regarding those from other schools. But in the 8+ years I've had LE I've seen most of them soften on that issue. The one exception would be the Chickley therapists, who claim to "feel" the lymph moving beneath our skin with their hands, and use that to sense the pattern each patient should use. They still tend to look down on other therapists and keep themselves apart from them. Which is not to say they're not effective therapists, only that it'd be better for both public and professional awareness if all our providers could play nice together.Undecided (Please, guys?!!!)

    Last year four of the major therapist schools joined together to form an organization called The North American Lymphedema Education Association (NALEA). The four schools are Academy of Lymphatic Studies (ACOLS), Dr. Vodder School International, Klose Training and Consulting, and Norton School of Lymphatic Therapy. One of the forces that finally brought them together was the need to jointly off-set the lobbying power of the PT and OT organizations who wish to prevent legislation requiring full training for LE therapists. Another factor was the need to provide some kind of oversight of therapists once they're trained and out in the field working (which LANA does not do in any way.)

    All that just to say that the scorn with which an individual therapist may treat the MLD methods of others MAY have more to do with this long-standing competitiveness than with any superiority of one method over another. The major schools (including Chickley's) all agree on the physiology of the lymph system and the principles of physics that apply to MLD. They move fluid in the same order and direction, and they all agree CDT involves the four aspects of MLD, compression, exercises, and skin care.

    The problems come from a few sources, like:

    --therapists who short-cut from what they've learned, or use methods they've developed individually that are not grounded in the physiology of the lymph system

    --therapists who have never been adequately trained and are not properly supervised

    --pop-lymphatic "detoxification" practitioners who use methods created and passed on by people with only a superficial understanding of the lymph system

    Does any of that help?
    Hugs,
    Binney


  • carol57
    carol57 Member Posts: 3,567
    edited October 2012

    Thank you, Binney! Do I understand correctly that the LANA exam is written only, with no hands-on testing? ...meaning there is no 'one' tested method, right?

  • Binney4
    Binney4 Member Posts: 8,609
    edited October 2012

    Exactly. And once you pass the test you're "LANA certified," whether you apply what you've learned and been tested on or not. There is no way, as a patient, to appeal to LANA when one of their certified therapists diverges from standard practiceSurprised. Makes me a little crazy just thinking about it--grrrrrrr!Yell

    One of my "soapbox" issues, so I'll step down now before I get all ruffled!Laughing
    Binney

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    Here it is :
    outube.com/watch?v=8SnayHG-AaQ

    Binney

    Either my posts truly are not appearing or there is some delay on the site.  Sorry if this is a repeat.There is the vid link.

    Mind you, the therapist saw I was (also) clearing the nodes on my bad side which was a big no no .

  • NatsFan
    NatsFan Member Posts: 3,745
    edited October 2012

    Carol - you asked about the word "scoop" in relation to MLD.  My last two LET use the "scoop" when doing deep abdominal work and I do it with my own MLD.  Basically the motion is like scooping sand, cupping your hand and putting the pinky side of the hand against the skin.  If your belly button is the center of a clock, you do deep scoops from 10, 2, 4, and 8 on the clock (basically above each hip bone and under each side of the ribs), pushing the fluid towards the belly button which is the site of that cisterna lymph drain.  (Too lazy to look up the proper word.) It's a fairly firm pressure because you're trying to clear the lymph vessels deep in the abdomen - much firmer than you'd use in the rest of MLD.  Once you've "scooped" the fluid, then you do deep breaths while pressing on the abdomen is a sort of "M" pattern.  I think that's the Vodder method, though it might be Klose - my LET told me last time, but I forgot.  It's been effective for me in trying to manage my truncal LE. 

  • carol57
    carol57 Member Posts: 3,567
    edited October 2012

    NatsFan, very interesting and thank you for the explanation. My LE therapist did not go to one of the recognized schools, and she uses handouts that do not have any attribution on them, so I cannot tell if they're second-hand material that did come from one of the major schools. No scoops, no heavy pressure in the belly button area, just the same gentle clearing circles, followed by light-touch sweeps, that I do elsewhere.  Not sure what to think, but it seems I'm probably not doing as effective  abdominal clearing as I might be.  It's sure frustrating to have to wonder what else isn't as effective as it might be!

  • purple32
    purple32 Member Posts: 3,188
    edited October 2012

    I made an appt with mine for this coming TUES so I will get the full demo, and be able to tell more.

    Interesting.  I did tell her over the phone today that a handout was not sufficient for me to feel confident in doing any of this properly.   We'll see Tuesday!

  • purple32
    purple32 Member Posts: 3,188
    edited November 2012

    Now that I have  a new therapist I wanted to post this :

    In ' her' MLD method, after clearing and some other steps, she has you starting at shoulder and going down ... to hand.  THEN ( unlike first therapist) she has you some UP (from the hand ) back to the shoulder cap 3x  < and eventually to the cleared area>

    Do others follow this method where at some point , you are at your hand and going upward ?!

    Interested !

  • purple32
    purple32 Member Posts: 3,188
    edited November 2012

    but always in an upward motion.

    I NEVER RUB DOWNWARD TOWARD THE HAND."



    YES!  Thank you for clarifying.  Yes, I do - but then she has me go back up in the same circles . Have never seen the sweeps.  If anyone knows of a youtube that shows the sweeps I would like to see. Pls post.


    THX!

  • purple32
    purple32 Member Posts: 3,188
    edited November 2012

    RE: Online videos

    I'm very annoyed that my ins co (and I ) pays for MLD , but my lE therapist has done  NO hands on, and  I am reading her directions  for self MLD and always second guessing myself. I feel like I may as well be following a  youtube !
    Having said that, I think  this may be dangerous.

    For example, here is one -  www.youtube.com/watch?v=3PmHua...

    Seems crazy, no ?  Why is she pumping the underarm of the affected arm ? Is this correct ? And 50x ?(yikes)

    I would love to know what others who are very confident in their MLD feel about this video, and I would also like to know if anyone has found a decent youtube that might be helpful rather than harmful.  I  really need a visual.

    I am getting very concerned about these different methods.

    THX

  • carol57
    carol57 Member Posts: 3,567
    edited November 2012

    Purple, I am not able to see the video at this time, but I suspect that pumping under the arms is node stimulation, which is a part of my MLD routine. Fifty sounds like a lot. I do twenty on each side.

  • kareenie
    kareenie Member Posts: 339
    edited November 2012

    I think the point was that the lady in video (massage therapist not LE Therapist) pumps under the affected arm.  I was taught to pump under the unaffected arm only.  Then to bring the fluid across top of chest from affected toward unaffected axilla drain. And to pump inguinals on affected side and bring the fluid down affected side toward the inguinal drain (affected side).

    So, yes, purple: not all videos on youtube are necessarily correct or appropriate for LE patients.

    And yes your LE therapist should be performing hands on MLD as well as teaching you how to do self MLD.

  • purple32
    purple32 Member Posts: 3,188
    edited November 2012

    But Carol---- on the affected arm?!

    kareenie ... thanks. I am starting to feel like a leper~

  • carol57
    carol57 Member Posts: 3,567
    edited November 2012

    Purple, yes on the affected arm, possibly because I lost only a few nodes, so the remaining ones can still do their job. Also, a friend lent me a Joann Rovig dvd demonstrating MLD, and I am pretty sure that she too shows node stim in the axilla on both sides. And all of this just goes to show that there is no one MLD formula, and that we have very little to go on when trying to figure out if our therapists are competent. My therapist did not go to one of the major schools, and I do have some questions about her knowledge, but like many, my options are well...no other option unless I drive a good distance. So I understand and share your frustration.

  • purple32
    purple32 Member Posts: 3,188
    edited November 2012

    possibly because I lost only a few nodes, so the remaining ones can still do their job.

    I too only had 2 nodes taken.  However, when I went to the first therapist, I showed her what I was doing in accordance with a youtube video and she IMMEDIATELY said "  NO NO , never ever stimulate under that arm!"
    It stunned me.

    Then, sure enough , this newer therapost handout has me circling under the "good arm" to open up  those pathways for later ' dumping' .

    I dunno'.  I am just concermned about doing MLD and actually making this worse !

  • purple32
    purple32 Member Posts: 3,188
    edited December 2012

    What do you think of this :

    http://www.youtube.com/watch?v=y3XmxosrPqA

    seems odd- going very fast under the axilla to stimulate nodes.  He also suggests oil ( ?)

    I would love to see ppl post their comments here based on what they have learned thru good MLD LEists .   I personally think it really warrants discussion.

  • purple32
    purple32 Member Posts: 3,188
    edited January 2013

    So I called  a nearby wellness center today because they had some " lymphatic detox' advertised.

    I am very happy with my LE'ist, but also curious.

    The woman called me back and said she went to that CTR monthly to do detox sessions.  She said she could help me with nutrition, supplements and wellness advice for a fee ( no thank you)

    I asked her if she worked with LE pts and she said sometimes.  ( a little skeptical)

    One things she did say was what the very very best thing for  the lymph system to move fluid was a  rebounder.  She claimed it would move fluid " Fifteen times more " than any massage.


    Ok.


    She said she does a light massage , but she clears pathways first.  ( yep)  She asked me about MLD and I explained.  She said hers is far more extensive and goes to the backs of the knees and pretty much where all lymphatic channels are so the  problem area can better drain.

    She is a massage therapist, NOT a  PT.

    Some of what she said  made sense .  Some was questionable.  I'm not going to her, but would love to know ...what do others think ?

    She said perhaops I could just " give her  a try".


    Nope. No ' trying' / chancing it with LE.

Categories