MIDDLE-AGED WOMEN 40-60ish
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Well I was pages behind finally caught up on post and now I can't remember what I read.
I was to having surgery this Friday and Monday they called and wanted to know if I could do Tuesday afternoon. So yesterday I had surgery. My implants were bottoming out so the PS had to remove the implants do a bunch of internal stitching to support the implants better, then the implants were put back in. Alloderm was used at the time of BMX. PS said I would be much more sore than exchange and boy was he right. The pain is finally under control but last night was kinda rough. The anaesthesiologist was wonderful and gave me extra stuff to keep me from being nauseated and it worked. I never got sick. I did not get drains but I can hear the swishing from the fluids in the breast. I spoke to the nurse and she said that is pretty common and should absorb in the next couple of days if not to give her a call. I see the PS next Tuesday.
Eli glad you got the port put in and hope the results of the pet scan are good.
Welcome newbies. I wish I could remember your names but with trying to catch up on reading I forgot. This is a great place to hang and to get support. Never feel bad about asking questions. We are here for each other.
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Oh dear !
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Sherry, that sounds majorly un-fun. I hope you feel better soon.
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Love your attitudes and thanks for the replies . When you survive your house and life crashing around you it gives you a totally different perspective on EVERYTHING . We never notice how much of our lives and precious time we waste on "stuff " . I have not given up on chemo and as it is one of the options I know I will have to ENDURE it my point is Why ? What does the chemo give me ? Extra time ? All the research and people I have talked to have said Yes the chemo does destroy the cancer YAY ! But in the process it destroys every thing else as well . Is that quality or quantity.How do I know I would still have that extra time without the poison in my body ? I have a friend that is diagnosed with prostrate cancer he was given months to live 7 years later and he is still here .It reminds me of when I was a kid and my foster mother made me eat brussel sprouts to which even today I hate them ,but I still ate them because supposedly they were good for me .I am presuming that of course once I finally meet the oncologist that is going to give me all the options I will change and all my preconceived ideas will be gone . I want you to know that I do appreciate this maturer aged forum as I am pretty sure if I was younger my attitude to this enemy within would be totally different . I hope you all understand that I am speaking for myself and absorbing all input .There is definitely not a closed mind here just an enquiring one .
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vanstrada, I think a lot like you but with 5 cm of cancer and 2/2 nodes positive, they might put you first in line for chemo!! BUT, in North America there is an Oncotype test to determine if chemo will even do you any good. Is it available down there yet?? Some cancers grow slower than others and as chemo only kills actively growing breast cancer those who are growing slowly won't even be killed off. If, on the other hand, your onc determines that your cancer is fast growing (hint: you are grade 2 already!) then chemo would kill off the cancer. Get all the info you need to make a decision you are comfortable with. I didn't do chemo, without an oncotype test, but my cancer was only 1 cm and I only had micromets in my nodes. I didn't do rads either as I opted for a bilateral mastectomy and am happy with my choices. That's the point. You have to be happy with YOUR choices but you WILL get input from us. We just can't help it!
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Vanstrada--to add my 2 cent's worth, pay attention to what your gut tells you as you evaluate the info the onc gives you. I made the decision to have a lumpectomy and rads based on recommendations and the medical opinion that saving the breast is best. My gut wanted a mastectomy. I wound up having a mastectomy anyway because of the side effects of radiation. I decided to have a single mastectomy based on research and recommendations when my gut wanted both gone. I was happiest when I followed my gut and had the other breast removed during reconstructions. Sometimes what you will feel most comfortable with is not what the medical community thinks is what women should want. If I'd followed my gut I would have saved myself 3 years of treatment hell.
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Welcome vanstrada54 - You have certainly been through a great deal this past yr. You will find a great support system from people who have "been there, done that". There is a lot of info to absorb as you make your decision, and it is your decision to make. You will choose what path is right for you. An enquiring mind is a good thing to have.
Eli - hoping and praying for good results from your PET. I had the same thought that Momine had about 5FU - FU cancer x 5!
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Lol I am depending on that input !
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Barbe, I doubt that even in the U.S., where OncoDx is becoming "standard of care" for early-stage cancer, that they very often give it to women with a 5cm tumor. A tumor of that size has more or less proven it's aggression just by the fact of getting that large, without it having been noticed before. (Just as a generalization there.) One day there just may be better indications for all B/C types whether chemo, rads, even hormonals are worth our while, but for right now there is still a lot of guesswork about who responds to what.
In my reading, I believe the chemo I'm about to do achieves some shrinkage in all but about 12% of women. So, I'm taking a gamble and hope I can manage to wind up in the Good Shrinkers Club. Chemo is not a sure thing for anyone. It IS a gamble. If only we could get a guarantee, the decision would be a lot easier to make.
Oh, and if that is what 5-FU means, they can just give me give me the 10-FU already!
vanstrada54, I was just hoping that you could put aside any preconceptions because how you will respond to chemo is unknown until you do try it.
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I figured that elimar, also with 2/2 nodes positive, they'd recommend chemo. But if vanstrada demanded a test....????
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Barbe, The results would not be accurate because she falls outside the parameters of who the test is tailored for. What I mean is she is outside the data group that the results were built upon.
I wonder if the Adjuvant Online (Physician's software prog.) tool would be a good predictor for benefits of chemo for you, vanstrads54, or whether or not that is available in AUS?
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Eli- I never felt that bad from the Flouracil infusion. It was the Cytoxan that made me feel like crap and lose my hair. After the first couple of infusions I did need to eat crackers and take the nausea pills, but I think I got used to it. The 14 days of the Cytoxan were the toughest. I hope you do fine with it.
I had my 1st Post chemo check up today. It has been 3 weeks and all my blood counts are normal
. I did have the left foob deflated today. It looks like a flat tire. My friend came with me and said it looked like a reindeer stepped on it.
CT and mapping tomorrow. I hope it has improved since round one 8 yrs ago. It seemed like the guy doing the mapping was taking his sweet time. I couldn't move for 45 minutes. I thought my arms were going to fall off.
Welcome to all the newbies. Sorry you are here, but we are all in it together. I am so far behind on all these posts. If I ever get a day off without an appointment I will be able to catch up.
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NativeMaine, my sentiments exactly!!
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Diana, a reindeer? Your poor boob.
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Thanks for all your replies and as a matter of fact I have realised that everything happened so fast I haven't had a chance to catch my breath,but thanks for all the advice . I have a appointment with the oncologist next week and then all will be alot clearer. I have had bone scan CT scan Echo scan blood tests and the oncologist will base their opinions on all that . Very early days for me and I need to learn to relax and have patience . As Marion my breast care nurse told me I have been dumped in a foreign country and I am totally clueless because I don't understand the language and she is right ! Even in the forums here I get confused ! But everything is education and that is what I am looking for to make the best decision for me . I really do appreciate all that you tell me it just takes a while to be absorbed with all the other stuff I am dealing with at the same time . Waving from Gorgeous Gatton in Qld .
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Lol I miss the like button too ! Getting used to my way around a forum .
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Dianarose -
that article made me want to cry. I'm looking at a PMX 2 1/2 years after MX because I'm quite lopsided. Bras cut into my shoulders and cause pain issues. I consider just getting breast reduction, so that I could go bra less, but with reduction you are left with breast tissue that will need to have mammos (at least yearly), and I'll still be lopsided. If I go with the PMX then I can go with or without prosthesis, and no more mammos!!! I realize that it doesn't decrease my risk of recurrence, it does decrease my risk of another primary tumor, but I believe the convenience and comfort is really important. YIKES!!!!!
Wavewhisper - I met two women during my Reach to Recovery training that had just been diagnosed with LE, both were 20 years post treatment!
Boy this forum was busy over the last day - and just when I'm out of town, makes it hard to keep up!
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Having the mastectomy as Sharon Osbourne said was a no brainer !At my age I didn't have any qualms or concerns about that . Its just all this added stuff that is the challenge . In my naive little world I just figured breast off cancer gone and Life goes on ! All these tests and options weren't even part of the picture ! Being sore 3 weeks later and flopping around because I can't wear my new bra yet is a adjustment I hadn't counted on but I am getting there !Very early days and A work in progress taking small steps gingerly ! Marie waving from Gorgeous Gatton
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vanstrada54, At the top of this thread (under the little Cheetos icon) is a link to "Abbreciations for Newbies." Take a look and it should help you with some of the shortcuts we take with our B/C lingo around here.
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e, yah I figured that, but no one only likes two options - do or don't do....sigh.
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How lumpy is this port supposed to be; and how long is it going to HURT?
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E-my lump was fairly pronounced for most of the time I had it, but eventually the skin heals & the it seems to reduce some. Mine hurt for quite awhile as I ended up with a bleeder that caused ginormous swelling & I had to have a 2nd surgery, so I was painful for at least 10 days.
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Thanks Eli.
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Barbe, I had severe changes from radiation that left several hard spots under my skin. Surgeon wants to see them in person every 6 mos, and I get an u/s one time, a mammo the other time. There have been other breast changes in the affected breast - all benign but two requiring biopsies. I am totally not worried about recurrence, I'm just very glad I have a doctor I trust to be proactive for anything that shows up. My rose colored glasses are only intended as a way of saying I have not thought I "have" breast cancer since the day of my last radiation. And there's no way in hell any post of yours could ever piss me off ... we may too much alike
And for the record, I share the thoughts of "why not me?" and always did. I wasn't the least surprised when they told me it was cancer. In a totally odd way that I'm hoping someone else might understand, it was almost a relief.
Diana, I had my pocketbook stolen yrs ago and had to do that dance, and then jsut a few yrs ago had my identity compromised and had to do a harder dance! Both times it was just aggravating - lost no money, just many hours to fix. So I totally commiserate with you hon.
Marie, welcome to our room. I hope you spend lots of time with us. I totally agree that we are are responsible for our choices. I can't help but give my opinion though that to throw in the towel at 58 is a bit severe if you are otherwise a healthy woman. Chemo can be tough, no question about that, but I truly think the majority of us who had chemo would tell you that it is doable. If your doctor feels chemo increases your chances to avoid recurrence or a new occurence, please take some time and think about it, ask about it, talk about it. Just keep that door open for a while, okay? Whatever you decide though, we'll be here to listen and support. Also, there are threads which talk about holistic/natural options instead of chemo. I just don't like thinking of you doing nothing more at all.
Wave - I'm not the poster that Valjean was talking about, but I did develop LE 2.5 yrs after the end of treatment. I had 13 nodes removed (all neg) and radiation. Happy to give more info through PM if you'd like, including ways to minimize your risk as much as possible.
Eli, I've always thought you were a glowing force. Now I have proof
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If you don't mind what were the side effects of radiation that you couldn't tolerate. I too refuse to do chemo and my DX score is 34. I actually think I'm just going to pray alot and hope for the best with nothing more than the surgery I already had.
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LorAll, As an individual, just having surgery might be all you need to do to be done with cancer, but statistically you do have better odds for it not to come back if you follow-up with radiation and something systemic (chemo or Tamox., maybe both.) Has your doctor provided you with the percentages of benefit you could receive from each kind of therapy? This is usually done by what I have mentioned above, the Adjuvant Online software. You already know that your OncoDx score suggests you will benefit from chemo, and I can tell you that most with a score of 34 would not pass on the chemo.
I will never say I liked any of the treatments, but I wanted the advantage they gave me to live cancer-free. That's about it.
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I was prepared to be told I had cancer when I went in with my lump in 2010. When they said "scar tissue" nothing to worry about. I believed them. So when I went in for a "routine" mamogram in 2012, and that same lump I wasn't worrying about turned out to BE cancer... well I was shocked and dismayed.
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Eli, I am with you on that. The treatments were sometimes difficult, but most of the time it was anywhere from tolerable to OK.
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Cindyl, Even tho' I knew I had "a problem," I still was a little stunned to hear that I had CANCER, because both times I had the false sense of security of having had recent scans that were "all clear." Ha! Guess not. In your case, as quick as they usually are to jab a leather punch (er, core-needle biopsy tool, I mean) it is surprising that they didn't biopsy that scar tissue, just to be on the safe side.
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I've been a busy little Middle already this morning. My PET on Weds. caused some commotion over some uptake in my rt. thyroid. Just went for US to find out if it is nodule (no biggie) or node (not good.) The tech "unofficially" felt it was nodule. Great! Who cares about a little nodule that they might check every now and then in the future? Now while I was at the Imaging Center, I got a copy of the PET report. No surprises. Uptake for rectal area, of course. Liver was clear. Big news that the (eek!) enlarged lymph node in my treatment-side chest had no uptake at all. Yip, yip, yippee! Time to lace up my Happy Dance shoes.
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