Winter RADS 2012 Club...Please come join the fun!

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  • Andrea623
    Andrea623 Member Posts: 959
    edited November 2012

    Yay, had 13 of 25 this morning. I'm halfway through!

    dventi, I think it's a matter of personal preference. The Miaderm does have calendula in it, although it's pretty far down the ingredients list! I've been using it since day 1, and so far so good!

    This no shaving thing has really gotten old. The hair irritates the skin where I had my SNB, when it rugs against it. Has anyone else experienced this?

  • allurbaddayswillend
    allurbaddayswillend Member Posts: 355
    edited November 2012

    outdamnedspot, hmmm. My MO is prescribing the tamoxifen for me next week, I just finished chemo on Nov 20th and he said he'd write the prescrip on the 27th when I go back in for a check up. My rads should start mid-December. I will try to remember ask both him and the RO about simultaneously having rads while taking tamox.

  • Outdamnedspot
    Outdamnedspot Member Posts: 297
    edited November 2012

    Allur...I'm thinking that I will continue to take it.  I posted this on the Canadian thread as well and quite a few ladies responded that they took Tamoxifen or an AI then did rads.  I feel good and don't want to have to start over on it a month later.

  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    Loveofcritters, I know what you mean about holding the thumbnails on with a bandaid! I walked around for six weeks with bandaids in my pockets, constantly forgetting to take them out before wash day. What a pain. Most of my nails are almost grown up to the tips now. It will be nice to be able to pick up change and sewing needles again, not to mention typing and texting. Hope you are still holding up under the rads- 11 down now, right? I now have developed lymphedema, but it was not unexpected given that I had 23 nodes removed, am overweight and always develop every possible side effect..... I see the lymphedema specialist on Tuesday...fun, fun fun.

  • loveofcritters
    loveofcritters Member Posts: 39
    edited November 2012

    cowpower: Oh no. I'm sorry to hear you have to deal with lymphedema now. Let us know what your specialist says ok? Yes, I just finished 11 of 31 treatments. So far my breast is pink and I have very little fatigue (hardly worth mentioning) and my esophogus is sore, like acid reflux during chemo.

    Aruba: When I asked about the swelling during one of the doctor visits each week they put me in touch with a nurse who educates the patients about lymphedema. I don't think that she is a specialist, but I will let you know after I meet with her. She did give me some literature to read and it was informative...I guess we have to be our own doctor these days. Frown

    lifeonitsside: Thanks for the idea about the nail polish to keep the nails on. Its too late for mine, but I hope that others will see your advice and take it! I wish I had known. I would not have believed how painful it is as the nail breaks off on 2 sides only and hangs on to the last and then the nail underneath grows back while cutting into the fresh skin. ouch!

    Andrea623: Another poster on the fall rads said that she tweezed any stray hairs under her arm and around the scar and they came out very easy. I have noticed a couple and thats what I did too. But for the most part the rads have taken care of the hair on that side and unbelievable but the unradiated side has no hair either. Maybe its still from the chemo... I don't know. I wish the same were true for my hairy legs though!

    dventi: Ok, its your first treatment. Have you been loobing the boob for the last few days? Don't be surprised if you are a little emotional, ok? Remember to take your lotion/gel and apply it right after the treatment before you get dressed, and again during the day. But never apply it just before a treatment. It has to absorb into the skin. Let us know how you did.

    Dianarose: That is a real kick in the butt to have to do this again. It can't be easy to face after 8 years. Again. I hope that there will be minimal SE's and that with a little "help" on that left side you will look lovely in a cute dress. You may be done before the end of the year? I hope so. You deserve a new beginning in 2013.

    Sending love and peace to all of my rads sisters as we endure what we have to, to live.

  • teeballmom
    teeballmom Member Posts: 322
    edited November 2012

    Hi everyone!



    Finished Taxol this past Weds (will be on Herceptin through most of 2013), saw my RO this past Friday, get simulated this Tues and then it looks like I will begin on either this Friday or next Monday. Was looking forward to a break but it doesn't look like I will get one. I will get 33 treatments.



    I really like my RO. He was joking a little about how the hospital tries to make it a spa experience for everyone getting radiation. First they have valet parking to get you in and out, they have a nutritionist for you and then a massage therapist. Oh well.



    Take care!

  • loveofcritters
    loveofcritters Member Posts: 39
    edited November 2012

    teeballmom: ohhhhhh I soooooo wanna go to YOUR center.........heaven..................

  • sonson
    sonson Member Posts: 162
    edited November 2012

    internutz1-that's great that you haven't had any SE's during chemo...wish I could say the same for myself.  Plus what a wonderful thing to look forward to!  I'd want to get the rads over with as well if I had that to look forward to.

    Lifeonitsside-I did the ice for the nails instead of the polish, but I had heard of the polish too.  I'm hoping that the ice works also.  I didn't know it was light that caused the nails to fall off.  I also ate ice chips while getting the chemo and it seemed to help with the mouth sores and swollen gums. 

    bexH-that is sweet about your kids.  My daughter who is 15 likes to rub my head.  I never lost all of my hair.  I still have a bit of hair on my head and she loves to rub it.  I don't have any growing back yet since my last chemo was on 11/14, but hopefully soon!

    So I went back to my MO and my blood counts are all low so I still don't know when I will be starting rads.  He has me on antibiotics just in case I come across someone who has some nasty bacterial infection although I didn't dare go shopping during black Friday.  I can't stand the crowds anyway.  Hopefully my WBC will be back to normal this week and we will at least have an appointment to meet with the radiologist.  Even though I had those nasty nuelesta shots my blood counts still would go down every single time I had a treatment.  I'm so glad chemo is finally over and I can't wait for my taste buds to finally come back...not to mention my hair.

  • Lifeonitsside
    Lifeonitsside Member Posts: 250
    edited November 2012

    Today's my planning meeting with the RO and get my tattoos and CT scans, etc. Will know the plan after today. Probably starting rads next week.

  • Chickenlady
    Chickenlady Member Posts: 22
    edited November 2012

    Well, I started rads today, one down, 19 to go.  Had lumpectomy and SNB Oct 1. So... I've always had weakish shoulders, and honestly, I thought my arms were going to fall off having them over my head for radiation. Other than that, am feeling mostly fine.

  • KrisLiz
    KrisLiz Member Posts: 26
    edited November 2012

    Hi Winter Rads Ladies!

    I hopped over here from the Fall Rads thread (I finished my treatments about 3 weeks ago) to share a lotion I used that really kept my skin side effects from getting too bad. I'm fair-skin, light hair and blue-eyed, so my RO kept telling me that I should expect some more severe side effects. I was so nervous about how badly my skin would be affected, so I started searching for a lotion to use that would hopefully keep my skin from burning too badly. I stumbled across a two-time BC survivor who has had radiation, and she now makes and sells lotion that is for radiation and is paraben-free. Her company name is Jean's Cream (and if you have the mind of a 13 year-old like I do, I always chuckle when I say that), and I used it multiple times daily from the start of radiation. I had some mild pink "burns", but other than that, my skin held up really well. I'm 3 weeks out from treatment and my treatment side looks nearly the same as my non-treatment side. I would recommend this lotion to anyone! Below is the website for ordering or finding out more about this product if you're interested:

    http://www.jeanscream.com/

    I have no affiliation with this company, I'm just sharing something that worked for me! I hope all of you are coping well with treatments. (((hugs))) to you all!

  • fhny2012
    fhny2012 Member Posts: 41
    edited November 2012

    Hi ladies,

    It's my first day of rads today - going after work.  Armed with Calendula and Biafine, and planning on wearing a cotton t-shirt etc.  Trying not to be nervous! 

    Hope you are all feeling great, and thank you all for the great advice re: getting through this.

  • Chickenlady
    Chickenlady Member Posts: 22
    edited November 2012

    I've been just cold all afternoon... not sure if it's because it is just COLD... but I'm wearing two sweaters... or is this a side effect?

  • dventi
    dventi Member Posts: 171
    edited November 2012

    started the 3 week protocol today....RO is 10 a minute walk from my office.  Total time to and from appt was 1 hour... worked out well.  Calendula'd the left boob right after tx and will lube tonite    will keep you posted. 

  • fgm
    fgm Member Posts: 831
    edited November 2012

    I was in the August 2012 chemo group.  I'm done with chemo Laughing and will begin rads on December 6.  So I thought I'd jump into this group and join the fun.  Today I got setup and my tattoos, which didn't hurt at all.  

  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    Chicken and those just starting out- the days in the "done" column add up fast.... did 12 of 33 today and it will be half done by Friday. It does seem a bit like groundhog day, but the quick in and out makes up for it. Also, it gets less strange and imposing as time goes on. I am told the actual treatment time gets shorter toward the end, too. Keep plugging away!

  • Andrea623
    Andrea623 Member Posts: 959
    edited November 2012

    Just had 14 of 25! Eleven more to go! You can definitely see the rads field. I have a pink rectangular shape on my side!

  • Loneskier
    Loneskier Member Posts: 44
    edited November 2012

    I get my setup mapping tomorrow with tattoos.  I have 35 treatments.

  • fhny2012
    fhny2012 Member Posts: 41
    edited November 2012

    Andrea623 and Cowpower -congrats on being so far in!

    I had my first appt and just lubed up with Calendula - and my side is already a little red! I can't tell if it's from the Calendula or the rads...has anyone else experienced redness after day one?

  • heidismom
    heidismom Member Posts: 38
    edited November 2012

    Andrea and cowpower: I'm with you two....14 of 33 yesterday and will hit the halfway mark this week! It's gone fast. And Andrea, I also noted the edges of the radiation field is clearly visible now. Pink but only discomfort is the nipple. Someone mentioned nursing pads once, may do that. It's been 17 years since I've even thought about them, haha, but this experience IS reminiscent of the old nursing days in ways with the nipple issue and slight swolleness, giving the breast some "air". Still lotioning 3x day too.

    Meeting with my MO this morning to discuss hormone treatment, ugh don't want to do it.

    fhny : my experience is no pink right off the bat, but we all have different sensitivities. If it is itchy too I would suspect the lotion. Don't hesitate to ask someone at your center, they've seen everything! Good luck to you, it really isn't so bad, the people at these radiation centers seem to all be so great at making it easy.

  • ro-berta
    ro-berta Member Posts: 134
    edited November 2012

    good morning ladies first of all hang in there the time will and does go by fast for rads. I hope you don,t mind my jumping in, i am 3 mnths post rads myself. Anyways I see that some of you are starting to have some nipple painect. so I thought I would offer my 2 cents worth here hahaha. Heidismom I had issues with my nipple ( and still do) that doesn,t mean you will have you girls all know everyone has different issues and effects, Should any of you ladies have  a lot of discomfort and pain (ei: clothes rubing on nipple and extremely sensitive nipple ect.) after rads I purchased from a mastectomy store " bra pads" they are very afordable come in a package of 2. They are very soft. The thing about these pads is that they have an indentation on the inside for the nipple. It fits like a glove and my nipple doesn,t fill the indentation so it gives a space between nipple and pad hence nothing touches the nipple cuts the pain and irritation to almost nothing. I did not use it till after rads as your boob  well mine anyways was dry and irritated during rads but it deffinately made a difference after. I continue to wear it as I am still uncomfortable. The pads come in many different sizes and is very light abd soft. So I hope this info helps and you ladies take care and remember every day is one day closer to the end and all those buggers are getting zapped!!!

        roberta

  • cwsterling
    cwsterling Member Posts: 18
    edited November 2012

    Glad to be joining to Winter Rads group! I finish with chemo tomorrow Laughing and meet with RO as well. My MO said I will get a 2 or 3 week break and then begin in December.  I am nervous about how tired it will make me and how it will effect my L arm-already have very mild lymphedema issues which great PT's have treated. I want to go back to work, I am a physical therapist and do lots of work with my arms.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited November 2012

    Hello rads sisters,  I am going thru' rads a second time, but this time from the opposite end since I just got a Dx of colorectal cancer.  I don't plan on going into detail about it, since it's not for breast.  I do have my sim today.  Will start Dec. 3rd and have 25x.  Unlike for breast, I will be getting rads at the same time as doing chemo.  Hope I don't get a worse skin reaction because of that.

    I did fairly well back when I had 33x breast rads., just using the 100% aloe vera lotion.  Yes, I got the rads tan, but no blistering and just a little peel at the very end after the boosts. 

    fhny2012, I would guess that your pinkness is contact dermatitis from the Calendula lotion.

    Happy to see the change of listing rads groups by season, rather than by month.  (When I first did rads back in 2009, it spanned over three mos. anyway.)

  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    Fhny, andrea,etc. Today was number 13- seeing some pink now and feeling a bit tight. My center is prescribing pure aloe gel only. Seems to work so far- my skin is super sensitive- all side effects from surgery and chemo were skin related, right down to the darn tape allergy! I also got to see the lymphedema specialist today. I am currently sporting lovely compression bandages hand to shoulder on the left side This must be how they make the compression sleeve look better to us:)



    Welcome cwsterling, elimar. Ro berta thanksfor the encouragment.

  • Andrea623
    Andrea623 Member Posts: 959
    edited November 2012

    cowpower, my skin is sensitive too, but it has been since I had my bmx. The lovely pink rectangle is quite the thing to see though! I've been using Miaderm, but last night put on a light layer of Aquaphor. Yuck, talk about thick, goopy and sticky, but it did help ease some of the discomfort. I hope I won't have to use it very often. Since my surgery, I don't have any nipples to irriate, but the skin below my right incision is still very sensitive. Hope it goes away soon.

    And hooray for those of us halfway through! Let's hope the second half flies by with few side effects!


  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    Andrea- since I have opted not to have reconstruction, my area isnt a rectangle, but more of a blob. Maybe an ameba? My next line of defense against the irritation is aquaphor, which I hear works well in spite of the ick factor. I purchased some cheap cotton sports bras at walmart today for if more irritation starts. Hoping I can insert my prosthesis in there somehow or I am going to paint some lovely picture between the large middle aged sag on one side, no boob on the other, the baldness, and the compression bandages! Suffice it to say I never leave the house "on the spur of the moment" anymore:)



    Are most of you "halfway" women doing ok re: energy level? So far I think I am continuing to have more energy because I am recovering from chemo, but I knoe this will probably change soon.

  • Andrea623
    Andrea623 Member Posts: 959
    edited November 2012

    cowpower, an "amoeba"? LOL! That made me laugh! I had purchased some cheap Fruit of the Loom sports bras at Walmart right after my BMX. Or rather, I sent DH to buy them! He wasn't sure what size to get and brought home quite the assortment, which actually worked, depending on how sore I was on any given day. Right now, I just wear Jockey Luxe camisoles, because my skin is uber sensitive, and anything else feels like sandpaper on it. 

    I am starting to feel fatigued. Today I felt like I could have slept for hours by 11 am. I hope the fatigue doesn't get any worse, because I don't want to miss any more work, and falling asleep there would be a very bad thing. Someone told me to be sure to drink plenty of water, so I'm going to try that and see if it helps.

  • cider8
    cider8 Member Posts: 832
    edited November 2012

    Tomorrow I meet with my RO for consult and possibly simulation. My husband and two daughters are home sick with the flu! I did not get a flu shot; it didn't even occur to me. I don't have it yet and I hope I escape it somehow. Husband was going to go with me, at least for the consult. Not anymore! Fortunately they are all very lethargic, so it's still quiet.

  • cowpower
    cowpower Member Posts: 293
    edited November 2012

    Andrea- your dh must shop with mine:) I just brought a bunch of too small camis to our local church thrift shop. Just glad I have someone to send to the store...Trying to stay hydrated does help, I am finding the tamoxifen and/or rads dry me up like a raisin. I am lucky to be at home these days so I could nap if necessary. Nobody to see me slump at my desk.

  • loveofcritters
    loveofcritters Member Posts: 39
    edited November 2012

    Hello everyone. Today is 13 of 31 for me. Yesterday the appointments were running late for the second day in a row. This is very hard for someone who is trying to work and do it on their lunch break. Don't they realize that my job is what PAYS for the frickin' treatments!!!? I got testy and one of the younger nurses got snotty. Not a good experience. I am there on time, and I sure wish they would be. My boss will not be understanding and look the other way. If this keeps up I will have to stop the treatments. Depression again. Damn damn damn!!!!!

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